Engikufundile Nge-Psoriasis Yami Emshadweni Wami Ohlulekile

-Delile

• Akudingeki ukuthi kube yingxoxo exakile
• Okwembula kokuqala
• Wayekubonile konke
• Engakufunda emshadweni ohlulekile

Uma une-psoriasis futhi uzizwa unokukhathazeka okuthile mayelana nokuqomisana, ngithanda ukuthi wazi ukuthi awuwedwa kule micabango. Ngiphile ne-psoriasis enamandla kusukela ngineminyaka eyisikhombisa, futhi ngangicabanga ukuthi angisoze ngathola uthando noma ngikhululeke ngokwanele ukuba ngisondelane nothile. Kungaba nohlangothi olunamahloni lwe-psoriasis okungenzeka ukuthi labo abangenalesi sifo bangaliqondi: ukuqhuma, ukulunywa, ukopha, ukudangala, ukukhathazeka, ukuqokwa kodokotela, nokunye okuningi.

Futhi, ukuphola kungaba nzima ngokwanele ngaphandle kwenkinga eyengeziwe yokuphatha isifo esifana ne-psoriasis. Usuvele unovalo lokuthi uzothini futhi wenzeni. Ngaphezu kwalokho, uzizwa uzenyeza ukuthi usuku lwakho kungenzeka lukhokha kakhulu i-psoriasis yakho ebonakalayo kunawe? Hhayi kahle umbono wakho wobusuku bokuthandana.

Akumangazi-ke ukuthi iNational Psoriasis Foundation ithole ukuthi amaphesenti angama-35 abaphendulile kwinhlolovo athi "anciphisa ukuphola noma ukuxhumana okusondelene ngenxa ye-psoriasis yabo." Abantu abaphila ne-psoriasis bangakwenza lokhu ngenxa yokwesaba ukwenqatshwa noma ukungaqondakali. Uma uphola ngenkathi uhlala ne-psoriasis, ungazibuza imibuzo efana nale:

"Ubani ozongithanda ngale mibhalo noma isikhumba sami?"

“Ngizomtshela kanjani umuntu ngesifo sami?”

“Kufanele ngibatshele nini?”

"Bazocabangani lapho bebona isikhumba sami okokuqala?"

“Ngabe basazongithanda?”

Ngilapha ukuzokutshela ukuthi ukusondelana kwezothando kungenzeka nakanjani kuwe. Ngihlangane nowayengumyeni wami manje eminyakeni engaphezu kwengu-10 edlule ekolishi lase-Alabama State University. Kwakuwuthando ekuqaleni kokubona. Sabonana, saqala ngosuku lwethu lokuqala ngalolo suku, futhi sahlukaniseka. Yize manje sesihlukanisile (okwakungahlangene nakancane nesifo sami, ngasendleleni), ngafunda izinto ezithile ezimnandi kusuka ekuqomeni nasekushadeni ngenkathi ngine-psoriasis.

Le ndatshana ayenzelwe kuphela umuntu one-psoriasis, kepha ingasiza nomlingani noma umlingani womuntu onalesi sifo. Nakhu engikufundile.

Akudingeki ukuthi kube yingxoxo exakile

Kwakumayelana nosuku lwethu lwesithathu futhi ngangizama ukunquma ukuthi ngizophuma kanjani “ekhabetheni” ngesifo sami. Bengingafuni ukwenza enye yalezo zinkulumo ezihluphayo zokuhlala phansi, ngakho-ke bengidinga ukuthola indlela yokuyethula ngokwemvelo engxoxweni.

Ngenhlanhla esigabeni sokuqala sokuqomisana, abantu bavame ukubuza imibuzo eminingi. Lokhu kubasiza ukuba bajwayelane kangcono. Nginqume ukuthi ngizokhuluma ngokunganaki i-psoriasis ngesinye sezikhathi zethu zokuqala ze-Q & A.

Ngesinye isikhathi ngalolo suku, wangibuza into enjengokuthi, "Uma ungashintsha into eyodwa ngawe kungaba yini?" Ngamtshela ukuthi ngizoshintsha iqiniso lokuthi ngine-psoriasis. Ngokulandelayo, ngachaza ukuthi kwakuyini nokuthi kungenze ngazizwa kanjani. Le bekuyindlela enhle yokuvula inkhulumomphendvulwano mayelana ne-psoriasis, ayengakaze ezwe ngayo ngaphambi kokuhlangana nami. Ngingakwazi futhi ukukala izinga lakhe lokududuzeka ngesifo sami. Ungibuze imibuzo eyengeziwe, kepha ngethoni lokufuna ukwazi. Ngemuva kwalokhu ngakhululeka ngokwengeziwe lapho nginaye.

Okwembula kokuqala

Abanye abantu abane-psoriasis bagqoka izingubo ezifihla ngokuphelele izifo zabo. Ngenxa ye-psoriasis yami, angikaze ngigqoke izingubo eziveza isikhumba sami. Kungithathe isikhathi eside impela ukukhombisa isoka lami ngaleso sikhathi imilenze nezingalo zami.

Isikhathi sokuqala lapho abona khona isikhumba sami kwaba phakathi nosuku lwama-movie endlini yakhe. Ngize ngehembe lami elijwayelekile elinemikhono emide nephenti. Ungitshele ukuthi anginamahloni ngalutho futhi wangicela ukuba ngiyoshintsha ngigqoke elinye lamahembe akhe anemikhono emifushane, engakwenza ngokungabaza. Lapho ngiphuma, ngikhumbula ngimi lapho kabi futhi ngicabanga, "Nangu mina, yimina lo." Ungiqabule phezulu nangaphansi kwengalo yami futhi wangitshela ukuthi uyangithanda nge-psoriasis noma ngaphandle kwayo. Kancane kancane kodwa, mina naye sasakha ukuthembana uma kukhulunywa ngesifo sami.

Wayekubonile konke

Ekugcineni, mina naye sasondelana, futhi okuxakile ukuthi yena namanje ngangingasibonanga isikhumba sami. Ngiyagigitheka ngicabanga ngakho manje ngoba iqiniso lokuthi bengimethemba ngokwanele ukuthi ngibe munye naye, kepha hhayi ukukhombisa isikhumba sami libukeka lilulima.

Ekugcineni, wazibona uqobo lwami lonke - hhayi nje isikhumba sami, kodwa nazo zonke ezinye izingqinamba engabhekana nazo ngenxa ye-psoriasis yami. Wayengufakazi wokudangala kwami, ingcindezi, ukukhathazeka, ukuqokwa kodokotela, ukuqhuma, nokunye okuningi. Saba munye ngezindlela eziningi kunalokho engangikucabanga. Yize wayengenayo i-psoriasis, wabhekana nazo zonke izinselelo ezafika nayo ngoba wayengithanda.

Engakufunda emshadweni ohlulekile

Yize mina nowakwami ​​singasekho ndawonye, ​​ngosizo lokuzindla nokwelulekwa sikwazile ukuhlala singabangani. Kukho konke ukwehla nobunzima ebudlelwaneni bethu, ngifunde into eyodwa enhle emshadweni wethu owehlulekile: Ngingathandwa futhi ngamukelwe ngumuntu ngenhliziyo yami yonke nge-psoriasis yami. Lokho kwaba into enganginomuzwa wokuthi ayinakwenzeka. Ngaphandle kwezinye izingqinamba ayenazo nami, i-psoriasis yami yayingakaze ibe yinye yazo. Akakaze, nakanye, asebenzise isifo sami kimi lapho ethukuthela. Kuye, i-psoriasis yami yayingekho. Wakwazisa ingqikithi yami, eyayinganqunywa yisifo sami.

Uma wesaba ukungalutholi uthando lwempilo yakho ngenxa ye-psoriasis yakho, ake ngikuqinisekise ukuthi wena uyakwazi - futhi uzokwenza. Ungahle uhlangane nama-dud angenalwazi ngenkathi usathandana, kepha lokho okuhlangenwe nakho kuzokusiza ukukusondeza eduze komuntu obehloselwe ukuba sempilweni yakho. Umuntu okulungele wena uzothanda futhi azise yonke ingxenye yakho, kufaka phakathi i-psoriasis yakho.

Manje njengoba sengidivosile, ezinye zalezo zinto ezindala ezibuyile zibuyile. Kepha njengoba ngicabanga, ngiyabona ukuthi uma ngathola uthando nokwamukelwa kanye ngaphambili, ngingaphinde ngikuthole futhi. Into enhle kunazo zonke engiyifunde kowakwami ​​ukuthi uthando nakanjani lungaphezu kwesikhumba.