Konke Odinga Ukukwazi Nge-PPMS kanye Nasemsebenzini

-Delile

• Ngabe ngidinga ukushiya umsebenzi wami ngemuva kokuxilongwa?
• Ngazi kanjani ukuthi ngizodinga ukushintsha imisebenzi?
• Ngabe ngidinga ukudalula isimo sami kumqashi wami?
• Ngikucela kanjani indawo yokuhlala emsebenzini?
• Yini ebhekwa njengezindawo zokuhlala ezinengqondo?
• Ngabe omunye umsebenzi wami ungathinteka kanjani?
• Ngizokwazi ukuhamba emsebenzini?
• I-PPMS ingawuthinta ngokushesha kangakanani umsebenzi wami?
• Yiziphi izinketho ezingcono kakhulu zomsebenzi kubantu abane-PPMS?
• Kuthiwani uma ngingasakwazi ukusebenza?

Ukuba ne-multiple sclerosis eqhubekayo eqhubekayo (i-PPMS) kungaqinisekisa ukulungiswa kwezici ezahlukahlukene zempilo yakho, kufaka phakathi nomsebenzi wakho. Ezimweni ezinzima, i-PPMS ingenza kube yinselele ukusebenza. Ngokusho kwendatshana ekule ncwadi, i-PPMS ibangela amathuba aphezulu okuthi angakwazi ukusebenza uma kuqhathaniswa nezinye izinhlobo ze-MS.

Kodwa-ke, lokhu akusho ukuthi kufanele uyeke ukusebenza ngokuphelele. Nazi izimpendulo kweminye yemibuzo ejwayelekile ehlobene nomsebenzi mayelana ne-PPMS.

Ngabe ngidinga ukushiya umsebenzi wami ngemuva kokuxilongwa?

Cha. Empeleni, iNational MS Society iphakamisa ukuthi leli elinye lamaphutha ajwayelekile kakhulu enziwa yilabo abasanda kuthola ukuxilongwa. Izimpawu zingakhula ngokuqhubekayo ngalolu hlobo lwe-MS, kodwa lokhu akusho ukuthi kufanele ushiye umsebenzi wakho khona manjalo.

Udokotela wakho uzokunikeza ukuholwa uma kukhulunywa ngomsebenzi wakho kanye ne-PPMS. Uma bezwa ukuthi umsebenzi wakho awuphephile nganoma yisiphi isizathu, bazokunikeza izeluleko ngaphambi kwesikhathi.

Ngazi kanjani ukuthi ngizodinga ukushintsha imisebenzi?

Ukuzihlola kungasiza kakhulu ekwenzeni lesi sinqumo. Okokuqala bhala izidingo zakho zomsebenzi kanye nalokho okuletha etafuleni. Bese wenza uhlu lwezimpawu zakho. Bona ukuthi ngabe yiziphi izimpawu zakho ezithinta ngqo ikhono lakho lokwenza noma yimiphi imisebenzi ehlobene nomsebenzi oyenzayo njalo. Uma ucabanga ukuthi izimpawu ze-PPMS seziqala ukuphazamisa umsebenzi wakho, ungacabanga ukukhuluma nomphathi wakho mayelana nokuguqula indima yakho ngaphambi kokushiya umsebenzi wakho ngokuphelele.

Ngabe ngidinga ukudalula isimo sami kumqashi wami?

Asikho isidingo esingokomthetho sokudalula umqashi wakho ukuxilongwa kwe-PPMS. Ungahle ungabaze ngokudalula, ikakhulukazi uma usanda kuthola ukuxilongwa.

Kodwa-ke, ungathola ukuthi ukudalula isimo sakho kuzoholela ezindaweni zokuhlala ongazidinga emsebenzini. Kuphambene nomthetho ukuthi umqashi abandlulule noma axoshe othile ngenxa yokukhubazeka - lokhu kufaka iPPMS.

Linganisa lesi sinqumo ngokucophelela, bese ucela iseluleko kudokotela wakho.

Ngikucela kanjani indawo yokuhlala emsebenzini?

Isihloko I somthetho waseMelika okhubazekile (i-ADA) awugcini nje ngokuvimbela ukubandlululwa okusekelwe ekukhubazekeni, kodwa futhi sidinga ukuthi abaqashi banikeze izindawo zokuhlala ezifanele. Ukuze uthole indawo yokuhlala, kuzodingeka ukhulume nomqashi wakho noma umuntu omele abasebenzi emsebenzini.

Yini ebhekwa njengezindawo zokuhlala ezinengqondo?

Ezinye izibonelo zendawo yokuhlala emsebenzini ezingasiza nge-PPMS zifaka:

• izinketho zokusebenzela ekhaya
• inketho yokusebenza itoho
• ubuchwepheshe bokusiza
• indawo yokupaka iyashintsha
• ukulungiswa kwehhovisi ukuze kuhlaliswe izihlalo ezinamasondo
• izengezo ezindlini zangasese, ezifana nemigoqo yokubamba kanye nokomisa okuzenzakalelayo

Kodwa-ke, i-ADA ayidingi umqashi ukuthi enze izinguquko ezingadala ubunzima. Izibonelo zifaka ukudala imisebenzi emisha nokuhlinzeka ngedivayisi yokuhamba yomuntu siqu.

Ngabe omunye umsebenzi wami ungathinteka kanjani?

Izimpawu ze-PPMS njengokukhathala okukhulu, ukudangala, kanye nokukhubazeka kwengqondo kungadala ukungabikho emsebenzini. Ungadinga futhi ukuphuthelwa ingxenye yosuku lwakho lomsebenzi ngenxa yokuqokwa kukadokotela, ukwelashwa ngokomzimba, kanye nokwelashwa emsebenzini.

Ngizokwazi ukuhamba emsebenzini?

I-PPMS ibangela izilonda eziningi emgogodleni kunobuchopho uma kuqhathaniswa nezinye izinhlobo ze-MS. Lokhu kungasho ukuthi ungahle uthambekele ebunzimeni obuningi bokuhamba njengoba isifo siqhubeka. Kodwa-ke, isikhathi esiqondile salokhu siyehluka, futhi akuwona wonke umuntu ozobhekana nobunzima bokuhamba. Ukwelashwa ngokomzimba kungakusiza ugcine ikhono lakho lokuhamba. Ngakho-ke ungahle ungabhekani nezinselelo ngokuhamba okuhlobene nomsebenzi.

I-PPMS ingawuthinta ngokushesha kangakanani umsebenzi wami?

Njengoba kunikezwe iqiniso lokuthi i-PPMS ingathatha iminyaka embalwa ukuxilonga ngokunembile nokuthi iyaqhubeka, kungenzeka ukuthi usuvele uhlangabezana nezimpawu ngenkathi usemsebenzini. Izinga lokukhubazeka liphakeme ngaleli fomu le-MS, kepha ukungenelela kwangaphambi kwesikhathi kungasiza ukwehlisa ukuqala kwangaphambi kwesikhathi. Sekukonke, imiphumela emsebenzini wakho ekugcineni incike ohlotsheni lomsebenzi owenzayo, kanye nobukhulu bezimpawu zakho.

Isiguli se-MS eNorway sathola ukuthi cishe amaphesenti angama-45 asasebenza amashumi amabili eminyaka ngemuva kokutholakala okokuqala. Ngenxa yokukhubazeka, iphesenti leziguli ze-PPMS ezazisebenza lalilincane, cishe lalingamaphesenti ayi-15.

Yiziphi izinketho ezingcono kakhulu zomsebenzi kubantu abane-PPMS?

Ayikho imisebenzi ethile elungele abantu abane-PPMS. Umsebenzi wakho omuhle owuthandayo, onamakhono owabekele, futhi ongenza kahle. Lokhu kungafaka imisebenzi ehlukahlukene, kusuka ebhizinisini kuya ekwamukeleni izihambi, insizakalo, nakwezemfundo. Ngokobuchwepheshe, awukho umsebenzi ovinjelwe. Isihluthulelo ukukhetha umsebenzi owuthandayo futhi ozizwa uphephile ukuwenza.

Kuthiwani uma ngingasakwazi ukusebenza?

Ukuyeka umsebenzi wakho ngenxa ye-PPMS kuyisinqumo esinzima, futhi imvamisa kuyisinqumo sokugcina ngemuva kokuhlala kungasasizi.

Abantu abane-PPMS bavame ukudinga izinzuzo zomshuwalense wokukhubazeka komphakathi (i-SSDI). I-SSDI ingasiza ukukhokhela izindleko eziyisisekelo zokuphila uma ungasakwazi ukusebenza.

Khuluma nodokotela wakho ngezinye izinsiza ongazithola uma ungasakwazi ukusebenza.