Ama-Hacks Wami Okufanele Ube Nama-Psoriatic Arthritis

-Delile

• Amandla okulalela, ukulalela, nokulalela okunye
• Sekela uhlelo lwakho lokusekela
• Zinike umusa omncane
• Hlela
• Sebenzisa 'i-vortex yezohwebo'
• Ukudla okudlela endlini

Uma ucabanga ngama-hacks we-psoriatic arthritis (PsA), ungahle ulindele imikhiqizo engiyithandayo noma amaqhinga engiwasebenzisayo ukwenza ukuphila ne-PsA kube lula kancane. Impela, nginemikhiqizo ethile engiyithandayo, efaka amapayipi okushisa, amaphakethe e-ice, okhilimu, namafutha okugcoba. Kepha iqiniso liwukuthi, ngayo yonke le mikhiqizo namasu, ukuhlala ne-PsA kunzima nje.

Uma kukhulunywa ngakho, kukhona lonke isethi yama-hacks abaluleke kakhulu ukuba nawo ebhokisini lakho lamathuluzi.

Imikhiqizo namasu eceleni, nansi ama-hacks wami we-PsA okumele ngibe nawo ukuze ngiphile kalula nalesi simo esingelapheki.

Amandla okulalela, ukulalela, nokulalela okunye

Imizimba yethu ihlale isithumela izimpawu mayelana "nesimo senyunyana" esikhona manje. Ubuhlungu esibuzwayo, nokuthi sibuzwa isikhathi esingakanani, kusinikeza umkhondo wokuthi kufanele sibaphathe kanjani. Isibonelo, uma ngikwenza ngokweqile ukuthunyelwa okuthile, ukuphuma nabangani, noma ngisho nokuvuka nje embhedeni, umzimba wami uyangazisa.

Kepha kungenzeka singalaleli njalo izimpawu ezingaqondakali ezisithunyelwa yimizimba yethu.

Naka futhi ulalele zonke izimpawu ozitholayo, ezinhle nezimbi. Uzokwazi ukwenza izinketho ezingcono ngokuzayo ukusiza ukugcina ukuvutha kuvulekile.

Sekela uhlelo lwakho lokusekela

Uhlelo lokusekela oluqinile lungenza umehluko uma uhlala ne-PsA. Ukuzizungeza nabantu abanganikeza ukusekelwa ngokomzimba nangokomzwelo kubalulekile. Into eyodwa esingehluleka ukuyikhumbula, nokho, ukuthi ngisho nalabo abaphakathi kohlelo lwethu lokusekelwa badinga ukuxhaswa okuncane okwabo kwesinye isikhathi.

Abantu abasisizayo abakwazi ukuthela enkomishini engenalutho.

Njengeziguli ze-PsA, silangazelela ukwesekwa nokuqondwa, ikakhulukazi kulabo esibathanda kakhulu. Kodwa ingabe sibanikeza ukusekelwa okufanayo nokuqonda kubo? Sithanda ukwazi ukuthi amazwi ethu ayezwakala futhi nokugula kwethu okungamahlalakhona kuyaqinisekiswa, kepha ngabe lokho kusekela kungumgwaqo onhlangothi zombili, noma ngabe silindele kuphela ukuthi abanye basinikeze?

Ungase ucabange, “Nginamandla amancane ngokwanele ukuthi ngikwenze kuze kube sekupheleni kosuku ngokwami, ngingabanikela kanjani abanye okuthile?” Yebo, ngisho nokushukuma komzimba okulula kungenza izimangaliso, njenge:

• ebuza umnakekeli wakho ukuthi kanjani bona benza ushintsho
• ukuthumela ikhadi ukukhombisa ukuthi uyabacabanga
• ukubanika ikhadi lesipho losuku lwe-spa noma ukubabeka kusihlwa nabangane babo

Zinike umusa omncane

Ukunakekela umzimba nge-PsA kungumsebenzi wesikhathi esigcwele. Ukuqokwa kodokotela, izinhlobo zemithi, nezincwadi zomshwalense kukodwa kungakwenza uzizwe ukhungathekile futhi ukhathele.

Siyawenza amaphutha futhi sikhokha inani. Kwesinye isikhathi sidla into esaziyo ukuthi izodala umlilo, bese sizizwa sinecala futhi sizisole ngosuku olulandelayo. Noma, mhlawumbe sikhetha ukungayilaleli imizimba yethu, senze okuthile esaziyo ukuthi sizokukhokhela, futhi masinyane sizisole ngakho.

Ukuthwala lonke icala eliza nokukhetha esikwenzayo, kanye nomthwalo esizwa sengathi siyibo kwabanye, akukuhle. Kuwo wonke ama-hacks engiwafundile nge-PsA, lokhu kungenzeka ukuthi kunzima kakhulu kimi.

Hlela

Angikwazi ukumemeza lokhu kungena ngokuzwakalayo ngokwanele. Ngiyazi ukuthi kunzima futhi awufuni ngempela. Kepha lapho izintaba zezitatimende nezikweletu zikhongozela zikuzungezile, usuzibekele ukukhathazeka ngokweqile nokudangala.

Thatha isikhathi sokuhlela amanye amaphepha bese uwafaka kude. Noma ngabe kuphela imizuzu eyi-10 kuya kwengu-15 nsuku zonke, lokhu kusazokugcina uhlelekile.

Ngaphezu kwalokho, yenza konke okusemandleni ukugcina izimpawu zakho, imishanguzo, kanye nokukhetha ukwelashwa kuhlelekile. Sebenzisa ithrekhi yokuhlela okudlayo, imishanguzo yokwelapha, amakhambi emvelo, nanoma yini oyenzayo ukulawula i-PsA yakho. Ukugcina yonke imininingwane yakho yezempilo ihlelekile kuzokuvumela ukuthi uxhumane kangcono nodokotela bakho futhi uthole ukunakekelwa okungcono.

Sebenzisa 'i-vortex yezohwebo'

I- "vortex yezentengiselwano" yigama elincane engilenzile ukuchaza leyo mizuzu embalwa yesikhathi lapho ushayela isiteshi noma unakekela ukuvutha kwakho kwamuva kusofa nezikhangiso ziyavela ku-TV.

Ngibuka i-TV eningi esakazwayo, futhi awukwazi njalo ukushesha ubheke phambili ngokusebenzisa lezo zinambuzane ezincane. Ngakho-ke, esikhundleni sokuhlala lapho ngibuke izikhangiso ezifanayo kaninginingi, ngisebenzisa leso sikhathi ngendlela engcono emzimbeni wami.

Ngaleyo mizuzu emifushane, yima bese welula ngobumnene noma uqedele umsebenzi bese uthula i-TV yakho. Shibilika kancane siye ekhishini ubuyele emuva. Sebenzisa lesi sikhathi ukwenza noma yini umzimba wakho okuvumela ukuba ukwenze.

Isikhathi sinqunyelwe, ngakho-ke akufani nokuthi uzibophezela ekuzivocavoca nge-marathon. Kodwa ngaphezu kwalokho, ngithole ukuthi uma ngihlala ukuze ngandise isikhathi eside, amalunga ami ayaqina kakhulu, futhi kuba nzima nakakhulu ukuwahambisa lapho kufika isikhathi sokuthi nakanjani ngivuke. Ngaphezu kwalokho, uma ngikhetha ukwenza okuthile njengokulayisha i-daishisher noma ngigoqe ilondolo, lokho kuyasiza ekunciphiseni okunye ukukhathazeka kwami.

Ukudla okudlela endlini

Ngemuva kweminyaka yokuphila ne-PsA, lawa ama-hacks amahle kakhulu okufanele nginikele ngawo. Akuwona amaqhinga noma izinto ongaphuma uzithenge. Kepha yizona zinto ezenze umehluko omkhulu ekwenzeni impilo yami ilawuleke kancane nge-PsA.

ULeanne Donaldson uyiqhawe lamathambo le-psoriatic and rheumatoid arthritis (yep, ushaye ngokuphelele i-autoimmune arthritis lotto, bantu). Ngokuxilongwa okusha okungezwa unyaka nonyaka, uthola amandla nokwesekwa emndenini wakhe nangokugxila kokuhle. Njengomama wezingane ezintathu ezifunda ekhaya, uhlala ephelelwa amandla, kepha akalahlekelwa ngamazwi. Ungamthola amathiphu okuphila kahle nokugula okungamahlalakhona kubhulogi yakhe, ku-Facebook, noma ku-Instagram.