I-Ulcerative Colitis Taboos: Izinto okungekho muntu owake wakhuluma ngazo

-Delile

• Imithi
• Ukuhlinzwa
• Impilo yengqondo
• Ukuhlinzwa akuyona ikhambi
• Izindlu zangasese
• Ukudla
• Ukudla okudlela endlini

Bengihlala ne-ulcerative colitis (UC) engapheli iminyaka eyisishiyagalolunye. Ngatholwa ngoJanuwari 2010, unyaka ngemuva kokushona kukababa. Ngemuva kokuthethelelwa iminyaka emihlanu, i-UC yami yabuya nempindiselo ngo-2016.

Kusukela lapho, bengilokhu ngizilwela, futhi ngisalwa namanje.

Ngemuva kokuqeda yonke imithi evunyelwe yi-FDA, ngangingenakukhetha ngaphandle kokuhlinzwa okokuqala ngqa kathathu ngo-2017. Ngaba ne-ileostomy, lapho odokotela abahlinzayo basusa khona ithumbu lami elikhulu banginikeza isikhwama sesikhashana se-ostomy. Ezinyangeni ezimbalwa kamuva, udokotela wami ohlinzayo wasusa i-rectum yami futhi wenza i-J-poch lapho ngangisenesikhwama sesikhashana se-ostomy. Ukuhlinzwa kwami ​​kokugcina kwaba ngo-Agasti 9, 2018, lapho ngaba yilungu leqembu le-J-pouch.

Kube wuhambo olude, olunezinqa futhi olunzima kakhulu ukusho okuncane. Ngemuva kokuhlinzwa kwami ​​kokuqala, ngaqala ukunxenxa amanye amalungu esifo sofuba, i-ostomate, ne-J-pouch.

Ngishintshe amagiya emsebenzini wami wokuba isitayela semfashini futhi ngibeke amandla ami ekukhuthazeni, ekuqedeni ukuqwashisa, nasekufundiseni umhlaba ngalesi sifo esizimele nge-Instagram yami nangebhulogi yami. Kuyisifiso sami esikhulu empilweni kanye nohlaka lwesiliva lwesifo sami. Inhloso yami ukuletha izwi kulesi simo esithule nesingabonakali.

Kunezici eziningi ze-UC ongatshelwanga noma abantu bayakugwema ukukhuluma ngazo. Ukwazi amanye ala maqiniso bekuzongivumela ukuthi ngiqonde kangcono futhi ngilungiselele ngokwengqondo uhambo lwami oluzayo.

Le yimibiko ye-UC engifisa ukuthi ngazi eminyakeni ecishe ibe yisishiyagalolunye eyedlule.

Imithi

Into eyodwa ebengingayazi ngesikhathi ngiqala ukutholakala ukuthi kungathatha isikhathi ukuthola lesi silo silawulwe.

Bengingazi nokuthi kungafika lapho umzimba wakho uyenqaba yonke imithi oyizamayo. Umzimba wami wafinyelela emkhawulweni wawo, futhi wayeka ukuphendula noma yini engangisiza ngigcine sengixolile.

Kuthathe cishe unyaka ngaze ngathola inhlanganisela elungile yemithi yomzimba wami.

Ukuhlinzwa

Akukaze eminyakeni eyisigidi ngicabange ukuthi ngidinga ukuhlinzwa, noma ukuthi i-UC izongenza ngidinge ukuhlinzwa.

Ngesikhathi sokuqala ngizwa igama elithi "ukuhlinzwa" kwakuyiminyaka eyisikhombisa yokuba ne-UC. Ngokwemvelo, ngakhipha amehlo ami ngoba angikholwa ukuthi lokhu kuyiqiniso lami. Lesi kube ngesinye sezinqumo ezinzima kakhulu ebengizosithatha.

Isifo enganginaso nabezokwelapha ngangizizwa ngamehlo ahlukile emehlweni. Kwakunzima ngokwanele ukwamukela iqiniso lokuthi lesi sifo asinakhambi nokuthi ayikho imbangela ebonakalayo.

Ekugcineni, kwadingeka ngihlinzwe kathathu okukhulu. Ngasinye salezi sangilimaza ngokomzimba nangokwengqondo.

Impilo yengqondo

I-UC ithinta okungaphezulu kokungaphakathi kwakho kuphela. Abantu abaningi abakhulumi ngempilo yengqondo ngemuva kokuxilongwa kwe-UC. Kepha izinga lokudangala liphezulu phakathi kwabantu abaphila ne-UC uma kuqhathaniswa nezinye izifo kanye nabantu abaningi.

Lokho kunengqondo kithi, labo ababhekana nakho. Kodwa-ke angizange ngizwe ngempilo yengqondo kuze kube yiminyaka embalwa ngisemgqeni lapho kufanele ngibhekane nezinguquko ezinkulu ngesifo sami.

Bengihlala ngiba nokukhathazeka, kepha ngikwazile ukukufihla kuze kube yi-2016 lapho isifo sami sibuyela emuva. Nganginokushaywa uvalo ngoba ngangingazi ukuthi usuku lwami luyoba njani, uma ngingalufinyelela endlini yangasese, nokuthi ubuhlungu buzohlala isikhathi esingakanani.

Ubuhlungu esibubekezelelayo bukhulu kunezinhlungu zokubeletha futhi bungahlala bucishe usuku lonke, kanye nokulahlekelwa yigazi. Ubuhlungu obungapheli bodwa bungabeka noma ngubani esimweni sokukhathazeka nokudangala.

Kunzima ukubhekana nesifo esingabonakali kanye nezinkinga zempilo yengqondo ngaphezulu kwalokho. Kepha ukubona owelapha nokuthatha imithi ukusiza ukubhekana ne-UC kungasiza. Lokhu akufanele ube namahloni ngakho.

Ukuhlinzwa akuyona ikhambi

Abantu bahlala bethi kimi, "Manje njengoba unale mihlinzo, usuphulukisiwe, akunjalo?"

Impendulo ithi, cha, angisiye.

Ngeshwa, alikho ikhambi le-UC okwamanje. Ukuphela kwendlela engakwazi ngayo ukufaka ukuxolelwa kwakuwukuhlinzwa ukuze kukhishwe amathumbu ami amakhulu (i-colon) ne-rectum.

Lezo zitho ezimbili zenza okungaphezu kwalokho abantu abacabanga ukuthi ziyakwenza. Amathumbu ami amancane manje enza wonke umsebenzi.

Akugcini lapho, kepha i-J-poch yami isengozini enkulu yokuphefumula, okuwukuvuvukala kwesikhwama sami se-J. Ukuthola lokhu kaningi kungaholela ekutholeni isikhwama somphela se-ostomy.

Izindlu zangasese

Ngoba lesi sifo asibonakali, abantu bavame ukushaqeka uma ngibatshela ukuthi ngine-UC. Yebo, ngingahle ngibonakale ngiwumqemane, kodwa iqiniso ukuthi abantu bahlulela incwadi ngekhava yayo.

Njengabantu abahlala ne-UC, sidinga ukufinyelela endlini yangasese kaningi. Ngiya endlini encane izikhathi ezine kuya kweziyisikhombisa ngosuku. Uma ngiphume emphakathini futhi ngidinga i-ASAP yangasese, ngizochaza ngesizotha ukuthi ngine-UC.

Izikhathi eziningi, isisebenzi singivumela ukuthi ngisebenzise indlu yabo yokugezela, kepha siyanqikaza kancane. Ngezinye izikhathi, babuza imibuzo eminingi futhi bangangivumeli. Lokhu kuyihlazo kakhulu. Sengivele ngisezinhlungwini, bese nginqatshwa ngoba angibukeki ngigula.

Kukhona nodaba lokungafinyeleli endlini yokugezela. Kuke kwaba nezikhathi lapho lesi sifo singenze ngaba nezingozi, njengalapho ngisesezokuthutha zomphakathi.

Bengingazi ukuthi lezi zinto zizokwehlela mina futhi ngifisa ukuthi nginikezwe amakhanda phezulu, njengoba kululaza kakhulu. Ngisenabantu abangibuza namhlanje futhi ikakhulu yingoba abantu abasazi lesi sifo. Ngakho-ke, ngithatha isikhathi ukufundisa abantu futhi ngilethe lesi sifo buthule eqhulwini.

Ukudla

Ngaphambi kokuxilongwa, ngangidla noma yini nayo yonke into. Kepha ngehlise kakhulu isisindo ngemuva kokutholakala kwami ​​ngoba ukudla okuthile kubangele ukucasuka nokuqubuka. Manje, ngaphandle kwekoloni ne-rectum yami, ukudla engingakudla kukhawuliwe.

Lesi sihloko kunzima ukuxoxa ngaso ngoba wonke umuntu one-UC uhlukile. Kimi, engangikudla kwakuqukethe ama-bland, mafutha, amaprotheni aphekwe kahle njengenkukhu nomhlabathi turkey, ama-carbs amhlophe (njenge-pasta elula, ilayisi, nesinkwa), noshokoledi Qinisekisa ukuthi ukudla kuyadlidliza.

Lapho sengingene ekuxolelweni, ngakwazi ukudla ukudla engikuthandayo futhi, njengezithelo nemifino. Kepha ngemuva kokuhlinzwa kwami, ukudla okune-fiber eningi, okubabayo, okuthosiwe, kanye ne-acid kwaba nzima ukwephula nokugaya.

Ukuguqula indlela odla ngayo kungukulungiswa okukhulu, futhi kuthinta kakhulu impilo yakho yezenhlalo. Eziningi zalezi zidlo bekuyizilingo namaphutha engizifunde ngingedwa. Vele, ungabona futhi isazi sokudla esikhethekile ekusizeni abantu abane-UC.

Ukudla okudlela endlini

Ifomula enhle yokudlula ezinkingeni eziningi nobunzima obuza nalesi sifo yile:

• Thola udokotela omuhle nethimba lamathumbu bese wakhe ubuhlobo obuqinile nabo.
• Yiba ngummeli wakho.
• Thola ukwesekwa okuvela emndenini nakubangane.
• Xhuma namanye amaqhawe e-UC.

Ngibe ne-J-poch yami izinyanga eziyisithupha manje, futhi ngisenezinhla nezikhathi eziningi. Ngeshwa, lesi sifo sinamakhanda amaningi. Uma wenza inkinga eyodwa, enye iyavela. Akupheli, kepha lonke uhambo lunemigwaqo ebushelelezi.

Kubo bonke abantu engikanye nabo abangama-UC, ngicela wazi ukuthi awuwedwa futhi kukhona umhlaba wethu lapha okhona ozokuthola. Unamandla, futhi unakho lokhu!

UMoniqua Demetrious ungowesifazane oneminyaka engama-32 ubudala ozalelwe futhi wakhulela eNew Jersey, oseshade iminyaka engaphezudlwana kwemine. Izinkanuko zakhe yimfashini, ukuhlela imicimbi, ukujabulela zonke izinhlobo zomculo, nokukhuthaza isifo sakhe sokuzivikela komzimba. Akalutho ngaphandle kokholo lwakhe, ubaba wakhe oseyingelosi, umyeni wakhe, umndeni nabangane. Ungafunda kabanzi ngohambo lwakhe kuye ibhulogi futhi naye Instagram.