Ukuhlelela Ikusasa Lakho nge-IPF: Izinyathelo Ozozithatha Manje

-Delile

• Hlela
• Hlala usebenza
• Yeka ukubhema
• Thola okuningi nge-IPF
• Nciphisa ukucindezeleka kwakho
• Funa ukusekelwa ngokomzwelo
• Hlala phezu kokwelashwa kwakho
• Gwema ukuqhubekela phambili
• Lungisa imibhalo yakho yezimali kanye nezinhlelo zokuphela kwempilo
• Thola ukunakekelwa kokuphela kokuphila
• Ukudla okudlela endlini

Ukubuka konke

Ikusasa lakho nge-idiopathic pulmonary fibrosis (IPF) lingabukeka lingaqinisekile, kodwa kubalulekile ukuthatha izinyathelo manje ezizokwenza umgwaqo ongaphambili ube lula kuwe.

Ezinye izinyathelo zifaka phakathi ukwenza ushintsho lwendlela yokuphila khona lapho, kanti ezinye zidinga ukuthi ucabange kusengaphambili futhi uzilungiselele ngokufanele.

Nazi ezinye izinto okufanele uzenze ngemuva kokuxilongwa kwe-IPF.

Hlela

Inhlangano ingakusiza ukuphatha kangcono i-IPF yakho ngezindlela eziningana. Kuzokusiza ukuphatha uhlelo lwakho lokwelashwa, kufaka phakathi imishanguzo, ukuqokwa kodokotela, imihlangano yeqembu lokusekela, nokuningi.

Kufanele futhi ucabangele ukuhlela indawo yakho yokuhlala ebonakalayo. Ungaba nobunzima bokuhambahamba njengoba i-IPF yakho iqhubeka. Beka izinto zasendlini ezindaweni okulula ukufinyelela kuzo futhi uzigcine endaweni yazo ekhethiwe ukuze ungazifuneli ikhaya lakho.

Sebenzisa i-planner ngama-aphoyintimenti, ukwelashwa, nezibopho zenhlalo ukukusiza unamathele ekwelashweni kwakho futhi ubeke phambili lokho okubalulekile. Ungahle ungakwazi ukuzibophezela emisebenzini eminingi njengoba wenza ngaphambi kokuxilongwa kwakho, ngakho ungavumeli ikhalenda lakho libe matasa kakhulu.

Ekugcineni, hlela imininingwane yakho yezokwelapha ukuze abantu obathandayo noma abasebenzi bezokwelapha bangakusiza ukuphatha i-IPF. Ungahle udinge usizo olwengeziwe ngokuhamba kwesikhathi, futhi ukuba nezinhlelo zenhlangano ezikhona kuzokwenza kube lula ngabantu ukukusiza.

Hlala usebenza

Kungadingeka ukuthi wehlise isibalo semisebenzi ohlanganyela kuyo njengoba izimpawu ze-IPF ziqhubeka, kepha akufanele uhlehle ngokuphelele empilweni. Thola izindlela zokuhlala usebenza futhi uphume ukujabulela ongakwenza.

Ukuzivocavoca umzimba kungasiza ngezizathu eziningi. Kungakusiza:

• thuthukisa amandla akho, ukuguquguquka, nokusakazwa kwegazi
• balale ebusuku
• phatha imizwa yokudangala

Ungaba nenkinga yokugcina inqubo yokuzivocavoca uma izimpawu zakho ziba zimbi. Khuluma nodokotela wakho noma ithimba lakho lokuvuselela amaphaphu ukuthola izeluleko zokuthi ungazivocavoca kanjani ne-IPF.

Kukhona ezinye izindlela zokuhlala usebenza ezingafaki ukuvivinya umzimba. Zibandakanye ezintweni zokuzilibazisa ozijabulelayo noma ezokuzijabulisa nabanye. Uma udinga, sebenzisa idivayisi ehlanganisiwe ukukusiza ukuthi uzulazule ngaphandle noma ngasendlini yakho.

Yeka ukubhema

Ukubhema nokubhema ugwayi kungakhubaza ukuphefumula kwakho nge-IPF. Uma ubhema, khuluma nodokotela wakho mayelana nokuthi ungayeka kanjani ngemuva kokuxilongwa. Bangakusiza ukuthi uthole uhlelo noma iqembu lokusekela elizokusiza uyeke.

Uma abangani noma amalungu omndeni ebhema, bacele ukuthi bangakwenzi eduze kwakho ukuze ugweme ukuvezwa ngogwayi.

Thola okuningi nge-IPF

Ngemuva kokuxilongwa kwakho, kuwumqondo omuhle ukufunda okuningi ngangokunokwenzeka nge-IPF. Buza udokotela wakho noma yimiphi imibuzo onayo, cwaninga ngesimo esiku-inthanethi, noma uthole amaqembu okusekela ukuthola eminye imininingwane. Qiniseka ukuthi imininingwane oyiqoqayo ivela emithonjeni ethembekile.

Zama ukungagxili kuphela ezicini zokuphela kwempilo ze-IPF. Funda ukuthi ungaziphatha kanjani izimpawu futhi ugcine impilo yakho isebenza futhi igcwele isikhathi eside ngangokunokwenzeka.

Nciphisa ukucindezeleka kwakho

Ukucindezeleka noma ukucindezeleka ngokomzwelo ngemuva kokuxilongwa kwakho kwe-IPF kuvamile. Ungasizakala ngezindlela zokuphumula zokunciphisa ukucindezeleka futhi unciphise ingqondo yakho.

Enye indlela yokunciphisa ukucindezeleka ngokwenza ukucabanga. Lolu uhlobo lokuzindla oludinga ukuthi ugxile kokwamanje. Kungakusiza ukuvimba imizwa engemihle futhi uvuselele isimo sakho sengqondo.

Kuphakanyiswe ukuthi izinhlelo zokucabanga zingathinta imizwa nokucindezeleka kubantu abanezimo zamaphaphu njenge-IPF.

Ungathola ezinye izindlela zokuzindla, izivivinyo zokuphefumula, noma i-yoga zisize ekunciphiseni ukucindezeleka.

Funa ukusekelwa ngokomzwelo

Ngaphezu kwengcindezi, i-IPF ingaholela ezimeni zempilo yengqondo njengokucindezeleka nokukhathazeka. Ukukhuluma nodokotela, umeluleki, othandekayo, noma iqembu lokusekelwa kungasiza isimo sakho sengqondo.

Ukwelashwa kokuziphatha kwengqondo nomchwepheshe wezempilo yengqondo kungakusiza ukuthi usebenze ngemizwa yakho mayelana nalesi simo. Kwezinye izimo, udokotela wakho angancoma imithi yokubhekana nezimo ezithile zempilo yengqondo.

Hlala phezu kokwelashwa kwakho

Ungavumeli umbono we-IPF uphazamise uhlelo lwakho lokwelashwa. Ukwelashwa kungasiza ekuthuthukiseni izimpawu zakho kanye nokubambezela ukuqhubeka kwe-IPF.

Uhlelo lwakho lokwelashwa lungafaka:

• ama-aphoyintimenti avamile nodokotela wakho
• imithi
• ukwelashwa komoya-mpilo
• ukuvuselelwa kwamaphaphu
• ukufakelwa kwamaphaphu
• ukuguqulwa kwendlela yokuphila njengezinguquko ekudleni kwakho

Gwema ukuqhubekela phambili

Kubalulekile ukuthi wazi izindawo ezikuzungezile ukuze ukwazi ukugwema izindawo ezandisa ubukhali bezimpawu zakho.

Nciphisa ubungozi bokugula ngokugeza izandla njalo, ugweme ukuxhumana nalabo abanemikhuhlane noma imikhuhlane, nokuthola imigomo ejwayelekile yomkhuhlane nenyumoniya.

Hlala kude nezindawo ezinentuthu noma ezinye izinto ezingcolisa umoya. Ukuphakama okuphezulu kungadala nobunzima bokuphefumula.

Lungisa imibhalo yakho yezimali kanye nezinhlelo zokuphela kwempilo

Zama ukubeka amadokhumende akho wezezimali kanye nezinhlelo zokuphela kokuphila ngokulandelana ngemuva kokuxilongwa kwe-IPF. Yize ungafuni ukugxila kumphumela waleso simo, ukunakekela lezi zinto kungakunika ukuthula kwengqondo, kuqondise ukwelashwa kwakho, futhi kusize obathandayo.

Hlanganisa amarekhodi akho ezezimali bese udlulisa imininingwane kumuntu ozophatha izindaba zakho.

Qiniseka ukuthi unamandla obumeli, incwadi yefa, kanye nomhlahlandlela wangaphambi kwesikhathi. Amandla akho ommeli asebenza njengomenzi wesinqumo ekunakekelweni kwakho kwezokwelapha nasezimalini uma ungakwazi ukwenza kanjalo. Ukuqondiswa kusengaphambili kuzoveza izifiso zakho zokungenelela nokunakekelwa kwezokwelapha.

Thola ukunakekelwa kokuphela kokuphila

Kubalulekile ukufunda ngezinsizakalo zezokwelapha nezinye izinsizakalo ongazidinga ngokuzayo. Lokhu kuzosiza ukukunikeza wena nabathandekayo bakho ukwesekwa njengoba umsebenzi wakho wamaphaphu uncipha.

Ukunakekelwa kwe-palliative kugxile ekuphatheni ubuhlungu, hhayi kuphela ekugcineni kwempilo. Ukunakekelwa kwe-Hospice kuyatholakala kulabo abangaphila izinyanga eziyisithupha noma ngaphansi. Ungathola zombili izinhlobo zokunakekelwa ekhaya lakho noma endaweni yokunakekelwa kwezokwelapha.

Ukudla okudlela endlini

Kunezindlela eziningi ongalawula ngazo ikhwalithi yempilo yakho futhi uzilungiselele izinselelo ezilandela ukuxilongwa kwe-IPF.

Ukuzihlomisa ngolwazi oluwusizo, ukuhlala ubandakanyekile futhi usebenza, ukulandela uhlelo lwakho lokwelashwa, nokulungiselela izindaba zakho zokuphela kokuphila ngezinye zezindlela ongaya ngazo phambili.

Qiniseka ukuthi ubuza udokotela wakho noma ithimba lezokwelapha nganoma imiphi imibuzo onayo njengoba uzulazula empilweni nge-IPF.