I-Endometriosis: Ukufuna Izimpendulo

-Delile

• Ukususa imibono eyiphutha
• Indlela enamadwala yokuxilongwa
• Impilo engaphezu kokuxilongwa
• Ukunxenxa ukunakekelwa okungcono

Ngosuku lokuthweswa iziqu kwakhe ekolishi eminyakeni eyi-17 eyedlule, uMelissa Kovach McGaughey wayehleli phakathi kontanga yakhe elindele ukuthi kubizwe igama lakhe. Kepha esikhundleni sokujabulela ngokugcwele lesi senzakalo esiyingqopha-mlando, ukhumbula okuthile okungamukeleki neze: ubuhlungu.

Ekhathazekile ngokuthi umuthi abewuthathe phambilini uzophela ngesikhathi somkhosi, wahlela phambili. “Ngangigqoka isikhwama semali ngaphansi kwengubo yami yokuthweswa iziqu - nginebhodlela lamanzi elincane nebhodlela lamaphilisi - ukuze ngikwazi ukuthatha umthamo wami olandelayo womuthi wezinhlungu ngingasukumi,” uyakhumbula.

Lesi bekungekhona okokuqala noma kokugcina lapho kuzodingeka akhathazeke nge-herndometriosis ethatha isigaba sokuqala. Isimo sabesifazane, esibangela ukuthi izicubu ezivela kulwelwesi lwesibeletho zikhule kwezinye izitho - sibonakala ikakhulu, futhi ngokusobala, ngobuhlungu.

UMcGaughey, owayeyilungu lebhodi laseWisconsin elalizinze e-Endometriosis Association, uchithe amashumi eminyaka elawula izimpawu zakhe ezibuhlungu. Angayilandela eyakhe emuva lapho iqala khona ebusheni.

"Ngaqala ukusola ukuthi kukhona okwakungahambi kahle lapho ngineminyaka engu-14 lapho ngangibonakala ngithola amajaqamba kakhulu kunaleso sabangane bami," etshela uHealthline.

Ngemuva kweminyaka eminingana engatholanga ukukhululeka nge-ibuprofen, noma kunjalo, odokotela ayebabona ababelethile bokuvimbela inzalo bamahomoni ukunciphisa ubuhlungu bakhe. Kodwa amaphilisi awenzanga into enjalo. “Njalo ezinyangeni ezintathu, ngangibekwa kolunye uhlobo,” kukhumbula uMcGaughey, oneminyaka engama-38, othi abanye babeze bamcindezele futhi bamshintshe nemizwelo.

Ngemuva kwezinyanga eziningi engatholi isixazululo, odokotela bakhe bamnikeza lokho okwakungathi kuyisinqumo sokugcina: Wayengaqhubeka nokuhlushwa yizinhlungu ezingapheli ngaphandle kokwazi ukuthi kungani noma aye ngaphansi komese ukuze athole ukuthi yini eyayingalungile.

Ngenkathi inqubo ye-laparoscopic ingahlasela kancane, "Umqondo wokuhlinzwa ukuze kutholakale ukuthi kunzima ukuwugwinya njengomuntu oneminyaka engu-16," uyakhumbula.

Ngakwesobunxele ngezindlela ezimbalwa, ekugcineni uMcGaughey ukhethe ukungahambeli phambili ngokuhlinzwa. Isinqumo, uthi, uzozisola ngokuhamba kwesikhathi, ngoba lokho kuchaze iminyaka eminingana ayichithe ebuhlungwini obunzima.

Kwaze kwaba ngemuva kokuphothula kwakhe ekolishi eneminyaka engama-21 lapho azizwa elungele ngokomqondo ukwenza inqubo futhi ekugcineni athole ukuxilongwa.

Uthi: "Udokotela ohlinzayo wathola i-endometriosis futhi wasusa okuningi ngangokunokwenzeka." Kodwa inqubo kwakungeyona ikhambi-konke ayenethemba lalo. "Amazinga ami obuhlungu ehla kakhulu ngemuva, kodwa unyaka nonyaka izinhlungu zibuya njengoba i-endo ikhula futhi."

Kwabesifazane abalinganiselwa ku-1 kwabayishumi abaneminyaka yobudala yokuzala eMelika abathintekile yilesi simo, lo mdlalo wekati negundane ujwayelekile kakhulu. Kodwa ngokungafani nezinye izifo ezinempendulo ecacile, alikho ikhambi elaziwayo le-endometriosis.

Lokho abaningi balaba besifazane abahlangana nabo, noma kunjalo, ukudideka.

Ngenkathi umsunguli nomphathi omkhulu weFlutter Health, uKristy Curry, eneminyaka engama-20, wayazi ukuthi kukhona okungahambi kahle ngemuva kokucishe adlule eshaweni ngenxa yokuqaqamba kokuya esikhathini.

Yize wayengajwayelene nezikhathi ezinde nezinobuhlungu obukhulu, lesi sikhathi sasihlukile. "Ngangingakwazi ukufika emsebenzini noma esikoleni izinsuku ezimbalwa futhi ngangilele embhedeni," kukhumbula isakhamuzi saseBrooklyn. "Bengicabanga ukuthi lokho kuvamile njengoba ungeke ngempela 'uqhathanise' ubuhlungu besikhathi nomunye umuntu.”

Nokho, konke lokhu kwashintsha ngokushesha lapho ezithola eqonda egumbini lezimo eziphuthumayo.

"Izifo zokuzala zabesifazane zibonakala ziyagqagqana nezinye izingqinamba endaweni," kusho uCurry, obezoqhubeka nokuvakasha iminyaka engu-ER ngezinhlungu zomgogodla ezingatholakali kahle njenge-IBS noma ezinye izindaba ezihlobene ne-GI.

Njengoba i-endometriosis ibangela ukuthi izicubu ezivalelekile zikhule futhi zisabalale ngaphandle kwesifunda se-pelvic, izitho ezithintekile ezinjengama-ovari kanye nesipiliyoni sesifuba soshintsho lwehomoni ngesikhathi sowesifazane, okudala ukuvuvukala okubuhlungu.

Futhi uma izimpawu zakho ziyinkimbinkimbi futhi zihlala ezingxenyeni zomzimba wakho ngaphandle kwesistimu yakho yokuzala, uCurry uthi, manje uzobhekana nochwepheshe abaningi nakakhulu.

Ukususa imibono eyiphutha

Izimbangela ngqo ze-endometriosis azikacaci. Kodwa enye yezinkolelo-mbono zokuqala isikisela ukuthi kwehlela kulokho okwaziwa ngokuthi i-retrograde menstruation - inqubo ehilela igazi lokuya esikhathini eligeleza libuyele emashubeni e-fallopian lingene embotsheni ye-pelvic esikhundleni sokushiya esithweni sangasese.

Yize isimo singalawulwa, enye yezinto eziyinselele kakhulu ekuqaleni kwalesi sifo ayikutholi ukuxilongwa noma ukwelashwa. Kukhona nokungaqiniseki nokwesaba ukungalokothi uthole ukukhululeka.

Ngokuya nge-onlinesurvey yakamuva eyenziwe yi-HealthyWomen yabesifazane abangaphezu kwe-1 000 nabasebenzi bezempilo abangama-352 (HCPs), ubuhlungu ngesikhathi naphakathi kwezikhathi yizimpawu eziyinhloko ezenze iningi labaphendulile bavakashela i-HCP yabo ukuthola ukuxilongwa. Isizathu sesibili nesesithathu sifaka izingqinamba zesisu, ubuhlungu ngesikhathi socansi, noma ukunyakaza kwamathumbu okubuhlungu.

Abaphenyi bathola ukuthi ngenkathi abesifazane abayi-4 kwabangu-5 abangenalo ukuxilongwa bezwe nge-endometriosis phambilini, abaningi banolwazi olulinganiselwe lokuthi lezi zimpawu zibukeka kanjani. Iningi likholelwa ukuthi izimpawu zifaka phakathi ubuhlungu phakathi nesikhathi nangesikhathi sokuya ocansini. Bambalwa abazijwayele ezinye izimpawu, njengokukhathala, izingqinamba zamathumbu, ukuchama kabuhlungu, nokunyakaza kwamathumbu okubuhlungu.

Okukhanyisa ngokwengeziwe, namanje, iqiniso lokuthi cishe uhhafu wabesifazane ngaphandle kokuxilongwa abazi ukuthi alikho ikhambi.

Le miphumela yocwaningo iveza inkinga enkulu maqondana nalesi simo. Ngenkathi i-endometriosis yaziwa kakhulu kunanini ngaphambili, kusalokhu kungaqondakali kahle, ngisho nabesifazane banokuxilongwa.

Indlela enamadwala yokuxilongwa

Olunye ucwaningo olwenziwe yithimba labacwaningi e-UK luveza ukuthi yize kunezinto eziningana ezingabamba iqhaza, "isizathu esisodwa esibalulekile salesi sifo ukuqhubeka kungaba ukubambezeleka kokuxilongwa."

Yize kunzima ukunquma ukuthi lokhu kungenxa yocwaningo lwezokwelapha olwanele, njengoba izimpawu zingavame ukulingisa ezinye izimo ezinjengama-ovarian cysts kanye nesifo sokuvuvukala okhalweni, into eyodwa icacile: Ukuthola ukuxilongwa akuyona into encane.

UPhilippa Bridge-Cook, u-PhD, usosayensi waseToronto osebenza ebhodini yabaqondisi be-The Endometriosis Network Canada, ukhumbula etshelwa ngudokotela womndeni wakhe phakathi neminyaka engama-20 ukuthi kwakungekho sizathu sokufuna ukuxilongwa ngoba kwakungekho kungenziwa nge-endometriosis noma kunjalo. "Okungelona iqiniso impela, kodwa bengingakwazi lokho ngaleso sikhathi," kuchaza uBridge-Cook.

Lokhu kwaziswa okungalungile kungahle kubangele ukuthi kungani cishe isigamu sabesifazane abangatholakali ocwaningweni lwe-HealthyWomen bebengayazi indlela yokuxilongwa.

Kamuva, ngemuva kokuthi u-Bridge-Cook ehlangabezane nokuchitheka kwesisu kaningana, uthi ama-OB-GYN amane ahlukene amtshela ukuthi angeke abe nokugula, ngoba uma enza kanjalo, uzoba nenzalo. Kuze kube yileso sikhathi, uBridge-Cook wayekhulelwe ngaphandle kobunzima.

Yize kuyiqiniso ukuthi izingqinamba zokuzala zingenye yezinkinga ezinzima kakhulu ezixhunyaniswe ne-endo, umqondo ophusile ovamile ukuthi kuzovimbela abesifazane ekukhulelweni nasekuthwaleni ingane kuze kube sesikhathini.

Okuhlangenwe nakho kukaBridge-Cook kuveza hhayi nje kuphela ukuntuleka kokuqwashisa egameni lama-HCP athile, kepha futhi nokuzwela maqondana nalesi simo.

Ngokubheka ukuthi kwabaphenduli bocwaningo abangama-850, cishe amaphesenti angama-37 kuphela azikhomba njengalabo abane-endometriosis diagnostic, umbuzo uhlala uthi: Kungani ukuthola ukuxilongwa kuyindlela enzima kangaka kwabesifazane?

Impendulo ingavele ilele ebulilini babo.

Ngaphandle kokuthi owesifazane oyedwa kwabane ocwaningweni wathi i-endometriosis ivame ukuphazamisa impilo yabo yansuku zonke - kanti oyedwa kwabayisihlanu uthi kuhlala kunjalo - labo ababike izimpawu zabo kuma-HCP bavame ukuxoshwa. Ucwaningo luphinde lwathola ukuthi amaphesenti ayi-15 abesifazane atshelwa ukuthi "Konke kusekhanda lakho," kuyilapho oyedwa kwabathathu etshelwe ukuthi "Kujwayelekile." Ngaphezu kwalokho, omunye oyedwa kwabathathu watshelwa ukuthi “Kuyingxenye yokuba ngowesifazane,” futhi owesifazane oyedwa kwabahlanu kwakudingeka abone ama-HCP amane kuya kwamahlanu ngaphambi kokuthola ukuxilongwa.

Lo mkhuba awumangazi unikezwe ukuthi ubuhlungu besifazane buvame ukunganakwa noma ukunganakwa ngokusobala embonini yezokwelapha. Olunye ucwaningo luthole ukuthi “Ngokuvamile, abesifazane babika amazinga obuhlungu asezingeni elibi kakhulu, izehlakalo ezivamile zokuba buhlungu, nobuhlungu besikhathi eside ukwedlula abesilisa, kodwa nokho baphathwa ngobuhlungu obungenabuhlungu.”

Futhi imvamisa kungenxa yalokhu kukhetha izinhlungu ukuthi abesifazane abaningi ngeke bafune usizo kuze kube yilapho izimpawu zabo zifinyelela ezingeni elingabekezeleleki. Iningi labaphenduli bocwaningo balinda iminyaka emibili kuya kwemihlanu ngaphambi kokubona i-HCP ukuthola izimpawu, kuyilapho oyedwa kwabahlanu elinde iminyaka emine kuya kweyisithupha.

"Ngizwa iziguli eziningi ze-endo zinganikezwa imithi yezinhlungu," kuchaza uMcGaughey, othi uyaqonda ukuthi odokotela abafuni ukuthi umuntu ancike kuma-opioid noma aphazamise isibindi noma isisu sabo ngama-anti-inflammatories. "Kodwa lokhu kushiye abesifazane namantombazane amaningi besezinhlungwini ezinzima kakhulu," esho. "Kunzima kakhulu ukuthi awukwazi ukuhamba, [abaningi] becabanga ukuthi kufanele bathathe ama-Advil amabili."

Ucwaningo luyameseka kulokhu - njengoba omunye abike ukuthi abantu besifazane mancane amathuba okuthi banikezwe amaphilisi ezinhlungu e-ER, yize kubuhlungu besisu.

Ingxenye yenkinga yehlela kwabesifazane namantombazane abakholwayo, uMcGaughey uyanezela. Uyakhumbula etshela omunye udokotela ukuthi wayebhekene nobuhlungu obunzima ngezikhathi, kodwa lokho akuzange kubhalise. Kuphela lapho echaza ukuthi kwakumbangela ukuthi aphuthe izinsuku eziningi zokusebenza inyanga ngayinye lapho udokotela alalela khona futhi waqaphela.

Uthi: “Kusukela ngaleso sikhathi kuqhubeke, ngalinganisa ubuhlungu engibuzwa ochwepheshe ezinsukwini zomsebenzi engabanjwanga,” esho. "Lokho kubaluleke ngaphezu kokukholwa nje yimibhalo yami yezinsuku zokuhlupheka."

Izizathu zokuchitha ubuhlungu besifazane zigutshuzelwe imikhuba yobulili yamasiko, kodwa futhi, njengoba ucwaningo lwembula, "ukungabibikho okujwayelekile kokubekwa phambili kwe-endometriosis njengenkinga ebalulekile yezempilo yabesifazane."

Impilo engaphezu kokuxilongwa

Kudala ngemuva kokuphothula iziqu zakhe zasekolishi, uMcGaughey uthi uchithe isikhathi esiningi ngokweqile ebhekelela ubuhlungu bakhe. "Kuhlukanisa futhi kuyacindezela futhi kuyisicefe."

Uyacabanga ukuthi impilo yakhe ngabe injani ukube ubengenakho ukugula. “Nginenhlanhla enkulu yokuba nendodakazi yami, kodwa ngiyazibuza ukuthi ngingavuma yini ukuzama ingane yesibili uma ngingenayo i-endometriosis,” kuchaza, okwabambezela ukukhulelwa phakathi neminyaka yokungabi nenzalo futhi kwaphetha ngokuhlinzwa okusikwayo . "[Lesi simo] siyaqhubeka nokuqeda amandla ami ngendlela eyenza ingane yesibili ibonakale ingafinyeleleki."

Ngokunjalo, uBridge-Cook uthi ukuphuthelwa yisikhathi nomndeni wakhe lapho enezinhlungu eziningi kakhulu zokuvuka embhedeni kube yingxenye enzima kakhulu yesipiliyoni sakhe.

Abanye abanjengoCurry bathi umzabalazo omkhulu kube ukudideka nokungaqondi. Noma kunjalo, uzwakalisa ukwazisa ngokufunda ngesimo sakhe kusenesikhathi. "Ngibe nenhlanhla, eminyakeni engamashumi amabili, ukuthi i-OB-GYN yami yokuqala yasola i-endometriosis futhi yahlinzwa nge-laser ablation." Kodwa, uyanezela, lokhu bekungafani nalomthetho, njengoba iningi lokuphendula kwakhe kwe-HCP kube lolo lokungazi kahle. "Ngiyazi ukuthi ngibe nenhlanhla nokuthi abesifazane abaningi abane-endo abanayo inhlanhla."

Ngenkathi umsebenzi wokuqinisekisa ukuthi abesifazane bahlala benolwazi olwanele ngalesi simo uhlala kuma-HCPs, uMcGaughey ugcizelela ukuthi abesifazane kumele bazenzele olwabo ucwaningo futhi bazimele. "Uma udokotela wakho engakukholwa, thola udokotela omusha," kusho uMcGaughey.

Ngokufana nengxenye engaphezu kwengxenye yabaphenduli bocwaningo nabo abatholwe yi-OB-GYN, uhambo lweCurry's endo lwalusekude ukuphela. Ngisho nangemva kokuthola ukuxilongwa nokuhlinzwa, waqhubeka nokuchitha iminyaka engamashumi amabili eyalandela efuna izimpendulo nosizo.

"Izazi eziningi zabesifazane aziyisebenzisi kahle i-endometriosis," kusho uBridge-Cook, owalinda iminyaka eyi-10 kusukela ngesikhathi aqala ukusola ukuthi kukhona okungahambi kahle eminyakeni engama-20 ngaphambi kokuthola ukuxilongwa. "Ukuhlinzwa kwe-Ablation kuhlotshaniswa nezinga eliphakeme kakhulu lokuphindaphinda," echaza, "kepha ukuhlinzwa okusikiwe, okuyinto odokotela abaningi besifazane abakwenzi, kusebenza kakhulu ekunciphiseni izimpawu zesikhathi eside."

Okusanda kumqinisa kulokhu, njengoba abacwaningi bathole ukuthuthuka okukhulu kakhulu ebuhlungwini obungapheli be-pelvic obubangelwa i-endometriosis ngenxa yokukhishwa kwe-laparoscopic uma kuqhathaniswa ne-ablation.

Ngokusho kukaBridge-Cook, ukufaka indlela yokwelashwa ehlukahlukene kunikeza imiphumela emihle kakhulu. Usebenzise inhlanganisela yokuhlinzwa okusikiwe, ukudla, ukuzivocavoca, kanye ne-physiotherapy ye-pelvic ukuthola ukukhululeka. Kepha futhi uthole ukuthi i-yoga ibaluleke kakhulu ekulawuleni izingcindezi ezibangelwa ukuhlala nokugula okungalapheki.

Yize uMcGaughey ephawula ukuthi kokubili ukuhlinzwa kwakhe kwaba nomthelela omkhulu ekunciphiseni ubuhlungu bakhe nasekubuyiseleni izinga lempilo yakhe, umile ekutheni akukho okuhlangenwe nakho okubili okufanayo. "Indaba yawo wonke umuntu yehlukile."

Uyachaza, “Akuwona wonke umuntu ongathola ukuhlinzwa osezingeni eliphakeme odokotela abahlinzayo abaqeqeshelwe ukubona nokwandisa i-endometriosis,” futhi abanye abantu bathambekele kakhulu ekuthuthukiseni izicubu ezibomvu kunabanye. Ukunciphisa isikhathi sokutholakala ngendlela engeyona eyokuhlinza, uyangeza, kungenza umehluko.

Ukunxenxa ukunakekelwa okungcono

Indlela i-HCPs ebaphatha ngayo abesifazane ababhekene nobuhlungu ngokulinganayo, uma kungenjalo, ibalulekile ekutheni babhekana kanjani nalesi simo uqobo.Ukwazi lokhu kucwasa okungokwemvelo kobulili kuyisinyathelo sokuqala, kepha okulandelayo kubandakanya ukufaka ulwazi olukhulu nokukhulumisana ngozwela.

Intuthuko ebaluleke kakhulu ohambweni lukaCurry endo ifike ngokushesha ngemuva kokuhlangana nodokotela owayengazi nje kuphela, kodwa futhi onozwelo. Lapho eqala ukumbuza imibuzo engahlobene ne-endometriosis okungekho omunye udokotela owayenayo eminyakeni engama-20, waqala ukukhala. Ngizwe ukukhululeka ngokushesha nokuqinisekiswa. ”

Ngenkathi umsebenzi wokuqinisekisa ukuthi abesifazane bahlala benolwazi olwanele ngalesi simo uhlala kuma-HCPs, uMcGaughey ugcizelela ukuthi abesifazane kumele bazenzele olwabo ucwaningo futhi bazimele. Uphakamisa ukubonisana nodokotela abahlinzayo, ukujoyina izinhlangano ze-endo, nokufunda izincwadi ngale ndaba. "Uma udokotela wakho engakukholwa, thola udokotela omusha," kusho uMcGaughey.

"Ungalindi iminyaka isezinhlungwini njengoba ngenza ngenxa yokwesaba ukuhlinzwa okwenziwa nge-laparoscopic." Uphinda ancome ukuthi abesifazane bakhuthaze ukwelashwa kobuhlungu okufanele, njenge-Toradol engeyona eyomlutha.

Kude nokufuna izimpendulo okwathatha amashumi eminyaka, laba besifazane babelana ngesifiso esinamandla esifanayo sokunika abanye amandla. "Khuluma ngobuhlungu bakho bese wabelana ngayo yonke imininingwane ye-nitty-gritty," kunxusa uCurry. "Udinga ukukhuphula isisu sakho, ucansi olubuhlungu, nezinkinga zesinye."

Uyanezela: "Izinto okungekho muntu ofuna ukukhuluma ngazo zingaba yingxenye ebalulekile yokuxilongwa nokunakekelwa kwakho,"

Into eyodwa eyenziwe yacaca ocwaningweni lweHealthyWomen ukuthi ubuchwepheshe bungaba umlingani omkhulu wesifazane uma kukhulunywa ngokuhlala unolwazi. Imiphumela ikhombisa ukuthi iningi labesifazane abangaxilongiwe lifuna ukufunda kabanzi nge-endometriosis nge-imeyili nange-inthanethi - futhi lokhu kusebenza ngisho nakulabo abatholakele futhi abangenandaba kangako nokufunda kabanzi.

Kepha futhi ingasetshenziswa njengendlela yokuxhumana nabanye emphakathini we-endo.

Ngaphandle kwayo yonke iminyaka yokukhungatheka nokungaqondi kahle, umugqa owodwa wesiliva weCurry kube ngabesifazane ahlangane nabo ohambweni olufanayo. "Bayangeseka futhi wonke umuntu ufuna ukusizana nganoma iyiphi indlela angakwazi ngayo."

"Ngicabanga manje ukuthi abantu abaningi bayazi nge-endometriosis kulula ukukhuluma ngayo," kusho uCurry. "Esikhundleni sokuthi uthi awuzwa kahle ngenxa 'yobuhlungu besifazane' ungathi 'ngine-endometriosis' futhi abantu bayazi."

UCindy Lamothe yintatheli ezimele ezinze eGuatemala. Ubhala kaningi ngemiphambanandlela phakathi kwezempilo, inhlalakahle, nesayensi yokuziphatha komuntu. Ubhalelwe i-The Atlantic, New York Magazine, Teen Vogue, Quartz, The Washington Post, nezinye eziningi. Mthole ku- utbindani.com.