Ama-Memes ama-5 Achaza Ubuhlungu Bami be-RA

-Delile

• 1. ‘Ubuhlungu bukukwazisa ukuthi usaphila’
• 2. Ngiyaphila
• 3. Ache it til uyenze
• 4. Angiqiniseki ukuthi imithi yezinhlungu ayisebenzi yini…
• 5. Sengathi izinkezo zingavuna wena njalo
• Ukuthatha

Kwatholakala ukuthi ngine-lupus ne-rheumatoid arthritis ngo-2008, ngineminyaka engama-22.

Ngangizizwa ngingedwa ngokuphelele futhi ngangingazi noma ubani owayedlula kulokho engangiyikho. Ngakho-ke ngiqale ibhulogi ngemuva kwesonto ngitholakele futhi ngathola ngokushesha ukuthi angingedwa. Ngiphinde ngine-PhD kwezokuhlalisana kwabantu kanye neziqu ze-master ekumeleni ezempilo, ngakho-ke ngihlale nginesifiso sokufunda kabanzi ngokuthi abanye babhekana kanjani nokugula. I-blog yami yayi, futhi iyaqhubeka ukuba, ulayini kimi.

Ngenkathi nginenhlanhla yokuthola inhlanganisela yemithi esebenza ukugcina i-lupus ne-RA yami, ngingasho ukuthi ngisesikhathini lapho nginezinsuku ezinhle kakhulu kunezimbi. Ubuhlungu nokukhathala kusalokhu kuwumzabalazo oqhubekayo. Uma ufunda lokhu futhi une-RA, uyaqonda ukuthi umzabalazo ungokoqobo - uyakwazi engikukhumbulayo!

1. ‘Ubuhlungu bukukwazisa ukuthi usaphila’

Uke ube nokusa lapho uvuka khona bese ucabanga ukuthi, "Ngifuna ukuvuka embhedeni, kodwa angikwazi ngisho…"? Ngazi ngokuphelele umuzwa. Futhi ngenkathi ubuhlungu buyesabeka futhi buyaphazamisa, njengoba le meme iphakamisa, okungenani kusenza sazi ukuthi siyaphila, noma singakwazi ukuphuma embhedeni.

2. Ngiyaphila

Lapho abantu besibuza ukuthi sinjani, ngiyazi ukuthi iningi lethu livame ukwehluleka ukuthi "ngiyaphila," noma singaphilile, okuyisikhathi esiningi. Noma ngisezinhlungwini, ngivame ukutshela abantu ukuthi ngiphilile ngoba angazi ukuthi bakulungele yini noma bangakwazi ukuphatha impendulo yangempela noma iqiniso lokuthi injani impilo yami yansuku zonke.

3. Ache it til uyenze

Akuvamile ukuthi izinhlungu zami zinyamalale. Futhi ngenxa yalokho, kwesinye isikhathi ngiphoqeleka ukuthi ngihlale eceleni kwempilo ngenkathi amanye ama-30-somethings (noma ama-20-somethings, njengoba nganginjalo ngenkathi ngitholwa okokuqala) enza izinto engifisa ukuthi ngabe bengizenza. Njengokuthi "ngiyaphila," kwesinye isikhathi kufanele sikukhohlise kuze kube siyakwazi. Kuhle lokho lapho ngikwazi. Kodwa lapho ngingenakukwazi, kuyadumaza ukusho okungenani.

4. Angiqiniseki ukuthi imithi yezinhlungu ayisebenzi yini…

Ukuphila nobuhlungu obungapheli kusho ukuthi usujwayele. Kwesinye isikhathi kuba nzima ukuhlukanisa phakathi kokuthi sizwa ubuhlungu obuncane noma ama-meds ethu ayasebenza. Ngikhumbula ngithola ukumnika kwe-steroid ngemuva kokuba ngitholakele futhi imishanguzo yami yayingasebenzi okwamanje. Umama wangibuza ukuthi ngabe ngisezinhlungwini yini. Nganginjengokuthi, "Ubuhlungu? Buphi ubuhlungu? ” Ngicabanga ukuthi leso yisikhathi esisodwa kuphela eminyakeni eyi-10 engikwazi ukusho ngaso.

5. Sengathi izinkezo zingavuna wena njalo

Ukuphila neRA kusho ukulwela izimpilo zethu nempilo yethu nsuku zonke. Ngakho-ke, noma kungenjalo kuhlobene nobuhlungu ngokuphelele - noma ngabe silwa nobuhlungu, ukukhathala, noma olunye udaba oluhlobene ne-RA - sonke singasebenzisa ezinye izinkezo ngoba imvamisa asinazo ezanele ukuqala ngazo.

Ukuthatha

Uma ubuhlungu buyinduku esikala ngayo izimpilo zethu, khona-ke labo abane-RA banakho okuningi. Imvamisa ubuhlungu bubonakala njengokungenanjongo. Kodwa kuyahlekisa ukuthi amagama nezithombe zingachaza kanjani ukuthi ubuhlungu be-RA bunjani futhi bukhanye kancane.

U-Leslie Rott watholakala ene-lupus ne-rheumatoid arthritis ngo-2008 eneminyaka engama-22, ngonyaka wakhe wokuqala esikoleni esiphothule. Ngemuva kokutholakala ukuthi uthini, uLeslie waqhubeka nokuthola i-PhD kwezomphakathi eNyuvesi yaseMichigan kanye neziqu ze-master kwezokumela ezempilo e-Sarah Lawrence College. Ubhala ibhulogi Ukuzisondeza Kimi, lapho abelana khona ngamava akhe okubhekana nokuphila nezifo eziningi ezingalapheki, ngokusobala nangokuhlekisa. Ungummeli oqeqeshiwe wesiguli ohlala eMichigan.