I-Myalgic encephalomyelitis / chronic fatigue syndrome (ME / CFS)

I-Myalgic encephalomyelitis / chronic fatigue syndrome (ME / CFS) ukugula okuhlala isikhathi eside okuthinta izinhlelo eziningi zomzimba. Abantu abanalesi sifo abakwazi ukwenza imisebenzi yabo ejwayelekile. Kwesinye isikhathi, bangavalelwa embhedeni. Lesi simo singabizwa nangokuthi isifo se-systemic exertional intolerance (SEID).

Olunye uphawu oluvamile ukukhathala okukhulu. Akubangcono ngokuphumula futhi akubangelwa ngqo ngezinye izinkinga zezokwelapha. Ezinye izimpawu zingafaka izinkinga ngokucabanga nokugxila, ubuhlungu, nesiyezi.

Imbangela ngqo ye-ME / CFS ayaziwa. Kungaba nezimbangela ezingaphezu kwesisodwa. Isibonelo, izimbangela ezimbili noma ngaphezulu ezingasebenza zingasebenzisana ukuqala isifo.

Abaphenyi babheka lezi zimbangela ezingaba khona:

• Ukutheleleka - Cishe umuntu oyedwa kwabayishumi eba nezifo ezithile, njenge-Epstein-Barr virus ne-Q fever, aqhubeke nokuthuthukisa i-ME / CFS. Ezinye izifo ziye zafundwa, kepha asikho isizathu esisodwa esitholakele.
• Izinguquko zesistimu yomzimba - I-ME / CFS ingadalwa yizinguquko endleleni amasosha omzimba aphendula ngayo ekucindezelekeni noma ekuguleni.
• Ukucindezeleka kwengqondo noma komzimba - Abantu abaningi abane-ME / CFS bake baba ngaphansi kwengcindezi enkulu engqondweni noma emzimbeni ngaphambi kokugula.
• Ukukhiqizwa kwamandla - Indlela amangqamuzana emzimbeni athola ngayo amandla yehlukile kubantu abane-ME / CFS kunabantu abangenaso lesi simo. Akucaci ukuthi lokhu kuxhumene kanjani nokuthuthukisa ukugula.

Izakhi zofuzo noma izici zemvelo nazo zingadlala indima ekuthuthukiseni i-ME / CFS:

• Noma ngubani angathola i-ME / CFS.
• Yize kuvame kakhulu kubantu abaphakathi kweminyaka engama-40 nengama-60 ubudala, lesi sifo sithinta izingane, intsha kanye nabantu abadala babo bonke ubudala.
• Phakathi kwabantu abadala, abesifazane bathinteka kaningi kunabesilisa.
• Abelungu batholakala bengekho ngaphezu kwezinye izinhlanga nobuzwe. Kodwa abantu abaningi abane-ME / CFS abatholakali, ikakhulukazi phakathi kwabancane.

Kunezimpawu ezintathu eziyinhloko, noma "eziyinhloko," kubantu abane-ME / CFS:

• Ukukhathala okujulile
• Izimpawu zokuqina ngemuva kokusebenza ngokomzimba noma kwengqondo
• Izinkinga zokulala

Abantu abane-ME / CFS banokukhathala okuphikelelayo nokujulile futhi abakwazi ukwenza imisebenzi abekwazi ukuyenza ngaphambi kokugula. Lokhu kukhathala ngokweqile yile:

• Kusha
• Ihlala okungenani izinyanga eziyisithupha
• Hhayi ngenxa yomsebenzi ongajwayelekile noma oshubile
• Hhayi ukukhululeka ngokulala noma ukuphumula kombhede
• Kakhulu ngokwanele ukukugcina ungabambiqhaza emisebenzini ethile

Izimpawu ze-ME / CFS zingaba zimbi kakhulu ngemuva kokusebenza ngokomzimba noma kwengqondo. Lokhu kubizwa ngokuthi yi-post-exertional malaise (PEM), eyaziwa nangokuthi ukuphahlazeka, ukubuyela emuva, noma ukuwa.

• Isibonelo, ungahlangabezana nokuphahlazeka ngemuva kokuthenga esitolo futhi udinga ukuthatha isihlwathi ngaphambi kokushayela uye ekhaya. Noma ungadinga umuntu ozokulanda.
• Ayikho indlela yokubikezela ukuthi yini ezodala ukuphahlazeka noma wazi ukuthi kuzothatha isikhathi esingakanani ukuthola kabusha. Kungathatha izinsuku, amasonto, noma isikhathi eside ukuthola kabusha.

Izinkinga zokulala zingafaka izinkinga zokuwa noma zokulala. Ukuphumula okugcwele akususi ukukhathala nezinye izimpawu.

Abantu abane-ME / CFS nabo bavame ukuzwa okungenani eyodwa yalezi zimpawu ezilandelayo:

• Ukukhohlwa, izinkinga zokuhlushwa, izinkinga zokulandela imininingwane (ebizwa nangokuthi "inkungu yobuchopho")
• Izimpawu zokuqina lapho umile noma uhleli uqonde. Lokhu kubizwa ngokuthi ukungabekezelelani ngamathambo. Ungazizwa unesiyezi, unekhanda elincane, noma uqulekile lapho umile noma uhleli. Ungaba nezinguquko zombono noma ubone amabala.

Ezinye izimpawu ezivamile zifaka:

• Ubuhlungu obuhlangene ngaphandle kokuvuvukala noma ububomvu, izinhlungu zemisipha, ubuthakathaka bemisipha yonke indawo, noma ikhanda elihlukile kunalezo obukade unazo
• Umphimbo obuhlungu, ama-lymph node abuhlungu entanyeni noma ngaphansi kwezingalo, amakhaza nokujuluka ebusuku
• Izinkinga zokugaya ukudla, njenge-irritable bowel syndrome
• Ukungezwani komzimba
• Ukuzwela ngomsindo, ukudla, iphunga, noma amakhemikhali

I-Centers for Disease Control (CDC) ichaza i-ME / CFS njengesifo esihlukile esinezimpawu ezithile nezimpawu zomzimba. Ukuxilongwa kusekelwe ekunqumeni ezinye izimbangela ezingaba khona.

Umhlinzeki wakho wezokunakekelwa kwempilo uzozama ukukhipha ezinye izimbangela zokukhathala, kufaka phakathi:

• Ukuthembela ezidakamizweni
• Ukuphazamiseka kokuzivikela komzimba noma komzimba
• Izifo
• Izifo zemisipha noma zemizwa (njenge-multiple sclerosis)
• Izifo ze-Endocrine (njenge-hypothyroidism)
• Ezinye izifo (njengenhliziyo, izinso, noma izifo zesibindi)
• Izifo zengqondo noma ezengqondo, ikakhulukazi ukucindezeleka
• Izimila

Ukuxilongwa kwe-ME / CFS kumele kufake phakathi:

• Ukungabikho kwezinye izimbangela zokukhathala kwesikhathi eside (okungapheli)
• Okungenani izimpawu ezine eziqondene neME / CFS
• Ukukhathala okukhulu, kwesikhathi eside

Azikho izivivinyo ezithile zokuqinisekisa ukutholakala kwe-ME / CFS. Kodwa-ke, kuye kwaba nemibiko yabantu abane-ME / CFS abanemiphumela engavamile kulezi zivivinyo ezilandelayo:

• I-Brain MRI
• Isibalo samangqamuzana amhlophe egazi

Okwamanje alikho ikhambi le-ME / CFS. Umgomo wokwelashwa ukukhulula izimpawu.

Ukwelashwa kufaka inhlanganisela yalokhu okulandelayo:

• Izindlela zokuphatha ubuthongo
• Imithi yokwehlisa ubuhlungu, ukungakhululeki, kanye nomkhuhlane
• Imithi yokwelapha ukukhathazeka (izidakamizwa ezilwa nokukhathazeka)
• Imithi yokwelapha ukudangala (izidakamizwa ezilwa nokudangala)
• Ukudla okunempilo

Eminye imishanguzo ingadala ukusabela noma imiphumela emibi kakhulu kunezimpawu zokuqala zesifo.

Abantu abane-ME / CFS bayakhuthazwa ukuthi bagcine impilo esebenzayo yomphakathi. Ukuvivinya umzimba okuncane nakho kungasiza. Ithimba lakho lokunakekelwa kwezempilo lizokusiza ukuthi ubone ukuthi ungakanani umsebenzi ongawenza, nokuthi ungawukhulisa kanjani kancane kancane umsebenzi wakho. Amathiphu afaka:

• Gwema ukwenza okuningi ngezinsuku lapho uzizwa ukhathele
• Linganisa isikhathi sakho phakathi komsebenzi, ukuphumula nokulala
• Hlukanisa imisebenzi emikhulu ibe mincane, ephathekayo
• Sabalalisa imisebenzi yakho eyinselele kakhulu phakathi nesonto

Izindlela zokuphumula nezokunciphisa ukucindezeleka zingasiza ukuphatha ubuhlungu obungapheli (besikhathi eside) nokukhathala. Azisetshenziswa njengokwelashwa okuyinhloko kwe-ME / CFS. Izindlela zokuphumula zifaka:

• I-Biofeedback
• Ukuzivocavoca okujulile
• I-Hypnosis
• Ukwelashwa kokubhucunga umzimba
• Ukuzindla
• Izindlela zokuphumula zemisipha
• I-Yoga

Kungasiza futhi ukusebenza nomeluleki akusize ubhekane nemizwa yakho kanye nomthelela wokugula empilweni yakho.

Izindlela ezintsha zemithi ziyacwaningwa.

Abanye abantu bangazuza ngokubamba iqhaza eqenjini lokuxhaswa le-ME / CFS.

Umbono wesikhathi eside wabantu abane-ME / CFS uyahlukahluka. Kunzima ukubikezela ukuthi izimpawu ziqala nini. Abanye abantu balulama ngokuphelele ngemuva kwezinyanga eziyisithupha kuya onyakeni.

Cishe umuntu oyedwa kwabane abane-ME / CFS bakhubazeke kakhulu kangangokuba abakwazi ukuvuka embhedeni noma bashiye amakhaya abo. Izimpawu zingafika zidlule ngemijikelezo, futhi noma ngabe abantu bezizwa bengcono, bangathola ukubuyela umxhwele okubangelwa ukuzikhandla noma imbangela engaziwa.

Abanye abantu abakaze bazizwe njengabo ngaphambi kokuba bahlakulele i-ME / CFS. Ucwaningo lukhombisa ukuthi maningi amathuba okuthi ube ngcono uma uthola ukuvuselelwa okunzulu.

Izinkinga zingafaka:

• Ukucindezeleka
• Ukungakwazi ukubamba iqhaza emisebenzini nasemisebenzini yomphakathi, engaholela ekuhlukanisweni
• Imiphumela emibi evela emithini noma ekwelashweni

Shayela umhlinzeki wakho uma ukhathele kakhulu, unezinye noma zingekho ezinye izimpawu zalesi sifo. Ezinye izifo ezinzima kakhulu zingadala izimpawu ezifanayo futhi kufanele zikhishwe.

CFS; Ukukhathala - okungapheli; Isifo sokungasebenzi komzimba; I-Myalgic encephalomyelitis (ME); I-Myalgic encephalopathy chronic fatigue syndrome (ME-CFS); Isifo sokungabekezelelani okujwayelekile (SEID)

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