Uhlonzwe Njengomntwana, U-Ashley Boynes-Shuck Manje Uhambisa Amandla Akhe Ekuthuthukiseni Abanye Abahlala Ne-RA

-Delile

• Ikholi yokusiza abanye
• Ixhuma ngohlelo lokusebenza lwe-RA Healthline

Ummeli we-arthritis ye-rheumatoid u-Ashley Boynes-Shuck ubambisene nathi ukukhuluma ngohambo lwakhe lomuntu siqu kanye nohlelo lokusebenza olusha lweHealthline kulabo abahlala ne-RA.

Ikholi yokusiza abanye

Ngo-2009, uBoynes-Shuck waqala ukusebenza njengomqondisi wezokuthuthukiswa komphakathi kanye nommeli wontanga no-Arthritis Foundation.

“Ngithole ukuthi bekusiza ukuba nokuthile okuhle futhi okukhiqizayo ukugxila kukho, futhi ngithole injabulo nokubonga ekusizeni nasekusebenzeleni abanye, ekusabalaliseni ulwazi, ekuqeqesheni ezempilo, nasekukhuthazeni,” usho kanje.

"Lezi yizinto engizizwe ngibizelwe ukuzenza, sonke lesi sikhathi ngiguqule isimo sami esingesihle sibe yinto ewusizo neqondile."

Ubuye wethula nebhulogi ethi Arthritis Ashley futhi ushicilele izincwadi ezimbili ezikhuluma ngohambo lwakhe noRA.

Ixhuma ngohlelo lokusebenza lwe-RA Healthline

Umzamo wakamuva kaBoynes-Shuck ubambisana neHealthline njengomhlahlandlela womphakathi wohlelo lwayo lwamahhala lweRA RAalthline.

Uhlelo lokusebenza luxhuma labo abane-RA ngokususelwa kuzintshisekelo zabo zokuphila. Abasebenzisi bangadlulisa amehlo kumaphrofayli amalungu futhi bacele ukufanisa nanoma yiliphi ilungu ngaphakathi komphakathi.

Nsuku zonke, uhlelo lokusebenza lifanisa amalungu avela emphakathini, ebavumela ukuthi baxhumane ngokushesha. UBoynes-Shuck uthi isici somdlalo siwuhlobo oluthile.

"Kufana nesitholi se-'RA-Buddy '," usho kanje.

Njengomhlahlandlela womphakathi, uBoynes-Shuck namanye amanxusa wohlelo lokusebenza abameli beRA bazohola ingxoxo ebukhoma ebanjwa nsuku zonke. Abasebenzisi bangajoyina iqhaza ezingxoxweni mayelana nezihloko ezinjengokudla nokudla okunomsoco, ukuzivocavoca umzimba, ukunakekelwa kwezempilo, izimbangela, ukuphathwa kobuhlungu, ukwelashwa, ezinye izindlela zokwelapha, izinkinga, ubudlelwano, ukuhamba, impilo yengqondo, nokuningi.

“Ngijabule kakhulu ukuba ngumhlahlandlela womphakathi weRA Healthline. Ngizizwa nginothando ngeziguli ze-rheum ezinendawo ephephile futhi engizizwa nginesizungu, futhi kuyangikhuthaza ukuthi ngisebenzise izwi lami kahle ngisize nabanye abasesimweni esifana nesami, ”kusho yena. "Futhi, kumayelana nokwenza okusemandleni ezandleni engaphathwa ngazo."

Yize esebenzise i-Facebook, i-Twitter, namanye amawebhusayithi nezinkundla zokuxhumana ukufuna imininingwane ye-RA, uthi iRA Healthline iyona kuphela ithuluzi ledijithali alisebenzisile elinikezelwe kuphela kubantu abaphila ne-RA.

"Kuyindawo eyamukelekayo futhi enhle kubantu abanomqondo ofanayo abaphila futhi abachuma ne-RA," esho.

Kubasebenzisi abafuna ukufunda imininingwane ephathelene ne-RA, uhlelo lokusebenza lunikeza isigaba se-Discover, esibandakanya indlela yokuphila nezindatshana zezindaba ezibuyekezwa ngabasebenzi bezempilo beHealthline mayelana nezihloko ezihlobene nokuxilongwa, ukwelashwa, ucwaningo, ukondleka, ukuzinakekela, impilo yengqondo, nokuningi . Ungafunda futhi izindaba zomuntu siqu kulabo abahlala ne-RA.

“Isigaba seDiscover siyindlela enhle impela yokuthola imininingwane ewusizo sonke endaweni eyodwa. Bengilokhu ngiyibhekabheka kakhulu, "kusho uBoynes-Shuck.

Ubuye athole ulwazi nokuqonda kumalungu omphakathi.

“Uma sikhuluma iqiniso, wonke umuntu uthi ngiyabakhuthaza, kodwa ngizizwa ngendlela efanayo futhi ngigqugquzelwa futhi ngibonga ezinye iziguli zakwa-RA. Ngifunde okuningi futhi ngikhuthazwe kakhulu ontanga yami, ”usho kanje. "Bekuvuza kakhulu mathupha nobungcweti, kodwa futhi kube ngumthombo omuhle wokungeseka kimi ukufunda nokuncika kwezinye iziguli."

Landa uhlelo lokusebenza lapha.

UCathy Cassata ungumbhali ozimele ogxile ezindabeni ezikhuluma ngempilo, impilo yengqondo nokuziphatha kwabantu. Unekhono lokubhala ngomzwelo nokuxhumana nabafundi ngendlela enokuqonda nebandakanyayo. Funda kabanzi ngomsebenzi wakhe lapha.