Amabhulogi ama-Multiple Sclerosis ahamba phambili we-2020

-Delile

• MultipleSclerosis.net
• Umbhangqwana Uthatha i-MS
• Okujwayelekile Kwami Okusha
• Ukuxhumeka kwe-MS
• Intombazane ene-MS
• Izingxoxo ze-MS
• Multiple Sclerosis News Namuhla
• I-Multiple Sclerosis Trust
• I-MS Society yaseCanada
• Ukudlula Ku-Treacle
• Dinosaurs, Izimbongolo kanye MS
• U-Yvonne deSousa
• Sock wami Odd
• Ukukhubeka Emafulethini
• Ukubukwa kwe-MS nezindaba
• I-Rach efinyelelekayo
• Kahle futhi Namandla nge-MS
• I-MS Muse

I-Multiple sclerosis (MS) iyisifo esingalindelekile esinezimpawu ezahlukahlukene zezimpawu ezingafika, zihambe, zihlale isikhathi eside, noma zibe zimbi kakhulu.

Kwabaningi, ukuqonda amaqiniso - {textend} kusuka ekukhetheni ukuxilongwa nokwelashwa kuya ezinselele zokuphila nalesi sifo - i- {textend} isinyathelo sokuqala sokufunda ukuthi singasilawula kanjani ngempumelelo.

Ngenhlanhla, kukhona umphakathi osekelanayo laphaya ozohola indlela ngokunxusa, ukwazisa, nokuthola okwangempela nge-MS.

Lawa mabhulogi enze uhlu lwethu oluhle kakhulu kulo nyaka ngezinhloso zawo ezihlukile, uthando, nokuzibophezela ekusizeni labo abaphila ne-MS.

MultipleSclerosis.net

Ukuphepha ukushayela, ukucindezelwa kwezezimali, ukukhuluphala kwesisindo, ukukhungatheka, nokwesaba ikusasa - {textend} kwabaningi abaphila ne-MS, lokhu kungukukhathazeka okusebenzayo, futhi leli sayithi alibalekeli noma iyiphi yazo. Ithoni engaphambili nengavuniswanga iyingxenye yalokho okwenza okuqukethwe kubhulogi ye- MultipleSclerosis.net kube namandla. Ababhali abasebancane nabameli be-MS abanjengoDevin Garlit noBrooke Pelczynski bakutshela njengoba kunjalo. Kukhona nesigaba se-MS ne-Mental Health, esibalulekile kunoma ngubani olwa nemithelela engokomzwelo yalesi sifo noma ukucindezeleka okungahambisana nokugula okungamahlalakhona.

Umbhangqwana Uthatha i-MS

Ingqikithi yayo, le yindaba ephawulekayo yothando ngabantu ababili abaphila ne-MS. Kepha akugcini lapho. Umbhangqwana oshadile uJennifer noDan bobabili bane-MS futhi banakekelane. Kubhulogi labo, babelana ngemininingwane yezimpi zabo zansuku zonke nempumelelo yabo, kanye nezinsizakusebenza ezicatshangelwe ukusiza ukwenza lula impilo nge-MS. Bayakugcina ekwazini konke ukuzijabulisa kwabo, umsebenzi wokukhuthaza, nokuthi babaphatha kanjani futhi bawaphathe kanjani amacala abo e-MS.

Okujwayelekile Kwami Okusha

Abantu abane-MS ababhekene nezimpawu noma abanesikhathi esinzima ikakhulukazi bazothola izeluleko eziwusizo lapha. UNicole Lemelle ubelokhu engummeli emphakathini we-MS inqobo nje uma iningi lethu lingakhumbula, futhi uthole indawo emnandi phakathi kokuxoxa indaba yakhe ngokuthembeka nokuqhubeka nokugqugquzela nokuphakamisa umphakathi wakhe. Uhambo lukaNicole lwe-MS lube lukhuni eminyakeni yamuva, kepha wabelana ngesibindi sakhe ngendlela ezokwenza ufune ukumgona ngesikrini sekhompyutha.

Ukuxhumeka kwe-MS

Abantu abane-MS nabanakekeli babo abafuna ugqozi noma imfundo bazoyithola lapha. Le bhulogi inikeza izindaba eziningi ezahlukahlukene ezivela kubantu abane-MS kuzo zonke izigaba zempilo yabo. I-MS Connection ikhuluma ngakho konke kusuka ebudlelwaneni nasekuzivocavoca kuya ezelulekweni lomsebenzi nakho konke okuphakathi. Iphethwe yiNational MS Society, ngakho-ke uzothola izindatshana ezibalulekile zocwaningo eziphonswe lapha, nazo.

Intombazane ene-MS

Abantu abasanda kutholakala bene-MS bazothola le bhulogi ilusizo ikakhulukazi, noma ngabe ngubani ophila ne-MS angathola inani kulezi zihloko.UCaroline Craven wenze umsebenzi omangalisayo ekwakheni insiza esebenzayo yabantu abane-MS efaka izihloko ezinjengamafutha abalulekile, izincomo zokwengeza, nokuphila kahle ngokomzwelo.

Izingxoxo ze-MS

Le bhulogi iyasiza kubantu abasanda kutholakala bene-MS, noma noma ngubani onenkinga ethile ye-MS abathanda ukwelulekwa kuyo. Iphethwe yi-Multiple Sclerosis Association of America, izindatshana zibhalwe ngabantu abane-MS abavela kuzo zonke izizinda zokuphila. Lesi yisiqalo esihle kubantu abafuna isithombe esigcwele se-MS.

Multiple Sclerosis News Namuhla

Uma ufuna noma yini engathathwa njengezindaba zomphakathi we-MS, kulapho uzokuthola khona. Lokhu ukuphela kwencwadi eku-inthanethi ehambisa izindaba ezihlobene ne-MS nsuku zonke, ukuhlinzeka ngemithombo engaguquguquki futhi esesikhathini.

I-Multiple Sclerosis Trust

Abantu abane-MS abahlala phesheya bazokujabulela lokhu izindatshana ezahlukahlukene ezimboza ucwaningo lwe-MS. Kukhona nezindaba zomuntu siqu zabantu abaphila ne-MS nohlu lwemicimbi ehlobene ne-MS nabaxhasi bezimali abaseduze ne-United Kingdom.

I-MS Society yaseCanada

Ngokusekelwe eToronto, le nhlangano ihlinzeka ngezinsizakalo kulabo abaphila ne-MS nemindeni yabo, futhi ixhasa ngemali ucwaningo lokuthola ikhambi. Ngobulungu obungaphezu kwe-17,000, bazibophezele ekusekeleni kokubili ucwaningo lwe-MS nezinsizakalo. Ngibhekabheka izindawo ezibhekwayo zocwaningo nezindaba zezimali, bese ubamba iqhaza kuma-webinars wezemfundo wamahhala.

Ukudlula Ku-Treacle

Umugqa kule bhulogi ethinta inhliziyo futhi engagunci “uyakhubeka empilweni ne-MS.” Umbono kaJen othembekile futhi onikwe amandla uzwelana nakho konke okuqukethwe lapha - {textend} kusuka kokuthunyelwe kubuzali be-spoonie kuya kumaqiniso okuphila "necala lokugula okungapheli" ekubuyekezweni komkhiqizo. UJen ubambisana neDizzycast, ipodcast eneDinosaurs, izimbongolo kanye neMS (bheka ngezansi).

Dinosaurs, Izimbongolo kanye MS

UHeather ungumlingisi oneminyaka engu-27 ubudala, uthisha nommeli we-MS ohlala eNgilandi. Watholwa ene-MS eminyakeni eminingana edlule, futhi waqala ukubhuloga ngemuva nje kwalokho. Ngaphezu kokwabelana ngemicabango nangemibono ku-MS, uthumela “izidlo, izinto zokuphumula, nanoma yiziphi izinto zokuzivocavoca” eziba usizo. Ukholelwa ngokuqinile endleleni yokuphila enempilo esiza ukwenza ngcono impilo ne-MS, uHeather uvame ukuhlanganyela lokho okumsebenzele kangcono.

U-Yvonne deSousa

UYvonne deSousa unjalo kuyahlekisa. Dlulisa amehlo ekhasini lakhe le-bio futhi uzobona ukuthi sisho ukuthini. Ubuye futhi waphila nokubuyela emuva ekhipha i-MS kusukela eminyakeni engama-40. Wasabela kanjani lapho etholakala okokuqala? “Kunzima ukukholwa kodwa ngaqala ukuhleka. Ngibe sengikhala. Ngashayela udadewethu uLaurie okwatholakala ukuthi une-MS cishe eminyakeni eyishumi ngaphambili. Wangihlekisa. Ngabona ukuthi ukuhleka kumnandi kakhulu. Ngibe sengiqala ukubhala. ” Ikhono likaYvonne lokuthola amahlaya yize ebhekene nobunzima liyaphawuleka, kepha ukhuluma iqiniso uma izinto ziba mnyama kakhulu noma kunzima ukuhleka ngazo. Uyabhala: “I-Multiple Sclerosis iyabucayi futhi iyethusa. “Le mibhalo yami ayihloselwe ukuthi nganoma yisiphi isimo ilulaze lesi simo noma labo abaphethwe yiso, ikakhulukazi labo abasezingeni eliphezulu. Lokhu engikubhalile kuhloselwe ukunikeza ukumamatheka okufushane kulabo abangakwazi ukuqonda ezinye zezimo ezixakile ezivela ku-MS. ”

Sock wami Odd

UDoug we-My Odd Sock ngazizwa nje ukuthi udinga ukuhlekwa ngemuva kokuxilongwa kwakhe nge-MS emuva ngo-1996. Futhi wahleka. Ngebhulogi yakhe, usimema sonke ukuthi sihleke naye. Ingxube kaDoug yokuziqhenya nolimi-esihlathini ukuzenyeza okuhambisana nokwethembeka kwakhe okunesihluku ngokuhlala ne-MS kwenza okuthunyelwe kwakhe kubhulogi kube nokuzola phakathi kwesiphepho. Echithe umsebenzi wakhe wokuba ngusomahlaya nomlobi wezokukhangisa, uDoug uyazi ubuthaphuthaphu “bokunxenxa imfundo.” Ufuna ukufundisa abafundi bakhe ngamaqiniso e-MS noma ngabe kuba namahloni, njengokuba nobunzima obungalindelekile ukuchama noma ukudlulisa ukunyakaza kwamathumbu, noma ukwakhiwa okungalindelekile ngenkathi uthola i-Botox isibhamu emlenzeni ehhovisi likadokotela. Usigcina sihleka sonke kanye kanye.

Ukukhubeka Emafulethini

Okukhubekisa emafulethini yincwadi-ephendulwe ibhulogi ngumphathi wephrojekthi-oguqukele-onguchwepheshe-umbhali-nge-PhD uBarbara A. Stensland. Ngokusekelwe eCardiff, eWales, uBarbara watholakala ene-MS ngo-2012 futhi akanamahloni okuvuma ukuthi i-MS ibilokhu iyisikhubekiso empilweni yakhe. Uyekisiwe emsebenzini ngenxa ye-MS yakhe, kepha lokho akumvimbanga ekutholeni i-MA ekubhaleni ngobuciko, ukuwina imiklomelo eminingana ngokubhala kwakhe, ukuba ngumxhumanisi kumabhayisikobho ngokukhonjiswa okunembile kwe-MS, evela kwi-BBC naku-BBC Wales, nokunikela kumawebhusayithi amaklayenti ahlukahlukene njengezinkampani ezithaka imithi kanye nemiphakathi ye-MS. Umlayezo kaBarbara ukuthi ungakwazi ukwenza noma yini, noma ngabe unesifo se-MS. Ubuye asebenzise ukuqashelwa kwakhe njengombhali ukusiza ukuletha ukuqwashisa kwamanye ama-blogger abhala nge-MS.

Ukubukwa kwe-MS nezindaba

Ungavumeli isifanekiso esilula seBlogspot sikukhohlise. I-MS Views ne-News icebile ngolwazi mayelana nokuqhamuka kwesayensi kwakamuva nezifundo ezihlobene ne-MS kanye nocwaningo olunqenqemeni lwezokwelapha ze-MS kanye nezixhumanisi ezinsizakalweni eziwusizo. UStuart Schlossman waseFlorida watholakala ene-MS ngo-1999 futhi wasungula i-MS News kanye ne-Views ukunikela ngevolumu enkulu yokuqukethwe okuhlobene nesayensi nokwelashwa okuhlobene ne-MS konke obekuhlala endaweni eyodwa kunokuba kuhlakazeke kuyo yonke i-Intanethi. Lesi ngempela isitolo esisodwa sokumisa ukwazi ukuthi kwenzekani ngocwaningo lwe-MS futhi usondele emithonjeni eyinhloko ngangokunokwenzeka ngaphandle kokuhlunga izinkulungwane zezinsizakusebenza kuwebhu.

I-Rach efinyelelekayo

URachael Tomlinson yigama lewebhusayithi yakhe i-Accessible Rach (umugqa wethegi: “ngaphezu kwesihlalo esinamasondo”). Ungumlandeli wombhoxo osuselwa eYorkshire, eNgilandi futhi kuqala. Futhi selokhu athola ukuthi une-MS ehamba phambili, uguqule impilo yakhe ne-MS yaba yithuba lokukhuluma ngokutholakala kwesihlalo sabakhubazekile (noma ukungabi khona) kwemidlalo eminingi yeligi yombhoxo kulo lonke elase-United Kingdom. Umsebenzi wakhe usize ukuletha ukuqwashisa ngodaba lokutholakala kwenkundla yezemidlalo. Ungowesifazane waseRenaissance. Usebenzisa ikhasi elidumile le-Instagram elikhuthaza amathiphu wobuhle nezimonyo ngenkathi esiza ukusabalalisa ukuqwashisa kwe-MS nokuqeda inhlamba ezungeze usebenzisa isihlalo esinamasondo.

Kahle futhi Namandla nge-MS

I-Well and Strong nge-MS ngumsebenzi womsunguli we-SocialChow kanye ne-CEO u-Angie Rose Randall. U-Angie wazalelwa wakhulela eChicago futhi waba nguchwepheshe wezokuxhumana ngaphambi kokutholakala ukuthi une-MS ebuyela emuva eneminyaka engama-29. Umsebenzi wakhe ukubeka impilo yakhe ematasa ekhombisa ukukhombisa ukuthi kusenokwenzeka kangakanani noma ngabe sekuphethwe yi-MS. Futhi ngezindima eziningi zesikhathi esigcwele, kufaka phakathi ukuqhuba inkampani yakhe namakhasimende aphezulu njengeSprint ne-NASCAR, ukukhulisa izingane ezimbili ezincane noShih Tzu, futhi ngokubhala ngokungaguquki ngokuhlangenwe nakho kwakhe, ugcwele izandla. Futhi wenza umsebenzi omuhle wokuthola umsebenzi kuwo.

I-MS Muse

Le bhulogi eyeyakho uqobo eyabhalwa ngowesifazane omnyama osemusha owathola ukuxilongwa kwe-multiple sclerosis eminyakeni eyi-4 eyedlule. Uzimisele ngokuhlola impilo yakhe ngokungesabi futhi angavumeli i-MS imchaze. Ibhulogi ifaka i-akhawunti yakhe yomuntu wokuqala yokuhlala ne-MS. Uzomthola “IziKronike Ezikhubazekile” ne- “The Journal” zigcwele izindaba zansuku zonke eziqondile ngaphandle kokumboza ushukela. Uma ufuna ukufunda izindaba ezinesibindi futhi ezivulekile zokukhubazeka, ukubuyela emuva, kanye nokudangala okungahambisana ne-MS, kuhlanganiswe nethemba lika-Ashley, le yibhulogi yakho.

Unebhulogi oyithandayo ongathanda ukuyikhetha? Sithumele i-imeyili ku- [email protected].