Imibuzo engu-7 Ongayibuza Uma Ucabangela Ukwelashwa kwe-IPF

-Delile

• 1. Ngazi kanjani ukuthi i-IPF yami iya isiba kubi?
• 2. Yimiphi imishanguzo elapha i-IPF?
• 3. Ngabe ukwelashwa komoya-mpilo kungangisiza ngiphefumule kangcono?
• 4. Ngabe zikhona izinhlelo zokuhlumelelisa izimilo ezitholakalayo?
• 5. Ngabe ngizodinga ukufakelwa amaphaphu?
• 6. Ingabe zikhona ezinye izindlela zokwelapha ezitholakalayo?
• 7. Yiziphi izinzuzo nezimbi zokwelapha i-IPF?

I-Idiopathic pulmonary fibrosis (IPF) uhlobo lwe-pulmonary fibrosis enezimbangela ezingaziwa. Yize ukuqhubeka konke kuhamba kancane, kungadala ukuwohloka okungazelelwe kwezimpawu lapho kukhula.

Njengoba unikezwe la maqiniso amabili, ungahle uzibuze ukuthi ukwelashwa kungenzeka yini uma udokotela wakho engazi ukuthi yini ebangele ukuthi i-IPF yakho iqale. Ungase futhi uzibuze ukuthi ukwelashwa kufanele yini.

Gcina le mibuzo elandelayo yokwelashwa ukuze uxoxe ngayo lapho uqokwa khona ngokulandelayo nodokotela wakho.

1. Ngazi kanjani ukuthi i-IPF yami iya isiba kubi?

Isibonakaliso esivame kakhulu se-IPF ukuphefumula okuncane, okubizwa nangokuthi i-dyspnea. Ukuphefumula kancane kungabonakala kungazelelwe futhi kuvame ukuphutha ngesinye isimo samaphaphu. Ungakuthola ngezikhathi zomsebenzi, futhi ngokuhamba kwesikhathi, ngezikhathi zokuphumula. Ukukhwehlela okomile kungahambisana nokuphefumula okuncane.

I-IPF yakho nayo ingadala ezinye izimpawu, njengokuncipha, ukuncipha kwemisipha nokukhathala. Ungaze uqaphele ukuthi iminwe yakho nezinzwani ziqala ukuzungeza kumathiphu, uphawu olwaziwa ngokuthi yiklabhu.

Izimpawu ze-IPF ziyahlukahluka kuye ngomuntu nomuntu. Uma ubona ubunzima bokuphefumula obuqhubeka nokuba bucayi, kanye nokuqala kwezimpawu ezingeziwe, lokhu kungaba uphawu lokuthi isimo sakho siya siba sibi. Xoxa ngezinketho zakho zokwelashwa nodokotela wakho.

2. Yimiphi imishanguzo elapha i-IPF?

Ngeshwa, ayikho imithi etholakalayo yokwelapha i-IPF. Esikhundleni salokho, imithi isetshenziselwa ukunciphisa ukuqhubeka kwezimpawu ze-IPF. Ngokunjalo nawe ungathola ikhwalithi engcono yempilo.

Kunemithi emibili evunyelwe yi-U.S. Food and Drug Administration (FDA) yokwelashwa kwe-IPF: nintedanib (Ofev) ne-pirfenidone (Esbriet). Eyaziwa njengama-antifibrotic agents, le mithi yehlisa izinga lokushwabana emaphashini akho. Lokhu kungasiza ukunciphisa ijubane le-IPF futhi kuthuthukise nezimpawu zakho.

Ngokwengeziwe, udokotela wakho angakunikeza umuthi owodwa noma eminingi elandelayo:

• imithi ye-acid reflux, ikakhulukazi uma unesifo se-reflux se-gastroesophageal (GERD)
• ama-antibiotic ukuvikela izifo
• izidakamizwa ezilwa nokuvuvukala, njenge-prednisone
• ukucindezela ukukhwehlela, njenge-benzonatate, i-hydrocodone ne-thalidomide

3. Ngabe ukwelashwa komoya-mpilo kungangisiza ngiphefumule kangcono?

Ukwelashwa kwe-oksijeni kuyindlela esebenzayo kubantu abaningi abane-IPF. Kungakusiza uphefumule kangcono ngenkathi uhamba, uthenga, noma wenza noma imiphi eminye imisebenzi. Njengoba i-IPF iqhubeka, ungadinga ukwelashwa komoya-mpilo ngesikhathi sokulala ukukusiza uphefumule kangcono.

Ukwelashwa kwe-oksijeni akukwazi ukumisa ukuqhubeka kwe-IPF, kepha kunga:

• kwenze kube lula ukuzivocavoca umzimba
• sikusize ulale futhi ulale
• lawula umfutho wegazi lakho

4. Ngabe zikhona izinhlelo zokuhlumelelisa izimilo ezitholakalayo?

Yebo. Nge-IPF, ungathunyelwa ohlelweni lokuvuselelwa kwamaphaphu. Ungakucabanga lokhu njengokwelapha emsebenzini noma ukwelashwa ngokomzimba, ngaphandle kokuthi kugxilwe emaphashini akho.

Ngokuvuselelwa kwamaphaphu, umelaphi wakho uzokusiza nge:

• izindlela zokuphefumula
• ukusekelwa ngokomzwelo
• ukuzivocavoca nokukhuthazela
• okunomsoco

5. Ngabe ngizodinga ukufakelwa amaphaphu?

Uma unezibalo ezinkulu zamaphaphu, ungahlomula ngokufakelwa kwamaphaphu. Uma kuphumelele, ukuhlinzwa kungakusiza nokuthi uphile isikhathi eside. Ngokusho kwePulmonary Fibrosis Foundation, i-pulmonary fibrosis ilinganisela cishe isigamu sakho konke ukufakelwa kwamaphaphu e-United States.

Noma kunjalo, kunengozi enkulu ehambisana nokufakelwa kwamaphaphu, ngakho-ke akuwona wonke umuntu. Okukhathaza kakhulu ukwenqaba iphaphu elisha. Ukutheleleka nakho kungenzeka.

Khuluma nodokotela wakho uma unentshisekelo yokuthola okwengeziwe ngokufakelwa kwamaphaphu nokuthi ngabe kulungile yini kuwe.

6. Ingabe zikhona ezinye izindlela zokwelapha ezitholakalayo?

Ezinye izindlela zokwelapha azikasekelwa kabanzi ekuphathweni kwe-IPF. Noma kunjalo, amakhambi asekhaya nokushintsha kwendlela yokuphila kungasiza isimo sakho sonke.

Khuluma nodokotela wakho mayelana:

• ukuzivocavoca umzimba
• ukwesekwa kokudla okunempilo
• ukuyeka ukubhema
• ukuthatha amavithamini, uma kudingeka
• imigomo

Udokotela wakho futhi angancoma amakhambi we-over-the-counter (OTC) nemithi yokwelapha izimpawu zakho. Izibonelo zifaka ukwehla kokukhwehlela, ukucindezela ukukhwehlela, nokunciphisa izinhlungu. Njalo hlola nodokotela wakho kuqala ngaphambi kokuthatha noma yimiphi imishanguzo ye-OTC ukuvimbela imiphumela emibi nokuhlangana okungenzeka kube khona kwezidakamizwa.

7. Yiziphi izinzuzo nezimbi zokwelapha i-IPF?

Njengoba lungekho ikhambi le-IPF, udokotela wakho kungenzeka agxile ekuphathweni nasekwelapheni ukwelula impilo yakho. Lokhu kuzosiza nasekuthuthukiseni ikhwalithi yempilo yakho futhi kuvikele nezinkinga, njengokutheleleka.

Ngenkathi i-IPF ingaba nzima, kubalulekile ukuthi ungayeki. Ukwelapha i-IPF kungenza imisebenzi yakho yansuku zonke ijabulise kakhulu. Udokotela wakho angancoma nokuthi ubambe iqhaza ezivivinyweni zokwelashwa, ezingakudalula emithini yokwelashwa emisha.

Ububi ekwelashweni kwe-IPF kungenzeka kube nemiphumela engemihle yemithi nokwenqatshwa okungahle kube khona ekufakelweni kwamaphaphu.

Lapho ucabanga ngobuhle nobubi bokwelashwa, ungabona ukuthi izinzuzo zidlula kakhulu izingozi. Wena nodokotela wakho ninganquma ukuthi yini elungele isimo senu.