UJack Osbourne Akafuni I-MS Abe Umdlalo Wokuqagela

-Delile

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• Isidingo sokuxhuma nokunika amandla
• Ukuphila impilo enhle nge-MS

Cabanga ngalokhu: izinkanyezi ezingokoqobo uJack Osbourne nodadewabo, uKelly, bezama ukweqa emkhunjini womkhathi oziqothulayo ozibhubhisayo. Ukuze bakwenze, kuzodingeka baphendule kahle imibuzo mayelana ne-multiple sclerosis.

"Kulula ukusho uma umuntu ene-MS," ufunda umbuzo owodwa. Iqiniso noma amanga? “Amanga,” kuphendula uJack, bese laba bobabili baya phambili.

“Bangaki abantu emhlabeni abane-MS?” ifunda enye. "Izigidi ezi-2.3," kuphendula uKelly, ngokufanele.

Kepha kungani umndeni wakwa-Osbourne uzama ukubalekela umkhumbi-mkhathi, omunye ungazibuza?

Cha, azithunjiwe ngabafokazi. UJack uhlanganyele negumbi lokuphunyuka eLos Angeles ukudala i-webisode yakamuva yomkhankaso wakhe we-You Not Know Jack About MS (YDKJ). Wadalwa ngokubambisana nabakwaTeve Pharmaceuticals eminyakeni emine eyedlule, lo mkhankaso uhlose ukuhlinzeka ngolwazi kulabo abasanda kutholakala noma abaphila ne-MS.

“Besifuna ukwenza lo mkhankaso ufundise futhi ube mnandi futhi ungakhathali,” kusho uJack. "Hhayi ukubhujiswa nobumnyama, uhlobo lokuphela kwezinto luseduze."

"Sigcina i-vibe ivuma futhi isakha futhi sifafaza imfundo ngokuzijabulisa."

Isidingo sokuxhuma nokunika amandla

U-Osbourne kwatholakala ukuthi une-relapsing-remitting multiple sclerosis (RRMS) ngo-2012 ngemuva kokubona udokotela we-optic neuritis, noma i-optic nermed inflamed. Ngaphambi kokuba kuvele izimpawu zamehlo, ubenezinyanga ezimbalwa eqonde ukucinana kanye nokuba ndikindiki emlenzeni.

“Ngakushaya indiva ukuncinwa emlenzeni wami ngoba ngangicabanga ukuthi ngincinze nje inzwa,” kusho uJack."Ngisho nangesikhathi kutholakala ukuthi ngitholakele, ngacabanga, 'Angisemncane yini ukuthi ngithole lokhu?' Manje, ngiyazi ukuthi isilinganiso seminyaka yokuxilongwa siphakathi kuka-20 no-40."

U-Osbourne uthi wayefisa ngabe ngabe wazi okuningi nge-MS ngaphambi kokutholakala ukuthi unaso. "Ngenkathi odokotela bengitshela, 'Ngicabanga ukuthi une-MS', ngavele ngahlanya ngacabanga: 'Umdlalo usuphelile.' Kodwa kungenzeka ukuthi kwakunjalo eminyakeni engama-20 edlule. Akuseyona le nto manje. ”

Ngokushesha ngemuva kokufunda ukuthi une-MS, u-Osbourne wazama ukuxhumana nanoma ngubani amaziyo onesifo ukuze azibonele, ama-akhawunti akhe okuphila ne-MS. Ufinyelele kumngani omkhulu womndeni wakhe uNancy Davis, owasungula iRace to Erase MS, kanye noMontel Williams.

"Kuyinto eyodwa ukufunda [nge-MS] online, kepha okunye ukufinyelela nokukuzwa kumuntu obehlala nalesi sifo isikhashana ukuze aqonde kahle ukuthi usuku nosuku lubukeka kanjani," kusho u-Osbourne . "Lokho kube usizo kakhulu."

Ukuyikhokhela phambili, u-Osbourne wayefuna ukuba yilowo muntu kanye nendawo yabanye abantu abaphila ne-MS.

Ku-YDKJ, uJack uthumela uhla lweziqephu eziningi-kwesinye isikhathi ezibonisa ukuvela kubazali bakhe, u-Ozzy noSharon-kanye nokuthunyelwe kwebhulogi nezixhumanisi zezinsizakusebenza ze-MS. Uthi inhloso yakhe ukuthi kube wukusizakala kwabantu abasanda kutholakala ukuthi bane-MS, noma bamane bafuna ukwazi ngalesi simo.

"Ngesikhathi ngitholwa, ngangichitha isikhathi esiningi ku-intanethi futhi ngiya kumawebhusayithi nakumabhulogi ngathola ukuthi sasingekho ngempela isitolo esisheshayo sokuma esisodwa ku-MS," uyakhumbula. "Bengifuna ukwakha inkundla yokuthi abantu baye kuyo bazofunda nge-MS."

Ukuphila impilo enhle nge-MS

UJack ukhumbula isikhathi lapho umngani - naye one-MS - atshelwa ngudokotela ukuthi athathe u-Advil, ayolala, bese eqala ukubuka imibukiso yezinkulumo zasemini, ngoba lokho bekungukuphila kwakhe konke kuphela.

“Lokho akulona neze iqiniso. Iqiniso lokuthi kunentuthuko eningi emangalisayo laphaya kanye nolwazi ngalesi sifo, [abantu badinga ukwazi] ukuthi bangaqhubeka [ngisho nangemikhawulo] ikakhulukazi uma besohlelweni olufanele lokwelashwa, ”kuchaza uJack. Ngaphandle kwezinselelo zangempela ezilethwa yi-MS, uthi ufuna ukukhuthaza nokunikeza ithemba lokuthi "ungaphila impilo enhle nge-MS."

Lokho akusho ukuthi azikho izingqinamba zansuku zonke, nokuthi akakhathazeki ngekusasa. Ngempela, ukuxilongwa kukaJack kwafika emasontweni amathathu nje ngaphambi kokuzalwa kwendodakazi yakhe yokuqala, uPearl.

"Ukukhathazeka okungokwemvelo ngokungakwazi ukusebenza ngokomzimba noma ukubakhona ngokuphelele kukho konke okusezimpilweni zezingane zami kuyethusa," esho. "Ngivocavoca umzimba njalo futhi ngibheka engikudlayo, futhi ngiye ngazama ukunciphisa ingcindezi-kodwa lokho cishe akunakwenzeka uma unezingane nomsebenzi."

“Noma kunjalo, angikaze ngizizwe ngilinganiselwe selokhu ngatholwa. Abanye abantu baye baba nomuzwa wokuthi ngilinganiselwe, kepha lowo umbono wabo. "

Ngokuqinisekile uJack akazange anqunyelwe ukwabelana ngendaba yakhe nokuphila impilo ngokugcwele. Kusukela etholakele, ubambe iqhaza ku- "Dancing with the Stars," wandise umndeni wakhe, wasebenzisa nosaziwayo wakhe ukusabalalisa ukuqwashisa, ukwabelana ngolwazi, nokuxhumana nabanye abaphila ne-MS.

“Ngithola imiyalezo ngezinkundla zokuxhumana, futhi abantu abasemgwaqeni beza kimi ngaso sonke isikhathi, noma ngabe bane-MS noma ilungu lomndeni noma umngani unalo. I-MS nakanjani ingixhumanise nabantu engingakaze ngicabange ukuthi ngingahlangana nabo. Kuhle, empeleni. "