Yini Ongayilindela Lapho Ingane Yakho Iqala Ukwelashwa Kwe-MS

-Delile

• Sibutsetelo sokwelashwa
• Ukuthuthuka okungaba khona
• Imiphumela emibi engaba khona
• Ukwamukeleka, ukusebenziseka kalula, nezindleko
• Ukuhlola okulandelwayo
• Ukuthatha

Lapho ingane yakho iqala ukwelashwa okusha kwe-multiple sclerosis (MS), kubalulekile ukugcina amehlo akho ehlutshiwe ukuze kubonakale izimpawu zenguquko esimweni sayo.

Ngemuva kokuqala ukwelashwa okusha, ingane yakho ingathola ukuthuthuka empilweni yayo yomzimba noma yengqondo. Bangase futhi babe nemiphumela engemihle ekwelashweni.

Thatha isikhashana ufunde ukuthi ukuqala kanjani ukwelashwa okusha kungayithinta kanjani ingane yakho.

Sibutsetelo sokwelashwa

Izindlela zokwelapha eziningi zokuguqula izifo (i-DMTs) zenzelwe ukunciphisa ukuqhubeka kwe-MS.

Kuze kube manje, i-Food and Drug Administration (i-FDA) ivume kuphela eyodwa yalezi zindlela zokwelapha ukuthi isetshenziswe ezinganeni ezineminyaka eyi-10 noma ngaphezulu - futhi ayigunyaziwe ukuthi isetshenziswe ezinganeni ezingaphansi kweminyaka eyi-10.

Kodwa-ke, odokotela basengabeka ama-DMTs ezinganeni ezincane ezine-MS. Lo mkhuba waziwa ngokuthi "ukusetshenziswa kwelebula".

Abahlinzeki bezokunakekelwa kwezempilo bengane yakho bangaphinde banikeze ezinye izindlela zokwelashwa ze-MS, kufaka phakathi okukodwa noma okuningi kokulandelayo:

• eminye imishanguzo yokuqeda izimpawu zomzimba noma zokuqonda ze-MS
• ukwelashwa okuvuselelayo ukusekela ukusebenza kwengane yakho ngokomzimba noma kwengqondo
• ukusetshenziswa kwezinsiza zokuhamba noma amanye amadivayisi okusiza ukusiza ingane yakho ukuthi yenze imisebenzi ejwayelekile
• izinqubo zokugqugquzela izinzwa noma ukuhlinzwa ukwelapha izinkinga zesinye
• ukwelulekwa ngokwengqondo ukusekela impilo yengqondo yengane yakho
• izinguquko endleleni yokuphila

Uma isimo sengane yakho sishintsha nganoma iyiphi indlela, yazisa amalungu eqembu lawo lezempilo.

Ukuphatha izimpawu ezintsha noma ezimbi kakhulu, abahlinzeki babo bezempilo bangancoma ushintsho kuhlelo lwabo lokwelashwa. Ithimba labo lezempilo lingahle futhi lincome ushintsho uma kutholakala izindlela ezintsha zokwelapha, noma kushicilelwa ucwaningo olusha ngokuphepha noma ngokusebenza kwemithi ekhona.

Ukuthuthuka okungaba khona

Ngemuva kokuqala ukwelashwa okusha kwe-MS, ingane yakho ingahle ithole ukuthuthuka empilweni nasemzimbeni nokusebenza kwengqondo.

Izinzuzo ezingaba khona ziyahlukahluka kuye ngohlobo oluthile lwezokwelapha ziye kolunye.

Ngokuya ngempatho ethile ingane yakho eyitholayo:

• Bangase babhekane nokuqubuka okumbalwa noma okuncane kakhulu, ukukhushulwa ngamandla, noma ukubuyela emuva.
• Bangase babe nobuhlungu obuncane, ukukhathala, isiyezi, ukuqina kwemisipha, noma ukuqina kwemisipha.
• Ukuhamba kwabo, ukuxhumana, ukulinganisela, ukuguquguquka, noma amandla kungathuthuka.
• Bangaba nezinkinga ezimbalwa ngesinye sabo noma ukusebenza kwamathumbu.
• Bangakuthola kulula ukugxilisa ingqondo noma ukukhumbula izinto.
• Ikhono labo lokuxhumana lingathuthuka.
• Ukubona noma ukuzwa kwabo kungahle kube ngcono.
• Bangase bazizwe bengcono ngokomzwelo.

Abahlinzeki bezokunakekelwa kwezempilo bengane yakho bangabona nemiphumela ekhuthazayo ekuhlolweni nasezivivinyweni abazenzayo ngemuva kokuthi ingane yakho iqale ukwelashwa okusha.

Isibonelo, bangenza ama-MRI scan futhi bangaboni zimpawu zomsebenzi wezifo ezintsha.

Ngakolunye uhlangothi, kungenzeka futhi ukuthi isimo sengane yakho ngeke sibonakale noma sithuthuke ngokwanele ngemuva kokuthi baqale ukwelashwa okusha. Kwezinye izimo, ukuskena kwe-MRI noma okunye ukuhlolwa kungakhombisa ukuthi isimo sabo asikathuthuki noma siya ngokuya siba sibi.

Uma unganelisekile ngemiphumela yokwelashwa okusha, yazisa iqembu lezempilo lengane yakho. Bangakusiza uqonde izinzuzo nezingozi ezingaba khona zokumisa noma zokuqhubeka nokwelashwa. Futhi zingakusiza ufunde ngezinye izindlela zokwelashwa ezingatholakala.

Imiphumela emibi engaba khona

Ukwelashwa kwe-MS kungadala imiphumela emibi, engahle ibe mncane noma ibe nzima kakhulu.

Imiphumela ethile emibi iyehluka kuye ngohlobo olulodwa lwezokwelapha iye kolunye.

Isibonelo, imiphumela emibi ejwayelekile yama-DMTs amaningi afaka:

• ukuqubuka
• ukukhathala
• isicanucanu
• isifo sohudo
• ikhanda
• ubuhlungu bemisipha
• ubuhlungu nokubomvu endaweni yomjovo, kuma-DMTs anokujova

Ukuze ufunde kabanzi ngemiphumela emibi engaba khona yokwelashwa okunqunyelwe kwengane yakho, khuluma nethimba labo lezempilo. Bangakusiza ufunde ukuthi ungabona kanjani futhi uphathe imiphumela emibi engaba khona.

Uma ucabanga ukuthi ingane yakho ingahle ibhekane nemiphumela engemihle ekwelashweni, yazisa ithimba layo lezempilo. Kwezinye izimo, bangancoma izinguquko ohlelweni lokwelashwa kwengane yakho.

Uma ingane yakho iba nenkinga yokuphefumula noma ingaphenduli noma iqulekile, thola ukwelashwa okuphuthumayo. Shayela ku-911 ngokushesha. Kungenzeka ukuthi babhekene nokusabela okweqile kwemithi.

Futhi funa usizo lwezempilo ngokushesha uma ingane yakho iba nezimpawu noma izimpawu zesifo esibi, njengomkhuhlane ohambisana nalokhu:

• ukukhwehlela
• ukuhlanza
• isifo sohudo
• ukuqubuka

Ezinye izindlela zokwelapha zingakhuphula ingozi yengane yakho yokutheleleka.

Ukwamukeleka, ukusebenziseka kalula, nezindleko

Ezinye izindlela zokwelashwa zingase zamukeleke noma zikulungele wena nengane yakho kunezinye izinketho.

Isibonelo, ingane yakho ingahle ikhululeke kakhudlwana futhi izimisele ukuphuza imishanguzo yomlomo kunemithi ejojoweyo. Noma umndeni wakho ungathola ukuthi isikhungo esisodwa sokwelapha sinendawo elula kakhulu noma amahora kunesinye.

Ezinye izindlela zokwelashwa zingaba lula futhi emndenini wakho ukuzikhokhela kunezinye. Uma unomshuwalense wezempilo, ungahle uthinte izindlela ezithile zokwelashwa noma abahlinzeki bezempilo kepha hhayi ezinye.

Uma wena noma ingane yakho nikuthola kunzima ukunamathela ohlelweni lwabo lokwelashwa olubuyekeziwe, yazisa iqembu labo lezempilo. Bangabelana ngamathiphu wokwenza uhlelo lwezokwelapha lulula ukulandela, noma bancome ushintsho kuhlelo lokwelashwa kwengane yakho.

Ukuhlola okulandelwayo

Ukuqapha imiphumela yokwelashwa, abahlinzeki bezokunakekelwa kwezempilo bengane yakho banga-oda ukuhlolwa okukodwa noma okuningi. Isibonelo, banga-oda:

• Ukuhlolwa kwe-MRI
• ukuhlolwa kwegazi
• ukuhlolwa komchamo
• ukuqapha ukushaya kwenhliziyo

Ngokuya ngezindlela ezithile zokwelashwa ezitholwa yingane yakho, iqembu labo lezempilo lingadinga uku-oda izivivinyo njalo futhi eziqhubekayo.

Ithimba lezempilo lengane yakho futhi lingakubuza wena nengane yakho imibuzo mayelana nezimpawu zayo, ukusebenza komzimba nokuqonda, kanye nemiphumela engemihle yokwelashwa.

Lokhu kuhlolwa okulandelwayo nokuhlola kungasiza iqembu lezempilo lengane yakho ukuthi lifunde ukuthi uhlelo lwayo lwamanje lokwelashwa lusebenza kanjani.

Ukuthatha

Ngemuva kokuthi ingane yakho iqale ukwelashwa okusha, kungathatha isikhathi ukuthi uqaphele noma imiphi imiphumela.

Uma ucabanga ukuthi uhlelo lwamanje lokwelashwa kwengane yakho alusebenzi noma lubenza bazizwe babi kakhulu, yazisa iqembu labo lezempilo.

Kwezinye izimo, bangancoma izinguquko ohlelweni lokwelashwa kwengane yakho. Bangaba nezeluleko zokulawula imiphumela emibi noma izindleko zokwelashwa.