Umhlahlandlela Wezingxoxo Zodokotela: Ongakubuza Nge-PPMS

-Delile

• 1. Ngiyithole kanjani i-PPMS?
• 2. Ihluke kanjani i-PPMS kwezinye izinhlobo ze-MS?
• 3. Uzosihlola kanjani isimo sami?
• 4. Ziyini ngempela izilonda ku-PPMS?
• 5. Kuthatha isikhathi esingakanani ukuxilonga i-PPMS?
• 6. Ngizodinga kangaki ukuhlolwa?
• 7. Ngabe izimpawu zami zizoba zimbi kakhulu?
• 8. Yimiphi imithi ozoyinikeza?
• 9. Ingabe zikhona ezinye izindlela zokwelapha engingazama?
• 10. Yini engingayenza ukuphatha isimo sami?
• 11. Ingabe likhona ikhambi le-PPMS?

Ukuxilongwa kwe-multiple progressive multiple sclerosis (PPMS) kungaba nzima ekuqaleni. Isimo ngokwaso siyinkimbinkimbi, futhi kunezinto eziningi ezingaziwa ngenxa yendlela i-multiple sclerosis (MS) ekhombisa ngayo ngokuhlukile phakathi kwabantu.

Lokho kusho, ungathatha izinyathelo manje ezingakusiza ukuphatha i-PPMS ngenkathi uvimbela izinkinga ezingangena endleleni yekhwalithi yakho yokuphila.

Isinyathelo sakho sokuqala ukuba nengxoxo eqotho nodokotela wakho. Cabanga ukuletha lolu hlu lwemibuzo eyi-11 lapho uqokwa njengomhlahlandlela wezingxoxo we-PPMS.

1. Ngiyithole kanjani i-PPMS?

Imbangela ngqo ye-PPMS, nazo zonke ezinye izinhlobo ze-MS, ayaziwa. Abaphenyi bakholelwa ukuthi izici zemvelo kanye nezakhi zofuzo zingadlala indima ekuthuthukiseni i-MS.

Futhi, ngokusho kweNational Institute of Neurological Disorders and Stroke (NINDS), cishe amaphesenti ayi-15 abantu abane-MS banelungu okungenani elilodwa lomndeni elinalesi sifo. Abantu ababhemayo banamathuba amaningi okuthola i-MS.

Udokotela wakho kungenzeka angakwazi ukukutshela ukuthi uyenze kanjani i-PPMS. Kodwa-ke, bangahle babuze imibuzo mayelana nomlando wakho wezempilo yangasese nowomndeni ukuthola isithombe esingcono jikelele.

2. Ihluke kanjani i-PPMS kwezinye izinhlobo ze-MS?

I-PPMS yehlukile ngezindlela eziningana. Isimo:

• kubangela ukukhubazeka ngokushesha kunezinye izinhlobo ze-MS
• kubangela ukuvuvukala okuncane jikelele
• kuveza izilonda ezimbalwa ebuchosheni
• kubangela izilonda eziningi zomgogodla
• kuvame ukuthinta abantu abadala kamuva empilweni
• kunzima kakhulu ukuxilonga

3. Uzosihlola kanjani isimo sami?

I-PPMS ingatholakala uma unesilonda okungenani esisodwa sobuchopho, okungenani izilonda zomgogodla ezimbili, noma inkomba ephakeme ye-immunoglobulin G (IgG) kulwelwesi lwakho lomgogodla.

Futhi, ngokungafani nezinye izinhlobo ze-MS, i-PPMS ingahle ibonakale uma ngabe ubenezimpawu eziqhubeka zimbi okungenani unyaka ngaphandle kokuxolelwa.

Ngendlela yokubuyisela emuva ye-MS, ngesikhathi sokukhushulwa (ukuvuleka), izinga lokukhubazeka (izimpawu) liba libi kakhulu, bese zihamba noma zixazulule kancane ngesikhathi sokuxolelwa.I-PPMS ingaba nezikhathi lapho izimpawu zingabi zimbi kakhulu, kodwa lezo zimpawu azinciphi emazingeni angaphambilini.

4. Ziyini ngempela izilonda ku-PPMS?

Izilonda, noma izingcwecwe, zitholakala kuzo zonke izinhlobo ze-MS. Lokhu kwenzeka ikakhulukazi ebuchosheni bakho, noma kukhula kakhulu emgogodleni wakho ku-PPMS.

Izilonda zikhula njengempendulo yokuvuvukala lapho amasosha akho omzimba ecekela phansi i-myelin yawo. I-Myelin iyisivalo esivikelayo esizungeze imicu yezinzwa. Lezi zilonda zikhula ngokuhamba kwesikhathi futhi zitholwa ngokuskena kwe-MRI.

5. Kuthatha isikhathi esingakanani ukuxilonga i-PPMS?

Kwesinye isikhathi ukuxilonga i-PPMS kungathatha isikhathi esifinyelela eminyakeni emibili noma emithathu kunokuthola ukuthi i-MS ibuyelela emuva (RRMS), ngokusho kweNational Multiple Sclerosis Society. Lokhu kungenxa yenkinga yesimo.

Uma usanda kuthola ukuxilongwa kwe-PPMS, kungenzeka ukuthi kususelwe ezinyangeni noma ngisho naseminyakeni yokuhlolwa nokulandelwa.

Uma ungakatholi ukuxilongwa ngefomu le-MS okwamanje, yazi ukuthi kungathatha isikhathi eside ukuxilonga. Lokhu kungenxa yokuthi udokotela wakho uzodinga ukubheka ngokusebenzisa ama-MRIs amaningi ukukhomba amaphethini ebuchosheni bakho nasemgogodleni.

6. Ngizodinga kangaki ukuhlolwa?

INational Multiple Sclerosis Society incoma i-MRI yaminyaka yonke kanye nokuhlolwa kwemizwa okungenani kanye ngonyaka.

Lokhu kuzosiza ukunquma ukuthi isimo sakho sibuyela emuva noma siyaqhubeka yini. Ngokwengeziwe, ama-MRIs angasiza udokotela wakho ukuthi ahlele inkambo ye-PPMS yakho ukuze bakwazi ukuncoma ukwelashwa okulungile. Ukwazi ukuqhubeka kwesifo kungasiza ekuvimbeleni ukuqala kokukhubazeka.

Udokotela wakho uzonikeza izincomo ezithile zokulandelela. Ungadinga futhi ukuwavakashela kaningi uma uqala ukuhlangabezana nezimpawu eziya ziba zimbi.

7. Ngabe izimpawu zami zizoba zimbi kakhulu?

Ukuqala nokuqhubeka kwezimpawu ku-PPMS kuvame ukwenzeka masinyane kunezinye izinhlobo ze-MS. Ngakho-ke, izimpawu zakho kungenzeka zingashintshi njengoba zingenza ekubuyeni kwezinhlobo zesifo kepha ziqhubeke ngokuya ziba zimbi.

Njengoba i-PPMS iqhubeka, kunengozi yokukhubazeka. Ngenxa yezilonda eziningi emgogodleni wakho, i-PPMS ingadala ubunzima bokuhamba. Ungase futhi uhlangabezane nokudangala okuthuthukayo, ukukhathala, namakhono okwenza izinqumo.

8. Yimiphi imithi ozoyinikeza?

Ngo-2017, i-Food and Drug Administration (i-FDA) yavuma i-ocrelizumab (Ocrevus), umuthi wokuqala otholakalayo wokusetshenziswa ekwelapheni i-PPMS. Lokhu kwelashwa okuguqula izifo nakho kuvunyelwe ukwelapha i-RRMS.

Ucwaningo luyaqhubeka ukuthola imishanguzo ezonciphisa imiphumela yezinzwa ye-PPMS.

9. Ingabe zikhona ezinye izindlela zokwelapha engingazama?

Ezinye izindlela zokwelashwa ezihambisanayo ezisetshenziselwe i-MS zifaka:

• i-yoga
• ukutshopa
• izithako zemithi
• biofeedback
• aromatherapy
• tai chi

Ukuphepha ngezinye izindlela zokwelapha kuyakhathaza. Uma uthatha noma yimiphi imishanguzo, izengezo zamakhambi zingadala ukuhlangana. Kufanele uzame kuphela i-yoga ne-tai chi ngomqeqeshi oqinisekisiwe ojwayelene ne-MS - ngale ndlela, angakusiza ukuthi uguqule ngokuphepha noma yikuphi ukuma okudingekayo.

Khuluma nodokotela wakho ngaphambi kokuzama amanye amakhambi e-PPMS.

10. Yini engingayenza ukuphatha isimo sami?

Ukuphathwa kwe-PPMS kuncike kakhulu ku:

• ukuvuselelwa
• usizo lokuhamba
• ukudla okunempilo
• ukuzivocavoca umzimba njalo
• ukusekelwa ngokomzwelo

Ngaphezu kokunikeza izincomo kulezi zindawo, udokotela wakho angaphinde akuthumele kwezinye izinhlobo zochwepheshe. Lokhu kufaka phakathi abelaphi bomzimba noma bokusebenza, izazi zokudla, kanye nabelaphi bamaqembu okusekela.

11. Ingabe likhona ikhambi le-PPMS?

Njengamanje, alikho ikhambi lanoma yiluphi uhlobo lwe-MS - lokhu kufaka ne-PPMS. Umgomo-ke ukuphatha isimo sakho ukuvimbela izimpawu eziya ziba zimbi nokukhubazeka.

Udokotela wakho uzokusiza ukuthi unqume inkambo engcono kakhulu yokuphathwa kwe-PPMS. Ungesabi ukwenza ama-aphoyintimenti okulandelela uma uzizwa sengathi udinga amathiphu amaningi okuphatha.