Ukutholakala kanye ne-RRMS: Okufanele Ukwazi

-Delile

• Ukwenza ikhaya lakho litholakale kalula
• Izinhlelo zokukusiza uthole izindlu ezifinyelelekayo
• Izinketho zezezimali zokuguqulwa kwasekhaya
• Ukwelashwa emsebenzini
• Ubuchwepheshe obusizayo bomsebenzi
• Ukuthatha

I-Multiple sclerosis (MS) yisimo esiqhubekayo futhi esingahle sikhubaze esithinta isistimu yezinzwa ephakathi, ebandakanya ubuchopho nomgogodla. I-MS wuhlobo lwesifo esizimele lapho amasosha omzimba ehlasela i-myelin, isembozo esinamafutha esizungeze imicu yezinzwa.

Lokhu kuholela ekulimaleni nasekulimaleni kwemizwa, okuholela ezimpawu ezifana:

• ukuba ndikindiki
• ukuncinza
• ubuthakathaka
• ukukhathala okungapheli
• izinkinga zokubona
• isiyezi
• izinkinga zokukhuluma nezengqondo

Ngokusho kweNational MS Society, cishe abantu abadala abayisigidi e-United States bahlala ne-MS. Abantu abangamaphesenti angama-85 abane-MS baphinde babuyela emuva futhi bathumele ama-multiple sclerosis (RRMS) ekuqaleni. Lolu uhlobo lwe-MS lapho abantu behlangabezana nezikhathi zokubuyela emuva kulandelwa yizikhathi zokuxolelwa.

Ukuphila ne-RRMS kungaletha izinselelo zesikhathi eside, kufaka phakathi izinkinga zokuhamba. Kunezinsizakusebenza eziningana ezingakusiza ubhekane nalesi sifo.

Kusukela ekwenzeni ikhaya lakho lifinyeleleke kangcono ekuthuthukiseni impilo yakho yansuku zonke, nakhu okumele ukwazi ngokuphila ne-RRMS.

Ukwenza ikhaya lakho litholakale kalula

Ukuvumelanisa ikhaya lakho nokwenza ngcono ukufinyeleleka kubalulekile ekugcineni ukuzimela kwakho. I-RRMS ingenza imisebenzi yansuku zonke ibe nzima, njengokukhwela izitebhisi, ukusebenzisa indlu yangasese nokuhamba ngezinyawo. Ngesikhathi sokubuyela emuva, le misebenzi ingaba nzima kakhulu.

Ukuguqulwa, ngakolunye uhlangothi, kukuvumela ukuthi uhambe kalula. Futhi, bakha indawo ephephile futhi banciphisa ubungozi bokulimala.

Ukuguqulwa kwasekhaya kuyahluka ngokuya ngezidingo zakho, kepha kungafaka:

• ukunweba umnyango wakho
• ukukhulisa izihlalo zakho zangasese
• ukufaka imigoqo yokubamba eduze kweshawa yakho, ubhavu, nendlu yangasese
• ukwehlisa ukuphakama kwamatafula
• kwakha isikhala ngaphansi kwamatafa ekhishini nasezindlini zokugezela
• ukwehlisa ukushintshwa kwesibani ne-thermostat
• ukufaka ukhaphethi ngezitezi eziqinile

Ukufaka i-wheelchair noma i-scooter ramp nakho kungasiza uma udinga ukusebenzisa usizo lokuhamba. Uma unosuku olubi ngenxa yokuvuvukala noma ukukhathala, izinsiza zokuhamba zingakusiza ungene futhi uphume endlini kalula futhi kaningi.

Xhumana nenkampani yezixazululo zokuhamba ekhaya endaweni yakho ukuze nixoxe ngezinketho namanani entengo. Izindonga zihluka ngosayizi nemiklamo. Khetha phakathi kwezakhiwo ezihlala njalo futhi ezigoqekayo, ezingasindi. Ungangeza nokuphakamisa isikuta sokuhamba emotweni yakho.

Izinhlelo zokukusiza uthole izindlu ezifinyelelekayo

Uma ufuna ikhaya elifinyelelekayo, izinhlelo ezifana ne-Home Access zingakuxhuma nomthengisi wezindlu ongakuthola uhlu olulungele wena.

Noma, ungasebenzisa uhlelo olufana neBarrier Free Homes. Le nhlangano inolwazi ngamafulethi afinyelelekayo nemizi ethengiswayo. Ungabuka uhlu lwamakhaya, izindlu zedolobha, namafulethi asendaweni yakho, afaka phakathi izithombe, izincazelo, nokuningi. Ngekhaya elifinyelelekayo, ungangena futhi wenze izinguquko ezimbalwa noma ungazenzi nhlobo.

Izinketho zezezimali zokuguqulwa kwasekhaya

Ukwenza ukulungiswa ekhaya noma emotweni kungabiza kakhulu. Abanye abantu bakhokhela lezi zibuyekezo ngezimali ezivela ku-akhawunti yokonga. Kepha enye inketho ukusebenzisa ukulingana kwekhaya lakho.

Lokhu kungabandakanya ukuthola ukukhishwa kwemali okukhipha imali, okubandakanya ukufaka imali kabusha yemalimboleko yakho yempahla bese uboleka imali ekhokhelwa yikhaya lakho. Noma, ungasebenzisa imali mboleko yesibili efana nemalimboleko yemali yekhaya (isamba semali) noma umugqa wesikweletu sekhaya (HELOC). Uma uthinta imali yakho, qiniseka ukuthi uyakwazi ukukhokha lokho okubolekayo.

Uma ukulingana ekhaya kungeyona inketho, ungahle ufanelekele ukuthola esinye sezibonelelo noma izinhlelo zosizo lwezezimali ezitholakala kubantu abane-MS. Ungasesha izibonelelo zokusiza ngokuqasha, izinsiza, imithi, kanye nokulungiswa kwekhaya nezimoto. Ukuthola uhlelo, vakashela i-Multiple Sclerosis Foundation.

Ukwelashwa emsebenzini

Ngokuhambisana nokuguqula ikhaya lakho, ungasebenza nodokotela osebenza ukwenza imisebenzi yansuku zonke ibe lula. Njengoba isimo sakho sikhula, eminye imisebenzi elula njengokufaka izinkinobho zokugqoka izingubo zakho, ukupheka, ukubhala nokunakekela kwakho kungaba yinselelo enkulu.

Uchwepheshe wezomsebenzi angakufundisa izindlela zokulungisa imvelo yakho ukuze zivumelane kangcono nezidingo zakho namasu okuthola imisebenzi elahlekile. Ungafunda futhi ukuthi ungawasebenzisa kanjani amadivayisi okusiza ukwenza imisebenzi yokuzinakekela ibe lula.

Lokhu kungafaka phakathi izindlela zokuphuza ezingenazandla, izinkinobho, namathuluzi okudla noma izitsha zokuphatha. I-AbleData iyi-database yezixazululo zobuchwepheshe ezisizayo ezingakusiza uthole ulwazi ngalezi zinhlobo zemikhiqizo.

Uchwepheshe wezomsebenzi uzoqala ahlole amakhono akho, bese enza uhlelo olwehlukile kunesimo sakho. Ukuthola owelapha emsebenzini endaweni yakho, cela udokotela wakho akuthumele. Ungaxhumana futhi neNational MS Society ku-1-800-344-4867 ukuthola umelaphi onobuchwepheshe ku-RRMS.

Ubuchwepheshe obusizayo bomsebenzi

Ukusebenza kungenzeka kungakuletheli izinkinga ngezikhathi zokuxolelwa. Kepha ngesikhathi sokubuyela emuva, ukusebenza kweminye imisebenzi kungaba yinselele.

Ukuze izimpawu zingaphazamisi kakhulu umkhiqizo wakho, sebenzisa ubuchwepheshe bokusiza obungakusiza wenze imisebenzi ethile. Izinhlelo ezinjengokufinyeleleka okubalulekile ongazilanda ngqo kwikhompyutha yakho ziyasiza uma unenkinga yokuthayipha, ukufunda, noma ukuhambisa igundane lekhompyutha.

Izinhlelo ziyahlukahluka, kepha zingafaka amathuluzi anjengemiyalo yezwi, amakhibhodi asesikrinini, amakhono wokukhuluma kuya enkulumweni, ngisho negundane elingenazandla.

Ukuthatha

I-RRMS iyisifo esingalindelekile, futhi izimpawu zivame ukuba zimbi uma uhlala isikhathi eside nalesi simo. Yize lungekho ikhambi le-MS, kunezinsizakusebenza eziningana ezingathuthukisa ikhwalithi yempilo yakho futhi zikusize ugcine ukuzimela kwakho. Khuluma nodokotela wakho ukuze ufunde kabanzi ngosizo olutholayo kuwe.