Ngifunde Kanjani Ukwamukela Usizo Lami Lokuhamba nge-MS Yami Ethuthukile

-Delile

• Ukubhekana nokwesaba kwakho izinduku, abahamba ngezinyawo, nezihlalo ezinamasondo
• Ukwamukela iqiniso lakho elisha
• Ukwamukela ukhiye wakho omusha wenkululeko
• Ukuthatha

I-Multiple sclerosis (MS) ingaba isifo esihlukanisa kakhulu. Ukulahlekelwa ikhono lokuhamba kunamandla okwenza thina esiphila ne-MS sizizwe sodwa kakhulu.

Ngiyazi ngokuhlangenwe nakho kwami ​​ukuthi kunzima ngendlela emangalisayo ukwamukela lapho udinga ukuqala ukusebenzisa usizo lokuhamba njengondondolo, isihambahamba, noma isihlalo esinamasondo.

Kepha ngifunde ngokushesha ukuthi ukusebenzisa la madivayisi kungcono kunezinye izindlela, njengokuwa phansi uzilimaze noma uzizwe ushiywe ngaphandle futhi ulahlekelwe ukuxhumana komuntu siqu.

Nakhu ukuthi kungani kubalulekile ukuyeka ukucabanga ngamadivayisi okuhamba njengezimpawu zokukhubazeka, futhi kunalokho qala ukuzibona nokuzisebenzisa njengezikhiye zenkululeko yakho.

Ukubhekana nokwesaba kwakho izinduku, abahamba ngezinyawo, nezihlalo ezinamasondo

Uma ngikhuluma iqiniso, ngiyavuma ukuthi ngangivame ukuba umuntu owayengisabisa kakhulu lapho kutholakala ukuthi ngine-MS eminyakeni engaphezu kwengu-22 edlule. Engangesaba kakhulu ukuthi ngelinye ilanga ngizoba yilowo “wesifazane ohamba ngesihlalo sabakhubazekile.” Futhi yebo, yilokhu enginguye manje cishe amashumi amabili eminyaka kamuva.

Kungithathe isikhathi ukwamukela ukuthi yilapho isifo sami besingithatha khona. Ngisho, woza! Ngangineminyaka engu-23 kuphela lapho udokotela wami wezinzwa esho inkulumo engangiyesaba kakhulu: “Une-MS.”

Kwakungeke kube njalo ukuthi kubi, kepha, akunjalo? Ngangisanda kuqeda iziqu zami ze-bachelor's e-University of Michigan-Flint futhi ngangiqala umsebenzi wami wokuqala "wentombazane enkulu" eDetroit. Ngangimncane, ngiqhutshwa, futhi ngigcwele isifiso sokuvelela. I-MS ibingazukuma endleleni yami.

Kepha kungakapheli iminyaka engu-5 ngitholakele, bengingakwazi nokuzama ukuma endleleni ye-MS nemiphumela yako kimi. Ngase ngiyekile ukusebenza ngaphindela kubazali bami ngoba isifo sami sase singinqoba ngokushesha.

Ukwamukela iqiniso lakho elisha

Ngaqala ukusebenzisa induku cishe unyaka ngemuva kokuxilongwa. Imilenze yami yayixega futhi ingenza ngizizwe ngingagxilile, kodwa kwakuwudondolo nje. Akunankinga enkulu, akunjalo? Bengingasidingi ngaso sonke isikhathi, ngakho-ke isinqumo sokuyisebenzisa asizange singithinte.

Ngicabanga ukuthi kungashiwo okufanayo ngokuhamba ushukela uye kumhlanga we-quad uye ku-walker. Le mishini yokuhamba ibiyimpendulo yami esifweni esingapheli esihlala siqamekela i-myelin.

Ngangilokhu ngicabanga, “Ngizoqhubeka nokuhamba. Ngizoqhubeka nokuhlangana nabangane bami esidlweni nasemaphathini. ” Ngangisemncane futhi ngigcwele isifiso sokuvelela.

Kodwa zonke izifiso zokuphila kwami ​​zazingenakulinganiswa nokuwa okuyingozi nokubuhlungu engangiqhubeka nginakho naphezu kwemishini yami yokusiza.

Angikwazanga ukuqhubeka nokuphila impilo yami ngokwesaba isikhathi esilandelayo lapho ngizowa phansi, ngizibuza ukuthi lesi sifo sizongenzani ngokulandelayo. Isifo sami sasiqede isibindi sami esingenamkhawulo.

Ngangesaba, ngashaya phansi, futhi ngikhathele. Engikhetha ukukugcina kwakuyisikuta esinenjini noma isihlalo esinamasondo. Bengidinga eyenjini ngoba i-MS yami ibinciphise amandla ezingalweni zami.

Impilo yami yafika kanjani kuleli qophelo? Ngangisanda kuqeda ekolishi iminyaka engu-5 ngaphambi kwalesi sikhathi.

Uma ngangifuna ukugcina noma yikuphi ukuphepha nokuzimela, ngangazi ukuthi ngidinga ukuthenga isithuthuthu esinenjini. Lesi bekuyisinqumo esibuhlungu ukusithatha njengomuntu oneminyaka engu-27. Ngazizwa nginamahloni futhi ngehlulwa, ngathi ngizinikela kulesi sifo. Ngakwemukela kancane iqiniso lami elisha ngathenga isithuthuthu sami sokuqala.

Yilapho ngabuyisa impilo yami ngokushesha.

Ukwamukela ukhiye wakho omusha wenkululeko

Ngisalwela iqiniso lokuthi i-MS ingiphuce ikhono lami lokuhamba. Lapho isifo sami sesidlulele ekubeni yi-MS yesibili eqhubekayo, kwadingeka ngithuthukele kusihlalo sabakhubazekile. Kodwa ngiyaziqhenya ngendlela engisamukele ngayo isihlalo sami esinamasondo njengokhiye wokuphila impilo yami enhle kakhulu.

Angizange ngivumele ukwesaba kunginqobe. Ngaphandle kwesihlalo sami sabakhubazekile, bengingeke ngibe nenkululeko yokuhlala ekhaya lami, ngithole iziqu zami, ngihambele i-United States yonke, ngishade noDan, indoda yamaphupho ami.

UDan une-MS ebuyela emuva, futhi sahlangana emcimbini we-MS ngoSepthemba 2002. Sathandana, sashada ngo-2005, futhi sesihlala kamnandi kusukela lapho. UDan akakaze angazi ukuthi ngihamba kanjani futhi akazange angesabi ngesihlalo sami sabakhubazekile.

Nakhu esikhulume ngakho okubalulekile ukukhunjulwa: Angiziboni izingilazi zikaDan. Yikho nje akudingayo ukugqoka ukuze abone kangcono futhi aphile impilo esezingeni.

Ngokufanayo, uyangibona, hhayi isihlalo sami sabakhubazekile. Yilokho kuphela engikudingayo ukuhambahamba kangcono futhi ngiphile impilo esezingeni naphezu kwalesi sifo.

Ukuthatha

Ezinselele abantu abane-MS ababhekana nazo, ukuthatha isinqumo sokuthi ngabe sekuyisikhathi sokusebenzisa isisetshenziswa sokusiza ukuhamba kungenye yezinzima kakhulu.

Ngeke kube kanjena uma singashintsha indlela esizibona ngayo izinto ezinjengezindondolo, izihambi, nezihlalo ezinamasondo. Lokhu kuqala ngokugxila kokukuvumela ukuthi ukwenze ukuze uphile impilo ebandakanya kakhulu.

Iseluleko sami esivela kothile oke wasebenzisa isihlalo esinamasondo eminyakeni eyi-15 eyedlule: Yisho idivayisi yakho yokuhamba! Izihlalo zami ezinamasondo zibizwa ngeSilver neGrape Ape. Lokhu kukunika umuzwa wobunikazi, futhi kungakusiza ukukuphatha njengomngane wakho hhayi isitha sakho.

Okokugcina, zama ukukhumbula ukuthi ukusebenzisa idivayisi yokuhamba kungahle kungabi unomphela. Kuhlala kunethemba lokuthi sonke ngolunye usuku sizophinde sihambe njengoba senza ngaphambi kokutholakala kwe-MS.

UDan noJennifer Digmann bayasebenza emphakathini we-MS njengezikhulumi zomphakathi, ababhali nabameli. Banikela njalo kwezezimali zabo ibhulogi ezuze umklomelo, futhi bangababhali be- “Ngaphandle kwe-MS, ku-Spite MS, ”Iqoqo lezindaba eziphathelene nempilo yabo kanye ne-multiple sclerosis. Ungabalandela futhi Facebook, Twitter, futhi Instagram.