Ukuphila Kahle nge-Ankylosing Spondylitis: Amathuluzi Wami Engiwathandayo Namadivayisi

-Delile

• 1. Ukukhululeka kobuhlungu esihlokweni
• 2. Umcamelo wokuhamba
• 3. Induku yokubamba
• 4. Usawoti we-Epsom
• 5. Ideski elimile
• 6. Ingubo kagesi
• 7. Izibuko zelanga
• 8. Ama-podcast namabhuku alalelwayo
• Ukudla okudlela endlini

Sifaka imikhiqizo esicabanga ukuthi ilusizo kubafundi bethu. Uma uthenga ngezixhumanisi ezikuleli khasi, singathola ikhomishini encane. Nansi inqubo yethu.

Ngibe ne-ankylosing spondylitis (AS) cishe iminyaka eyishumi. Ngike ngabhekana nezimpawu ezinjengezinhlungu ezingapheli zomhlane, ukuhamba okulinganiselwe, ukukhathala ngokweqile, izingqinamba zesisu (GI), ukuvuvukala kwamehlo, nobuhlungu bamalunga. Angitholanga ukuxilongwa okusemthethweni kuze kube ngemuva kweminyaka embalwa ngiphila nalezi zimpawu ezingakhululekile.

AS isimo esingalindelekile. Angazi ukuthi ngizozizwa kanjani kusukela ngosuku olulodwa kuya kolandelayo. Lokhu kungaqiniseki kungakhathaza, kepha eminyakeni edlule, ngifunde izindlela zokusiza ukuphatha izimpawu zami.

Kubalulekile ukwazi ukuthi okusebenzela umuntu oyedwa kungahle kungasebenzi komunye. Lokho kwenzelwa yonke into - kusuka emithini kuya kwezinye izindlela zokwelapha.

I-AS ithinta wonke umuntu ngokuhlukile. Ukuhluka okufana nezinga lakho lokuqina, indawo yokuhlala, ukudla, kanye namazinga okuxineka konke kubangela ukuthi i-AS ithinta kanjani umzimba wakho.

Ungakhathazeki uma umuthi osebenzela umngane wakho one-AS ungakusizi ngezimpawu zakho. Kungenzeka ukuthi udinga umuthi ohlukile. Ungahle udinge ukwenza isivivinyo nephutha ukuthola uhlelo lwakho oluphelele lokwelashwa.

Kimina, okusebenza kahle kakhulu ukulala kahle ebusuku, ukudla kuhlanzekile, ukuzivocavoca umzimba, nokugcina amazinga engcindezi ami kahle. Futhi, amathuluzi namadivayisi alandelayo ayisishiyagalombili nawo asiza ukwenza umehluko.

1. Ukukhululeka kobuhlungu esihlokweni

Ukusuka kuma-gel kuya kuma-patches, angikwazi ukuyeka ukuphanga ngalezi zinto.

Eminyakeni edlule, kuye kwaba nobusuku obuningi bokungalali. Ngithola ubuhlungu obukhulu emhlane wami ongezansi, okhalweni nasentanyeni. Ukufaka isicelo sokudambisa izinhlungu e-over-the-counter (OTC) njengeBiofreeze kungisiza ukuba ngilale ngokungiphazamisa ebuhlungwini obukhipha nokuqina.

Futhi, njengoba ngihlala e-NYC, ngihlala ngisebhasini noma esitimeleni. Ngiletha ishubhu elincane leTiger Balm noma imicu embalwa ye-lidocaine nami noma nini lapho ngihamba. Kuyangisiza ukuthi ngizizwe ngikhululeke kakhudlwana phakathi nesikhathi sokuhamba kwami ​​ukwazi ukuthi nginokuthile nami uma kwenzeka kuqhuma.

2. Umcamelo wokuhamba

Ayikho into efana nokuba phakathi kokuqina, okubuhlungu kwe-AS flare-up ngenkathi ugibele ibhasi noma ibhanoyi eligcwele. Njengendlela yokuvimbela, ngihlala ngifaka imichilo ye-lidocaine ngaphambi kokuhamba.

Okunye ukugembula kwami ​​kwezokuvakasha engikuthandayo ukuletha umcamelo wokuhamba omise okwe-U nami ohambweni olude. Ngithole ukuthi umcamelo omuhle wokuhamba uzothambisa intamo yakho kahle futhi kukusize ulale.

3. Induku yokubamba

Uma uzizwa ulukhuni, ukucosha izinto phansi kungaba yinkohliso. Kungenzeka amadolo akho akhiyiwe, noma awukwazi ukugoba umhlane wakho ukuze ubambe okudingayo. Akuvamile ngidinga ukusebenzisa induku yokubamba, kepha ingasiza lapho ngidinga ukuthola okuthile phansi.

Ukugcina induku yokubambelela kungakusiza ekutholeni izinto ezingafinyeleleki nje. Ngaleyo ndlela, ngeke uze ngisho usukume esihlalweni sakho!

4. Usawoti we-Epsom

Nginesikhwama sikasawoti we-lavender Epsom ekhaya ngaso sonke isikhathi. Ukucwilisa kubhavu kasawoti we-Epsom imizuzu eyi-10 kuya kwengu-12 kunganikeza izinzuzo eziningi zokuzizwa kahle. Isibonelo, kunganciphisa ukuvuvukala futhi kudambise ubuhlungu bemisipha nokuqina.

Ngithanda ukusebenzisa usawoti we-lavender ngoba iphunga lezimbali lidala umoya ofana ne-spa. Kuyaduduza futhi kunokuthula.

Khumbula ukuthi wonke umuntu wehlukile, futhi ungahle ungazitholi izinzuzo ezifanayo.

5. Ideski elimile

Lapho nginomsebenzi wasehhovisi, ngacela ideski lokuma. Ngatshela umphathi wami nge-AS yami futhi ngachaza ukuthi kungani ngidinga ukuba nedeski eliguquguqukayo. Uma ngihlala usuku lonke, ngizozizwa ngiqinile.

Ukuhlala kungaba yisitha sabantu abane-AS. Ukuba nedeski lokuma kunginikeza ukuhamba okuningi nokuguquguquka. Ngiyakwazi ukugcina intamo yami iqonde esikhundleni sokuhlala kukhiyiwe, phansi. Ukukwazi ukuhlala noma ukuma etafuleni lami kungivumele ukuba ngijabulele izinsuku eziningi ezingenazinhlungu ngenkathi ngikulowo msebenzi.

6. Ingubo kagesi

Ukushisa kusiza ekudambiseni ubuhlungu obukhazimulayo nokuqina kwe-AS. Ingubo kagesi iyithuluzi elihle ngoba limboza umzimba wakho wonke futhi liyaduduza kakhulu.

Futhi, ukubeka ibhodlela lamanzi ashisayo emhlane wakho ongezansi kungenza izimangaliso kunoma ibuphi ubuhlungu bendawo noma ukuqina. Kwesinye isikhathi ngiphatha ibhodlela lamanzi ashisayo ngihamba nalo, ngaphezu komcamelo wami wokuhamba.

7. Izibuko zelanga

Ezinsukwini zami zokuqala ze-AS, ngaba ne-anterior uveitis engapheli (ukuvuvukala kwe-uvea). Lokhu kuyinkinga evamile ye-AS. Kubanga ubuhlungu obusabekayo, ububomvu, ukuvuvukala, ukuzwela okulula, nama-float kumbono wakho. Kungaphazamisa nombono wakho. Uma ungafuni ukwelashwa ngokushesha, kungaba nemiphumela yesikhathi eside emandleni akho okubona.

Ukuzwela okukhanyayo bekuyingxenye embi kakhulu ye-uveitis kimi. Ngaqala ukugqoka izingilazi ezinombala ezenzelwe abantu abazwela ukukhanya. Futhi, i-visor ingasiza ukukuvikela ekukhanyeni kwelanga lapho ungaphandle.

8. Ama-podcast namabhuku alalelwayo

Ukulalela i-podcast noma i-audiobook kuyindlela enhle yokufunda ngokuzinakekela. Kungaba futhi ukuphazamiseka okuhle. Lapho sengikhathele ngempela, ngithanda ukufaka ipodcast bese ngenza ukukhanya, ukunweba okulula.

Isenzo esilula sokulalela singangisiza ekunciphiseni ukucindezeleka (amazinga akho okucindezeleka angaba nomthelela wangempela ezimpawu ze-AS). Kunama-podcast amaningi nge-AS kubantu abafuna ukufunda kabanzi ngalesi sifo. Vele uthayiphe i- "ankylosing spondylitis" kubha yakho yokusesha yohlelo lokusebenza lwe-podcast bese uvula!

Ukudla okudlela endlini

Kunamathuluzi amaningi nosizo atholakala kubantu abane-AS. Njengoba lesi simo sithinta wonke umuntu ngokuhlukile, kubalulekile ukuthola ukuthi yini okusebenzelayo.

I-Spondylitis Association of America (SAA) iyinsiza enkulu kunoma ngubani ofuna ukuthola eminye imininingwane ngalesi sifo noma lapho angathola khona ukusekelwa.

Akunandaba ukuthi yini indaba yakho ye-AS, ufanelwe impilo ejabulisayo, engenazinhlungu. Ukuba namadivayisi ambalwa awusizo kungenza imisebenzi yansuku zonke ibe lula kakhulu ukuyenza. Kimina, amathuluzi angenhla enza umehluko omkhulu endleleni engizizwa ngayo futhi angisiza ngempela ukuphatha isimo sami.

Lisa Marie Basile iyimbongi, umbhali we “Umlingo Okhanyayo Wezikhathi Ezimnyama, ”Nomhleli wokusungula we Umagazini weLuna Luna. Ubhala ngokuphila kahle, ukululama okulimazayo, usizi, ukugula okungamahlalakhona, nokuphila ngamabomu. Umsebenzi wakhe ungatholakala kuThe New York Times nakuSabat Magazine, nakuNarratively, Healthline, nokuningi. Mthole evulekile lisamariebasile.com, kanye ne Instagram futhi Twitter.