Injani impilo ngemuva kokuxilongwa kwe-Down Syndrome

-Delile

• 1. Uhlala isikhathi esingakanani?
• 2. Yiziphi izivivinyo ezidingekayo?
• 3. Kunjani ukulethwa?
• 4. Yiziphi izinkinga zempilo ezivame kakhulu?
• 5. Kunjani ukukhula kwengane?
• 6. Kufanele kube kanjani ukudla?
• 7. Injani isikole, umsebenzi nempilo yabantu abadala?

Ngemuva kokwazi ukuthi ingane ine-Down Syndrome, abazali kufanele behlise umoya bafune imininingwane eminingi ngokuthi i-Down Syndrome iyini, yiziphi izici zayo, yiziphi izinkinga zempilo ingane engabhekana nazo futhi yini amathuba okwelashwa angasiza ukukhuthaza ukuzimela futhi uthuthukise izinga lempilo yengane yakho.

Kukhona izinhlangano zabazali ezifana ne-APAE, lapho kungenzeka khona ukuthola ulwazi olusezingeni, oluthembekile kanye nochwepheshe nezindlela zokwelapha ezingakhonjiswa ukusiza ukukhula kwengane yakho. Kulolu hlobo lobudlelwano, kungenzeka ukuthi uthole ezinye izingane ezine-syndrome nabazali bazo, okungaba wusizo ukwazi ukulinganiselwa namathuba umuntu we-Down Syndrome angaba nawo.

1. Uhlala isikhathi esingakanani?

Isikhathi sokuphila somuntu one-Down syndrome siyahlukahluka, futhi singathonywa ukukhubazeka kokuzalwa, njengenhliziyo namaphutha okuphefumula, ngokwesibonelo, kanye nokulandelwa okufanelekile kwezokwelapha kuyenziwa. Esikhathini esedlule, ezimeni eziningi isikhathi sokuphila besingadluli eminyakeni engama-40 ubudala, kodwa-ke, kulezi zinsuku, ngentuthuko kwezokwelapha nasekuthuthukisweni kwezokwelapha, umuntu one-Down syndrome angaphila ngaphezu kweminyaka engama-70 ubudala.

2. Yiziphi izivivinyo ezidingekayo?

Ngemuva kokuqinisekisa ukuxilongwa kwengane ene-Down Syndrome, udokotela anga-oda izivivinyo ezengeziwe, uma kunesidingo, njenge: karyotype okufanele yenziwe kuze kube unyaka wokuqala wokuphila, i-echocardiogram, ukubalwa kwegazi namahomoni wegilo i-T3, T4 ne-TSH.

Ithebula elingezansi likhombisa ukuthi iziphi izivivinyo okufanele zenziwe, nokuthi kufanele zenziwe ngasiphi isigaba ngesikhathi sokuphila komuntu one-Down Syndrome:

* I-echocardiogram kufanele iphindwe kuphela uma kutholakala okuthile okungajwayelekile kwenhliziyo, kepha imvamisa kufanele ikhonjiswe ngudokotela wenhliziyo ohamba nomuntu one-Down's Syndrome.

3. Kunjani ukulethwa?

Ukulethwa kwengane ene-Down's Syndrome kungaba yinto ejwayelekile noma engokwemvelo, kepha-ke, kuyadingeka ukuthi udokotela wenhliziyo nodokotela we-neonatologist kumele atholakale uma ezalwa ngaphambi kosuku oluhleliwe, futhi ngenxa yalesi sizathu, kwesinye isikhathi abazali bakhetha isigaba sokuhlinzwa, vele ukuthi laba odokotela abahlale betholakala ngaso sonke isikhathi ezibhedlela.

Thola ukuthi yini ongayenza ukuze ululame kusuka esigabeni se-cearean ngokushesha.

4. Yiziphi izinkinga zempilo ezivame kakhulu?

Umuntu one-Down Syndrome kungenzeka ukuthi abe nezinkinga zempilo ezinjengalezi:

• Emehlweni: Ama-cataract, i-pseudo-stenosis yomgudu we-lacrimal, umlutha we-refractive, kanye nezibuko kufanele kugqokwe zisencane.
• Ezindlebeni: I-otitis evamile engavumela ukungezwa.
• Enhliziyweni: Ukuxhumana okuphakathi noma kokungenelela, i-atrioventricular septal defect.
• Kuhlelo lwe-endocrine: I-Hypothyroidism.
• Egazini: I-leukemia, i-anemia.
• Kuhlelo lokugaya ukudla: Ukuguqulwa kwesifo esidala i-reflux, i-duodenum stenosis, i-aganglionic megacolon, isifo sikaHirschsprung, isifo seCeliac.
• Emisipheni nasemalungeni: Ubuthakathaka be-Ligament, i-subluxation yomlomo wesibeletho, ukuhlukaniswa kwesinqe, ukungazinzi okuhlangene, okungavumela ukuhlukaniswa.

Ngenxa yalokhu, kuyadingeka ukulandela udokotela impilo yakho yonke, ukwenza izivivinyo nokwelashwa noma nini lapho kuvela lezi zinguquko.

5. Kunjani ukukhula kwengane?

Ithoni yemisipha yengane ibuthakathaka ngakho-ke ingane ingathatha isikhashana ukubamba ikhanda lodwa ngakho-ke abazali kufanele baqaphele kakhulu futhi ngaso sonke isikhathi basekele intamo yengane ukugwema ukususwa komlomo wesibeletho ngisho nokulimala entanjeni yomgogodla.

Ukukhula kwengqondo kwengqondo yengane ene-Down Syndrome kuhamba kancane ngakho-ke kungathatha isikhashana ukuhlala, ukukhasa nokuhamba, kepha ukwelashwa nge-psychomotor physiotherapy kungayisiza ukuthi ifinyelele kulezi zibalo zentuthuko esheshayo. Le vidiyo inokuzivocavoca okuthile okungakusiza ugcine ukuzivocavoca kwakho ekhaya:

Kuze kube yiminyaka emibili ubudala, ingane ivame ukuba neziqephu zomkhuhlane, amakhaza, i-gastroesophageal reflux futhi ingahle ibe ne-pneumonia nezinye izifo zokuphefumula uma ingelashwa kahle. Lezi zingane zingathola umuthi wokugomela umkhuhlane njalo ngonyaka futhi zivame ukuthola umuthi wokugomela i-Respiratory Syncytial Virus lapho zizalwa ukuvimbela umkhuhlane.

Ingane ene-Down Syndrome ingaqala ukukhuluma kamuva, ngemuva kweminyaka emithathu ubudala, kepha ukwelashwa kokwelashwa kokukhuluma kungasiza kakhulu, kunciphise lesi sikhathi, kusize ukuxhumana kwengane nomndeni nabangane.

6. Kufanele kube kanjani ukudla?

Ingane ene-Down Syndrome ingancelisa kodwa ngenxa yobukhulu bolimi, ubunzima bokuxhumanisa ukuncela nokuphefumula nemisipha ekhathala ngokushesha, ingaba nobunzima ekunceliseni ibele, yize inokuqeqeshwa okuncane nokubekezela. ukwazi ukuncelisa ibele kuphela.

Lokhu kuqeqeshwa kubalulekile futhi kungasiza ingane ukuthi iqinise imisipha yobuso ezomsiza ukuthi akhulume ngokushesha, kepha noma kunjalo, umama angakhombisa nobisi ngepompo yebele bese elunikeza ingane ngebhodlela .

Bheka Umhlahlandlela Ophelele Wokubeletha Wabaqalayo

Kunconywa ukuncelisa ibele kuphela kuze kufike ezinyangeni eziyisithupha, lapho kungeniswa okunye ukudla. Kufanele njalo ukhethe ukudla okunempilo, uvikele i-soda, amafutha nokuthosa, ngokwesibonelo.

7. Injani isikole, umsebenzi nempilo yabantu abadala?

Izingane ezine-Down Syndrome zingafunda esikoleni esijwayelekile, kepha labo abanezinkinga eziningi zokufunda noma ukukhubazeka kwengqondo bayazuza esikoleni esikhethekile.Imisebenzi efana nemfundo yokuzivocavoca umzimba kanye nemfundo yobuciko yamukelekile njalo futhi isiza abantu baqonde imizwa yabo futhi baziveze kangcono.

Umuntu one-Down Syndrome uyathandeka, uyaphuma, uyajwayela futhi uyakwazi nokufunda, angafunda futhi angaya ngisho nasemakolishi asebenze. Kukhona izindaba zabafundi abenze i-ENEM, baya ekolishi futhi bakwazi ukuphola, ukuya ocansini, ngisho nokushada futhi lezi zithandani zingahlala zodwa, ngokusekelana kuphela.

Njengoba umuntu one-Down Syndrome enokuthambekela kokufaka isisindo umkhuba ojwayelekile wokuzivocavoca umzimba uletha izinzuzo eziningi, njengokugcina isisindo esifanele, ukukhulisa amandla emisipha, ukusiza ukuvimbela ukulimala ngokuhlanganyela nokwenza lula ukuxhumana nabantu. Kepha ukuze kuqinisekiswe ukuphepha ngenkathi kwenziwa imisebenzi efana nokuzivocavoca umzimba, ukuqeqeshwa isisindo, ukubhukuda, ukugibela amahhashi, udokotela anga-oda izivivinyo ze-X-ray kaningi ukuhlola umgogodla womlomo wesibeletho, ongahlukunyezwa, isibonelo.

Umfana one-Down's Syndrome cishe uhlala eyinyumba, kepha amantombazane ane-Down's Syndrome angakhulelwa kodwa abe nethuba elikhulu lokuthola ingane ene-Syndrome efanayo.