Umhlahlandlela Weziguli Ezinomdlavuza Webele: Ukuthola Ukusekelwa Nokuthola Izinsizakusebenza

-Delile

• Ukusekelwa ngokomzwelo nangokwenhlalo
• Imisebenzi yezempilo neyekhaya
• Ukuhlolwa kwemitholampilo
• Ukusekelwa kwabanakekeli

Kunethoni lemininingwane nokusekelwa kwabantu abanomdlavuza webele. Kepha njengomuntu ophila nomdlavuza webele we-metastatic, izidingo zakho zingahluka ngandlela thile kulabo asebenomdlavuza webele wesigaba sangaphambilini.

Isisetshenziswa sakho esingcono kakhulu semininingwane yezokwelapha yithimba lakho le-oncology. Bangakunikeza ngezinto zokufunda eziqondene nomdlavuza webele osezingeni eliphakeme. Amathuba ukuthi mhlawumbe uzofuna imininingwane mayelana nezinye izici zokuphila ezinomdlavuza webele we-metastatic, futhi.

Izinhlangano eziningana zihlinzeka ngezinto eziwusizo ikakhulukazi kubantu abanomdlavuza webele osezingeni eliphakeme. Nazi ezinye izindawo ezinhle ongaqala ngazo:

• Umphakathi Womdlavuza Webele Othuthukile
• I-American Cancer Society
• UkuBreastCancer.org
• I-Metastatic Breast Cancer Network

Ukusekelwa ngokomzwelo nangokwenhlalo

Njengoba uphila nomdlavuza webele osuthuthukile, ngokungangabazeki unokuningi okucabangayo. Ngazo zonke izinqumo zokwelashwa, izinguquko zomzimba, nemiphumela engemihle, bekungeke kube okungavamile nhlobo uma uzizwa ukhungathekile ngezikhathi ezithile.

Noma ngabe imiphi imizwa oyizwayo, ayiphutha. Akudingeki uphile ngokuvumelana nokulindelwe omunye umuntu mayelana nokuthi kufanele uzizwe kanjani noma ukuthi kufanele wenzeni. Kepha ungahle uthande umuntu ozokhuluma naye.

Ungahle noma ungenaye umlingani, umndeni, noma abangane abangakunikeza ukusekelwa ngokomzwelo nangokwenhlalo. Noma ngabe wenza kanjalo, usengazuza ngokuxhumana nabanye abaphila nomdlavuza we-metastatic. Leli yiqembu labantu 'elizolithola.'

Noma ngabe uku-inthanethi noma mathupha, amaqembu okusekela anikeza ithuba elihlukile lokwabelana ngamava ajwayelekile. Ungathola futhi unikeze ukwesekwa ngasikhathi sinye. Amalungu amaqembu okwesekwa avame ukwakha izibopho eziqinile zobungani.

Ungathola amaqembu okusekela endaweni yakho ngehhovisi le-oncologist yakho, isibhedlela sendawo, noma indlu yokukhonza.

Ungahlola futhi lezi zinkundla ze-inthanethi:

• Isithangami seBreastCancer.org: Isigaba IV kanye Nomdlavuza Webele WeMetastatic KUPHELA
• ICancerCare Metastatic Breast Cancer Patient Support Group
• I-Closed Metastatic (Advanced) Iqembu Lokusekela Umdlavuza Webele (ku-Facebook)
• Inspire.com Umphakathi Womdlavuza Webele Othuthukile
• I-TNBC (umdlavuza webele ongena kathathu) Ibhodi Yezingxoxo zeMetastasis / Ukuphindaphinda

Abasebenzi bezenhlalakahle be-Oncology bamane bashayelwe ucingo kuphela. Ayatholakala ukukusiza ukuba ubhekane nezinselelo ezingokomzwelo nezisebenzayo zomdlavuza webele.

Imisebenzi yezempilo neyekhaya

Imibuzo eminingi ivela lapho uphila nomdlavuza webele osezingeni eliphakeme. Ubani ozosiza lapho ungakwazi ukushayela ngokwakho ukwelashwa? Ungayithenga kuphi imikhiqizo yezokwelapha? Ungaluthola kanjani usizo lokunakekelwa ekhaya oludingayo?

Ihhovisi lakho le-oncology lithola le mibuzo ngaso sonke isikhathi. Mhlawumbe bangahlinzeka ngohlu lwezinsizakalo nabahlinzeki endaweni yakho. Nazi ezinye izinsiza ezinhle ongazama ngazo:

• I-American Cancer Society Services inikeza imininingwane ngezinsizakalo nemikhiqizo eyahlukahlukene, kufaka phakathi:
  • imithombo yezimali
  • ukulahleka kwezinwele, imikhiqizo ye-mastectomy, neminye imikhiqizo yezokwelapha
  • amatilosi eziguli endawo
  • indawo yokuhlala ngenkathi uthola ukwelashwa
  • ugibela ukuya ekwelashweni
  • ukubhekana nemiphumela emibi ehlobene nokubukeka
  • imiphakathi eku-inthanethi
• ICancerCare Financial Assistance inikeza usizo nge:
  • izindleko ezihlobene nokwelashwa njengokuhamba, ukunakekelwa kwasekhaya nokunakekelwa kwengane
  • usizo lokukhokhela umshwalense ukukhokhela izindleko zamakhemikhali nokwelashwa okuhlosiwe
• Ukuhlanza Isizathu kunikela ngezinsizakalo zamahhala zokuhlanza izindlu kwabesifazane abelashwa umdlavuza webele, otholakala kulo lonke elase-United States naseCanada

Uma uthola ukuthi udinga ukunakekelwa kwasekhaya noma ukunakekelwa kwe-hospice, nazi izizinda ezimbalwa eziseshekayo ukukusiza ukuthi uthole lezi zinsizakalo:

• Inhlangano Kazwelonke Yokunakekelwa Kwasekhaya I-Ejensi Yezinsizakalo Yendawo
• INational Hospice and Palliative Care Organisation - Thola iHospice

Ihhovisi likadokotela wakho lingakuthumela nasezinsizakalweni ezisendaweni yangakini. Kungumqondo omuhle ukucwaninga lokhu ngaphambi kwesidingo, ngakho-ke uzilungiselele.

Ukuhlolwa kwemitholampilo

Ukuhlolwa kwemitholampilo kuyingxenye ebalulekile yocwaningo lomdlavuza. Zikunikeza ithuba lokuzama izindlela ezintsha zokwelapha ongazitholi ngenye indlela. Lezi zivivinyo zivame ukuba nezindlela eziqinile zokufakwa.

Uma unentshisekelo yokubamba iqhaza esivivinyweni somtholampilo, qala ngokukhuluma nodokotela wakho. Bangase bakwazi ukuthola isilingo esivumelana nesimo sakho. Ungahlola futhi le mininingwane engasesheka:

• ClinicalTrials.gov
• Ukuhlolwa Kwesilingo seMetastatic Breast Alliance Test
• I-Metastatic Breast Cancer Network Isitholi Sezilingo Zomtholampilo

Ukusekelwa kwabanakekeli

Abanakekeli abayinhloko nabo bangakhungatheka kancane. Ngenqubo yokunakekela othandekayo, bavame ukungayinaki inhlalakahle yabo. Bakhuthaze ukuthi bacele usizo.

Nazi izindlela ezimbalwa zokusiza ukunciphisa umthwalo:

• I-Caregiver Action Network: imininingwane namathuluzi ukuze uhleleke
• I-Caring.com - Ukuba yiQembu Lokusekela Abanakekeli: amathiphu nezeluleko ngokunakekela umnakekeli
• I-Family Caregiver Alliance: imininingwane, amathiphu, nokusekelwa komnakekeli
• ILotsa Helping Hands: amathuluzi “Wokwakha Umphakathi Onakekelayo” ukuhlela usizo ngemisebenzi yokunakekela efana nokulungiselela ukudla

Ngaphandle kwemisebenzi yabo yokunakekela, laba bantu bangathatha futhi umthwalo wokugcina bonke abanye bazi. Kepha kukhona amahora amaningi kuphela ngosuku.

Yilapho izinhlangano ezinjengeCaringBridge neCarePages zingena khona. Zikuvumela ukuthi udale ngokushesha ikhasi lakho le-web. Ngemuva kwalokho ungabuyekeza kalula abangane nomndeni ngaphandle kokuziphinda noma ushaye izingcingo eziningi. Ungalawula ukuthi ubani onokufinyelela kuzibuyekezo zakho, futhi amalungu angangeza imibono yawo ongayifunda ngesikhathi sakho sokuphumula.

Lawa masayithi nawo anamathuluzi wokwenza isheduli yosizo. Amavolontiya angabhalisela ukwenza imisebenzi ethile ngosuku nesikhathi esithile ukuze ukwazi ukuhlela ukuthatha ikhefu.

Kulula ukulahleka ekunakekeleni. Kepha abanakekeli benza umsebenzi ongcono uma nabo bezinakekela.