Ukuhlolwa Kokujuluka kweCystic Fibrosis

-Delile

• Kuyini ukuhlolwa kwezithukuthuku?
• Kusetshenziselwa ini?
• Kungani ngidinga ukuhlolwa izithukuthuku?
• Kwenzekani ngesikhathi sokuhlolwa kwezithukuthuku?
• Ngabe kukhona engizodinga ukukwenza ukulungiselela isivivinyo?
• Ingabe zikhona izingozi esivivinyweni?
• Isho ukuthini imiphumela?
• Ngabe kukhona okunye engidinga ukukwazi mayelana nokuhlolwa kwezithukuthuku?
• Izinkomba

Kuyini ukuhlolwa kwezithukuthuku?

Ukuhlolwa kwezithukuthuku kukala inani le-chloride, ingxenye kasawoti, kuSweat. Isetshenziselwa ukuxilonga i-cystic fibrosis (CF). Abantu abane-CF banezinga eliphezulu le-chloride esithukuthuku sabo.

I-CF yisifo esidala ukwakheka kwamafinyila emaphashini nakwezinye izitho.Kulimaza amaphaphu futhi kwenza kube nzima ukuphefumula. Kungadala nokutheleleka njalo nokungondleki. I-CF yisifo esizuzwe njengefa, okusho ukuthi sidluliselwa kubazali bakho, ngofuzo.

Izakhi zofuzo ziyingxenye ye-DNA ephethe imininingwane enquma izici zakho ezihlukile, njengokuphakama nombala wamehlo. Izakhi zofuzo nazo zibhekene nezinkinga ezithile zempilo. Ukuze ube ne-cystic fibrosis, kufanele ube nohlobo lwe-CF oluvela kunyoko nakayihlo. Uma kungumzali oyedwa kuphela onofuzo, ngeke usithole lesi sifo.

Amanye amagama: ukuhlolwa kwe-sweat chloride, ukuhlolwa kwe-cystic fibrosis sweat, ama-sweat electrolyte

Kusetshenziselwa ini?

Ukuhlola umjuluko kusetshenziselwa ukuxilonga i-cystic fibrosis.

Kungani ngidinga ukuhlolwa izithukuthuku?

Ukuhlolwa kwezithukuthuku kungahlola i-cystic fibrosis (CF) kubantu bayo yonke iminyaka, kepha kuvamise ukwenziwa ezinganeni. Ingane yakho ingadinga ukuhlolwa kwezithukuthuku uma ihlolwe i-CF ine-CF ekuhloleni kwegazi okusanda kuzalwa. E-United States, izingane ezintsha zivame ukuhlolelwa izimo ezahlukahlukene kubandakanya i-CF. Ukuhlolwa okuningi kwezithukuthuku kwenziwa lapho izingane zinamasonto amabili kuya kwamane ubudala.

Ingane endala noma umuntu omdala ongakaze ahlolwe i-CF angadinga ukuhlolwa kwe-cystic fibrosis sweat uma othile emndenini enalesi sifo futhi / noma enezimpawu ze-CF. Lokhu kufaka phakathi:

• Isikhumba esinambitha usawoti
• Ukukhwehlela njalo
• Ukutheleleka kwamaphaphu njalo, njenge-pneumonia ne-bronchitis
• Ukuphefumula kanzima
• Ukwehluleka ukuthola isisindo, noma ngabe unesifiso esihle sokudla
• Ukugcoba, indle enkulu
• Ezinganeni ezisanda kuzalwa, azikho izitulo ezenziwe ngemuva nje kokuzalwa

Kwenzekani ngesikhathi sokuhlolwa kwezithukuthuku?

Umhlinzeki wakho wezokunakekelwa kwempilo uzodinga ukuqoqa isampula lezithukuthuku ukuze ahlolwe. Yonke inqubo izothatha cishe ihora futhi izobandakanya lezi zinyathelo ezilandelayo:

• Umhlinzeki wezempilo uzobeka i-pilocarpine, umuthi obangela ukujuluka, endaweni encane yengalo.
• Umhlinzeki wakho uzobeka i-electrode kule ndawo.
• Okwamanje kuzobe kuthunyelwa nge-electrode. Lesi sikhathi samanje senza umuthi ungene esikhunjeni. Lokhu kungadala ukuncinza okuncane noma imfudumalo.
• Ngemuva kokukhipha i-electrode, umhlinzeki wakho uzotapa isiqeshana sephepha lokuhlunga noma i-gauze engalweni ukuqoqa umjuluko.
• Izithukuthuku zizoqoqwa imizuzu engama-30.
• Umjuluko oqoqiwe uzothunyelwa ebhodini lokuhlola.

Ngabe kukhona engizodinga ukukwenza ukulungiselela isivivinyo?

Awudingi noma yimaphi amalungiselelo akhethekile wokuhlolwa izithukuthuku, kodwa kufanele ugweme ukusebenzisa noma yimaphi okhilimu noma ama-lotion esikhumbeni amahora angama-24 ngaphambi kwenqubo.

Ingabe zikhona izingozi esivivinyweni?

Ayikho ingozi eyaziwayo yokuhlolwa izithukuthuku. Ingane yakho ingahle ibe nokuthimula noma ukukitaza okuvela emandleni kagesi, kepha akufanele ibuzwe ubuhlungu.

Isho ukuthini imiphumela?

Uma imiphumela ibonisa izinga eliphezulu le-chloride, kunethuba elihle lokuthi ingane yakho ine-cystic fibrosis. Umhlinzeki wakho wezokunakekelwa kwempilo cishe uzoku-oda okunye ukuhlolwa kwezithukuthuku kanye / noma okunye ukuhlolwa ukuqinisekisa noma ukukhipha ukuxilongwa. Uma unemibuzo ngemiphumela yengane yakho, khuluma nomhlinzeki wakho wezokunakekelwa kwempilo.

Funda kabanzi mayelana nokuhlolwa kwelabhorethri, ububanzi bezinkomba, nemiphumela yokuqonda.

Ngabe kukhona okunye engidinga ukukwazi mayelana nokuhlolwa kwezithukuthuku?

Ngenkathi lungekho ikhambi le-cystic fibrosis (CF), kunezindlela zokwelashwa ezitholakalayo ezisiza ukunciphisa izimpawu nokwenza ngcono impilo. Uma ingane yakho kutholakala ukuthi ine-CF, khuluma nomhlinzeki wakho wezokunakekelwa kwempilo ngamasu nezindlela zokwelapha ukusiza ukuphatha lesi sifo.

Izinkomba

1. I-American Lung Association [i-Inthanethi]. IChicago: I-American Lung Association; c2018. Ukuhlonza kanye nokwelashwa kweCystic Fibrosis [icashunwe ngo-2018 Mar 18]; [cishe izikrini ezi-4]. Kutholakala kusuka: http://www.lung.org/lung-health-and-diseases/lung-disease-lookup/cystic-fibrosis/diagnosing-and-treating-cf.html
2. ICystic Fibrosis Foundation [i-Intanethi]. I-Bethesda (MD): ICystic Fibrosis Foundation; Mayelana neCystic Fibrosis [icashunwe ngo-2018 Mashi 18]; [cishe izikrini ezi-2]. Kutholakala kusuka: https://www.cff.org/What-is-CF/About-Cystic-Fibrosis
3. ICystic Fibrosis Foundation [i-Intanethi]. I-Bethesda (MD): ICystic Fibrosis Foundation; Ukuhlolwa Kwezithukuthuku [kucashunwe ngo-2018 Mashi 18]; [cishe izikrini ezi-3]. Kutholakala kusuka: https://www.cff.org/What-is-CF/Testing/Sweat-Test
4. UHinkle J, Cheever K. Brunner & Suddarth's Handbook of Laboratory and Diagnostic Test. 2nd Ed, Kindle. IPhiladelphia: I-Wolters Kluwer Health, Lippincott Williams & Wilkins; c2014. Umjuluko Test; k. 473-74.
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6. Ukuhlolwa Kwelebhu Ku-inthanethi [i-Intanethi]. IWashington DC: I-American Association for Clinical Chemistry; c2001–2018. ICystic Fibrosis [ibuyekezwe ngo-2017 Oct 10; kucashunwe 2018 Mar 18]; [cishe izikrini ezi-2]. Kutholakala kusuka: https://labtestsonline.org/conditions/cystic-fibrosis
7. Ukuhlolwa Kwelebhu Ku-inthanethi [i-Intanethi]. IWashington DC: I-American Association for Clinical Chemistry; c2001–2018. Ukuhlolwa Okusanda Kuzalwa [kubuyekezwe ngo-2018 Mashi 18; kucashunwe 2018 Mar 18]; [cishe izikrini ezi-2]. Kutholakala kusuka: https://labtestsonline.org/screenings/newborns
8. Ukuhlolwa Kwelebhu Ku-inthanethi [i-Intanethi]. IWashington DC: I-American Association for Clinical Chemistry; c2001–2018. Ukuhlolwa Kwe-Sweat Chloride [kubuyekezwe ngo-2018 Mashi 18; kucashunwe 2018 Mar 18]; [cishe izikrini ezi-2]. Kutholakala kusuka: https://labtestsonline.org/tests/sweat-chloride-test
9. Uhlobo Lokuthengwa Kwamakhasimende we-Merck [Internet]. IKenilworth (NJ): IMerck & Co Inc .; c2018. ICystic Fibrosis (CF) [icashunwe ngo-2018 Mashi 18]; [cishe izikrini ezi-2]. Kutholakala kusuka: https://www.merckmanuals.com/home/children-s-health-issues/cystic-fibrosis-cf/cystic-fibrosis-cf
10. I-National Heart, Lung, ne-Blood Institute [i-Intanethi]. I-Bethesda (MD): UMnyango Wezempilo kanye Nezinsizakalo Zabantu e-U.S. ICystic Fibrosis [icashunwe ngo-2018 Mashi 18]; [cishe izikrini ezi-3]. Kutholakala kusuka: https://www.nhlbi.nih.gov/health-topics/cystic-fibrosis
11. I-University of Rochester Medical Center [i-Inthanethi]. URochester (NY): Isikhungo Sezokwelapha sase-University of Rochester; c2018. I-Health Encyclopedia: Isivivinyo Sokujuluka KweCystic Fibrosis [icashunwe ngo-2018 Mashi 18]; [cishe izikrini ezi-2]. Kutholakala kusuka: https://www.urmc.rochester.edu/encyclopedia/content.aspx?contenttypeid=167&contentid;=cystic_fibrosis_sweat
12. I-UW Health [Inthanethi]. UMadison (WI): Izibhedlela zase-University of Wisconsin kanye neGunya Lemitholampilo; c2018. Imininingwane Yezempilo: Amaqiniso Wezempilo Kuwe: Ukuhlolwa Kwezingane Sweat Test [kubuyekezwe ngo-2017 Meyi 11; kucashunwe 2018 Mar 18]; [cishe izikrini ezi-3]. Kutholakala kusuka: https://www.uwhealth.org/healthfacts/parenting/5634.html
13. Impilo ye-UW: Isibhedlela Sezingane ZaseMelika [i-Intanethi]. UMadison (WI): Izibhedlela zase-University of Wisconsin kanye neGunya Lemitholampilo; c2018. Impilo Yezingane: ICystic Fibrosis [icashunwe ngo-2018 Mashi 18]; [cishe izikrini ezi-5]. Kutholakala kusuka: https://www.uwhealthkids.org/kidshealth/kids/kids-health-problems/heart-lungs/cystic-fibrosis/22267.html
14. Impilo ye-UW: Isibhedlela Sezingane Sezingane ZaseMelika [i-Intanethi]. UMadison (WI): Izibhedlela zase-University of Wisconsin kanye neGunya Lemitholampilo; c2018. Impilo Yezingane: Isivivinyo Sokujuluka KweCystic Fibrosis (CF) Chloride Sweat [icashunwe ngo-2018 Mar 18]; [cishe izikrini ezi-5]. Kutholakala kusuka: https://www.uwhealthkids.org/kidshealth/parents/general-health/sick-kids/cystic-fibrosis-(cf)-chloride-sweat-test/24942.html

Imininingwane ekulesi siza akufanele isetshenziswe esikhundleni sezokunakekelwa kwezokwelapha noma iseluleko. Xhumana nomhlinzeki wezempilo uma unemibuzo ngempilo yakho.