Izinto Ezi-6 Engizifundile Ngonyaka Wami Wokuqala Ngine-MS

-Delile

• 1. I-MS akulona iphutha lomuntu
• 2. Ngiqinile kunendlela ebengicabanga ngayo
• 3. Ngakolunye uhlangothi, ukuncibilika kwemikhumbi kulungile
• 4. Wonke umuntu uchwepheshe
• 5. Ukubaluleka kwesizwe
• 6. Akuyona yonke into emayelana ne-MS
• Ukudla okudlela endlini

Eminyakeni engu-17 edlule, ngathola ukuthi ngine-multiple sclerosis (MS). Ngokwengxenye enkulu, ngizizwa sengathi ngikwazi kahle ukuba ne-MS. Kungumsebenzi onzima futhi inkokhelo inesizotha, kepha ngiphatha okudinga ukuphathwa. Ngiyaqhubeka nayo, futhi ngihlanganyela okuhlangenwe nakho kwami ​​kubhulogi lami, Ukukhubazeka Emoyeni.

Bengingahlali ngingumphathi onjalo njalo nge-MS, noma kunjalo. Lapho ngiqala ukutholakala, ngangesaba. Ngangiqala nje empilweni, futhi ukuxilongwa kwami ​​kwaba sengathi ikusasa lami lonke lilahliwe.

Ukuxilongwa kwangemva konyaka kokuxilongwa kungaba ngenye yezinto ezinzima kakhulu empilweni yakho. Ngafunda okuningi phakathi naleso sikhathi, nawe uzofunda.

Nazi izinto eziyisithupha engizifunde onyakeni wokuqala ngemuva kokutholakala kwami.

1. I-MS akulona iphutha lomuntu

Kuyimvelo yomuntu ukufuna ukuthola ukuthi kungani izinto zenzeka. Asikwazi ukukusiza.

Uphawu lwami lokuqala lwe-MS kwakuwukuhlaba izinhlungu zamehlo okwathi kamuva kwatholakala ukuthi yi-optic neuritis. Kuvele isonto ngemuva kokuba ngichithe ubusuku be-Halloween ngiphuza kakhulu iwayini nezintombi zami, ngiphonsa iziphonso, futhi ngenza nemicimbi yezimfundamakhwela.

Isikhathi eside, bengiziqinisekisa ukuthi iwayini elibomvu namademoni ngandlela thile bebememe i-MS empilweni yami. Asazi kahle ukuthi yini ebangela i-MS, kodwa kuphephile ukusho ukuthi akubona ubuthakathi.

Awutholanga i-MS ngokuhlala kuze kube sebusuku noma ngokungashayi ijimu kanzima ngokwanele. Awutholanga i-MS ngoba ukhohlwa ukufloss noma udla uswidi ngesidlo sasekuseni. I-MS ayiwona umphumela wanoma imuphi umkhuba omubi ozishaya ngawo. I-MS yenzeka futhi akulona iphutha lakho.

2. Ngiqinile kunendlela ebengicabanga ngayo

Ukwelashwa kokuqala enganikezwa kona kwakuwumjovo - umjovo okwakufanele ngizinikeze wona. Umcabango wami kwakuwukuthi cha, kaninginingi. Bengingacabangi ukuthi bengizokwazi ukumelana nemijovo nsuku zonke, ingasaphathwa eyokuzinikela kimi.

Umama wanginikeza izinaliti zami ngenyanga yokuqala. Kodwa ngolunye usuku, ngathatha isinqumo sokuthi ngifuna ukubuyela kwinkululeko yami.

Ukudubula i-auto-injector emlenzeni wami okokuqala kwakwesabisa, kepha ngakwenza. Futhi ngokuzayo lapho ngikwenza, kwaba lula. Imijovo yami yaqhubeka yaba lula, kwaze kwaba yilapho ngizinika inaliti ekugcineni kungabi ndaba enkulu.

3. Ngakolunye uhlangothi, ukuncibilika kwemikhumbi kulungile

Ngisho nalapho ngithola ukuthi ngingenza izinto ezinzima, ngangizithola ngishwabene phansi egumbini lokugezela, ngikhale kakhulu. Ngifaka ingcindezi enkulu kimi ukuthi ngibeke ubuso obunesibindi kwabanye, kodwa kuyinto ejwayelekile ukuzuma.

Kuphilile ukudabuka ngalokho obhekene nakho. Kepha uma udonsa kanzima, kuwumqondo omuhle ukucela usizo. Khuluma nodokotela wakho ukuthola izincomo zochwepheshe bezempilo yengqondo abangakusiza.

4. Wonke umuntu uchwepheshe

Ngemuva kokutholakala kwami, kwavele kwaba sengathi wonke umuntu ongahleliwe owafunda ukuthi ngine-MS wayenokuthile afuna ukukusho. Babengitshela ngomphathi kanina womngani kamngani wabo omkhulu owayene-MS, kepha welashwa ngokudla okuyisimangaliso, isengezo esingavamile, noma ushintsho lwendlela yokuphila.

Iseluleko esingahlali siceliwe sasihlose kahle, kepha sasingazi. Khumbula, izinqumo zakho zokwelashwa ziphakathi kwakho nodokotela wakho. Uma kuzwakala kukuhle kakhulu ukuthi kungabi yiqiniso, kungenzeka kunjalo.

5. Ukubaluleka kwesizwe

Ngemuva kokutholakala kwami, ngafinyelela kubantu ababebhekene nezinhlobo ezifanayo zezinto enganginazo ngaleso sikhathi. Lokhu kwakungaphambi kokuba kube lula ukuthola amaqembu online, kepha ngakwazi ukuxhumana nabanye abanjengami ngeNational MS Society nangabangani bobabili. Ngakha izibopho nabesifazane abasebasha abane-MS ababesesigabeni sokuphila esifanayo nami, ngizama ukuthola izinto ezinjengokuphola nokuqala imisebenzi.

Eminyakeni eyishumi nesikhombisa kamuva, ngisasondelene nalaba besifazane. Ngiyazi ukuthi ngingabashayela noma ngibathumele umyalezo noma kunini lapho ngidinga ukuveza noma ukuhlanganyela imininingwane, futhi bazoyithola ngendlela okungekho omunye umuntu ongayithola. Ukubonwa kubaluleke kakhulu, futhi ngokusizana, ungazisiza.

6. Akuyona yonke into emayelana ne-MS

Kunezinsuku lapho ngizizwa sengathi angikaze ngicabange nge-MS. Ngalezi zinsuku, kufanele ngizikhumbuze ukuthi ngingaphezu kokuxilongwa kwami ​​- ngendlela engaphezulu.

Ukuzijwayeza indlela entsha ejwayelekile futhi entsha yokuthi ubucabanga ukuthi impilo yakho izobukeka kanjani kungaba nzima, kepha kusenjalo nguwe. I-MS yinkinga okudingeka ubhekane nayo, ngakho-ke bhekela i-MS yakho. Kepha khumbula njalo ukuthi awuyona i-MS yakho.

Ukudla okudlela endlini

Ngonyaka wami wokuqala ngine-MS, ngafunda okuningi ngokuthi kusho ukuthini ukuphila nokugula okungalapheki. Ngafunda okuningi nangami. Nginamandla kunalokho engangicabanga ukuthi kungenzeka. Eminyakeni kusukela ngatholwa, ngifunde ukuthi i-MS ingenza impilo ibe nzima, kodwa impilo enzima akumele ibe yimpilo edabukisayo.

U-Ardra Shephard ungumbhlogi weCanada onethonya ngemuva kwebhulogi eliwine imiklomelo iTripping On Air - iscotop yangaphakathi engenanhlonipho ngempilo yakhe ene-multiple sclerosis. U-Ardra ungumeluleki weskripthi ochungechungeni lwethelevishini lwe-AMI mayelana nokuthandana nokukhubazeka, "Kukhona Okufanele Ukwazi," futhi ubonisiwe kuSickboy Podcast. I-Ardra inikele kwi msconnection.org, The Mighty, xojane, Yahoo Lifestyle, nezinye. Ngo-2019, wayeyisikhulumi sosuku e-MS Foundation yaseCayman Islands.Mlandele ku-Instagram, Facebook, noma ku-hashtag #babeswithmobilityaids ukuze agqugquzelwe abantu abasebenzela ukushintsha imibono yokuthi kubukeka kanjani ukuphila nokukhubazeka.