I-Chronicon Idala Isikhala Sabantu Abanezimo Ezingamahlalakhona Zokuxhuma Nokufunda

-Delile

• Bukela umcimbi orekhodiwe kusuka ngo-Okthoba 28th 2019.
• Igig eyodwa yokukhuluma ishintshe konke
• Ithuba lokuxhuma, ufunde, futhi unikeze ukusekelwa
• Ukuphula umjikelezo wokuzihlukanisa

I-Healthline ibambisene ne-Chronicon kulo mcimbi wosuku olulodwa.

Bukela umcimbi orekhodiwe kusuka ngo-Okthoba 28th 2019.

Lapho eneminyaka engu-15, uNitika Chopra wayembozwe kusuka ekhanda kuye ozwaneni nge-psoriasis ebuhlungu, okuyisimo atholakale enaso eneminyaka eyi-10.

“Ngangihlale ngizizwa ngehlukile empilweni. Nganginomuntu okhohlisayo, futhi ngangingahloniphekile esikoleni, futhi ngangingenye yezingane ezinsundu kuphela esikoleni. I-Psoriasis izwakale njengokunye ukwahlukana phakathi kwami ​​nabo bonke abanye abantu abebecashunwa, akubuzwa ngendlela ejwayelekile, ”kusho uChopra etshela abeHealthline.

Isimo sakhe futhi simenze walwela ukuthola inhloso.

"Ngangisendaweni ephansi futhi ngiyakhumbula ngithandaza futhi ngibuza uNkulunkulu, 'Kungani ngilapha? Angisafuni ukuba lapha, ’futhi umyalezo engiwubuyile wawucacile njengosuku futhi ungiqondisile kukho konke engikwenzile. Umlayezo wawuthi: Lokhu akumayelana nawe, ”kusho uChopra.

Lo muzwa wamsiza ukuba abhekane neminyaka, noma ngabe ethola ukutholakala kwesifo samathambo esasineminyaka engu-19 ubudala.

“Ngangisekolishi ekamelweni lami lokulala futhi ngangizama ukuvula isikhwama ngaphakathi kwebhokisi lokusanhlamvu futhi izandla zami zazingeke zisebenze. Ngangingakaze ngibe nezinkinga zokuhamba, kepha lapho ngiya kudokotela ngatshelwa ukuthi ngine-psoriatic arthritis, ”kukhumbula uChopra.

Eminyakeni eyisikhombisa eyalandela, amathambo akhe aqala ukukhubazeka ngokushesha kwaze kwaba seqophelweni lokuthi angakwazi ukuhamba ngaphandle kobuhlungu obukhulu ezinyaweni zakhe. Eminyakeni engama-25, wabona i-rheumatologist eyafaka imithi yokusiza ukunciphisa inqubo yokuwohloka. Wabuye wafuna ukuphulukiswa okuphelele kanye nokomoya, kanye nokwelashwa kwengqondo.

“Ukuphulukisa akuyona into eqondile. Ngisenayo i-psoriasis, noma kungenjalo ngendlela engangiyenza ngayo, kodwa wuhambo lwempilo yonke njengoba lunjalo kubantu abaningi abanezifo ezingamahlalakhona, ”kusho uChopra.

Igig eyodwa yokukhuluma ishintshe konke

Cishe eminyakeni eyishumi eyedlule, uChopra wayebamba iqhaza ohlelweni lokuqeqesha impilo lapho ezwa isifiso sokuhlanganyela umbono wakhe nezwe. Uqale ibhulogi ngo-2010, wenza uhlelo lwakhe lwenkulumo, futhi waqala ukwenza izinto zomphakathi njengesiyaluyalu sokuzithanda.

“Zonke lezi zinto ziqale ukwenzeka kodwa bengingagxilile ekuguleni okungalapheki. Bengisaba ukungena ekuguleni kwami ​​ngoba bengingafuni ukubukeka sengathi ngifuna ukunakwa, ”usho kanje.

Kodwa-ke, lokho kwashintsha lapho ebhukha i-gig yokukhuluma ekwindla ka-2017. Yize ayeqashelwe ukukhuluma ngokuzithanda futhi, wakhetha ukugxila esihlokweni njengoba sihlobene nomzimba, impilo kanye nokugula okungamahlalakhona.

"Lowo mcimbi ushintshe ukuzethemba kwami ​​ngokukhuluma ngawo ngoba ngemuva kwalokho bekunabesifazane abali-10 abebebuza imibuzo kanti abangu-8 kulabo besifazane bebenezifo ezingamahlalakhona kusuka kushukela kanye ne-lupus kuya kumdlavuza," kusho uChopra. “Ngikhulume nalabo besifazane ngendlela engingazi ukuthi ngikwazi ukuyenza emphakathini. Kwakusuka engxenyeni ejulile yeqiniso lami futhi ngangibona ukuthi empeleni ngibasizile ngendlela ababezizwa bebonwa ngayo futhi bengahlali bodwa. ”

Ithuba lokuxhuma, ufunde, futhi unikeze ukusekelwa

Indlela yakhe yakamuva yokusiza abanye ukubambisana neHealthline ukubamba i-Chronicon, umcimbi wosuku olulodwa owenzeka ngo-Okthoba 28, 2019 eNew York City.

Usuku luzogcwaliswa ngomyalezo owamukelekile ovela kuChopra, izingoma zomculo, namaphaneli nezikhathi zonke ezihlobene nokugula okungalapheki. Izihloko zifaka ukuphola, ukudla okunomsoco, nokuzikhuthaza.

"Kuzoba njengendlu emnandi usuku lonke, kepha ibekwe engcupheni naseqinisweni, nezinye izikhulumi ezinamandla impela," kusho uChopra.

Esinye sezikhulumi zalo mcimbi, u-Eliz Martin, uzokhuluma ngendlela asebenzelana ngayo nabantu abangaqondi izinga lobuhlungu abubekezelela kwi-multiple sclerosis (MS), nokuthi uliphatha kanjani ihlazo elihambisana nesimo sakhe.

UMartin watholakala ngokushesha ene-MS ngoMashi 21, 2012.

UMartin utshela uHealthline: "Ngavuka ngalolo suku ngingakwazi ukuhamba, kwathi kusihlwa ngalolo suku kwatholakala ukuthi ngitholakele ngemuva kokuhlola i-MRI yobuchopho, intamo nomgogodla wami."

Usuke ekubeni ngowesifazane ozimele, ophumelelayo emsebenzini waba nokukhubazeka futhi ehlala nabazali bakhe.

“Bengizithola ngilwa kanzima nsuku zonke ngokuhamba ngisebenzisa induku yokubamba ingalo noma isihlalo sabakhubazekile… kodwa indawo ethinteke kakhulu empilweni yami ibivele iphila nokugula okungalapheki. Kuyinto ezoba nami kuze kube phakade. Lokho ukuxilongwa okunzima, ”usho kanje.

UMartin wajoyina i-Chronicon ukusiza ukunciphisa umthwalo.

"Sonke isikhathi ngizwa kubangane enginabo abane-MS ukuthi kungahlukaniswa kanjani ngempela," kusho uMartin. "I-Chronicon iletha umqondo womphakathi ophathekayo - yindawo yethu yokuthi sihlangane futhi sixhumane futhi sifunde futhi sisekelwe."

Ukuphula umjikelezo wokuzihlukanisa

Isikhulumi esikanye nesithonjana sesitayela uStacy London naye ubamba iqhaza kulo mcimbi ngezizathu ezifanayo. Ngesikhathi se-Chronicon, uzohlala phansi noChopra baxoxe ngohambo lwakhe lokuphila ne-psoriasis kusukela eneminyaka engu-4 ubudala, nange-psoriatic arthritis kusukela eminyakeni engama-40.

ILondon izobuye ixoxe ngempilo yengqondo, kanye nobuhlungu nokuhlukumezeka okuza nokugula okungalapheki.

"Inkinga yezifo eziningi ezizimele [nezifo ezingamahlalakhona] ukuthi ziyakudinisa, futhi kunezikhathi lapho umqondo wokuba nento ebulalayo umcabango omkhulu ukudlula ukuthi, 'Kuzofanele ngiphathe konke lokhu impilo, '”kusho uLondon kuHealthline.

Uthi i-Chronicon ingasiza ukuguqula imizwa yokuhlukaniswa ibe yimizwa yethemba.

“Kungumqondo omuhle kakhulu uma ucabanga ukuthi zingaki izigidi zabantu emhlabeni jikelele ezihlushwa izifo ezingamahlalakhona ezibashiya bephelelwe yimakhaya noma behlupheka - noma ngabe kungokwengqondo noma okungokomzimba noma kokubili. Kwa-Chronicon, ngeke usazizwa uwedwa. Ungahle ungabi nokugula okungalapheki njengomuntu oseduze kwakho, kodwa ukubabheka bese uthi, ‘Ntombazane, ngiyazi ukuthi lowo mzabalazo uzizwa kanjani’ kuyamangalisa. ”

UChopra uyavuma. Ithemba lakhe elikhulu nge-Chronicon ukuthi liyasiza ekuqedeni umjikelezo wokuzihlukanisa.

"Kulabo abasesikhala sokuchuma ngokugula kwabo okungamahlalakhona, bazohlangana nabantu futhi bazizwe bengangedwa futhi benogqozi lokuphumelela kakhulu," esho. "Kulabo abanenkinga yokugula okungalapheki, bazozizwa bengekho bodwa futhi bahlakulele ubudlelwano obujulile emiphakathini yabo."

"Lapho ngilwa nokugula kwami, ngivalela abantu ngaphandle, kodwa ngiyethemba ukuthi i-Chronicon inika abantu amathuluzi nosizo lomphakathi wethu ukuze bakwazi ukungena ebudlelwaneni babo [ngokuzethemba okukhulu]," usho kanje.

Thenga amathikithi akho e-Chronicon lapha.

UCathy Cassata ungumbhali ozimele ogxile ezindabeni eziphathelene nempilo, impilo yengqondo nokuziphatha kwabantu. Unekhono lokubhala ngomzwelo nokuxhumana nabafundi ngendlela enokuqonda nebandakanyayo. Funda kabanzi ngomsebenzi wakhe lapha.