Izinsizakusebenza eziyi-15 zomama abaneMetastatic Breast Cancer

-Delile

• 1. Izinsizakalo zokuhlanza
• 2. Ukulungiswa kokudla nokudilivwa
• 3. Ikamu lezingane zakho
• 4. Ukutotoswa kwamahhala
• 5. Imisebenzi yezokuthutha
• 6. Clinical kwecala search
• 7.Rally abangane bakho ngeLotsa Helping Hands
• 8. Abasebenzi bezenhlalakahle
• 9. Izinhlelo zosizo lwezezimali
• 10. Izincwadi
• 11. Amabhulogi
• 12. Amaqembu okusekela
• 13. Abeluleki babodwa
• 14. Amawebhusayithi athembekile ezemfundo
• 15. Uma ukhulelwe
• Ukudla okudlela endlini

Sifaka imikhiqizo esicabanga ukuthi ilusizo kubafundi bethu. Uma uthenga ngezixhumanisi ezikuleli khasi, singathola ikhomishini encane. Nansi inqubo yethu.

Uma ungumama osemncane otholakale enomdlavuza webele we-metastatic (MBC), ukuphatha isimo sakho nokunakekela izingane zakho ngasikhathi sinye kungabonakala kunzima. Ukwenza umthwalo wemfanelo wokuba ngumzali ngenkathi uhambisana nokuqokwa kukadokotela, ukuhlala isikhathi eside esibhedlela, ukukhukhumazeka kwemizwa emisha, kanye nemiphumela emibi yemithi yakho kungabonakala kungenakwenzeka ukuyilawula.

Ngenhlanhla, kunezinsizakusebenza eziningi ongaphendukela kuzo ukuthola izeluleko nokusekelwa. Ungesabi ukucela usizo. Nazi ezinye zezinsizakusebenza eziningi ongazithola.

1. Izinsizakalo zokuhlanza

Ukuhlanzela Isizathu yinhlangano engenzi nzuzo enikeza ukuhlanzwa kwezindlu mahhala kwabesifazane abelashwa nganoma yiluphi uhlobo lomdlavuza eNyakatho Melika. Faka imininingwane yakho kuwebhusayithi yabo ukuze ifaniswe nenkampani yokuhlanza eseduze nawe.

2. Ukulungiswa kokudla nokudilivwa

Ukukhonza indawo yaseWashington, D.C., Ukudla Nabangane akuyona inzuzo enikeza ukudla, igilosa, nezeluleko zokudla kubantu abaphila nomdlavuza nezinye izifo ezingalapheki. Konke ukudla kumahhala, kepha udinga ukuthunyelwa ngumhlinzeki wezokunakekelwa kwempilo ukuze ufaneleke.

IMagnolia Meals at Home ingenye inhlangano enikezela ngokulethwa kokudla okunomsoco kubantu abanomdlavuza nemindeni yabo. IMagnolia okwamanje itholakala ezingxenyeni zeNew Jersey, Massachusetts, New Hampshire, North Carolina, Connecticut naseNew York. Uzothola ukudla okulungiselelwe ukuhlangabezana nezidingo zakho zokudla okunempilo wena nomndeni wakho, uma kuceliwe.

Uma uhlala kwenye indawo, cela udokotela wakho noma umhlinzeki wezokunakekelwa kwempilo ngolwazi mayelana nokulungiswa kokudla kanye nokulethwa endaweni yangakini.

3. Ikamu lezingane zakho

Amakamu asehlobo angaba yindlela enhle yokuthi izingane zikhathazeke, zithole ukwesekwa, futhi ziqhubeke nokuzilibazisa okumnandi.

ICamp Kesem inikeza amakamu ehlobo amahhala ezingane ezinomzali onomdlavuza noma onomdlavuza. Amakamu abanjelwa emakhampasi eyunivesithi kulo lonke elase-United States.

4. Ukutotoswa kwamahhala

Ukwelashwa komdlavuza kungaba kude nokuphumula. Inhlangano engenzi nzuzo ye-United Cancer Support Foundation inikeza ama- “Just 4 U” Support Packages afaka phakathi ukuphumula izipho ezenzelwe wena ezizosetshenziswa ngenkathi welashwa umdlavuza.

Bheka Kuhle Uzizwe Ungcono enye inhlangano engakufundisa amasu wobuhle kulo lonke ukwelashwa komdlavuza, njengezimonyo, ukunakekelwa kwesikhumba, kanye nesitayela.

5. Imisebenzi yezokuthutha

I-American Cancer Society ingakunika ukuhamba mahhala uye ekwelashweni kwakho. Mane nje ushayele inombolo yabo yamahhala ukuthola ukugibela eduze kwakho: 800-227-2345.

Ngabe udinga ukundiza endaweni ethile ukuze uthole ukwelashwa kwakho? I-Air Charity Network inikeza ukuhamba kwezindiza kwamahhala kweziguli ezinezidingo zombili zezokwelapha nezezezimali.

6. Clinical kwecala search

I-Breastcancertrials.org yenza ukuthi kube lula ukuthola isivivinyo somtholampilo. Njengomama omatasatasa, cishe awunaso isikhathi noma isineke sokuhluza emakhulwini ezivivinyo zokwelashwa eziqhubekayo ezweni lonke.

Ngethuluzi labo lokufanisa elenziwe ngezifiso, ungabona isilingo esivumelana nohlobo lwakho lomdlavuza webele kanye nezidingo zakho ngazinye. Ngokujoyina isilingo somtholampilo, ngeke nje ube nokuthola ukwelashwa okusha kanye nokwelashwa okuvelayo kwe-MBC, kepha uzobe unikela ekusaseni lokwelashwa komdlavuza webele.

7.Rally abangane bakho ngeLotsa Helping Hands

Abangani bakho namalungu omndeni wakho mhlawumbe bafuna ukukusiza, kepha ungahle ungabi nesikhathi noma ukugxila ukuhlela usizo lwabo ngendlela ephumelela kakhulu. Abantu futhi bathambekele ekuzimiseleni ukusiza uma sebazi kahle okudingayo. Yilapho inhlangano ebizwa ngeLotsa Helping Hands ingena khona.

Usebenzisa iwebhusayithi yabo noma uhlelo lokusebenza lweselula, ungahlanganisa umphakathi wakho wabasizi. Ngemuva kwalokho, sebenzisa Ikhalenda labo Losizo ukuthumela izicelo zosizo. Ungacela izinto ezifana nokudla, ukugibela, noma ukugcina izingane. Abangani bakho nomndeni wakho bangabhalisela ukusiza futhi uhlelo lokusebenza luzobathumela izikhumbuzo ngokuzenzakalela.

8. Abasebenzi bezenhlalakahle

Abasebenzi bezenhlalakahle be-Oncology baqeqeshiwe abaqeqeshiwe abasebenza ukusiza ukwenza konke okuhlangenwe nakho komdlavuza kube lula kuwe nakubantwana bakho nganoma iyiphi indlela abangakwazi ngayo. Amanye amakhono abo afaka:

• ukuhlinzeka ngokusekelwa ngokomzwelo ukunciphisa ukukhathazeka nokwandisa ithemba
• ukukufundisa izindlela ezintsha zokubhekana nazo
• kukusiza ukuthi uthuthukise ukuxhumana nethimba lakho lezokwelapha nezingane zakho
• ekunikeza ulwazi mayelana nokwelashwa
• ukusiza ekuhleleni kwezezimali kanye nomshuwalense
• ukukunikeza ulwazi mayelana nezinye izinsiza emphakathini wakho

Cela udokotela wakho ukuthi akudlulisele kusonhlalakahle we-oncology. Ungaxhumana futhi nosonhlalakahle ngokushayela i-CancerCare's Hopeline engenzi nzuzo ku-800-813-HOPE (4673).

9. Izinhlelo zosizo lwezezimali

Izikweletu zezokwelapha zinganqwabelana ngaphezu kwezindleko eziza nokukhulisa izingane. Kunezinhlangano eziningi ezinikeza usizo lwezezimali kulabo abadinga usizo. Cela usonhlalonhle wakho akusize ufake isicelo salezi zinhlobo zosizo:

• ICancerCare Usizo Lwezezimali
• Abasweleyo
• Isiguli Access Network Foundation
• Isikhwama Esibomvana
• I-American Breast Cancer Foundation
• Izinhlelo zokukhubazeka ze-US Social Security and Supplemental Security Income

Izinkampani eziningi ezithaka imithi nazo zinikela ngezidakamizwa ngamanani ancishisiwe noma zizonikeza isigqebhezana ukumboza noma yiziphi izindleko ze-copay. Ungathola imininingwane eningiliziwe ngokufaneleka nokutholakala kuwebhusayithi yenkampani ye-pharma noma kuwebhusayithi ngohlobo oluthile lomuthi owunikiwe.

10. Izincwadi

Izingane zakho zingase zibe nesikhathi esinzima sokubhekana nokuxilongwa komdlavuza. Kubalulekile ukugcina ukuxhumana nabo, kepha ukuqala ingxoxo kungaba nzima.

Nazi izincwadi ezimbalwa ezihlose ukusiza abazali bakhulume nezingane zabo ngomdlavuza nokwelashwa:

• E-Mommy’s Garden: Incwadi Yokusiza Ukuchaza Umdlavuza Ezinganeni Ezincane
• Yini Ephakeme Ngomama kaBridget? IMedikidz Chaza Umdlavuza Webele
• Izinwele Zendawo: Ichaza Umdlavuza Wakho neChemo ezinganeni
• Nana, Yini iCancer?
• I-Butterfly Kisses futhi Wishes on Wings
• Umcamelo Womama Wami
• Umama nePolka-Dot Boo-Boo

11. Amabhulogi

Amabhulogi ayindlela enhle yokufunda izindaba zabanye abadlula kokuhlangenwe nakho okufana nokwakho.

Nawa amabhulogi ambalwa ongadlulisa kuwo imininingwane ethembekile nomphakathi wokusekelwa:

• Ukusinda Okuncane
• Ukuphila Ngaphandle Komdlavuza Webele
• Vumela Impilo Yenzeke
• Umdlavuza Wami Chic
• Umdlavuza Webele? Kodwa Dokotela… Ngiyayizonda iPinki!
• Amanye Amantombazane Akhetha Ama-Carnations

12. Amaqembu okusekela

Ukuhlangana nabanye besifazane nabomama ababelana ngokuxilongwa kwakho kungaba ngumthombo omkhulu wokusekelwa nokuqinisekiswa. Iqembu lokusekelwa elizinikele ngokukhethekile ezigulini ezinesifo se-metastatic lingaba usizo kakhulu kuwe. I-Peer to Peer Support Groups ye-METAvivor ingatholakala kulo lonke elase-United States.

Ungabuza futhi nomhlinzeki wakho wezokunakekelwa kwempilo noma usonhlalonhle ukuthi kukhona yini amaqembu endawo e-MBC abawancomayo.

13. Abeluleki babodwa

Akufanele ubhekane nomdlavuza uwedwa. Uma ungathanda umeluleki ngamunye esikhundleni sokuxhaswa kweqembu, cabanga ukuthola i- "Mentor Angel" ene-Imerman Angels.

14. Amawebhusayithi athembekile ezemfundo

Kungaba yisilingo ku-google konke mayelana ne-MBC, kepha kungaba nemininingwane eminingi engeyona, imininingwane ephelelwe yisikhathi, nolwazi olungaphelele online. Sebenzisa lawa mawebhusayithi athenjiwe ukusiza ukuphendula imibuzo yakho.

Buza udokotela wakho ukuthola eminye imininingwane uma ungakwazi ukuthola izimpendulo zakho kusuka kulawa mawebhusayithi:

• Isisekelo Somdlavuza Webele Kazwelonke
• I-American Cancer Society
• Unesifo somdlavuza.org
• I-Metastatic Breast Cancer Network
• USusan G. Komen Foundation

15. Uma ukhulelwe

Uma ukhulelwe futhi kutholakala ukuthi unomdlavuza, iThemba Lababili… Abakhulelwe abaneCancer Network banikela ukwesekwa kwamahhala. Inhlangano ingaphinde ikuxhumanise nabanye okwamanje abakhulelwe umdlavuza.

Ukudla okudlela endlini

Funa usizo lapho uludinga. Amandla akho angalinganiselwa ngenkathi uthola ukwelashwa komdlavuza, ngakho-ke ukubeka phambili phambili kubalulekile. Ukucela usizo akuyona into ekhombisa amakhono akho. Kuyingxenye yokwenza konke okusemandleni akho ukunakekela izingane zakho njengoba uzulazula empilweni ne-MBC.