Moebius syndrome: siyini, izimpawu kanye nokwelashwa

-Delile

• Izimpawu nezimpawu eziyinhloko
• Ungakuqinisekisa kanjani ukuxilongwa
• Yelashwa kanjani

I-Moebius syndrome yisifo esingajwayelekile lapho umuntu ezalwa ebuthakathaka noma ekhubazekile kweminye imithambo yegazi, ikakhulukazi ngababili u-VI no-VII, okwenza kube nzima, noma ukungakwazi, ukuhambisa imisipha yobuso namehlo kahle., Okwenza kunzima ukwenza ubuso.

Lolu hlobo lokuphazamiseka alunaso isizathu esithile futhi lubukeka luvela ekuguqulweni kwezinguquko ngesikhathi sokukhulelwa, okwenza ingane izalwe inalezi zinkinga. Ngaphezu kwalokho, akusona isifo esiqhubekayo, okusho ukuthi asibi kakhulu ngokuhamba kwesikhathi. Ngakho-ke, kujwayelekile ukuthi ingane ifunde ukubhekana nokukhubazeka kwayo isencane, futhi ingaphila impilo ejwayelekile ngokuphelele.

Yize lungekho ikhambi lalesi sifo, izimpawu zalo kanye nezinkinga zalo zingelashwa ngethimba lemikhakha eyahlukahlukene ukusiza ingane ukuthi ijwayele izingqinamba, ize ikwazi ukuzimela.

Izimpawu nezimpawu eziyinhloko

Izimpawu nezimpawu ze-Moebius syndrome zingahluka kusuka kwengane kuye kwengane, kuya ngokuthi imiphi imithambo yegazi ethintekayo. Kodwa-ke, ezimweni eziningi, kujwayelekile ku:

• Kunzima ukumamatheka, ukuhwaqabala noma ukuphakamisa amashiya;
• Ukuhamba kwamehlo okungavamile;
• Kunzima ukugwinya, ukuhlafuna, ukuncela noma ukwenza imisindo;
• Ukwehluleka ukukhiqiza kabusha isimo sobuso;
• Ukukhubazeka komlomo, njenge-cleft lip noma i-cleft palate.

Ngaphezu kwalokho, izingane ezizalwa zinalesi sifo nazo zingaba nezici ezithile zobuso ezifana nokuba nesilevu esincane kunokujwayelekile, umlomo omncane, ulimi olufushane namazinyo angahambisananga kahle.

Kwezinye izimo, ngaphezu kobuso, i-Moebius syndrome nayo ingathinta imisipha yesifuba noma yezingalo.

Ungakuqinisekisa kanjani ukuxilongwa

Azikho izivivinyo noma izivivinyo ezikwazi ukuqinisekisa i-Moebius syndrome, kodwa-ke, udokotela wezingane angafika kulokhu kutholakala ngezici nezimpawu ezivezwa yingane.

Noma kunjalo, okunye ukuhlolwa kungenziwa, kepha kuhlolwe kuphela ezinye izifo ezingaba nezici ezifanayo, njengokukhubazeka kobuso.

Yelashwa kanjani

Ukwelashwa kwe-Moebius syndrome kufanele njalo kuhambisane nezici ezithile kanye nezinguquko zengane ngayinye, ngakho-ke, kuvamile ukuthi kudingekile ukusebenza nethimba elenza imikhakha ehlukahlukene elihlanganisa ochwepheshe abanjengochwepheshe bezokwelapha, abelaphi bezinkulumo, odokotela abahlinzayo, izazi zokusebenza kwengqondo, abelaphi emsebenzini ngisho nezazi zokudla okunempilo., ukuze zikwazi ukubhekana nazo zonke izidingo zengane.

Isibonelo, uma kunenkinga enkulu yokuhambisa imisipha yobuso, kunganconywa ukuthi kwenziwe ukuhlinzwa ukuze kwenziwe ukufakelwa kwemizwa kusuka kwenye ingxenye yomzimba, kudinga udokotela ohlinzayo. Ukuze usize ingane inqobe ukukhubazeka kwayo, owelapha umsebenzi ubaluleke kakhulu.