Ngifunde Kanjani Ukukhulula Ihlazo nokwamukela Inkululeko Yabanabaningi Abadala Ye-IBD

-Delile

• Ekolishi, i-ulcerative colitis yaguqula impilo yami yashintsha
• Ukuqhuma kwakamuva kungishiye ngifuna izixazululo
• Amahloni ayengafani nanoma yini engake ngazizwa ngaphambili
• Ukwesekwa nokuhleka kwangibuyisela amandla ami
• Ukwamukelwa kungisiza ngiphile impilo ephelele, enhle

Ngibonga kakhulu ngokuba nethuluzi elinginike inkululeko nokuphila okungaka.

Umfanekiso kaMaya Chastain

“Kuzofanele ngifake i-diap diap!” Ngithi kumyeni wami njengoba silungiselela ukuyozungeza indawo yangakithi.

Cha, anginangane, noma ingane yanoma yibuphi ubudala ngalokho. Ngakho-ke, uma ngikhuluma ngamanabukeni, anhlobonhlobo yabantu abadala futhi asetshenziswa yimina kuphela, uHolly Fowler - oneminyaka engama-31.

Futhi yebo, sibabiza ngempela ngokuthi "ama-diap diap" endlini yami ngoba ngandlela thile kubonakala kumnandi ngaleyo ndlela.

Ngaphambi kokuthi ngingene kokuthi kungani ngigqoke inabukeni okungu-30-okuthile, ngidinga ukukubuyisela ekuqaleni.

Ekolishi, i-ulcerative colitis yaguqula impilo yami yashintsha

Ngatholwa ngine-ulcerative colitis, isifo sokuvuvukala kwamathumbu (IBD), ngo-2008 ngineminyaka engu-19 ubudala. akunjalo ukuthanda ukufafaza izibhedlela kulwazi lwabo lwasekolishi?)

Uma ngikhuluma iqiniso, ngangikwenqaba ngokuphelele ukuxilongwa kwami ​​futhi ngichitha iminyaka yami yasekolishi ngenza sengathi bekungekho kuze kufike ukulaliswa kwami ​​esibhedlela okulandelayo.

Kwakungekho lutho emhlabeni, ezifweni ezizimele ezifakiwe, ezazizongenza ngihluke kunontanga yami noma zingivimbele ekwenzeni engangifuna ukukwenza.

Ukuya emaphathini, ukudla izipuni zikaNutella, ukuhlala ubusuku bonke ukuze udonse imigilingwane yasekampus, ngifunde phesheya eSpain, futhi ngisebenze ekamu njalo ehlobo: Ukhuluma ngamava asekolishi, mhlawumbe ngikwenzile.

Konke lokhu ngenkathi ngilimaza umzimba wami enqubeni.

Unyaka ngemuva konyaka okhandlayo wokuzama kanzima ukwamukeleka futhi ngibe “nguyena ojwayelekile,” ngigcine ngifundile ukuthi kwesinye isikhathi kufanele ngivelele noma ngibe "ngumdli oyinqaba" etafuleni ukuze ngimele impilo yami nalokho engikwaziyo ukuthi kungcono kakhulu kwami.

Futhi ngafunda ukuthi kulungile!

Ukuqhuma kwakamuva kungishiye ngifuna izixazululo

Ekuphakameni kwami ​​kwakamuva okuqale ngo-2019, bengibhekana nokuphuthuma komgogodla futhi ngiba nezingozi cishe nsuku zonke. Kwesinye isikhathi bekungenzeka ngenkathi ngizama ukuhambisa inja yami ezungeze ibhulokhi. Ngezinye izikhathi bekungenzeka ukuthi ngihambe ngiye endaweni yokudlela emabangeni amathathu kude.

Izingozi zaba yinto engalindelekile kangangoba ngangicindezeleka lapho ngicabanga nje ukuphuma endlini, bese ngiba nokudangala okuphelele ngokomzwelo lapho ngingatholi indlu yokugezela ngesikhathi.

(Babusise abantu engibancengile, ngamehlo agcwele izinyembezi, ukuthi basebenzise igumbi labo lokuphumula ezindaweni ezahlukene eziseduze nendawo yaseLos Angeles. Kunendawo ekhethekile enhliziyweni yami nonke.)

Ngama-flare-ups amaningi enginawo empilweni yami, umqondo wamanabukeni abantu abadala njengenketho awukaze ufike nakimi. Ngibheke amanabukeni amadala njengento ongahle uyithengele ubaba wakho njengesipho se-gag ngosuku lwakhe lokuzalwa lwama-50, hhayi njengento wena empeleni thenga ukuze usetshenziswe ngokungathi sína kuma-30s akho.

Kepha ngemuva kokucwaninga nokubona ukuthi kunezinketho zobuhlakani ezazizokwenza impilo yami ibe lula, ngathatha isinqumo.

Nginga-oda ama-diapers amadala - ekusikeni nasemibala ethophayo kunazo zonke, impela - futhi bengizobuya ngilawule impilo yami.

Amahloni ayengafani nanoma yini engake ngazizwa ngaphambili

Ngangivame ukucabanga uku-oda ubisi lwe-nondairy ikhofi lami ezindaweni zokudlela ezindaweni lapho lokho kungajwayelekile kwakuhlaza khona.

Kepha ukugqolozela enqoleni yami yase-Amazon enepakethe ephindwe kabili ye-Depends bekungelinye izinga lokululazeka engingakaze ngilibone ngaphambili.

Kwakungafani nokuthi ngangisesitolo sezinto zokudla edolobheni lapho ngangazi wonke umuntu. Ngempela ngangisembhedeni wami ngedwa. Kodwa-ke angikwazanga ukunyakazisa imizwa ejulile yokudumala, ukudabuka, nokulangazelela inguqulo yami engingazange ngibhekane ne-ulcerative colitis.

Lapho amanabukeni efika, ngazenzela isivumelwano sokuthi leli kuzoba yilo kuphela iphakethe engizolidinga ukulithenga. Awuyithandi yini imigudu esiyenza nathi?

Anginamandla okulawula ukuthi lokhu kuqubuka kuzophela nini noma lapho ngingasayidingi khona “ukwesekwa kwengubo” okwengeziwe. Mhlawumbe kuvele kwangenza ngazizwa ngingcono ngaleso sikhathi, kepha ngiyakuqinisekisa ukuthi sengithengile amaphakethe amaningi njengala masosha avulekile.

Noma nganginamanabukeni emgodleni wami wokugcina futhi ngilungele ukuwasebenzisa, ngangisazizwa nginamahloni kakhulu ngokuwadinga ngangokunokwenzeka. Ngangizonda iqiniso lokuthi ngangibadinga ukuba baye esidlweni sakusihlwa noma emtatsheni wezincwadi, noma ngisho nokuhamba nenja ukuzungeza ibhulokhi.

Ngangizonda konke ngabo.

Ngangicasukela nokuthi bangenza ngazizwa ngingahlonishwa kanjani. Ngangishintshwa endlini yokugezela futhi ngigqoke izingubo ngendlela ethile ukuze umyeni wami angakwazi ukusho ukuthi ngangigqoke inabukeni. Bengingafuni ukuthi umbono wakhe ngami ushintshe.

Ukwesekwa nokuhleka kwangibuyisela amandla ami

Ngenkathi ngangikhathazeka ngokungabe ngisazizwa ngifiseleka, engingazange ngikunake umthelela omuhle omkhulu umyeni wami abazoba nawo ekubukeni kwami.

Ekhaya lethu, sithambekele ekubhekeni amahlaya amnyama, kususelwa eqinisweni lokuthi nginesifo sokuzilimaza nomyeni wami wahlushwa iqolo nesifo sohlangothi ngaphambi kweminyaka engama-30.

Sihlangene, sidlule ezintweni ezinzima, ngakho-ke sinelensi ehlukile empilweni kunemibhangqwana eminingi yobudala bethu.

Okudingekayo nje ukuthi athi, ngezwi lakhe elihle kakhulu likamkhulu, "Hamba uyokhipha i-diap diap yakho," futhi ngokungazelelwe isimo saba lula.

Okwesibili siwathathe amandla kulesi simo, ihlazo lasuswa.

Manje sabelana ngazo zonke izinhlobo zamahlaya angaphakathi mayelana nenabukeni lami, futhi nje kwenza kube lula ukubhekana nesimo sempilo yami.

Ngifundile ukuthi, ngesitayela esifanele, ngiyakwazi ukukhipha ngigqoke amanabukeni ngaphansi kwama-leggings, ngishaya izikhindi, amajini, amalokwe, futhi, yebo, ngisho nengubo ye-cocktail, ngaphandle kwanoma ngubani owaziyo.

Kuze kube wukujaha ukwazi ukuthi yini enginayo ngaphansi. Kufana nokugqoka izingubo zangaphansi zangaphansi, ngaphandle kokuveza izingubo zakho zangaphansi kungakumangaza nokumangala kubabukeli, kunokuba kuvezwe okukhangayo.

Yizinto ezincane ngempela ezenza lesi sifo sithwale.

Ukwamukelwa kungisiza ngiphile impilo ephelele, enhle

Lokhu kuqhuma ekugcineni kuzophela, futhi ngeke ngidinge njalo ukugqoka la manabukeni. Kepha ngibonga kakhulu ukuba nabo njengethuluzi elinginike inkululeko nokuphila okungaka.

Manje sengikwazi ukuhambahamba nomyeni wami, sihlole izindawo ezintsha zedolobha lethu, sigibele amabhayisikili ngasogwini lolwandle, futhi ngihlale nemikhawulo embalwa.

Kungithathe isikhathi eside ukuthi ngifike kule ndawo yokwamukelwa, futhi ngifisa sengathi ngabe ngifika lapha ngokushesha. Kepha ngiyazi ukuthi inkathi ngayinye yempilo inenjongo kanye nezifundo zayo.

Sekuyiminyaka, amahloni engivimba ekubeni ngiphile impilo ephelele, enhle nabantu engibathandayo. Manje sengibuyisela impilo yami futhi ngiyisebenzisa ngokugcwele - isifo se-autoimmune, inabukeni, nakho konke.

UHolly Fowler uhlala eLos Angeles nomyeni wakhe nengane yabo enoboya, uKona. Uthanda ukuhamba izintaba, ukuchitha isikhathi ebhishi, ukuzama indawo esishisayo yakamuva engenalo i-gluten edolobheni, nokusebenza kanzima ngokuvumelana nesilonda sakhe sezilonda. Lapho engafuni i-dessert ye-vegan engenalo i-gluten, ungamthola esebenza ngemuva kwezigcawu zewebhusayithi yakhe naku-Instagram, noma ezisonge kusofa edla idokhumentari yamuva yobugebengu beqiniso kwiNetflix.