Ukushada Ne-Rheumatoid Arthritis: Indaba Yami

-Delile

• 1. Imayelana nawe nomunye wakho obalulekile
• 2. Cabanga ukuqasha i-planner, uma ungakwazi
• 3. Ungesabi ukucela usizo
• 4. Zibeke ezingeni
• 5. Ungakwenzi kube yinto yosuku lonke
• 6. Ungahleli inqwaba yokuqokwa kodokotela
• 7. K.I.S.S.
• 8. Gqoka izicathulo ezintofontofo
• 9. Musa ukujuluka izinto ezincane
• 10. Usuku lomshado luyingxenye encane kuphela yempilo yenu ndawonye
• Ukuthatha

Isithombe nguMitch Fleming Photography

Ukushada kwakuhlala kuyinto engangiyifisa. Kodwa-ke, lapho kutholakala ukuthi ngine-lupus ne-rheumatoid arthritis ngineminyaka engu-22, umshado waba nomuzwa wokuthi wawungeke utholakale.

Ubani ongafuna ngamabomu ukuba yingxenye yempilo enzima yezifo eziningi ezingamahlalakhona? Ubani ongafuna ukwenza isifungo "ekuguleni nasempilweni" lapho kungaphezu komqondo wokucabanga nje? Ngokujabulisayo, yize kwaze kwaba ngama-30s wami, ngathola lowo muntu kimi.

Noma ungekho nokugula okungalapheki, ukuhlela umshado kungaba yinto ecindezelayo. Kunovalo bonke omakoti abanalo ngosuku lwabo lomshado.

Ngabe ngizoyithola ingubo ephelele futhi ingabe isazolingana ngosuku lomshado? Ingabe izulu lizoba lihle? Ngabe izivakashi zethu zizokujabulela ukudla? Ngabe bazoyithokozela yonke imininingwane yomuntu siqu esiyifakile emshadweni wethu ongajwayelekile?

Futhi-ke kukhona ukwesaba umakoti onesifo samathambo onaso ngosuku lwabo lomshado.

Ngabe ngizozizwa ngikahle futhi ngikwazi ukuhamba ngingenabuhlungu? Ngizoba namandla anele ngomdanso wokuqala nokubingelela zonke izivakashi zethu? Ngabe ukucindezeleka kosuku kuzongithumela ekuvutheni?

Njengoba ngiphile isipiliyoni ngokwami, ngithole umqondo ngezinye zezinselelo, izingibe, kanye nezenzo eziwusizo labo abaphila nezifo ezingamahlalakhona abangazithatha. Nazi izinto eziyi-10 okufanele uzikhumbule.

1. Imayelana nawe nomunye wakho obalulekile

Uzothola izeluleko eziningi ongazicelanga, kepha kufanele wenze okukusebenzelayo. Sasinabantu abangama-65 emshadweni wethu. Sikwenzile okusisebenzele.

Kunezikhathi lapho ngangibuza ukuthi ngabe kufanele sivele nje noma cha ngenxa yawo wonke umsindo ovela kwabanye. Abantu abakuthandayo nabakusekelayo bazoba lapho noma ngabe bathini, ngakho-ke uma abantu bezokhononda, mabavumele. Ngeke ukwazi ukujabulisa wonke umuntu, kodwa akukhulunywa ngabo noma kunjalo.

2. Cabanga ukuqasha i-planner, uma ungakwazi

Isithombe nguMitch Fleming Photography

Senze cishe yonke into ngokwethu, kusukela ekukhetheni nasekuhambiseni izimemo kuya ekulungiseleleni indawo. Ngingu-'Type A 'ngakho-ke leyo yingxenye ebengiyifuna ngayo, kepha bekuwumsebenzi omningi. Sasinomxhumanisi wosuku, owayekhona ngokoqobo ukusibeka ezansi, futhi lokho kwakumayelana nakho.

3. Ungesabi ukucela usizo

Umama nabanye babangane bami abahle babamba isandla ukusisiza ukuthi simise indawo ngobusuku obandulela umshado wethu. Kwakuyindlela enhle yokubopha nokuchitha isikhathi ndawonye, ​​kepha futhi kwakusho ukuthi nganginabantu engangincika kubo ukuze ngifeze umbono wami ngaphandle kokuthi ngenze konke ngokwami ​​- nangaphandle kokuthi ngikhokhe umuntu ukuze akwenze.

4. Zibeke ezingeni

Awufuni ukukhathala ngakho konke ukuhlela ukuthi awukwazi ukujabulela umshado wangempela. Ngangihleleke kakhulu, futhi ngazama ukubheka izinto ohlwini ngaphambi kwesikhathi ukuze kungasali lutho olukhulu kuze kube umzuzu wokugcina.

5. Ungakwenzi kube yinto yosuku lonke

Nganginemishado emibili ehlobo eledlule. Kusukela lapho ngiqala ukuzilungiselela kuze kufike isikhathi lapho umcimbi usuphelile, bekudlule amahora amahle ayi-16.

Ngomshado wami, saqala ukuzilungiselela ngo-8 ekuseni, umcimbi wawungo-12 ntambama, futhi izinto zaqala ukushaya ngabo-3 ntambama. Ngesikhathi kwenzeka ukuhlanzwa, ngakhishwa ngaphandle.

6. Ungahleli inqwaba yokuqokwa kodokotela

Isithombe nguLeslie Rott Welsbacher

Noma ungahle ube nesikhathi sokuphumula, gwema ukuhlela inqwaba yama-aphoyintimenti odokotela ngesonto lomshado wakho. Bengicabanga ukuthi ngihlakaniphile ngokuhlela ama-aphoyintimenti ngenkathi ngiphumule emsebenzini, kodwa bekungadingekile.

Kuningi kakhulu ozodinga ukukwenza ngaphambi komshado wakho. Ngaphandle kokuthi unesizathu sokubona udokotela wakho noma odokotela, ungaziphoqi. Impilo eningi engalapheki isivele igcwele ama-aphoyintimenti.

7. K.I.S.S.

Ngenkathi kufanele kube nokushelela okuningi ngosuku lwakho lomshado, akusikho engikushoyo. Kunalokho, “Yigcine Ilula, Isiphukuphuku!”

Kanye nokuba nomshado omncane, saba nephathi elincane lomshado. Udadewethu wayeyiMaid of Honor wami futhi umfowabo kamkhwenyana wami kwakunguBest Man. Kwaba yilokho-ke.

Kwasho ukuthi kwakungadingeki sihlele amathani abantu, asizange sibe nesidlo sakusihlwa sokuprakthiza, futhi kwavele kwenza izinto zaba lula. Siphinde saba nomcimbi nokwamukelwa endaweni efanayo ngakho-ke bekungafanele sihambe noma yikuphi.

8. Gqoka izicathulo ezintofontofo

Isithombe nguMitch Fleming Photography

Nganginezimbadada ezimbili zezicathulo zosuku olukhulu. Esokuqala kwakuyizithende zikanokusho engangizigqoka ukuze ngihambe ngiphaseji futhi ngangazi ukuthi kuzodingeka ngisuke ngokushesha ngemva komkhosi. Elinye kwakuyizicathulo eziwubukhazikhazi zamateki amahle abomvana engangiwagqoka sonke isikhathi, kufaka phakathi ngesikhathi somdanso wethu wokuqala.

9. Musa ukujuluka izinto ezincane

Wonke umuntu ufuna umshado wakhe uphelele, kepha uma kukhona into eyodwa noma ngubani onesifo esingelapheki aziyo, izinto azihlali zihamba njengokuhleliwe.

Usuku lwakho lomshado alunjalo, noma ngabe uhlela kangakanani. Sibe nenkinga ngohlelo lwemisindo endaweni yethu. Kungenzeka kube okulimazayo, kodwa angicabangi ngempela ukuthi kukhona obonile.

10. Usuku lomshado luyingxenye encane kuphela yempilo yenu ndawonye

Kulula ukushukelwa emcabangweni wokushada nakho konke okuhambisana nosuku lomshado, ikakhulukazi uma ukhathazekile ngokuthi kungenzeka kungaze kwenzeke kuwe. Kepha iqiniso liwukuthi, umshado uqobo ungamahora ambalwa nje empilweni yakho nonke.

Ukuthatha

Uma ugxila ezidingweni zakho bese uhlela kusengaphambili, usuku lwakho lomshado ekugcineni luzophenduka kube yilolo suku owaluphupha - ongasoze walukhohlwa. Kimi, bekunenjabulo. Impela, bengisakhathele ukuphela kwayo, kepha bekufanele.

U-Leslie Rott Welsbacher kwatholakala ukuthi une-lupus ne-rheumatoid arthritis ngo-2008 eneminyaka engama-22, ngonyaka wakhe wokuqala esikoleni esiphothule. Ngemuva kokutholakala ukuthi uthini, uLeslie waqhubeka nokuthola i-PhD kwi-Sociology e-University of Michigan kanye ne-master's degree kwezokumela ezempilo e-Sarah Lawrence College. Ubhala ibhulogi ethi Ukuzisondeza Kimi, lapho abelana khona ngamava akhe abhekana nawo nokuphila nezifo eziningi ezingamahlalakhona, ngokungagunci nangokuhlekisa. Ungummeli oqeqeshiwe wesiguli ohlala eMichigan.