Nansi Indlela Ukubhuloga Okunginike Ngayo Izwi Ngemuva Kokuxilongwa Kwami Ngokwe-Ulcerative Colitis

-Delile

• Ukwakha ipulatifomu yokukhuthaza abanye
• Ukufunda ukumela impilo yakho
• Imibono eguqukayo nokusabalalisa ithemba

Ngokwenza kanjalo, banika amandla abanye besifazane abane-IBD ukuthi bakhulume ngokuxilongwa kwabo.

Izisu zaziyingxenye ejwayelekile yobuntwana bukaNatalie Kelley.

Uthi: "Besihlala sikubhalisela ukuthi nginesisu esibucayi," esho.

Kodwa-ke, ngesikhathi esekolishi, uKelley waqala ukubona ukungabekezelelani kokudla futhi waqala ukuqeda i-gluten, ubisi, noshukela ngethemba lokuthola ukukhululeka.

“Kodwa bengisabona sonke isikhathi ukuqunjelwa okubuhlungu kakhulu nobuhlungu besisu ngemuva kokuthi ngidle noma yini,” usho kanje. "Cishe isikhathi esingangonyaka, ngangingena ngiphuma emahhovisi odokotela futhi ngatshelwa ukuthi ngine-IBS [i-irritable bowel syndrome, isimo sesisu esingacasuli] futhi ngidinga ukuthola ukuthi yikuphi ukudla okungangisebenzelanga."

Iphuzu lakhe lokufika lafika ehlobo ngaphambi konyaka wakhe wokugcina ekolishi ngo-2015. Wayehamba eLuxembourg nabazali bakhe lapho ebona igazi esitokisini sakhe.

“Yilapho engangazi khona ukuthi kukhona okwakunzima kakhulu okwakwenzeka. Umama wami kwatholakala ukuthi unesifo sikaCrohn’s njengomuntu osemusha, ngakho-ke sathi ukuhlanganisa okubili noma okubili yize sasinethemba lokuthi kwakuyisiqubu noma ukuthi ukudla kwaseYurophu kwakwenza okuthile kimi, ”kukhumbula uKelley.

Ngesikhathi ebuyela ekhaya, wahlela i-colonoscopy, eyaholela ekutheni ahlinzwe kabi ngesifo sikaCrohn.

"Ngathola ukuhlolwa kwegazi okwenziwe ezinyangeni ezimbalwa kamuva, futhi lapho babona ukuthi ngine-ulcerative colitis," kusho uKelley.

Kepha kunokuba azizwe edangele ngokuxilongwa kwakhe, uKelley uthi ukwazi ukuthi unesifo sezilonda emathunjini kwamlethela ukuthula kwengqondo.

"Bengihamba iminyaka eminingi kakhulu kulokhu kuhlupheka okungapheli nalokhu ukukhathala okungapheli, ngakho-ke ukuxilongwa kwakucishe kufane nokuqinisekiswa ngemuva kweminyaka eminingi ngizibuza ukuthi ngabe kwenzakalani," esho. “Ngangazi ngaleso sikhathi ukuthi ngingathatha izinyathelo zokuthola okungcono kunokuba ngibhonge ngize ngibe nethemba lokuthi into engingayidlanga izosiza. Manje sengingadala uhlelo lwangempela kanye nenqubo futhi ngiqhubekele phambili. ”

Ukwakha ipulatifomu yokukhuthaza abanye

Njengoba uKelley wayefunda ukusebenzisa ukuxilongwa kwakhe okusha, wayebuye aphathe ibhulogi yakhe ethi Plenty & Well, ayeyiqale eminyakeni emibili edlule. Kodwa-ke yize ayenale pulatifomu, isimo sakhe sasingeyona isihloko ayethanda kakhulu ukubhala ngaso.

“Ngesikhathi ngitholwa okokuqala, angizange ngikhulume nge-IBD kangako kubhulogi lami. Ngicabanga ukuthi ingxenye yami ibisafuna ukungayinaki. Nganginonyaka wami wokugcina ekolishi, futhi kungaba nzima ukukhuluma ngakho nabangane noma nomndeni, ”kusho yena.

Kodwa-ke, wezwa ubizo lokukhuluma nge-akhawunti yakhe ye-blog ne-Instagram ngemuva kokuphazanyiswa okukhulu okwamfaka esibhedlela ngoJuni 2018.

“Esibhedlela, ngabona ukuthi kwakukhuthaza kanjani ukubona abanye besifazane bekhuluma nge-IBD futhi benikela ngosizo. Ukubhloga nge-IBD nokuba naleyo pulatifomu yokukhuluma ngokukhululeka ngokuphila nalesi sifo esingelapheki kungisizile ngalulama ngezindlela eziningi. Kuyangisiza ukuzizwa ngiqondwa, ngoba uma ngikhuluma nge-IBD ngithola amanothi kwabanye abathola lokho engibhekene nakho. Ngizizwa ngingedwa kule mpi, futhi leso yisibusiso esikhulu kunazo zonke. ”

Uhlose ukuba khona kwakhe kwi-inthanethi kube mayelana nokukhuthaza abanye besifazane abane-IBD.

Selokhu aqala ukuthumela nge-ulcerative colitis ku-Instagram, uthi uthole imiyalezo emihle evela kwabesifazane ngokuthi okuthunyelwe kwakhe kube kukhuthaze kanjani.

"Ngithola imiyalezo evela kubantu besifazane abangitshela ukuthi bazizwa benamandla futhi bezethemba ukukhuluma nge-IBD yabo nabangani, umndeni, nabathandekayo," kusho uKelley.

Ngenxa yempendulo, waqala ukubamba uchungechunge lwe-Instagram olubizwa nge-IBD Warrior Women njalo ngoLwesithathu, lapho ekhuluma nabesifazane abehlukene abane-IBD.

"Sikhuluma ngamathiphu okulindela okuhle, ukuthi ungakhuluma kanjani nabantu obathandayo, noma ukuthi ungazulazula kanjani ekolishi noma emisebenzini engu-9-to-5," kusho uKelley.“Ngiqala lezi zingxoxo futhi ngihlanganyela izindaba zabanye besifazane kungxenyekazi yami, okuyinto ejabulisa kakhulu, ngoba lapho sibonisa kakhulu ukuthi akuyona into yokufihla noma yokuba namahloni ngayo futhi sibonisa ngokwengeziwe ukuthi izinkathazo zethu, ukukhathazeka nempilo yethu yengqondo [ukukhathazeka] okuza ne-IBD kuqinisekisiwe, kulapho sizoqhubeka nokufukula abesifazane. ”

Ukufunda ukumela impilo yakho

Ngokusebenzisa izinkundla zakhe zenhlalo, uKelley unethemba lokuthi uzogqugquzela abantu abasha abanezifo ezingamahlalakhona. Eminyakeni engama-23 kuphela ubudala, uKelley wafunda ukumela impilo yakhe. Isinyathelo sokuqala bekuwukuthola ukuzethemba kuchazela abantu ukuthi ukukhetha kwakhe ukudla bekungokwenhlalakahle yakhe.

"Ukuhlanganisa ndawonye ukudla ezitolo zokudlela noma ukuletha ukudla kwe-Tupperware ephathini kungadinga incazelo, kepha uma wenza okuncane kabi ngakho, abantu abazungezile bazobe bengakhululekile," esho. "Uma abantu abalungile besempilweni yakho, bazokuhlonipha ukuthi kufanele uthathe lezi zinqumo noma ngabe zehluke kancane kunezabanye."

Noma kunjalo, uKelley uyavuma ukuthi kungaba nzima ngabantu ukuthi baxhumane nalabo abasencane noma abangama-20 abaphila nokugula okungalapheki.

“Kunzima usemncane, ngoba uzizwa sengathi akekho okuqondayo, ngakho-ke kunzima kakhulu ukuzikhulumela noma ukukhuluma ngakho obala. Ikakhulukazi ngoba eminyakeni yakho yama-20, ufuna kabi ukwamukeleka, ”kusho yena.

Ukubukeka umncane futhi unempilo kunezela enselele.

“Into engabonakali ye-IBD ingenye yezinto enzima kakhulu ngayo, ngoba indlela ozizwa ngayo ngaphakathi akuyona into ekhonjiswe umhlaba ngaphandle, ngakho-ke abantu abaningi bavame ukucabanga ukuthi uyihaba noma uyayenza, futhi lokho kudlala ezicini eziningi ezahlukene zempilo yakho yengqondo, ”kusho uKelley.

Imibono eguqukayo nokusabalalisa ithemba

Ngaphandle kokusabalalisa ukuqwashisa nethemba ngokusebenzisa amapulatifomu akhe, uKelley ubuye abambisane neHealthline ukumela uhlelo lwayo lwamahhala lwe-IBD Healthline, oluxhuma labo abaphila ne-IBD.

Abasebenzisi bangadlulisa amehlo kumaphrofayli amalungu futhi bacele ukufanisa nanoma yiliphi ilungu ngaphakathi komphakathi. Futhi bangajoyina ingxoxo yeqembu ebanjwa nsuku zonke eholwa umhlahlandlela we-IBD. Izihloko zokuxoxisana zifaka ukwelashwa nemiphumela engemihle, izindlela zokudla nezinye izindlela zokwelapha, impilo yengqondo nengokomzwelo, ukuzulazula kwezempilo kanye nomsebenzi noma isikole, nokucubungula ukuxilongwa okusha.

Ngokwengeziwe, uhlelo lokusebenza luhlinzeka ngokuphila kahle nokuqukethwe kwezindaba okubuyekezwa ngabasebenzi bezempilo beHealthline okubandakanya imininingwane yezokwelapha, izivivinyo zokwelashwa, kanye nocwaningo lwakamuva lwe-IBD, kanye nokuzinakekela kanye nemininingwane yezempilo yengqondo nezindaba zomuntu siqu ezivela kwabanye abaphila ne-IBD.

UKelley uzosingatha izingxoxo ezimbili ezibukhoma ezingxenyeni ezahlukahlukene zohlelo lokusebenza, lapho ezobeka khona imibuzo yokuthi ababambiqhaza baphendule futhi baphendule imibuzo yabasebenzisi.

"Kulula kakhulu ukuba nomqondo onqotshiwe lapho kutholakala ukuthi nginesifo esingelapheki," kusho uKelley. "Ithemba lami elikhulu ukukhombisa abantu ukuthi impilo isengamangalisa nokuthi bangafeza wonke amaphupho abo nokuningi, noma ngabe baphila nesifo esingelapheki njenge-IBD."

UCathy Cassata ungumbhali ozimele ogxile ezindabeni eziphathelene nempilo, impilo yengqondo nokuziphatha kwabantu. Unekhono lokubhala ngomzwelo nokuxhumana nabafundi ngendlela enokuqonda nebandakanyayo. Funda kabanzi ngomsebenzi wakhe lapha.