Umlobi: Laura McKinney
Usuku Lokudalwa: 3 Epreli 2021
Ukuvuselela Usuku: 18 Unovemba 2024
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Ngelinye ilanga ekuseni ngo-Ephreli 1998, ngavuka ngimbozwe yizimpawu zokuqubuka kwami ​​kokuqala kwe-psoriasis. Ngangineminyaka engu-15 kuphela ubudala futhi ngingumfundi wesibili esikoleni esiphakeme. Noma ugogo wami wayene-psoriasis, amabala avele ngokuzuma okukhulu ngaze ngacabanga ukuthi kuyisenzo esibi.

Kwakungekho ukuqala okubabazekayo, njengesimo esicindezelayo, ukugula, noma umcimbi oguqula impilo. Ngisanda kuvuka ngimbozwe amabala abomvu, anamaxolo angena ngokuphelele emzimbeni wami, angibangela ukungakhululeki okukhulu, ukwesaba nobuhlungu.

Ukuvakashela kudokotela wesikhumba kwaqinisekisa ukuxilongwa kwe-psoriasis futhi kwangiqala ohambweni lokuzama imithi emisha nokwazi isifo sami. Kungithathe isikhathi eside kakhulu ukuqonda ngempela ukuthi lesi yisifo engizophila naso unomphela. Kwakungekho khambi - kwakungekho philisi lomlingo noma into yokugcoba eyayizokwenza izindawo zihambe.


Kuthathe iminyaka yokuzama zonke izihloko ezingaphansi kwelanga. Ngazama okhilimu, ama-lotion, ama-gel, amagwebu, nama-shampoo, ngaze ngazisonga ngopulasitiki ukuze kugcinwe izindondo. Ngemuva kwalokho ibifakwa ekwelashweni okulula kathathu ngesonto, futhi konke lokhu ngaphambi kokuthi ngikwenze kuDriver’s Ed.

Ukuzula ubunikazi bentsha

Lapho ngitshela abangane bami esikoleni, bangisekela kakhulu ekutholakaleni kwami, futhi babuza imibuzo eminingi ukusiza ukuqinisekisa ukuthi ngizizwa ngikhululekile. Ngokwengxenye enkulu, engifunda nabo babe nomusa kakhulu ngakho. Ngicabanga ukuthi ingxenye ebinzima kakhulu ngayo ukusabela kwabanye abazali nabantu abadala.

Ngidlalile eqenjini le-lacrosse futhi bekukhona ukukhathazeka kwamanye amaqembu aphikisayo ukuthi bengidlala nokuthile okuthathelanayo. Umqeqeshi wami uthathe isinyathelo sokukhuluma nomqeqeshi ophikisayo ngakho futhi imvamisa yahlala ngokushesha ngokumamatheka. Noma kunjalo, ngabona ukubukeka nokuhleba futhi ngafuna ukuncipha ngemuva kwenduku yami.

Isikhumba sami ngaso sonke isikhathi sasizizwa sincane kakhulu emzimbeni wami. Akunandaba ukuthi ngangigqokeni, ukuthi ngangihleli kanjani noma nginamanga, angizizwanga kahle emzimbeni wami. Ukuba ngumuntu osemusha kunzima ngokwanele ngaphandle kokumbozwa ngamabala abomvu. Nganginenkinga yokuzethemba esikoleni esiphakeme nasekolishi.


Ngangikwazi kahle ukufihla izindawo zami ngaphansi kwezingubo nezimonyo, kepha ngangihlala eLong Island. Ehlobo kwakushisa futhi kunomswakama futhi ibhishi lalikude ngemizuzu engu-20 ngemoto uma uhamba ngemoto.

Ukubhekana nombono womphakathi

Ngisikhumbula kahle isikhathi lapho ngaba nokuhlangana okokuqala emphakathini nomuntu engingamazi ngesikhumba sami. Ehlobo ngaphambi konyaka wami omncane esikoleni esiphakeme, ngahamba nabangane bami saya olwandle. Ngangisabhekene nokuqhuma kwami ​​kokuqala futhi isikhumba sami sasibomvu futhi sinamabala, kodwa ngangibheke phambili ekutholeni ilanga ezindaweni zami futhi ngihlangane nabangane bami.

Cishe nje lapho ngiqeda ukuzifihla ngasolwandle, abesifazane abanolaka ngokumangalisayo bachitha usuku lwami ngokumasha bezobuza ukuthi ngabe nginesifo sikabhu noma “enye into esithathelwanayo.”

Ngamangala, futhi ngaphambi kokuba ngisho noma yini engizoyichaza, waqhubeka nokunginikeza inkulumo enomsindo ngokumangazayo yokuthi ngangingenankinga kanjani, nokuthi ngangibeka kanjani wonke umuntu engangizungezile engcupheni yokuthola isifo sami - ikakhulukazi izingane zakhe ezisencane. Ngashaywa uvalo. Ngibambe izinyembezi, kube nzima ukuthola amagama ngaphandle kokuhlebeza okuncane okuthi “ngine-psoriasis” kuphela.


Ngiphinda ngiphinde ngiphinde ngicabange lowo mzuzu bese ngicabanga ngazo zonke izinto obekufanele ngabe ngiyazisho kuye, kodwa bengingakhululekile esifweni sami ngaleso sikhathi njengoba manje senginjalo. Bengisafunda nje ukuthi ngingaphila kanjani nayo.

Ukwamukela isikhumba engikuso

Ngokuhamba kwesikhathi nempilo iqhubeka, ngafunda kabanzi ngokuthi ngingubani nokuthi ngifuna ukuba ngubani. Ngabona ukuthi i-psoriasis yami yayiyingxenye yalokhu engiyikho nokuthi ukufunda ukuphila nayo kunganginikeza amandla okulawula.

Ngifunde ukungakunaki ukugqolozwa kanye namazwana angenazwela avela kubantu engingabazi, engibajwayele noma engisebenza nabo. Ngifundile ukuthi abantu abaningi abafundile nje ukuthi i-psoriasis iyini nokuthi abantu abangabazi abenza imibono enokhahlo abasifanele isikhathi sami noma amandla ami. Ngafunda ukuthi ngiyivumelanisa kanjani nendlela engiphila ngayo ukuze ngiphile nama-flare nokuthi ngigqoke kanjani ngayo ukuze ngizizwe nginesibindi.

Ngibe nenhlanhla yokuthi kube neminyaka lapho ngingahlala khona nesikhumba esikhanyayo futhi njengamanje ngilawula izimpawu zami nge-biologic. Ngisho nesikhumba esicacile, i-psoriasis isesengqondweni yami nsuku zonke ngoba ingashintsha ngokushesha. Ngiye ngafunda ukwazisa izinsuku ezinhle futhi ngaqala ibhulogi ukwabelana ngolwazi lwami nabanye besifazane abasha abafunda ukuhlala nokuxilongwa kwabo kwe-psoriasis.

Ukuthatha

Imicimbi yami emikhulu yokuphila kanye nokufeziwe kwenziwe nge-psoriasis ohambweni - iziqu, ama-prom, ukwakha umsebenzi, ukuthandana, ukushada nokuba namadodakazi amabili amahle. Kuthathe isikhathi ukwakha ukuzethemba kwami ​​nge-psoriasis, kepha ngakhula nayo futhi ngikholwa ukuthi lokho kutholakala kokunye kungenze ngaba yilokhu engiyikho namuhla.

UJoni Kazantzis ungumsunguli ne-blogger ye-Justagirlwithspots.com, ibhulogi le-psoriasis eliwine imiklomelo elizinikele ekwakheni ukuqwashisa, ukufundisa ngalesi sifo, nokwabelana ngezindaba zomuntu siqu zohambo lwakhe lweminyaka engu-19 + ne-psoriasis. Inhloso yakhe ukudala umqondo womphakathi nokwabelana ngolwazi olungasiza abafundi bakhe ukubhekana nezinselelo zansuku zonke zokuphila ne-psoriasis. Ukholelwa ukuthi ngolwazi oluningi ngangokunokwenzeka, abantu abane-psoriasis banganikwa amandla okuphila impilo yabo engcono nokwenza izinqumo zokwelashwa ezilungile empilweni yabo.

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