ICystic Fibrosis nokukhulelwa

-Delile

• Imiphumela ekukhulelweni
• Ukuhlola ngesikhathi sokukhulelwa
• Izeluleko zokuphila
• Yidla kahle
• Ukuzivocavoca umzimba
• Amanye amathiphu okuqinisekisa ukukhulelwa okunempilo
• Imithi okufanele uyigweme ngenkathi ukhulelwe
• Amathiphu wokukhulelwa nge-cystic fibrosis
• Ukudla okudlela endlini

Uma une-cystic fibrosis, kusenokwenzeka ukuthi ukhulelwe futhi uphathe ingane kuze kube sesikhathini. Kodwa-ke, kuzodingeka ukuthi ubhekwe ngeso elibukhali kulezi zinyanga eziyisishiyagalolunye ukuqinisekisa ukuthi wena nengane yakho nihlala niphilile.

Ukuze uzinike ithuba elihle lokuthola ukukhulelwa okuyimpumelelo, bheka udokotela obelethisa onobungozi obukhulu ngaphambi kokuzama ukukhulelwa.

Lo chwepheshe uzokwenza lokhu:

• hlola impilo yakho
• unqume ukuthi kuphephile yini ukuthi ungakhulelwa
• ukukuqondisa ekukhulelweni

Uzosebenzisana futhi nodokotela wamaphaphu ophatha i-cystic fibrosis yakho phakathi nokukhulelwa kwakho.

Nasi ukubuka kuqala kwalokho ongakulindela njengoba uqala ukuhlela umndeni.

Imiphumela ekukhulelweni

Ngesikhathi sokukhulelwa, izimpawu zakho ze-cystic fibrosis zingase zibe zimbi kakhulu. Ingane ekhulayo ingafaka ingcindezi emaphashini akho futhi ikwenze kube nzima ukuphefumula. Ukuqunjelwa kuvamile nakwabesifazane abane-cystic fibrosis.

Ezinye izinkinga zokukhulelwa kwe-cystic fibrosis zifaka:

• Ukulethwa ngaphambi kwesikhathi. Yilapho ingane yakho izalwa ngaphambi kwesonto lama-37 lokukhulelwa. Izingane ezizalwa zisencane kakhulu zisengozini yezinkinga ezifana nobunzima bokuphefumula kanye nezifo.
• Isifo sikashukela sokukhulelwa. Yilapho-ke lapho umama enoshukela ophakeme wegazi ngesikhathi ekhulelwe. Isifo sikashukela singalimaza izitho ezifana nezinso namehlo. Kungadala nezinkinga enganeni ekhulayo.
• Umfutho wegazi ophakeme (umfutho wegazi ophezulu). Lokhu kukhuphuka ukumelana ngenxa yemithambo yegazi eqinile. Lapho umfutho wegazi uphakeme ngesikhathi sokukhulelwa, unganciphisa ukugeleza kwegazi uye enganeni yakho, unciphise ukukhula kwengane yakho, futhi kuholele ekulethweni ngaphambi kwesikhathi.
• Ukuntuleka kokudla okunempilo. Lokhu kungavimbela ingane yakho ukuba ikhule ngokwanele esibelethweni.

Ukuhlola ngesikhathi sokukhulelwa

Kukhona ithuba lokuthi ungadlulisela i-cystic fibrosis enganeni yakho. Ukuze lokho kwenzeke, umlingani wakho naye kudingeka aphathe ufuzo olungavamile. Umlingani wakho angathola ukuhlolwa kwegazi noma kwamathe ngaphambi kokuba ukhulelwe ukuhlola isimo senkampani yakhe.

Ngesikhathi sokukhulelwa, lezi zivivinyo ezimbili zokubeletha zibheka ukuguqulwa kwezakhi zofuzo okuvame kakhulu. Bangakhombisa ukuthi ngabe ingane yakho kungenzeka ibe ne-cystic fibrosis noma ithathe olunye lwezinguquko zofuzo ezaziwa ngokubangela i-cystic fibrosis:

• Isampuli ye-chorionic villus (CVS) yenziwa phakathi kwesonto le-10 nele-13 lokukhulelwa. Udokotela wakho uzofaka inaliti ende, ezacile esiswini sakho futhi uzosusa isampula lezicubu ukuze zihlolwe. Ngenye indlela, udokotela angathatha isampula esebenzisa ithubhu elincanyana elifakwa emlomo wesibeletho sakho kanye nokuncela okuncane.
• I-Amniocentesis yenziwa phakathi kweviki le-15 kanye nelama-20 lokukhulelwa kwakho. Udokotela ufaka inaliti encane, engenalutho esiswini sakho bese esusa isampula le-amniotic fluid esizungeze ingane yakho. Ilebhu bese ihlola uketshezi lwe-cystic fibrosis.

Lezi zivivinyo zokubeletha zingabiza izinkulungwane ezimbalwa zamaRandi, kuya ngokuthi ukwenze kuphi. Iningi lezinhlelo zomshuwalense wezempilo zizokhokhela izindleko zabesifazane abangaphezu kweminyaka engama-35 nakwabesifazane abanezingozi ezaziwayo.

Lapho usukwazi ukuthi ingane yakho ine-cystic fibrosis, ungenza izinqumo ngekusasa lokukhulelwa kwakho.

Izeluleko zokuphila

Ukuhlela okuncane nokunakekelwa okwengeziwe ngesikhathi sokukhulelwa kwakho kuzosiza ekuqinisekiseni umphumela omuhle kakhulu ongawuthola wena nengane yakho. Nazi izinto ezimbalwa ongazenza.

Yidla kahle

ICystic fibrosis yenza kube nzima ukuthola umsoco ofanele ngesikhathi sokukhulelwa. Uma udla okubili, kubaluleke kakhulu ukuthi uthole ama-calories nezakhi ezanele.

Udokotela wakho angancoma ukuqala kokukhulelwa kwakho ngenkomba yomzimba (BMI) okungenani engama-22. Uma i-BMI yakho iphansi kunalokho, kungadingeka ukuthi ukwandise ukudla kwakho ikhalori ngaphambi kokukhulelwa.

Uma usukhulelwe, uzodinga ama-calories angu-300 angeziwe nsuku zonke. Uma ungakwazi ukufinyelela lelo nani ngokudla kuphela, phuza izithasiselo zokudla okunempilo.

Kwesinye isikhathi ukugula kwasekuseni okunzima noma i-cystic fibrosis kungakuvimbela ekutholeni amakhalori anele ukuhlangabezana nezidingo zengane yakho. Kulokhu, udokotela wakho angase asikisele ukuthola umsoco wakho ngemithambo. Lokhu kubizwa ngokudla komzali.

Nazi ezinye izeluleko ezimbalwa zokudla okunempilo okufanele uzilandele ngenkathi ukhulelwe:

• Phuza amanzi amaningi, udle izithelo nemifino ngaphezulu, bese ufaka i-fiber ekudleni kwakho ukuvimbela ukuqunjelwa.
• Qiniseka ukuthi uthola i-folic acid eyanele, i-ayoni, novithamini D. Lezi zakhi zomzimba zibalulekile ekukhuleni kwengane yakho. Kwesinye isikhathi abantu abane-cystic fibrosis abayitholi ngokwanele.

Ukuzivocavoca umzimba

Ukuzivocavoca umzimba kubalulekile ukuze umzimba wakho ulungele ukulethwa futhi ugcine amaphaphu akho enempilo. Udokotela wakho angakutusa ukuthi wenze izivivinyo ezikhethekile ukuqinisa imisipha ekusiza ukuthi uphefumule. Buza udokotela wakho kuqala ukuthi izivivinyo ozenzayo ziphephile yini kuwe.

Futhi, thintana nodokotela wezokudla ngaphambi kokuba uqale noma yiluphi uhlelo olusha lokuzivocavoca umzimba. Udinga umsoco owenele ukuxhasa izidingo zakho zekhalori ezengeziwe

Amanye amathiphu okuqinisekisa ukukhulelwa okunempilo

Bheka odokotela bakho kaningi. Hlela ukuvakashelwa njalo kokubeletha nodokotela wakho wokubeletha onobungozi obukhulu, kodwa futhi uqhubeke nokubona udokotela ophatha i-cystic fibrosis yakho.

Gada impilo yakho. Hlala phezulu kwezimo ezinjengesifo sikashukela nesesibindi, uma unazo. Lezi zifo zingadala izinkinga zokukhulelwa uma ungazelaphi.

Hlala emithini yakho. Ngaphandle kokuthi udokotela wakho akutshele ngokuqondile ukuthi umise umuthi ngesikhathi ukhulelwe, thatha njalo ukuphatha i-cystic fibrosis yakho.

Imithi okufanele uyigweme ngenkathi ukhulelwe

Imithi yingxenye edingekayo yokuphatha i-cystic fibrosis. Izindaba ezimnandi ukuthi, iningi lemithi elapha lesi simo ithathwa njengephephile enganeni yakho.

Kodwa-ke, kunezidakamizwa ezimbalwa okufanele uzisebenzise ngokuqapha. Kukhona ithuba elincane lokuthi bangakhuphula ubungozi bokukhubazeka kokuzalwa noma ezinye izinkinga enganeni yakho engakazalwa. Izidakamizwa okufanele zibukwe zifaka:

• ama-antibiotic afana ne-ciprofloxacin (Cipro), i-clarithromycin, i-colistin, i-doxycycline (i-Oracea, iTargadox), i-gentamicin (i-Gentak), i-imipenem (i-Primaxin IV), i-meropenem (i-Merrem), i-metronidazole (i-MetroCream, i-Noritate), i-rifampin (i-Rifadin), i-trimethoprim I-Bactrim), i-vancomycin (i-Vancocin)
• imishanguzo yokulwa nobungozi efana ne-fluconazole (i-Diflucan), i-ganciclovir (i-Zirgan), i-itraconazole (i-Sporanox), i-posaconazole (i-Noxafil), i-voriconazole (i-Vfend)
• imishanguzo efana ne-acyclovir (Zovirax)
• ama-bisphosphonates ukuqinisa amathambo
• izidakamizwa ze-cystic fibrosis ezifana ne-ivacaftor (Kalydeco) ne-lumacaftor / ivacaftor (i-Orkambi)
• i-ranitidine (i-Zantac) yokwelapha isilungulela kanye ne-reflux ye-gastroesophageal
• ukufaka imishanguzo yokuvikela ukwenqatshwa, njenge-azathioprine (Azasan), mycophenolate
• ursodiol (URSO Forte, URSO 250) ukuncibilikisa amatshe enyongo

Khuluma nodokotela wakho uma uthatha noma iyiphi yale mithi. Uzodinga ukukala izinzuzo nobungozi bokuhlala kunoma imiphi imithi engadala izinkinga ngesikhathi sokukhulelwa. Udokotela wakho angakwazi ukukushintshela kwesinye isidakamizwa uze uhambise.

Amathiphu wokukhulelwa nge-cystic fibrosis

Iningi labesifazane abanalesi simo bangakhulelwa, kepha kungathatha isikhathi eside kunokujwayelekile. ICystic fibrosis iqina amafinyila kuwo wonke umzimba - kufaka phakathi amafinyila emlonyeni wesibeletho. Isicubu esijiyile senza kube nzima ukuthi isidoda sowesilisa sibhukuthele singene emlomo wesibeletho bese sivundisa iqanda.

Ukushoda kokudla okunempilo nakho kungakuvimbela ekuvuthweni kweqanda njalo. Njalo lapho uvula, i-ovary yakho ikhipha iqanda lokukhulelwa. Ngaphandle kweqanda endaweni inyanga ngayinye, ungahle ungakwazi ukukhulelwa kalula.

Uma uzame izinyanga ezimbalwa ukukhulelwa, kepha awuphumelelanga, khuluma nesazi sokuzala. Imithi yokwengeza ukukhiqizwa kwamaqanda akho noma ubuchwepheshe obusizayo bokuzala njengokufakwa kwe-in-vitro kungathuthukisa amathuba akho okukhulelwa.

Abesilisa abane-cystic fibrosis bayantula noma bavinjwe kushubhu elithwala isidoda lisuka esendeni liye kuyi-urethra ye-ejaculation. Ngenxa yalokhu, iningi alikwazi ukukhulelwa ngokwemvelo.

Bona nomlingani wabo bazodinga i-IVF ukukhulelwa. Ngesikhathi se-IVF, udokotela ususa iqanda kowesifazane nesidoda endodeni, akuhlanganise esitsheni selabhorethri, bese edlulisela umbungu esibelethweni sowesifazane.

Ngaphambi kokuba uqale i-IVF, khuluma nodokotela owelapha i-cystic fibrosis yakho. Kungadingeka ukuthi ulungise ukwelashwa kwakho, ngoba i-cystic fibrosis ingathinta ukumuncwa kwamahomoni adingekayo ku-IVF.

Ukudla okudlela endlini

Ukuba ne-cystic fibrosis akufanele kukuvimbe ekuqaleni umndeni. Ukukhulelwa kungahle kuthathe ukulungiswa nokunakekelwa okungaphezulu.

Uma usukhulelwe, sebenza ngokusondelene nabo bobabili ababelethisi abasengozini enkulu kanye nodokotela ophatha i-cystic fibrosis yakho. Uzodinga ukunakekelwa okuhle phakathi nakho konke ukukhulelwa kwakho ukuze uqinisekise imiphumela engcono kakhulu yakho kanye nengane yakho.