Izindaba Zempumelelo ze-MS

-Delile

• Awuyona i-MS yakho
• Imibandela
• Imithetho Nemithethonqubo Yomncintiswano
• Ukufaneleka
• Ukukhethwa Kowinile
• Umklomelo
• Isikhathi sokuhambisa
• Ukungena
• Ilayisense Nokuzibophezela

Awuyona i-MS yakho

Ingabe ungumama? Umbhali wamanoveli? Umsubathi? Sifuna ukukukhumbuza ukuthi kukhona okuningi kuwe okudlula i-multiple sclerosis— {textend} futhi sifuna ukhumbuze abanye ngokwenza isitatimende sakho. Futhi utshele umhlaba ukuthi une-MS, KODWA ...

Indaba kaJulia, sengikwazile ukuhlangabezana nesifo engatholwa ukuthi nginaso eminyakeni engaphezu kwengama-23 edlule. Noma sengineminyaka engaphezu kwengama-58 ngisemncane ngiyazi ukuthi ngizolwa nalokhu nsuku zonke futhi Ungalokothi uyeke! Ngiyizwa kubantu abaningi, Awubukeki sengathi uyagula! Awu abangiboni ngalezo zinsuku ezimbi. Njengoba umaki wami ufundeka kubhayisikili lami-Hambisa! Ukulwa ne-MS ... Ukushova ngokushesha okukhulu ngangokunokwenzeka! Lokhu nje engikwenzayo. Ngisanda kuqeda i-MS WALK neThimba lami & inja encane yensiza, (i-mascot yethu) iBoo.Awusoze Wancama! Sonke siyasazi isisho ...

Indaba kaNicole, ngiseyimi enhliziyweni.

Indaba kaTresa, i-MS ayinami.

Indaba kaCathy Chester, Igama lami nginguCathy Chester futhi ngitholwe ngine-MS kusukela ngo-1987. Impilo yami izinikele ezintweni ezimbili: ukubhala nokuyikhokhela abantu abane-MS. Ibhulogi yami, Umoya Onikwe Amandla, yenzelwe ukuba ibe yinhle ngaphezu kweminyaka yobudala engama-50. Ngibhalela amawebhusayithi amaningi ezempilo, futhi ngiyi-blogger yeThe Huffington Post. Ngiphila ngenkolelo eqinile yokuthi impilo imnandi, futhi kufanele sibambe usuku ngalunye ngokwenza konke okusemandleni ngamakhono esinawo ngamunye.

Indaba ka-Amy, ngine-MS iminyaka engu-25 kusukela ngineminyaka engama-20 ubudala. Ukuba nalesi sifo- lesi sifo esiguqukayo njalo, esingalindelekile, esiyingqayizivele sibumbe ukuthi ngingubani namuhla. Ngenxa yalokhu impilo yami ithathe inhloso ngabe ngabe angizange ngakheke ngokuzungeze i-MS. Abanye abantu bathi, ngine-MS kepha ayinayo. Ngithi, ngine-MS futhi YIMI. Futhi nge-MS ngingaphezu kwalokho ebengingaba khona ngenye indlela. (bheka mssoftserve.org!)

Indaba kaKit, ngisengumuntu wesifazane, unkosikazi, umama nomngani. Ngisungule iqembu elizimele elisekela online labantu abanezifo ezingamahlalakhona. Ngiyaqhubeka nokusebenzisa amakhono ami okubhala nawokucwaninga nsuku zonke lapho ngicwaninga ngezinkinga zezokwelapha nezomuntu siqu zamalungu angama-800 e-Living for a Cure. Ngisebenza kancane, futhi ngivame ukuphazanyiswa okufunwa yi-MS, kepha ngisafaka isandla ezweni elingcono, futhi yilokho okungichazayo!

Indaba kaJ, bengihlala ne-MS iminyaka engu-19. Ngatholwa ngineminyaka engu-18. Angikaze ngivumele i-MS ukuthi ilawule impilo yami! Ukuvela okuhle nokuthi “ANGEKE ngiyeke!” Isimo sengqondo siyadingeka. Baningi kakhulu abantu ababheka lokhu njengesigwebo sentambo ngenkathi ngithathe i-MS yami futhi ngiyivumela ukuthi ingisize ngikhule njengomuntu. Ngithatha izinto ngosuku olulodwa ngesikhathi futhi angithathi lutho noma omunye umuntu. I-MS ayichazi ukuthi ngingubani .... ngiyakwenza lokho! I-MS ayichazi!

Indaba kaLea, Njengoba ukwazi ukutshela esithombeni - nginezinsalela zamehlo amnyama ama-2 kusukela ekuweni kwami ​​kokugcina ngenxa ye-MS - kepha ngiyavuka ngiye ngokunye! Impilo yami ngeyami! Ngiyayijabulela noma ngabe kunjani! Ngihlala nginakho, ngihlala ngikhona, kungakhathalekile ukuthi iMonSters ingaba yini empilweni yami!

Indaba kaS, ngine-MS, kodwa ukukhulisa nokufundisa izingane zami izidingo ezikhethekile nokubona ingane yami endala iphumelela ekolishi kungigcina ngiqinile. Bayangidinga. Ngiyazidinga. Ngokubambisana, singanqoba noma yini! Sedlule iziphepho eziningi sisonke futhi njalo siphume ngamandla ngenxa yazo.

Indaba kaKathy, i-MS iyingxenye yokuthi kufanele ngiphile kanjani, kepha akusiyona engikhetha ukuba yiyo. Ukwazi ukuthi yini ebangela ukukhubazeka kwami ​​kungcono kakhulu kunokuphila ngaphandle kwalolo lwazi - ngingumuntu onamandla, ongcono, nojabule ngokwengeziwe ngoba ngiyazi ukuthi yini ebhekene nami. Ngaphandle kwayo kungenzeka ukuthi angikaze ngiqede ukulahlekelwa yi-100lbs futhi ngithole ukuthi yiziphi ezinye izinto engizihle kahle kuzo.

Indaba ka-Ella Forbes, ngatholakala ngoNovemba 2010 ngine-RRMS,, Impilo yami yashintsha, konke okwangizungezile kwashintsha, akukho lutho olwafana. Ukungaguquguquki bekungumndeni wami nabangane bami abasha abasha abasemgqeni abangisizile ngabona ukuthi ngangiseyi-ME !!. Ngifunda njalo futhi ngivumelanisa nezwe lami elisha eliguqukayo, angibheki emuva .. Ngiya phambili nge-MY ms.

Indaba kaNicole Price, sengine-MS iminyaka engu-13 manje, futhi ANGEKE ngiyivumele ilawule impilo yami .. Nginabafana ababili; ngineminyaka engu-21 no-15, futhi kufanele ngiqhubeke nokubalwela. Ziyimpilo yami, futhi ngidinga ukuqiniseka ukuthi banekusasa eliqhakazile. Ngineminyaka engu-21 ubudala ngonyaka wakhe wesi-3 e-CWU ngifunda i-Health and Safety Management, futhi ingane yami eneminyaka engu-15 ikhula kahle onyakeni wayo wokuqala weSikole samabanga aphezulu nasebholeni, anginaso isikhathi sokuthi i-MS ingilawule. Ukuhlala ngithembekile futhi ngiphilele abafana bami kungigcina ngiqhubeka nsuku zonke.

Indaba kaTonia, ngatholwa eminyakeni engu-10 edlule ngineminyaka engama-33. Izimpawu zazinzima ukujwayela ekuqaleni kodwa ngafunda ukuzilawula kancane kancane. Umndeni wami uyangeseka futhi lokho kusho umhlaba kimi. Ngiyenqaba ukuvumela i-MS isho ukuthi ngingaya kuphi nokuthi yini engingayenza. Ngizophumelela ngazo zonke izindlela ezidingekayo !!!

Indaba kaChristie, ngingumthwebuli wezithombe oqandayo othanda ukugibela ibhayisikili lami, ngokushesha okukhulu. Yebo, ngihlala ne-MS futhi nginezinsuku ezinhle nezinsuku ezimbi. Ngizama ukugcwalisa lezo zinsuku ezinhle ngemisebenzi engiyithandayo: ukuhleka nabangani nomndeni, ukuthatha izithombe, ukuhamba ngebhayisikili, ukulima ingadi, ukubheka ukudla okuhle eSan Diego enelanga, ukubhala, ukudweba, ukufunda, ukujikeleza umhlaba. Uthola umqondo. I-MS ngeke ingene endleleni yokwenza izinto engizithandayo. Isikhathi.

Indaba kaRyan Proce, nginezinto eziningi kakhulu engingazifeza. Njengokuba ngubaba nomyeni. Anginaso isikhathi sokuyeka ukuphila !!! Ngisebenza njengompheki, umxhumanisi wamabhasi ekamu, nonompempe we-wrestling. Ngithatha imishanguzo yami futhi ngiqaphe impilo yami, futhi ngeke ngisivumele lesi sifo.

Indaba ka-Ann Pietrangelo, Igama lami ngingu-Ann Pietrangelo futhi ngabhala incwadi ethi, “No More Secs! Ukuphila, Ukuhleka Nokuthanda Naphezu Kwesifo Sokuqina Kwemisipha Esiningi ”ngoba yilokho engikwenza nsuku zonke. Ngiphinde ngibe ngumuntu owasinda umdlavuza webele ophindwe kathathu, ngakho-ke ngiyasiqonda isidingo sokuqhubeka lapho ngibhekene nezithiyo. Ukuthi umgwaqo uholela kuphi kuyindida. Ngibonga nje ukuthi ngisendleleni.

Indaba kaJennifer Duncan, ngingahle ngibe ne-MS kepha ayinayo futhi ayisoze yanginayo. Nginomndeni omuhle osiza nge-MS yami. Umyeni wami nezingane bahle futhi nomama wami unjalo. Ngibe ne-MS unyaka nesigamu futhi ngenza kahle kakhulu ngayo.

Indaba kaBarbara Nuss, Abanye abantu bangacabanga ukuthi lokhu akunakwenzeka, kepha ngibheka i-MS yami njengesibusiso esifihlekile.I-MS ingikhombisile amandla nesibindi engingakaze ngikwazi ngaphambili. Kungikhombisile ukuthi impilo iyigugu kangakanani nokuthi ungazijuluki izinto ezincane. Ngingahle ngingakwazi ukwenza izinto ebengizenza phambilini, ngibe nempilo ebengikade ngiphila ngayo, ngenze imali ebengikade ngiyenza. Kepha nginomndeni onothando nohlelo olukhulu lokusekela. Ngifunde ukwazisa impilo futhi noma yiziphi izinkinga engibhekene nazo okwamanje azimbi kangako. Bengingayiboni impilo ngale ndlela phambilini, futhi ngincoma i-MS yami ngokungikhombisa.

Indaba kaDebbie Phillips, ngineminyaka engama-49, ngiyinkosikazi, umama, ugogo futhi ngisenguye. Umyeni wami uyi-Army Veteran eneminyaka engama-30 eneTerminal COPD. Watholwa 2 yrs ngaphambi kokuba ngitholwe ngineRRMS, siyanakekelana. NGEKE ngiyeke kodwa ngizofundisa abantu abaningi ngangokunokwenzeka nge-MS size sithole ikhambi!

Indaba kaJill Gebhard, i-MS kungenzeka ukuthi ishintshe impilo yami, kepha ayingivimbi ekwenzeni engikuthandayo. Ngingahle nginciphise ukwedlula wonke umuntu, kepha ngizimisele ngokuphila impilo yami ngokugcwele! I-MS ithathe ubusha bami, futhi ngibuyisela emuva nsuku zonke. Futhi uyazi ini? Nawe ungakwenza!

Indaba kaNicole, kwatholakala ukuthi cishe ngineminyaka engu-4 ngidlulile ngineminyaka engama-29. Ngeke ngiqambe amanga kwakudabukisa. Kwakwesabeka futhi kuze kube namuhla kusenjalo. Umehluko kuphela namuhla ngondliwa ngumndeni nabangane abathile abasondelene. Ngiyazi noma ngabe yini kuphela into engiyilawulayo ukuthi ngiphendula kanjani kulokho okufanele ngibhekane nakho. Ungalokothi uzidele wena noma izinhloso zakho. Ungahle ungabi umuntu ofanayo wenyama owake waba yikho kepha usengumphefumulo ofanayo lowo uNkulunkulu awudala lets Fight Ukuphila impilo esiyinikiwe.

Indaba kaMichelle Loza, ngatholwa ngoNovemba 2009. Amadodakazi ami ayeneminyaka engu-7 no-9 kuphela ubudala. Ngasuka kumama osebenza njalo oshadile ngaya kokuhlala okukodwa ekhaya supermom. I-MS ngeke ingivimbe ekwenzeni izinto kepha kunalokho ngisebenzisa wonke amathuba ukwenza izinto. Isiqubulo sami ukwenza izinkumbulo wonke amathuba esiwatholayo.

Indaba kaBonny Hanan, i-MS iyingxenye yempilo yami, hhayi impilo yami yonke. Ngatholwa ngoMashi wezi-2012 ngemuva kweminyaka engu-2 yokuba yingane mhlawumbe. Kusukela lapho ngilandele iqembu lami engilithandayo elizungeze i-United States eseningizimu. Ngenze abangane abasha abasha, futhi ngafunda ukuzikhulumela. Okubaluleke kakhulu, ngichithe isikhathi esiningi kakhulu sekhwalithi nomndeni wami futhi ngazakhela izibopho eziqine kakhulu nawo. Ikakhulukazi indodakazi yami eneminyaka eyi-13 okuthi noma ngabe nginalesi sifo ingitshele ngaso sonke isikhathi ukuthi ngingumama ongcono kunabo bonke!

Indaba kaDan noJen, i-MS ayisichazi, kepha ngumlingiswa omkhulu endabeni yethu. Indaba yethu impela iyindaba yothando, noMS edlala indawo yokuba ngumlingisi. Ngaphandle kokuba nalesi sifo, kungenzeka ukuthi asikaze sihlangane kuhlelo lwe-MS eminyakeni eyi-11 eyedlule. Imvamisa kungumuntu omubi endabeni yethu. Kepha singamaqhawe amakhulu asinqobayo lesi sifo. Akusichazi. Ukuphila ne-Multiple Sclerosis kwenza indaba yethu ibe mnandi kakhulu.

Cheri Cover, angiyona nje i-MS yami ngoba kukhona okuningi empilweni kune-MS. Nginomndeni nabangane abangikhathalelayo futhi ngibakhathalele. Angikwazi ukuhlala phansi ngihlale esimweni sami usuku lonke bese ngiphuthelwa yimpilo. Sisonke sizosishaya lesi silo!

Joyina Umphakathi Wethu We-Facebook we-MS

Joyina umphakathi osekelayo futhi ufunde kabanzi nge-MS. Kusukela kuzisekelo, ekwelashweni ukuphatha izimpawu zakho.

Thumela ividiyo ethi “Uthole Lokhu”

"Unakho Lokhu" isekela umphakathi we-MS. Buka amavidiyo avela kwabanye abaphila ne-MS futhi ufunde ukuthi awuwedwa empini yakho. Thola isikhuthazo nezeluleko kubantu abanjengawe, futhi uzizwe unamandla okuxoxa indaba yakho.

I-Multiple Sclerosis Prognosis kanye Nempilo Elindelwe

Ama-7 Amaqiniso we-MS Okufanele Ukwazi

Izimpawu Ezi-8 Ezijwayelekile ze-MS Kwabesifazane

Izindlela eziyi-12 ze-MS Imiphumela Yomzimba

Izinsizakusebenza ezihamba phambili ze-MS ezivela kuwebhu yonkana

Izindlela zokwelapha ezi-5 Ezishintsha i-MS

Abesifazane basengozini enkulu kakhulu yokuthola i-MS kunabesilisa, futhi lesi sifo singathinta abesifazane ngokuhlukile.

I-MS Kusukela Phezulu Kuya Phansi, Thola umbono wokuthi i-MS iwuthinta kanjani umzimba wonke ngale mephu exhumanayo.

Ama-7 Ama-Must-Know Ama-MS, Ukusuka ezimpawu kuya ezinyathelweni ezilandelayo, thola ukuthi yini okudingeka uyazi.

Imibandela

I-Healthline izoqoqa imininingwane kusuka kubasebenzisi ngokusebenzisa uhlelo lokusebenza lwe-Facebook kuphela ngenhloso yokwakha umuzwa ongcono womsebenzisi kuhlelo lokusebenza. I-Healthline izolanda kuphela ulwazi oludingekayo oludingekayo ukusebenzisa lolu hlelo lokusebenza. Akukho lwazi oluqoqwe kuma-akhawunti womsebenzisi we-Facebook oluzosetshenziselwa izinhloso ezingaphandle kohlelo lokusebenza. I-Healthline ayinawo amalungelo kule datha.

Ukufaneleka

Izethulo zivulelekile kubo bonke abahlali base-United States, ngaphandle kwabasebenzi beHealthline Networks, abakhangisi bayo kanye nama-ejensi wokuphromotha, ababambisene nabo kanye nalabo abasondelene nabo, kanye namalungu omndeni abasebenzi abanjalo. Ukungena okukodwa kuphela okuvunyelwe umuntu ngamunye.

Ukukhethwa Kowinile

Ukungena ngamasheya amaningi ngo-11: 59 PM ngoJuni 30, 2013 kuzovotelwa njengomnqobi. Uma kunethayi, umklomelo uzohlukaniselwa abawinile. Amagama abaphumelele azophinde afakwe ekhasini le-Healthline Multiple Sclerosis Facebook.

Umklomelo

Kuzonikezwa owokuqala owinile ikhadi elilodwa lesipho esingu- $ 50. Abaphumelele bazothintwa nge-akhawunti ye-imeyili noma ifomu kubhulogi labo ngoJulayi, 10, 2013. Ukuze afune umklomelo, owinile kufanele aphendule nge-imeyili [email protected] kungakadluli uJulayi 30, 2013. Izimpendulo kumele zifake konke igama, ikheli le-imeyili, nendawo. Imiklomelo izoklonyelwa ngoJulayi 31, 2013. Ukwehluleka ukuphendula ngokuya ngale mibandela kuzosho ukuthi owinile ulahlekelwe ngumklomelo.

Isikhathi sokuhambisa

Ukuthunyelwa kuqala ngo-Ephreli 26, 2013. Okungenayo kufanele kutholwe ngo-11: 59 PM PST ngoJuni 30, 2013.

Ukungena

Konke okufakiwe kufanele kubhalwe ngesiNgisi.

Abangenayo kungenzeka bangangeni nama-akhawunti amaningi we-imeyili noma ubunikazi obuningi.

Okuthunyelwe okuphula noma kwephula amalungelo omunye umuntu, kufaka phakathi kepha kungagcini kumalungelo obunikazi, akufanelekile.

Ilayisense Nokuzibophezela

Ekuhambiseni isithombe se-MS placard, uyavumelana nalokhu okulandelayo: Ngaleyo ndlela nginika iHealthline Networks ilayisense engenayo imali eyikhokhwayo, engapheli yokusebenzisa isithombe esithunyelwe lapha ("Umsebenzi") nganoma iyiphi injongo. Ukusetshenziswa kungafaka, kepha kungakhawulelwe, ukukhushulwa kweHealthline Networks namaphrojekthi awo nganoma iyiphi indlela, kufaka phakathi iwebhu, ekushicilelweni okuphrintiwe, njengoba kusatshalaliswa kwabezindaba, nakumikhiqizo yezentengiso. I-Healthline Networks inelungelo lokusebenzisa / ukungasebenzisi noma yimuphi umsebenzi njengoba ubonwa njengofanele yi-Healthline Networks ngokubona kwayo kuphela. Awukho Umsebenzi ozobuyiselwa uma usuthunyelwe.

Ngiyaqonda ukuthi ngokuhambisa isithombe se-MS placard, ngiyavuma ukuthi i-Healthline Networks ngeke ithwale noma yini yokuvikela umsebenzi wami ekuphuleni amalungelo abantu besithathu enanini lami le-copyright noma amanye amalungelo empahla yengqondo noma amanye amalungelo engingawaphatha kulo Msebenzi, naku ayikho indlela ezoba nesibopho sokulahlekelwa engingabhekana nakho ngenxa yokwephulwa komthetho okunjalo; futhi ngalokhu ngimelela futhi ngigunyaza ukuthi Umsebenzi Wami awuhlukumezi amalungelo omunye umuntu noma inhlangano. Ngokushintshana ngokucatshangelwa okuyigugu, ngalokhu ngidedela ngaphandle kwemibandela, ngibe nobungozi futhi ngivikele iHealthline Networks, abaqondisi babo, izikhulu, kanye nabasebenzi bazo zonke izimangalo, izikweletu, nokulahlekelwa okuvela noma okuphathelene nokubamba kwami ​​iqhaza kugalari yokuhambisa, noma ukusetshenziswa kweHealthline Network koMsebenzi wami. Lokhu kukhululwa nokubuyiselwa kuzobophezeleka kimi, nezindlalifa zami, abaphathi bemithetho, abaphathi, nababele.

Amanethiwekhi weHealthline awabophezelekile kunoma yikuphi ukulahlekelwa okuvela noma okuhlobene noma okuvela kunoma yiluphi ucingo lwezethulo eziphakanyiswe yi-Healthline Networks.

Ixhaswe yi-Healthline Networks, Inc. 660 Third Street, San Francisco, CA, 94609