Uhlelo lokusebenza olusha lweHealthline lusiza ukuxhuma labo abane-IBD

-Delile

• Yiba yingxenye yomphakathi
• Thola induduzo ngezinombolo namaqembu
• Izibonelo zezihloko zengxoxo bukhoma
  
• Thola izindatshana ezifundisayo nezincomekayo
• Indawo yethemba nethemba

IBD Healthline wuhlelo lokusebenza lwamahhala lwabantu abaphila nesifo sikaCrohn noma i-ulcerative colitis. Uhlelo lokusebenza luyatholakala ku-App Store naku-Google Play.

Ukuthola abangani nomndeni abaqonda futhi basekele i-IBD yakho kuyigugu. Ukuxhuma nalabo abazibonela mathupha akunakubuyiselwa.

Umgomo wohlelo lokusebenza olusha lwe-IBD lweHealthline ukunikela ngendawo yokuxhumana okunjalo.

Idalelwe abantu abaphila nesifo sikaCrohn noma i-ulcerative colitis (UC), uhlelo lokusebenza lwamahhala lunikeza ukwesekwa komuntu ngamunye nezeluleko zeqembu ezivela kubantu abakuqondayo lokho obhekene nakho, noma ngabe usanda kutholakala noma udokotela wezilwane osenesikhathi.

“Kusho umhlaba kimi ukukwazi ukuxhumana nomuntu‘ ositholayo, ’” kusho uNatalie Hayden, owatholwa enesifo sikaCrohn eneminyaka engama-21.

Uthi: “Lapho kutholakala ukuthi ngineCrohn’s ngo-2005, ngazizwa nginesizungu futhi nginesizungu. “Bengizonikela nganoma yini ukuze ngikwazi ukufinyelela ngqo kubantu abane-IBD futhi ngihlanganyele izinto engizesabayo, ezingikhathazayo, nezingxabano zami ngaphandle kokwesaba ukwahlulelwa. Kuyizinsizakusebenza ezinjengale [app] ezisinika amandla njengeziguli futhi zisibonise ukuthi impilo iqhubeka kanjani, noma ngabe unesifo esingelapheki. ”

Yiba yingxenye yomphakathi

Uhlelo lokusebenza lwe-IBD lukufanisa namalungu avela emphakathini nsuku zonke ngo-12. Isikhathi Esijwayelekile sase-Pacific sisuselwa ku:

• Uhlobo lwe-IBD
• ukwelashwa
• izintshisekelo zendlela yokuphila

Ungabhekabheka amaphrofayli alungu bese ucela ukuxhuma ngokushesha nomuntu. Uma othile efuna ukufana nawe, waziswa khona manjalo. Uma sekuxhunyiwe, amalungu angathumela imiyalezo komunye nomunye futhi abelane ngezithombe.

"Isici somdlalo wansuku zonke singikhuthaza ukuthi ngifinyelele kubantu ebengeke ngihlanganyele nabo ngenye indlela, noma ngabe ngibona amaphrofayili abo kokuphakelayo," kusho u-Alexa Federico, obehlala nesifo sikaCrohn kusukela eneminyaka engu-12. “Ukukwazi ukuxoxa nothile ngokushesha kuhle kunoma ngubani odinga iseluleko nge-ASAP. Kwengeza [umuzwa] wenduduzo ngokwazi [kukhona] inethiwekhi yabantu okufanele sikhulume nabo. "

UNatalie Kelley, owatholakala ukuthi une-UC ngo-2015, uthi kuyajabulisa ukwazi ukuthi uzothola umdlalo omusha nsuku zonke.

"Kulula ukuzizwa sengathi akekho oqonda ukuthi ubhekene nani, kodwa bese uqaphela ukuthi usuku ngalunye uthola 'ukuhlangana' nomuntu owenza lokho kungokuhlangenwe nakho okuhlukile kakhulu," kusho uKelley. “Isikhathi ongaxoxa ngaso nomunye umgadli we-IBD futhi unaso leso sikhathi esithi‘ Uyangithola! ’Ngumlingo. Ukuba nomuntu ozothumela umyalezo noma uthumele umyalezo uma ulele ebusuku ungakhathazekile nge-IBD noma uzizwe kabi ngokulahlekelwa okunye ukuzijabulisa ngenxa ye-IBD kuyaduduza kakhulu. ”

Uma uthola umdlalo omuhle, uhlelo lokusebenza lwe-IBD ludiliza iqhwa ngokwenza umuntu ngamunye aphendule imibuzo yokusiza ukuthi ingxoxo iqhubeke.

UHayden uthi lokhu kwenze ukuba abagibeli babenemvelo futhi bamukeleke.

“Ingxenye engangiyithanda kakhulu kwakuwumbuzo onqamula iqhwa, ngoba wawungenza ngime kancane ngicabange ngohambo lwami lwesineke nokuthi ngingabasiza kanjani abanye,” usho kanje.

Thola induduzo ngezinombolo namaqembu

Uma uthanda ukuxoxa nabantu abaningana ngasikhathi sinye kunokuxhumana komuntu ngamunye, uhlelo lokusebenza lunikeza izingxoxo zamaqembu abukhoma nsuku zonke zeviki. Iholwa umhlahlandlela we-IBD, izinkulumo zamaqembu zisuselwa ezihlokweni ezithile.

Izibonelo zezihloko zengxoxo bukhoma

• ukwelashwa nemiphumela engemihle
• indlela yokuphila
• umsebenzi
• ubudlelwano nomndeni nabangane
• ukutholakala okusha
• ukudla
• impilo ngokomzwelo nangokwengqondo
• ukuzulazula kwezempilo
• ugqozi

“Isici‘ samaqembu ’singesinye sezingxenye ezibaluleke kakhulu zohlelo lokusebenza. Ngokungafani neqembu leFacebook lapho noma ngubani engabuza umbuzo nganoma yini, [izinkombandlela] zigcina izingxoxo ngesihloko, futhi izihloko zihlanganisa okuhlukahlukene, ”kusho uFederico.

UHayden uyavuma. Uyabona ukuthi ihlehlisa ulwazi lohlelo lokusebenza ngoba ungangena ezihlokweni ezihambisana nezidingo zakho kanye nezinto ozithandayo. Uthola amaqembu athi "Umphakathi Womuntu" kanye "Nogqozi" ahlonishwa kakhulu.

“Nginengane eneminyaka emibili nengane enezinyanga ezine, ngakho ngihlala ngikuthola kuwusizo ukuxhumana nabazali engikanye nabo be-IBD abasiqondayo iqiniso lami lansuku zonke. Nginoxhaso olukhulu lokulekelela umndeni nabangane, kodwa ukuba nalo mphakathi kungenza ngikwazi ukufinyelela kubantu abazi ngokweqiniso ukuthi kunjani ukuphila nalesi sifo esingalapheki, ”kusho uHayden.

KuKelley, amaqembu okudla neminye imithi, impilo yengqondo nengokomzwelo, kanye nogqozi kuzwakale kakhulu.

“Njengomqeqeshi wezempilo ophelele, ngiyawazi amandla okudla futhi ngibonile ukuthi zingakanani izinguquko ezidliwayo ezisizile kwizimpawu zami zesisu sezilonda, ngakho-ke ngiyathanda ukukwazi ukwabelana ngalolo lwazi nabanye. Ngicabanga nokuthi uhlangothi lwezempilo lwengqondo nolwemizwa lwe-IBD luyisihloko esingaxoxwa ngokwanele.

“Ngiyazi ukuthi ngibe nesikhathi esinzima ukuvula mayelana nezinkinga zami zempilo yengqondo ngemuva kokuxilongwa nge-IBD. Kepha ukubona ukuthi baxhumene kanjani nokuzizwa benamandla okukhuluma ngakho, nokukhombisa abanye ukuthi ababodwa uma bezizwa ngaleyo ndlela kuyingxenye enkulu yomsebenzi wami, ”kusho uKelley.

Uyanezela ukuthi njenge-blogger yezempilo, inhloso yakhe yansuku zonke ukukhuthaza abanye.

“Ikakhulukazi labo abane-IBD. Ukuba neqembu eliphelele [kuhlelo lokusebenza] elizinikele ugqozi kuyakha ngokumangalisayo, ”kusho yena.

Thola izindatshana ezifundisayo nezincomekayo

Uma usesimweni sokufunda nokufunda kunokuba uxoxe futhi uxoxe, ungafinyelela inhlalakahle ekhethiwe kanye nezindaba zezindaba mayelana ne-IBD ezibuyekezwe ithimba labachwepheshe bezokwelapha beHealthline.

Kuthebhu ekhethiwe, ungazulazula izindatshana ezimayelana nokuxilongwa, ukwelashwa, inhlalakahle, ukuzinakekela, impilo yengqondo, nokuningi, kanye nezindaba zomuntu siqu kanye nobufakazi obuvela kubantu abaphila ne-IBD. Ungahlola nokuhlolwa kwemitholampilo nocwaningo lwakamuva lwe-IBD.

“Ingxenye ethi‘ Thola ’yinhle ngoba izindaba zangempela ongazisebenzisa. Kufana nendawo yezindaba ebhekiswe ngqo kwi-IBD, "kusho uHayden. "Ngihlala njalo ngizama ukuzifundisa ngokugula kwami ​​kanye nokuhlangenwe nakho kwabanye [abantu] ukuze ngibe ummeli ongcono kangcono wami kanye nabanye emphakathini."

UKelley uzizwa ngendlela efanayo.

"Ngihlala ngenza ucwaningo nge-IBD kanye ne-gut health ngenxa yami nangenxa yamakhasimende ami nomphakathi ku-Instagram nakuwebhusayithi yami," esho. “Ukukwazi ukumane uchofoze ku-‘ Discover ’bese uthola zonke izindatshana ezithembekile ezihlobene ne-IBD kwenza le nqubo ibe lula kakhulu.

“Ngicabanga ukuthi imfundo ngukufukula, ikakhulukazi uma kukhulunywa ngokuphila nesifo esingelapheki. Bengingakaze ngenze ucwaningo ngoba bekungenza ngizizwe ngicindezelekile, kepha manje sengiyabona ukuthi ngokwazi kwami ​​okuningi ngesifo sami, sengingcono kakhulu. ”

Indawo yethemba nethemba

Umsebenzi we-IBD Healthline ukunika amandla abantu ukuthi baphile ngale kwe-IBD yabo ngozwela, ukusekelwa nangolwazi. Ngaphezu kwalokho, kubukeka kunikeza indawo ephephile yokuthola nokwamukela izeluleko, ukufuna nokunikeza ukwesekwa, nokuthola izindaba zakamuva ze-IBD nocwaningo olwenzelwe wena.

“Ngiyathanda ukuthi usekela umphakathi osuvele usekhona. Ngike ngazama ukujoyina amanye amaqembu okweseka noma amabhodi okuxoxa ngaphambili futhi njalo ngibona sengathi baphendukela endaweni engeyinhle ngokushesha, ”kusho uKelley.

“Wonke umuntu kulolu hlelo lokusebenza uyakha futhi ukhathalela ngokweqiniso ukuthi yini sonke esabelana ngaso. Ukwazi ukuxubana phakathi ohambweni lwethu lwe-IBD kwenza inhliziyo yami ijabule kakhulu, ”engeza.

UCathy Cassata ungumbhali ozimele ogxile ezindabeni eziphathelene nempilo, impilo yengqondo nokuziphatha kwabantu. Unekhono lokubhala ngomzwelo nokuxhumana nabafundi ngendlela enokuqonda nebandakanyayo. Funda kabanzi ngomsebenzi wakhe lapha.