Amabhulogi ezifo ezihamba phambili eCrohn's 2020

-Delile

• ICrohn's & Colitis UK
• Izibani, Ikhamera, iCrohn's
• Intombazane ekuPhulukiseni
• I-InflammatoryBowelDisease.net
• Imbongolo Emubi Kangaka
• Ungumnikazi weCrohn yakho
• ICrohn's, Ukufaneleka, Ukudla
• Kungaba Ibhulogi Elibi Kakhulu
• IBDVisble

Abaphenyi kungenzeka bangaziqondi zonke izici zesifo sikaCrohn, kepha lokho akusho ukuthi azikho izindlela zokuzisingatha ngempumelelo. Yilokho kanye abakwenzayo ama-blogger.

Ababhali bamabhulogi amahle kakhulu alo nyaka eCrohn basebenza ngenkuthalo ukufundisa, ukukhuthaza, nokunika amandla izivakashi zabo ngokwabelana ngezeluleko ezizwakalayo zezokwelapha nezindaba zabo. Kuyisikhumbuzo esibalulekile sokuthi awuwedwa ohambweni lwakho.

ICrohn's & Colitis UK

Lokhu okungenzi-nzuzo kwase-UK kuzibophezele ekuqwashiseni ngesifo sikaCrohn, i-ulcerative colitis, nezinye izinhlobo zezifo ezivuthayo zamathumbu (IBD). Ibhulogi iyinsiza enkulu yezindaba zamanje eziphathelene nokwelashwa, imishanguzo, kanye nemizamo yokukhuthaza nokwenza imali. Abafundi bazophinda bathole ama-akhawunti wabantu bokuqala kubantu abahlala nabakwaCrohn nabathandekayo babo.

Izibani, Ikhamera, iCrohn's

UNatalie Hayden uletha umbono osobala empilweni yakhe ngesifo sikaCrohn, abelana ngohambo lwakhe nabanye njengendlela yokukhuthaza nokufundisa noma ngubani oyidingayo. Ukusuka ekunqobeni imizabalazo yokubungaza ukunqoba okuncane, uwubufakazi bokuthi asikho isimo esingelapheki okufanele sithambise ukucwilisa kwakho.

Intombazane ekuPhulukiseni

Ukuxilongwa kuka-Alexa Federico ngesifo sikaCrohn eneminyaka eyi-12 kwaba ugqozi lomsebenzi wakhe wesikhathi esizayo njengodokotela oqinisekisiwe wezokwelapha. Manje ufundisa abantu ukuthi bangakusebenzisa kanjani ukudla ukuxhasa impilo yabo - {textend} hhayi ngokumelene nakho. Kubhulogi yakhe, phequlula okuthunyelwe okuwusizo okukhuluma ngokudla okunempilo, izindlela zokupheka, ubufakazi bamakhasimende, nezindaba ezivela kulwazi luka-Alexa ngeCrohn's.

I-InflammatoryBowelDisease.net

Ukuphatha ngempumelelo i-IBD kuqala ngamathuluzi nezinsizakusebenza ezifanele, futhi yilokho ozokuthola kule webhusayithi ebanzi. Umgomo ukunika amandla iziguli nabanakekeli ngemfundo nangomphakathi. Dlulisa amehlo kuma-athikili abhalwe ochwepheshe bezokwelapha nezindaba zomuntu siqu ezivela kulabo izimpilo zabo ezithintwe yi-IBD.

Imbongolo Emubi Kangaka

USam Cleasby wathola ukuxilongwa kwe-ulcerative colitis ngo-2003. Wabe esedala isikhala sokusekelwa nezindaba zangempela - {textend} kwenye indawo lapho angakhuthaza ukuzethemba futhi abe nomzimba omuhle kwabanye.Akekho oqonda ubuhlungu nokuphoxeka kwe-IBD kangcono kunoSam, futhi uzibophezele ekuqwashiseni nasekuxhumaneni nalabo abayidingayo.

Ungumnikazi weCrohn yakho

UTina wayeneminyaka engama-22 lapho ethola ukuthi unesifo sikaCrohn. Kusukela lapho, ubelokhu esebenzisa le bhulogi njengendlela yokukhuthaza nokwenza isimo esingalapheki njengeCrohn's. Ukuhlala noCrohn nezinye izimo ezizimele bekungelula kuTina, kepha le bhulogi iyindlela yokukhombisa abanye abaphila nezimo ezingapheli noma abakhubazekile ukuthi bangaphila impilo ephelele, ejabulisayo. Abafundi bale bhulogi bazothola okuthunyelwe okuhlose ukunika amandla abantu abagula ngokungalapheki.

ICrohn's, Ukufaneleka, Ukudla

Ukukhula ngenza i-gymnastics nokuthokozisa kwenza uStephanie Gish waba nomzimba osemncane esemncane kakhulu. Umuntu oshisekela ukuzithiba ngokomzimba, waqala ukuqeqeshela imincintiswano yokufaneleka ngenkathi esekolishi - {textend} ngesikhathi sokuqala kwezimpawu zokuqala zikaCrohn. Le bhulogi ilandisa ngokuhlangenwe nakho kukaStephanie noCrohn ngenkathi futhi egcina indlela yokuphila esebenzayo. Abafundi bazokuzwa futhi ezivakashini mayelana nohambo lwabo neCrohn's, ukuqina komzimba, kanye nokudla.

Kungaba Ibhulogi Elibi Kakhulu

Ukugcina isimo sengqondo esihle kubalulekile lapho uhlala noCrohn's. Yileso simo uMary asithatha kule bhulogi. UMary wathola ukuxilongwa kukaCrohn eneminyaka engama-26 futhi uphila nezinye izimo ezingalapheki. Ubhuloga mayelana nokuhlangenwe nakho kwakhe kokuthola ukunakekelwa nge-VA, impilo yakhe yengqondo, nazo zonke izingqinamba ezihlobene nokuba nesimo esingalapheki.

IBDVisble

IBDVisible yibhulogi esemthethweni yeCrohn's & Colitis Foundation. Lapha, abafundi bazothola okuthunyelwe kwebhulogi kusuka kochwepheshe bezokwelapha okuphathelene nocwaningo lwakamuva oluzungeze iCrohn's kanye ne-colitis. Izivakashi zesiza zizothola imininingwane ephathelene ne-Crohn ezinganeni nakubantu abadala, amathiphu wokudla nokudla, kanye nokuholwa kokuhamba ngempilo yengqondo ngokuxilongwa kwe-IBD.

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