Izindaba Eziyiqiniso: Ukuphila Ne-Ulcerative Colitis

I-Ulcerative colitis (UC) ithinta abantu ababalelwa ku-900,000 e-United States. Kunoma yimuphi unyaka owodwa, cishe amaphesenti angama-20 alaba bantu enza umsebenzi olinganiselayo wezifo kanti iphesenti elilodwa kuya kwamabili linomsebenzi wezifo ezinzima, ngokusho kweCrohn's and Colitis Foundation of America.

Kuyisifo esingalindelekile. Izimpawu zivame ukuza nokudlula, futhi kwesinye isikhathi ziyaqhubeka ngokuhamba kwesikhathi. Ezinye iziguli zihamba iminyaka zingenazo izimpawu, kanti ezinye zihlangabezana nokuqubuka kaningi. Izimpawu ziyahlukahluka kuye ngezinga lokuvuvukala, futhi. Ngenxa yalokhu, kubalulekile ukuthi abantu abane-UC bakwazi ukugcina ithrekhi yokuthi ibathinta kanjani ngokuqhubekayo.

Nazi izindaba zokuhlangenwe nakho kwabantu abane nge-UC.

Watholwa nini?

[Cishe iminyaka eyisikhombisa] edlule.

Uziphatha kanjani izimpawu zakho?

Ukwelashwa kwami ​​kokuqala kwakukhona ngama-suppositories, engangikuthola kungakhululekile neze, kunzima ukukufaka, futhi kunzima ukukubamba. Ngonyaka olandelayo nohhafu ngaphathwa ngemijikelezo ye-prednisone ne-mesalamine (Asacol). Lokhu kwakukubi. Nganginezikhathi ezimbi nezimbi nge-prednisone, futhi ngaso sonke isikhathi lapho ngiqala ukuzizwa ngingcono ngangizizwa ngigula futhi. Ekugcineni ngabashintshela odokotela kuDkt. Picha Moolsintong eSt. Louis, abangilalela futhi belapha udaba lwami hhayi isifo sami kuphela. Ngisese-azathioprine ne-escitalopram (Lexapro), ebisebenza kahle kakhulu.

Yiziphi ezinye izindlela zokwelapha ezikusebenzele?

Ngiphinde ngazama uchungechunge lwezindlela zokwelapha i-homeopathic, kufaka phakathi ukudla okungenayo i-gluten, okungenasitashi. Akukho kulokhu okungisebenzele ngempela ngaphandle kokuzindla ne-yoga. I-UC ingahle ihlobene nengcindezi, ihlobene nokudla, noma zombili, futhi icala lami lihlobene kakhulu nengcindezi.Noma kunjalo, ukugcina ukudla okunempilo kubalulekile. Uma ngidla ukudla okugayiwe, ipasta, inyama yenkomo, noma ingulube, ngiyakukhokhela.

Kubalulekile nganoma yisiphi isifo se-autoimmune ukuzivocavoca njalo, kepha ngingaphikisana nokuthi kunjalo kakhulu ngezifo zokugaya ukudla. Uma ngingawugcini umzimba wami uphakeme futhi inhliziyo yami ishaya ngamandla, ngikuthola kunzima ukuthola amandla okwenza noma yini.

Yisiphi iseluleko ongasinika abanye abantu abane-UC?

Zama ukungabi namahloni noma ukucindezelwa yizimpawu zakho. Lapho ngiqala ukugula, ngazama ukufihla zonke izimpawu zami kubangane bami nasemndenini wami, okuvele kwabangela ukudideka okukhulu, ukukhathazeka nobuhlungu. Futhi, ungalahli ithemba. Kunezindlela eziningi zokwelapha. Ukuthola ibhalansi yakho yezinketho zokwelashwa kubalulekile, futhi ukubekezela nodokotela abahle bazokufikisa lapho.

Uhlolwe isikhathi esingakanani kudala?

Ekuqaleni kwatholakala ukuthi ngine-UC ngineminyaka engu-18. Ngabe sengithola ukuthi nginesifo sikaCrohn eminyakeni emihlanu edlule.

Bekunzima kanjani ukuhlala ne-UC?

Umthelela omkhulu ube ngowenhlalo. Lapho ngisemncane, nganginamahloni kakhulu ngalesi sifo. Ngingumphakathi kakhulu kodwa ngaleso sikhathi, futhi kuze kube namuhla, bengizogwema izixuku ezinkulu noma izimo zenhlalo ngenxa ye-UC yami. Manje njengoba sengikhulile futhi ngihlinziwe, kusamele ngiqaphele izindawo eziminyene. Ngikhetha ukungazenzi izinto zeqembu kwesinye isikhathi ngenxa nje yemiphumela emibi yokuhlinzwa. Futhi, emuva lapho ngine-UC, umthamo we-prednisone wawuzongithinta ngokomzimba nangokwengqondo.

Noma yikuphi ukudla, imithi, noma izincomo zendlela yokuphila?

Hlala usebenza! Kwakukuphela kwento eyayizolawula maphakathi nama-flare-ups ami. Ngaphandle kwalokho, ukukhetha indlela yokudla kuyinto elandelayo ebaluleke kakhulu kimi. Hlala kude nokudla okuthosiwe noshizi oweqile.

Manje ngizama ukuhlala ngisondelene nokudla kwe-Paleo, okubonakala kungisiza ukuphuma. Ikakhulukazi ezigulini ezisencane, ngingathi ungabi namahloni, usengaphila impilo esebenzayo. Ngigijime ama-triathlons, futhi manje ngiyi-CrossFitter esebenzayo. Akukona ukuphela komhlaba.

Yikuphi ukwelashwa oke wakuthola?

Ngangineminyaka engu-prednisone ngaphambi kokuhlinzwa ileoanal anastomosis, noma i-J-pouch. Manje sengiku-certolizumab pegol (i-Cimzia), egcina ama-Crohn wami ehlolile.

Uhlolwe isikhathi esingakanani?

Kwatholakala ukuthi ngine-UC ngo-1998, ngokushesha nje ngemva kokuzalwa kwamawele ami, ingane yami yesithathu neyesine. Ngayeka ukuphila okukhuthele kakhulu sengingakwazi ukuphuma endlini yami.

Imiphi imishanguzo oyithathile?

Udokotela wami we-GI ngokushesha wangifaka emithini, eyayingasebenzi, ngakho-ke wagcina enqume i-prednisone, eyayifihla kuphela izimpawu. Udokotela olandelayo wangisusa ku-prednisone kodwa wangifaka ku-6-MP (mercaptopurine). Imiphumela engemihle yayimbi, ikakhulukazi umthelela ekubalweni kwamaseli amhlophe egazi. Uphinde wanginikeza isibikezelo esesabekayo futhi esehla impilo yami yonke. Ngangicindezeleke kakhulu futhi ngikhathazekile ngokuthi ngangingeke ngikwazi ukukhulisa izingane zami ezine.

Yini ekusizile?

Ngenze ucwaningo oluningi, ngosizo ngashintsha indlela ebengidla ngayo ekugcineni ngakwazi ukuzikhipha kuyo yonke le mithi. Manje anginayo i-gluten futhi ngidla ukudla okuyizitshalo ikakhulukazi, yize ngidla izinkukhu nezinhlanzi zasendle. Bengingenazimpawu nezidakamizwa iminyaka eminingana. Ngaphezu kwezinguquko ekudleni, ukuphumula ngokwanele nokuzivocavoca umzimba kubalulekile, kanye nokulawula ukucindezeleka. Ngabuyela esikoleni ukuyofunda ukondleka ukuze ngikwazi ukusiza abanye.

Watholwa nini?

Ngatholwa eminyakeni engaba ngu-18 edlule, futhi ngezinye izikhathi kuye kwaba inselele enkulu. Ubunzima buza lapho i-colitis isebenza futhi iphazamisa impilo yansuku zonke. Ngisho nemisebenzi elula iba ngumkhiqizo. Ukuqinisekisa ukuthi kukhona indawo yokugezela etholakalayo kuhlale kuqala engqondweni yami.

Usebenzisana kanjani ne-UC yakho?

Ngisesilinganisweni sokunakekelwa kwemithi, kepha angigonyiwe ngezikhathi ezithile. Ngimane ngifunde “ukusebenzelana.” Ngilandela uhlelo oluqinile lokudla, olungisize kakhulu. Kodwa-ke, ngiyazidla izinto abantu abaningi abane-UC abathi abakwazi ukuzidla, njengamantongomane neminqumo. Ngizama ukuqeda ingcindezi ngangokunokwenzeka nokulala ngokwanele usuku ngalunye, okuyinto engenzeki kwesinye isikhathi emhlabeni wethu wekhulu lama-21!

Ngabe unezeluleko zabanye abantu abane-UC?

Iseluleko sami esikhulu kunazo zonke yilokhu: Bala izibusiso zakho! Akunandaba noma ngabe izinto zibukeka kabi noma zizizwa kanjani kwesinye isikhathi, ngingahlala ngithola okuthile engingabonga ngakho. Lokhu kugcina ingqondo nomzimba wami kuphilile.