Intuthuko Yezobuchwepheshe Nokwelashwa Kwamadivayisi we-Spinal Muscular Atrophy

-Delile

• Ama-exoskeleton aphrintiwe angama-3-D
• Ukulawulwa kwemvelo
• Izihlalo ezinamasondo
• Amathebulethi
• Isoftware yokulandela iso
• Izingubo zokusiza
• Ukuthatha

I-Spinal muscular atrophy (SMA) yisimo sezakhi zofuzo. Kubanga izingqinamba ngama-motor neurons axhumanisa ubuchopho nomgogodla. Ukuhamba, ukugijima, ukuhlala phansi, ukuphefumula, nokugwinya kungaba nzima kubantu abane-SMA. Labo abane-SMA bavame ukudinga uhla lwezinto ezikhethekile zezokwelapha.

Okwamanje alikho ikhambi le-SMA. Kepha kube nokuthuthuka okuningi okusha futhi okuthokozisayo kwezobuchwepheshe. Lokhu kunganikeza abantu abane-SMA ukuhamba okuthuthukile, ukwelashwa okungcono, kanye nekhwalithi enkulu yempilo.

Ama-exoskeleton aphrintiwe angama-3-D

Isizinda sokuqala sabantwana abane-SMA sitholakale ngo-2016. Manje sekunokwenzeka ukuthi uphrinte uhlobo lwesithathu lwedivayisi ngenxa yentuthuko embonini yokuphrinta eyi-3-D. Idivayisi ingasiza izingane ukuba zihambe okokuqala. Isebenzisa izinduku zokwesekwa eziguquguqukayo, ezinde ezilingana nemilenze nomzimba womntwana. Kubandakanya nochungechunge lwezinzwa ezixhumanisa nekhompyutha.

Ukulawulwa kwemvelo

Abantu abane-SMA abahamba kancane. Imisebenzi elula njengokucima izibani ingaba nzima. Ubuchwepheshe bokulawulwa kwemvelo buvumela abantu abane-SMA ukuthi balawule umhlaba wabo ngokuphelele. Bangakwazi ukulawula izintambo zabo ze-TV, i-air conditioner, amalambu, ama-DVD player, izipikha, nokuningi. Konke abakudingayo ithebhulethi noma ikhompyutha.

Abanye abalawuli beza nombhobho we-USB. Imiyalo yezwi ingenza kusebenze isevisi. Ingafaka futhi i-alamu ephuthumayo yokucela usizo ngokucindezela inkinobho.

Izihlalo ezinamasondo

Ubuchwepheshe bezihlalo ezinamasondo buhambe ibanga elide. Udokotela osebenza ngengane yakho angakwazi ukukutshela ngezinketho zezihlalo zabakhubazekile ezinamandla ezikhona. Esinye sezibonelo iWizzybug, isihlalo esinamasondo esinika amandla izingane ezisacathula. Isihlalo esinamasondo sisebenzelwa ngaphakathi nangaphandle. Isebenza ngezilawuli ezilula.

Amabhayisikili amathathu ahlukile kungenye indlela. Banikeza ingane yakho amandla okuxhumana nontanga yayo futhi ithole nokuzivocavoca umzimba.

Amathebulethi

Amathebulethi mancane futhi kulula ukuwaphatha kunama-laptops noma ama-PC we-desktop. Zenzelwe ngezifiso ingane yakho. Futhi zingafaka ukuqashelwa kwezwi, abasizi bedijithali (abanjengoSiri), nezinye izici. Lokhu kungasethwa ngokufakwa, amaswishi, izitayela, amakhibhodi afinyelelekayo, nezilawuli zengalo yeselula.

Izesekeli zezihlalo ezinamasondo zikuvumela ukuthi ukhweze umakhalekhukhwini noma ithebhulethi kusihlalo sabakhubazekile.

Amathebulethi anika ingane yakho encane ikhono lokuhlola, noma ngabe ingakwazi ukuhamba kakhulu. Ezinganeni ezindala, ithebhulethi ingasho ukudlala insimbi efana nezigubhu ebhendi yesikole. Izinhlelo zokusebenza zezinsimbi zomculo zingaze zixhunywe ku-amp ukuze ingane yakho ifunde ukudlala.

Isoftware yokulandela iso

Isoftware yokulandela iso, njengobuchwepheshe obuthuthukiswe kwa-EyeTwig, inikela ngenye indlela yokuxhumana kwekhompyutha. Ikhomba futhi ilandelele ukunyakaza kwekhanda lengane yakho isebenzisa ikhamera ekhompyutheni yakho noma kuthebhulethi.

Izingubo zokusiza

Ama-orthoses akhelwe ngqo ezingutsheni, njengePlayskin Lift, awakhulu kakhulu kunama-exoskeleton. Ukufakwa kwemishini ezingutsheni kusiza izingane ezincane ukuthi ziphakamise izingalo. ithole ubuchwepheshe bungabizi, busebenziseka kalula, busebenza, futhi bukhululekile. Izinhlobo ezintsha nezithuthukisiwe zobuchwepheshe cishe zizofika kungekudala.

Ukuthatha

Amadivayisi nemithi emisha efana nale ayigcini nje ngokuthuthukisa ikhwalithi yempilo yalabo abane-SMA. Futhi zibanikeza ukuguquguquka okukhulu kokubamba iqhaza kuzo zonke izici zalokho abantu abangakuthatha njengempilo "ejwayelekile".

Imiklamo ye-Exoskeleton, isoftware yokufinyeleleka, nemithi emisha kumane kuyisiqalo sentuthuko entsha yezobuchwepheshe. Konke lokhu kuthuthukiswa kungasiza ekwelapheni i-SMA nezinye izifo zemisipha.

Xhumana nethimba lakho lendawo lokunakekela i-SMA ngolwazi olumayelana nokutholakala komshuwalense, ukuqashwa, nohlu lokungenzi-nzuzo olungakwazi ukusiza. Ungathinta futhi inkampani ngqo ukubona ukuthi bayakunikeza yini ukuqasha, ezezimali, noma izaphulelo.