Unyaka Wami Wokuqala nge-MS

-Delile

• UMarie Robidoux
• UJanet Perry
• UDoug Ankerman
• Ukuthatha

Ukufunda ukuthi une-multiple sclerosis (MS) kungadala imizwa eminingi. Ekuqaleni, ungakhululeka lapho wazi ukuthi yini ebangela izimpawu zakho. Kodwa-ke, imicabango yokukhubazeka nokusebenzisa isihlalo esinamasondo kungenzeka ikwethuse ngalokho okuzayo.

Funda ukuthi abantu abathathu abane-MS baqede kanjani unyaka wabo wokuqala futhi basaphila impilo enempilo, futhi ekhiqizayo.

UMarie Robidoux

UMarie Robidoux wayeneminyaka engu-17 lapho kutholakala ukuthi une-MS, kodwa abazali bakhe nodokotela bakugcina kuyimfihlo kwaze kwaba yilapho ezalwa eneminyaka engu-18. Wayethukuthele egane unwabu.

Uthi: “Ngaphatheka kabi lapho ekugcineni ngithola ukuthi ngine-MS. “Kungithathe iminyaka ukuba ngikhululeke ngokwanele ukutshela noma ngubani ukuthi ngine-MS. Kwezwakala sengathi kuyisihlamba esinjalo. [Kwakungathi] ngiyisiphukuphuku, umuntu okufanele ngiqhelane naye, ngimgweme. ”

Njengabanye, unyaka wakhe wokuqala wawunzima.

"Ngichithe izinyanga ngibona kabili, ikakhulukazi ngilahlekelwe ukusetshenziswa kwemilenze yami, nginezinkinga zokulinganisa, konke lokhu ngenkathi ngizama ukuya ekolishi," esho.

Ngenxa yokuthi uRobidoux wayengenakho okulindelwe yilesi sifo, wacabanga ukuthi "isigwebo sentambo." Wayecabanga ukuthi, ekugcineni, wayezophelela endaweni yokunakekelwa, esebenzisa isihlalo esinamasondo, futhi ancike ngokuphelele kwabanye.

Ufisa sengathi ngabe uyazi ukuthi i-MS ithinta wonke umuntu ngokuhlukile. Namuhla, unqunyelwe ngandlela thile ngokuhamba kwakhe, esebenzisa induku noma insimbi yokumsiza ukuba ahambe, futhi uyaqhubeka nokusebenza ngokugcwele.

"Ngikwazile ukujwayela, kwesinye isikhathi naphezu kwami, kuwo wonke amabhola ajika kimi eMMS," esho. “Ngiyakujabulela ukuphila futhi ngijabulela engikwaziyo uma ngikwazi.”

UJanet Perry

"Kubantu abaningi abane-MS, kunezibonakaliso, okuvame ukunganakwa, kodwa izimpawu ngaphambi kwesikhathi," kusho uJanet Perry. "Kimi, ngelinye ilanga ngangiphilile, lapho-ke nganginenkinga, ngiya ngokuya ngiya esibhedlela, zingakapheli izinsuku ezinhlanu."

Uphawu lwakhe lokuqala kwaba ukuphathwa ikhanda, kwalandela isiyezi. Waqala ukugijimela ezindongeni, futhi wabona umbono ophindwe kabili, ukungalingani kahle, nokuba ndikindiki ohlangothini lwesobunxele. Wazithola esekhala futhi esesimeni sokuxokozela ngaphandle kwesizathu.

Noma kunjalo, lapho etholakala, umuzwa wakhe wokuqala waba umuzwa wokukhululeka. Odokotela phambilini babecabanga ukuthi ukuhlaselwa kwakhe okokuqala yi-MS kwakuwuhlangothi.

Uthi: "Kwakungeyona isigwebo sentambo esibi." “Kungalashwa. Ngingaphila ngaphandle kwalolo songo phezu kwami. ”

Yiqiniso, indlela eya phambili yayingelula. UPerry kwakudingeka afunde kabusha ukuthi angahamba kanjani, ukuthi angakhuphuka kanjani izitebhisi nokuthi angajika kanjani ikhanda lakhe ngaphandle kokuzizwa enekhanda elincane.

Uthi: “Ngangikhathele ngaphezu kwanoma yini enye ngokuzikhandla kwakho konke. “Awukwazi ukuziba izinto ezingasebenzi noma ezisebenza kuphela uma ucabanga ngazo. Lokhu kukuphoqa ukuthi uqaphele futhi okwamanje. ”

Ufunde ukucabanga kakhulu, ecabanga ngalokho umzimba wakhe ngokwenyama ongakwenza nongakwazi ukukwenza.

"I-MS yisifo esihlekisayo futhi ngoba ukuhlaselwa akukwazi ukubikezelwa, kunengqondo ukuhlela okuhle kusengaphambili," esho.

UDoug Ankerman

“Ukucabanga nge-MS kungidlile,” kusho uDoug Ankerman. "Kimi, i-MS ibiyimbi ekhanda lami kunomzimba wami."

Udokotela oyinhloko ka-Ankerman usola i-MS ngemuva kokukhononda ngokuba ndikindiki esandleni sakhe sobunxele nokuqina komlenze wakhe wangakwesokudla. Sekukonke, lezi zimpawu zahlala zingaguquguquki phakathi nonyaka wakhe wokuqala, okwamvumela ukuthi acashe kulesi sifo.

Uthi: “Angibatshelanga abazali bami cishe izinyanga eziyisithupha. “Lapho ngibavakashele, ngangingena ngesinyenyela endlini yangasese ngidubule kanye ngesonto. Ngangibukeka ngiphilile, pho kungani sabelana ngalezi zindaba? ”

Uma ebheka emuva, u-Ankerman uyaqaphela ukuthi ukuphika ukuxilongwa kwakhe, futhi "ukukusunduza kujule ekhabethe," bekuyiphutha.

"Nginomuzwa wokuthi ngilahlekelwe yiminyaka emihlanu noma eyisithupha yempilo yami ngidlala umdlalo wokuphika," esho.

Eminyakeni engu-18 edlule, isimo sakhe siye sancipha kancane kancane. Usebenzisa izinsiza eziningana zokuhamba, kufaka phakathi izinduku, izilawuli zezandla, nesihlalo esinamasondo ukuzulazula. Kepha akavumeli lezi hang-hang zimnciphise.

"Manje sengisezingeni lokuthi ngine-MS yami eyangethusa lapho ngiqala ukutholakala, futhi ngiyabona ukuthi akukubi kangako," esho. "Ngingcono kakhulu kunabaningi abane-MS futhi ngiyabonga."

Ukuthatha

Ngenkathi i-MS ithinta wonke umuntu ngokuhlukile, abaningi babhekana nezinkinga ezifanayo kanye nokwesaba onyakeni wokuqala ngemuva kokuxilongwa. Kungaba nzima ukwamukela ukuxilongwa kwakho futhi ufunde ukuthi ungazivumelanisa kanjani nempilo ne-MS. Kepha laba bantu abathathu bafakazela ukuthi ungadlula kuleso sikhathi sokungaqiniseki nokukhathazeka, futhi weqe okulindele ngekusasa.