Ngicela Uyenze Le Nto Uma Ingane Yakho Ikhononda Ngezinhlungu Ezihlangene

-Delile

• Ngivele ngazi ukuthi kukhona okungahambi kahle…
• Kunoma yimuphi umzali, lokhu kubuhlungu
• Kungenzeka ukuthi ubhekene nalokhu impilo yakhe yonke…
• Nakhu okumele ukwenze lapho ingane yakho iqala ukukhononda ngobuhlungu obuhlangene

Sifaka imikhiqizo esicabanga ukuthi ilusizo kubafundi bethu. Uma uthenga ngezixhumanisi ezikuleli khasi, singathola ikhomishini encane. Nansi inqubo yethu.

Cishe emasontweni ayisikhombisa edlule, ngatshelwa ukuthi indodakazi yami kungenzeka ine-juvenile arthritis (JIA). Kwakuyimpendulo yokuqala enengqondo - futhi ayingishayanga ngovalo ngokuphelele - ngemuva kwezinyanga ngivakashelwa esibhedlela, ukuhlolwa kokuhlasela, nokuqiniseka ukuthi indodakazi yami yayinakho konke kusuka ku-meningitis kuya kwizicubu zobuchopho kuya ku-leukemia. Nayi indaba yethu nokuthi yini okufanele uyenze uma ingane yakho inezimpawu ezifanayo.

Ngivele ngazi ukuthi kukhona okungahambi kahle…

Ukube ubungangibuza ukuthi kwaqala kanjani konke, bengizokubuyisela esontweni lokugcina ngoJanuwari lapho indodakazi yami iqala ukukhononda ngobuhlungu bentamo. Kuphela, wayengakhonondi ngempela. Wayekhuluma okuthile ngokulimala kwentamo yakhe bese ebaleka ayodlala. Ngabona ukuthi mhlawumbe wayelele ngokuhlekisa futhi adonse okuthile. Wayejabule kakhulu futhi ngenye indlela akazange aphazanyiswe yilokho okwakwenzeka. Ngokuqinisekile ngangingakhathazeki.

Kwaze kwaba cishe isonto ngemuva kokuthi izikhalazo zokuqala ziqale. Ngamlanda esikoleni futhi ngokushesha ngazi ukuthi kukhona okungahambi kahle. Okokuqala, akazange agijime azongibingelela njengoba ayevame ukwenza. Wayekwenza lokhu ukuxhugela okuncane lapho ehamba. Ungitshele ukuthi amadolo akhe abuhlungu. Kwakunenothi elivela kuthisha wakhe elalisho ukuthi ubekhala ngentamo yakhe.

Nginqume ukuthi ngizobiza udokotela ukuze ngibonane ngosuku olulandelayo. Kodwa lapho sifika ekhaya wayengakwazi ukuhamba ngezitebhisi ngokomzimba. Ingane yami eneminyaka engu-4 esebenzayo nenempilo ibiyisidudla sezinyembezi, ingincenga ukuba ngiyithwale. Futhi njengoba ubusuku buqhubeka, izinto zavele zaba zimbi kakhulu. Kuze kube sezingeni lapho ewa phansi ekhala ngokuthi intamo yakhe ibuhlungu kangakanani, kubuhlungu kangakanani ukuhamba.

Ngokushesha ngacabanga: I-meningitis. Ngamkhahlela phezulu ngaya ku-ER saya.

Lapho selifikile, kwacaca ukuthi akakwazi ukugoba intamo yakhe nhlobo ngaphandle kokuzincisha ngenxa yobuhlungu. Wayesenakho lokho kuxhwala futhi. Kodwa ngemuva kokuhlolwa kokuqala, i-X-ray, nokusebenza kwegazi, udokotela esimbonile waqiniseka ukuthi lokhu kwakungeyona i-bacterial meningitis noma isimo esiphuthumayo. “Silandele nodokotela wakhe ngakusasa ekuseni,” esitshela ngesikhathi sesiphumile.

Sangena ukubona udokotela wendodakazi yami ngokushesha ngosuku olulandelayo. Ngemuva kokuhlola intombazanyana yami, wayala i-MRI yekhanda lakhe, intamo nomgogodla. "Ngifuna nje ukuqinisekisa ukuthi akukho okwenzekayo lapho," kusho yena. Ngangazi ukuthi lokho kusho ukuthini. Wayefuna izicubu ekhanda lendodakazi yami.

Kunoma yimuphi umzali, lokhu kubuhlungu

Ngangethukile ngakusasa njengoba sasilungiselela i-MRI. Indodakazi yami ibidinga ukufakwa ngaphansi kwe-anesthesia ngenxa yeminyaka yayo namahora amabili ebizodinga ukuthi ihlale inganyakazi ngokuphelele. Lapho udokotela wakhe engibiza ngehora ngemuva kokuba inqubo isiphelile ukungitshela konke kucacile, ngabona ukuthi ngangibambe umoya amahora angama-24. "Kungenzeka ukuthi une-virus esixakile," wangitshela. "Masimnike isonto, futhi uma intamo yakhe isalokhu iqinile, ngifuna ukumbona futhi."

Ezinsukwini ezimbalwa ezalandela, indodakazi yami yabonakala isiba ngcono. Uyeke ukukhononda ngentamo yakhe. Angikaze ngenze lokho kuqokwa kokulandelela.

Kepha emasontweni alandelayo, uqhubeke nokuba nezikhalazo ezincane ngobuhlungu. Isihlakala sakhe salimala ngelinye ilanga, kwafika idolo elilandelayo. Kubonakale kuyizinhlungu ezikhulayo kimi. Ngibone ukuthi mhlawumbe ubesazobekezelela noma yiliphi igciwane ebelibangele ubuhlungu bentamo yakhe kwasekuqaleni. Kwaze kwaba usuku ngasekupheleni kukaMashi lapho ngamlanda khona esikoleni futhi ngabona lokho kubukeka kobuhlungu emehlweni akhe.

Kwakungobunye ubusuku izinyembezi nobuhlungu. Ngakusasa ekuseni ngangifonela udokotela wakhe ngicela ukubonwa.

Ngesikhathi sokuqokwa, intombazanyana yami yayibonakala ihamba kahle. Wayejabule futhi edlala. Ngazizwa ngicishe ngiwubulima ngokuba nenkani yokumngenisa. Kodwa-ke udokotela wakhe waqala ukuhlolwa futhi kwasheshe kwacaca ukuthi isihlakala sendodakazi yami sasivalekile.

Udokotela wakhe wachaza ukuthi kunomehluko phakathi kwe-arthralgia (ubuhlungu bamalunga) nesifo samathambo (ukuvuvukala kwejoyinti.) Okwenzeka esihlakaleni sendodakazi yami kusobala ukuthi kwakungokugcina.

Ngangizizwa kabi. Bengingazi ukuthi isihlakala sakhe besilahlekelwe ngisho nayiluphi uhla lokunyakaza. Kwakungekhona lokho ayekhala ngakho kakhulu, okwakungamadolo akhe. Ngangingazange ngimbone ukuthi ugwema ukusebenzisa isihlakala sakhe.

Vele, njengoba manje bengazi, ngibonile izindlela abengasikhokhela ngazo isihlakala sakhe kukho konke akwenzayo. Namanje angazi ukuthi bekuqhubeka isikhathi esingakanani. Lokho kukodwa kungigcwalisa ngomuzwa omkhulu wecala lomama.

Kungenzeka ukuthi ubhekene nalokhu impilo yakhe yonke…

Enye iqoqo le-X-ray nomsebenzi wegazi wabuya ngokujwayelekile, ngakho-ke sasala sathola ukuthi kungenzeka kwenzekani. Njengoba udokotela wendodakazi yami angichazile, kunezinto eziningi ezingadala isifo samathambo ezinganeni: izimo eziningana zokuzivikela komzimba (kufaka phakathi isifo se-lupus ne-Lyme), i-juvenile idiopathic arthritis (okunezinhlobo zayo eziningi), ne-leukemia.

Ngabe ngiqamba amanga uma ngithi elokugcina alingigcini ebusuku.

Ngokushesha sathunyelwa kudokotela wezifo zamathambo ezingane. Indodakazi yami yagqokwa kabili nge-naproxen nsuku zonke ukusiza ngobuhlungu njengoba sisebenzela ukuthola ukuxilongwa okusemthethweni. Ngifisa sengathi bengingasho ukuthi kukodwa sekwenze konke kwaba ngcono, kodwa sibe neziqephu eziningana zobuhlungu obukhulu emasontweni adlule. Ngezindlela eziningi, ubuhlungu bendodakazi yami bubonakala buya ngokuya buba bukhulu.

Sisesigabeni sokuxilongwa. Odokotela banesiqiniseko sokuthi unohlobo oluthile lwe-JIA, kepha kungathatha izinyanga eziyisithupha kusukela ekuqaleni kwezimpawu ukwazi lokho ngokuqinisekile futhi ukwazi ukubona ukuthi yiluphi uhlobo. Kungenzeka ukuthi lokhu esikubonayo kuseyindlela yokuphendula igciwane elithile. Noma angaba nolunye lwezinhlobo ze-JIA izingane eziningi ezilulama kuzo ngemuva kweminyaka embalwa.

Kungenzeka futhi ukuthi lokhu kube yinto abhekene nayo impilo yakhe yonke.

Nakhu okumele ukwenze lapho ingane yakho iqala ukukhononda ngobuhlungu obuhlangene

Njengamanje, asazi ukuthi yini elandelayo. Kodwa ngenyanga edlule ngenze okuningi ngafunda ngacwaninga. Ngifunda ukuthi isipiliyoni sethu asijwayelekile ngokuphelele. Lapho izingane ziqala ukukhononda ngezinto ezifana nobuhlungu bamalunga, kunzima ukuzithatha ngokungathi sína ekuqaleni. Bancane kakhulu, ngemuva kwakho konke, futhi lapho bephonsa isikhalazo bese begijimela ukuyodlala, kulula ukucabanga ukuthi kuyinto encane noma lezo zinhlungu ezikhulayo ezimbi. Kulula kakhulu ukucabanga okuthile okuncane lapho umsebenzi wegazi ubuya ujwayelekile, okungenzeka ezinyangeni ezimbalwa zokuqala kwe-JIA.

Ngakho-ke wazi kanjani ukuthi lobo buhlungu abakhala ngabo akuyona nje into ejwayelekile zonke izingane ezidlula kuzo? Nasi iseluleko sami esisodwa: Thembela emvelweni yakho.

Kithina, okuningi kwehlela emathunjini omama. Ingane yami isingatha izinhlungu kahle. Ngimbonile egijima ekhanda kuqala etafuleni eliphakeme, ewa emuva ngenxa yamandla, wavele weqa ngqo wahleka futhi walungela ukuqhubeka. Kepha lapho wehliswa izinyembezi zangempela ngenxa yalobuhlungu ... ngangazi ukuthi kwakuyinto yangempela.

Kungaba nezimbangela eziningi zobuhlungu obuhlangene ezinganeni ezinezimpawu eziningi ezihambisana nazo. Umtholampilo waseCleveland unikeza uhlu lokuqondisa abazali ekuhlukaniseni izinhlungu ezikhulayo kokunye okubucayi. Izimpawu okufanele uziqaphele zifaka:

• ubuhlungu obuqhubekayo, ubuhlungu ekuseni noma ubumnene, noma ukuvuvukala nokubomvu ekuhlanganyeleni
• ubuhlungu obuhlangene obuhambisana nokulimala
• ukuxhuga, ubuthakathaka, noma isisa esingajwayelekile

Uma ingane yakho ihlangabezana nalezi zimpawu, zidinga ukubonwa udokotela wazo. Ubuhlungu obuhlangene obuhlangene nomkhuhlane omkhulu oqhubekayo noma ukuqubuka kungaba uphawu lwento ebucayi kakhulu, ngakho-ke yisa ingane yakho kudokotela ngokushesha.

I-JIA ayivelakancane, ithinta cishe izingane ezingama-300,000, izingane kanye nentsha e-United States. Kepha i-JIA akuyona ukuphela kwento engadala izinhlungu ezihlangene. Uma ungabaza, kufanele njalo ulandele isisu sakho futhi wenze ingane yakho ibonwe ngudokotela ongakusiza uhlole izimpawu zayo.

ULeah Campbell ungumbhali nomhleli ohlala e-Anchorage, e-Alaska. Umama ongayedwa ngokuzikhethela ngemuva kochungechunge olwehlisayo lwezehlakalo ezaholela ekwamukelweni kwendodakazi yakhe, uLeah futhi ungumbhali wencwadi “Owesifazane Oyedwa Ongazali” futhi ubhale kakhulu ngezihloko zokungazali, ukutholwa, nokuba ngumzali. Ungaxhuma noLeah nge Facebook, yena iwebhusayithi, futhi Twitter.