Ama-MS Voices: Yini Ebangela Ukugcwala Kwakho Okukhulu Kwezinzwa?

-Delile

• Umsindo
• Izitolo
• Izikhala ezingajwayelekile
• Ukukhathala
• Izindawo zokudlela
• Izixuku
• Ziningi izinto ongazibala

Abantu abaningi abane-multiple sclerosis (MS) banezimpawu ezingakhulunywa kakhulu ngazo. Enye yalezi zinto ukugcwala ngokweqile kwemizwa. Lapho uzungezwe umsindo omningi kakhulu, uvezwe ezintweni eziningi ezibukwayo, noma ufakwa ezindaweni ezintsha noma ezinomsindo, abantu abaningi abane-MS babika ukuthi babhekene nokudideka, ukukhathala nobuhlungu.

Kwesinye isikhathi, ukulayishwa ngokweqile kwezinzwa kuhlobene ne-myoclonus, uphawu oluzwela umfutho olungadala ukuqhuma kwemisipha ngokungazibandakanyi.

Sibuze umphakathi wethu we-MS ku-Facebook ukuthi yini izimbangela zabo zokugcwala ngokweqile kwezinzwa. Funda ukuze ubone ukuthi bathini.

Umsindo

"Umsindo ezindaweni ezivaliwe, njengasemicimbini, amakilasi okufundela, ezitolo ezinkulu, ezitolo, njll. Uma nje ngingashiya imvelo, ngizobe ngilungile." - U-Esther D., ohlala ne-MS

“Umsindo! Ngizwa sengathi ikhanda lami liyawa. ” - URhonda L., ohlala ne-MS

“Umsindo wanoma yiluphi uhlobo. Ikati lami elingijwayele lingangikhathaza ngezinye izikhathi. ” - U-Amy M., ohlala ne-MS

"Umuntu uhlafuna izinto ezinoshukela." - UDeanna L., ohlala ne-MS

“Ngikhungatheka ngomsindo ongemuva kakhulu, ikakhulukazi uma othile ezama ukukhuluma nami. Futhi ngezingane ezimbili ezincane, kuhlale kunomsindo ngemuva! ” - UBrandi M., ohlala ne-MS

“Angikwazi ukumela umsindo omkhulu. Ngisho nenja yami ekhonkothayo ifika kimi. ” - URuth W., ohlala ne-MS

Izitolo

“Okuvamile yilapho indawo yokusebenza iba phezulu futhi imatasatasa, kodwa okusha, futhi okubonakala kumangalisa kakhulu, kunanoma yisiphi isitolo sohlobo lokugcina impahla. Izindonga ezinde ngokwedlulele nezinde, ngisho noma zingenalutho. ” - U-Amy L., ohlala ne-MS

“Izixuku ezinkulu. Izitolo ezinkulu ezigqamile. Kwesinye isikhathi ngiya esitolo, ngingene, ngithi ‘cha,’ bese ngiya ekhaya. ” - UBonnie W., ohlala ne-MS

“Isitolo nezitolo eziningi. Kungenza ngizizwe ngihlakazekile futhi ‘ngilahlekile.’ ”- U-Amber A., ​​ohlala ne-MS

Izikhala ezingajwayelekile

“Indawo engingayijwayele, ngokomzimba kanye / noma ngokomqondo. Namanje awazi ukuthi uzobhekana kanjani nazo. ” - URona M., ohlala ne-MS

“Ukuba kude nasekhaya isikhathi eside kakhulu. Ngikhathazeka kakhulu. ” - USherri H., ohlala ne-MS

Ukukhathala

"Ukukhathala kungayicupha, izibani zangempela ezikhanyayo, ukunyakaza okuningi, amalambu, umsindo ngasikhathi sinye, ukuzama ukulalela nokukhuluma endaweni eyodwa nokunye okufakwayo." - UKelly H., ohlala ne-MS

“Ukukhathala mhlawumbe kuyimbangela yokuqala yokugcwala kwami ​​kwemizwa, kodwa akusona isihluku njalo. Uma kunemisindo eminingi kakhulu ngasikhathi sinye, konke kubukeka sengathi kuncintisana ukuba kube okukhulu kunakho konke, okuholela ekulayisheni okuphelele. Ngokulandelayo, ngiba yingozi ngokuphelele. Ukudlidlizela, uzizwe ungakhululekile ngokweqile, futhi ukhathazekile. Konke lokhu kuyiqiniso ngokugcwala ngokweqile kwanoma yikuphi okunye ukuvusa inkanuko noma inhlanganisela yemicimbi eyeqile ngokweqile. ” - UGail F., ohlala ne-MS

"Umuntu ohlala eduze kwami ​​futhi akhulume engami, ikakhulukazi ngezikhathi zantambama lapho ekhathele kakhulu, noma abantu abanomsindo kuphela abanamandla amaningi ... Ngifana noshokoledi endaweni egandayiwe eshisayo ... Ngincibilika ngibe senkingeni." - ULisa F., ohlala ne-MS

Izindawo zokudlela

“Ezitolo zokudlela, ngicela ukuthi ngingahlali ngqo ngaphansi kwesipikha. Umculo, uhlanganiswe namazwi abantu kanye nokushayisana ekhishini, kungihlanyisa. ” - UConnie R., ohlala ne-MS

“Isidlo sakusihlwa eTexas Roadhouse nazo zonke izinsuku zokuzalwa nokucula nemikhosi. Iba nje kakhulu! ” - UJudy C., ohlala ne-MS

“Umsindo uqhamuka ezinhlangothini eziningi nemisindo ephezulu njengokukhonkotha izitsha kanye nezinto zesiliva ndawonye, ​​noma izingane zihayiza. Izindawo zokudlela ezinophahla oluphakeme namakhishi avulekile yizona ezimbi kakhulu kimi ngoba yonke imisindo izwa nje ukuthi yanda. ” - U-Erin H., ohlala ne-MS

Izixuku

“Ukuba esixukwini noma egumbini elinomsindo lapho engikwazi khona ukukhipha umsindo. Izixuku ezixokozelayo neziphithizelayo yizona ezimbi kakhulu phakathi kwemisindo, abantu nengqinamba yami. ” - UCindi P., ohlala ne-MS

“Kunamazwi amaningi ngesikhathi esisodwa.” - URobin G., ophila ne-MS

Ziningi izinto ongazibala

"Izibani ezikhanyayo, ezinomsindo kakhulu, izingane ezishayayo, ezishisayo ezinamaphunga angajwayelekile, eminye imisindo yezimboni, kwesinye isikhathi ngisho nokufunda kungaba ngokweqile uma amalambu engalungile noma isimo sishuba." - U-Alysin P., ohlala ne-MS

"Ukuya esitolo, ngikhathele, odokotela bangitshela okuningi ngasikhathi sinye, izindawo zokudlela, abantu abangalawuli ukukhala kwabo, ukugijima kwezingane." - UStacy N., ohlala ne-MS

“Izitolo ezinkulu ezinemibala eminingi nezivuselelayo ezibukwayo; izibani ezikhanyayo noma ze-strobe ikakhulukazi ebumnyameni; umsindo omningi kakhulu, omkhulu kakhulu, noma othize njengokukhwaza noma ama-siren; izixuku noma umsebenzi omatasatasa futhi ophithizelayo. ” - UPolly P., ohlala ne-MS