Ukunakekela Ingane ene-CF? Izeluleko Ezi-7 Ezingasiza

-Delile

• Yenza umkhuba kusuka ekwelashweni kokuvunyelwa komoya
• Gwema amagciwane athathelanayo
• Hlala phezu kokuhlolwa kwezempilo
• Thenga ukudla okulula okulula
• Sebenza nesikole sengane yakho
• Bandakanya ingane yakho ekunakekeleni kwakhe
• Zibonise uthando oluthile
• Ukuthatha

Ingabe unayo ingane ene-cystic fibrosis (CF)? Ukuphatha isimo sezempilo esiyinkimbinkimbi njenge-CF kungaba yinselele. Kunezinyathelo ezisebenzayo ongazithatha ukusiza ukuvikela impilo yengane yakho. Ngasikhathi sinye, kubalulekile ukuthi unakekele nempilo yakho.

Ake sihlole amasu ayisikhombisa angahle abe wusizo.

Yenza umkhuba kusuka ekwelashweni kokuvunyelwa komoya

Ukusiza ukusula amaphaphu engane yakho, udokotela angakufundisa ukuthi ungakwenza kanjani ukwelashwa kwemvume yomoya. Cishe bazokukhuthaza ukuthi wenze okungenani iseshini eyodwa yalokhu kwelashwa ngosuku.

Ukwenza kube lula enganeni yakho, kungasiza uku:

• hlela isikhathi sakho sokwelapha ukuze sihambisane nombukiso we-TV oyintandokazi wengane yakho, ukuze bakwazi ukuyibuka ngenkathi bathola ukwelashwa
• engeza into yokuncintisana okulula kuseshini yakho yokwelapha - ngokwesibonelo, ngokubona ukuthi ngubani ongakhwehlela ukukhwehlela okujule kakhulu
• thuthukisa isiko lapho ufunda khona incwadi oyithandayo, udlale umdlalo owuthandayo, noma ujabulele okunye okumnandi ngemuva kweseshini ngayinye

Kungasiza futhi ukuhlela izikhathi zakho zokwelashwa ngasikhathi sinye nsuku zonke, ngakho-ke wena nengane yakho nibe nomkhuba wokukwenza kube yinto ephambili.

Gwema amagciwane athathelanayo

Izingane ezine-CF zisengozini enkulu yokungenwa ngamaphaphu. Ukusiza ukugcina ingane yakho iphephile, thatha izinyathelo ezinjengalezi ezibalwe ngezansi ukunciphisa ubungozi bokutheleleka ekhaya lakho:

• Gcina ingane yakho kanye namanye amalungu omndeni esesikhathini ngemigomo, kufaka phakathi umkhuhlane.
• Khuthaza ingane yakho namanye amalungu omndeni ukuthi bageze izandla ngensipho namanzi ngaphambi kokudla nangemva kokukhwehlela, ukuthimula noma ukushaya amakhala.
• Fundisa ingane yakho namanye amalungu omndeni ukuthi bagweme ukwabelana ngezinto zabo, njengamabhodlela amanzi.
• Uma elinye ilungu lomndeni wakho ligula, licele ukuba lihlale kude nengane yakho ene-CF.

Lezi zindlela ezilula zokuvimbela zingenza umehluko omkhulu empilweni yengane yakho.

Hlala phezu kokuhlolwa kwezempilo

Udokotela wengane yakho kanye nabanye ochwepheshe bezokunakekelwa kwezempilo bangakunikeza ngemininingwane edingeka kakhulu nokusekelwa. Bangakunika izindlela zokwelapha ukuphatha izimpawu zengane yakho futhi baziqaphele izimpawu zezinkinga.

Ukuze uhlale phezu kwezidingo zezempilo zengane yakho, kubalulekile ukuhlela njalo ukuhlolwa kwezempilo nodokotela wabo bese ulandela uhlelo lwabo lokwelashwa olunconywayo. Ukwenza isikhathi sokuqokwa kwezokwelapha akulula ngaso sonke isikhathi noma kulula, kepha kungakusindisa wena nobuhlungu bengane yakho ngokuhamba kwesikhathi.

Buza udokotela wabo ukuthi kufanele ubavakashele kangaki. Uma uphuthelwa i-aphoyintimenti, yihlele kabusha ngokushesha.

Thenga ukudla okulula okulula

Izingane ezine-CF zidinga ukudla ama-calories amaningi kunengane ejwayelekile. Ukwenza impilo ibe lula kancane, beka ukudla okulula okulula ukukuthatha futhi okunothile ngama-calories, amaprotheni, namafutha anempilo yenhliziyo.

Isibonelo, cabanga ukugcina okunye kokudla okulandelayo kusesandleni:

• i-granola enamantongomane
• ukuhlanganiswa komkhondo
• ibhotela lamantongomane
• amaprotheni amabha
• iziphuzo zokudla okunomsoco

Sebenza nesikole sengane yakho

Xhumana njalo nesikole sengane yakho ukuze wakhe uhlelo lokuhlangabezana nezidingo zabo zezempilo. Isibonelo, ungacela isikole sabo ukuthi:

• banikeze isikhathi nobumfihlo bokwenza ukwelashwa kwemvume yomoya
• mabathathe imishanguzo
• lungisa imithetho yokubakhona ukuze ibayeke babonane nodokotela
• hlinzeka ngezandiso futhi ubasize bathole izifundo kanye nezabelo abazikhumbula ngenxa yokuqokwa kwezokwelapha noma ukugula

Uma isikole sengane yakho sinqena ukwamukela izidingo zabo, kungaba yisikhathi sokuhlola izinketho zakho zomthetho. E-United States, izikole zomphakathi zamabanga aphansi neziphakeme kudingeka ngokomthetho ukuthi zinikeze imfundo efinyeleleka ezinganeni ezikhubazekile.

Bandakanya ingane yakho ekunakekeleni kwakhe

Ukuhlomisela ingane yakho impilo ezimele, kubalulekile ukuyifundisa amakhono okuzilawula. Njengoba bekhula futhi bethatha umthwalo wemfanelo wokunakekelwa kwabo, kungasiza ukunciphisa umthwalo wakho.

Ungaqala kusenesikhathi, ngokufundisa ingane yakho imininingwane eyisisekelo ngesimo sayo, ukuthi ungakhuluma kanjani nabanye abantu ngayo, namasu alula okuhlala uphephile, njengokugeza izandla. Ngesikhathi zineminyaka eyishumi, izingane eziningi zingasetha imishini yazo yokwelapha. Ngesikhathi befika esikoleni esiphakeme, abaningi sebekhule ngokwanele ukuthatha umthwalo wemfanelo oyinhloko wokugcina, ukuphatha nokuphuza imishanguzo, kanye nokubulala amagciwane ngemishini yabo.

Zibonise uthando oluthile

Ukugwema ukutubeka, kubalulekile ukwenza imikhuba enempilo futhi uthathe isikhathi sakho. Zama ukulala amahora ayisikhombisa kuya kwayisishiyagalolunye ubusuku ngabunye, udle ukudla okunomsoco, nokuzivocavoca umzimba njalo. Hlela isikhathi ekhalendeni lakho ukuze uhlanganyele nabantu obathandayo futhi ubambe iqhaza emisebenzini oyithandayo.

Ukusiza ukukhawulela ukucindezelwa ukunakekelwa, kungasiza futhi uku:

• cela futhi wamukele usizo kwabanye
• setha okulindelwe okungokoqobo kuwe futhi uhloniphe imikhawulo yakho
• ujoyine iqembu lokusekela abanakekeli babantu abane-CF
• funa ezinye izinsizakalo zokunakekelwa emphakathini wakho

Uma ukuthola kunzima ukuphatha amazinga akho okucindezeleka, yenza i-aphoyintimenti nodokotela wakho. Bangakudlulisela kuchwepheshe wezempilo yengqondo noma ezinye izinsizakalo zokusekela.

Ukuthatha

I-CF ithinta izici eziningi zempilo yengane yakho, kanye nemikhuba yansuku zonke yomndeni wakho. Kodwa-ke, ukuhlala usesikhathini ekuhlolweni kwezempilo kwengane yakho nokulandela uhlelo lwabo lwezokwelapha olunconyiwe kungasiza ukugcina izimpawu zazo zilawulwa. Ukuthuthukisa imikhuba enempilo ekhaya, ubudlelwano obuhle bokusebenza nesikole sengane yakho, kanye nohlelo lokuzinakekela oluqinile nakho kungakusiza ukuthi uhlale phezu kwezidingo zezempilo zengane yakho.