Uhlelo lokusebenza olusha lwe-Rheumatoid Arthritis Lakha Umphakathi, Ukuqonda, Nokugqugquzela Labo Abaphila Ne-RA

-Delile

• Khulumisanani ezingxoxweni zeqembu
• Thola umdlalo ofanele we-RA
• Funda phezulu ngezindaba zakamuva zeRA
• Ukuqalisa kulula

Umfanekiso kaBrittany England

Khulumisanani ezingxoxweni zeqembu

Usuku ngalunye lweviki, uhlelo lokusebenza lwe-RA Healthline lusingatha izingxoxo zeqembu ezenziwa ngumhlahlandlela noma ummeli ohlala neRA.

Izihloko zifaka:

• ukuphathwa kobuhlungu
• ukwelashwa
• ezinye izindlela zokwelapha
• kubangela
• ukudla
• ukuzivocavoca umzimba
• impilo yengqondo
• ukunakekela impilo
• ubudlelwano
• sebenza
• izinkinga
• okuningi kakhulu

UJessica Gottlieb, owenza ama-blog ngokuhlala ne-RA eLife nge-RA, uthi amaqembu anikeza ithuba lokukhetha izihloko ngokuya ngokuthi yini oyithandayo ngalolo suku.

“Ukuba nesifo esifana neRA kumane kukugqokele emoyeni. Uma ngabe ngifuna ukumba okuthile okucacile, njengokuzulazula kwezempilo, futhi angifuni ngempela ukucabanga ngezimpawu noma ukudla noma ukuzivocavoca umzimba, ngingavele ngingene kulokho okukodwa, ”usho kanje.

“Kwesinye isikhathi ngifuna ukubheka ukuthi abanye abantu bawenza kanjani umsebenzi wabo. Umsebenzi uyinkimbinkimbi njengamanje, futhi ukuba nesikhala sokuxoxa ngawo ngaphandle kwezombusazwe, ubungani obukhohlisayo, nozakwethu umdlalo oshintshayo, ”kunezela uGottlieb.

UWendy Rivard, owenza ama-blog kuTaking the Long Way Home, uyavuma.

"Esikhathini esedlule lapho ngike ngabamba iqhaza emaqenjini okweseka ama-RA, izihloko zigcwele yonke indawo futhi kwesinye isikhathi azihambisani nesimo sami," usho njalo.

Ujabulela indlela yokuphila kanye namaqembu ezempilo engqondo nangokomzwelo.

Okuthunyelwe kuka-Emrich kaningi ku-Escape from RA, Lifestyle, Daily Life, General, kanye neMedications amaqembu.

“Kuleli qophelo ohambweni lwami lweRA, lezi yizihloko engizithandayo. Ngiphinde ngavakashela amanye amaqembu ngenzela ukuthi nginikeze amazwi okukhuthaza kanye nokuhlangenwe nakho komuntu siqu kulawo malungu afuna ukufaka imibono nezeluleko, ”kusho yena.

La maqembu abonisa ukuthi umkhumbuza ngesithangami esidala esinezithangami ezahlukahlukene zezihloko ezahlukahlukene.

"Izimpendulo ezinemicu zenza izingxoxo ezilandelayo zibe lula, okusiza thina sonke ukuthi sisekelane kulo mphakathi weRA okhulayo," kusho u-Emrich.

Thola umdlalo ofanele we-RA

Nsuku zonke, uhlelo lokusebenza lwe-RA Healthline lifanisa abasebenzisi namanye amalungu omphakathi. Amalungu angabhekabheka amaphrofayli amalungu futhi acele ukufanisa khona manjalo.

Uma othile efuna ukufana nawe, waziswa khona manjalo. Uma sekuxhunyiwe, amalungu angathumela imiyalezo futhi abelane ngezithombe ngaso leso sikhathi.

UGottlieb uthi isici esifanayo simnika amandla phakathi nezinsuku zakhe ezinzima kakhulu.

“Umngani usanda kutshela umyeni wami ukuthi ngingowesifazane onamandla kunabo bonke abamaziyo. Futhi lokho bekuwusuku ngemuva kokuthi ngikhale ehhovisi lami ngoba ngifuna ukugijima ngangingakwazi, ”usho kanje. "Ngijwayele ukugijima cishe amamayela amathathu, futhi ngalolo suku imilenze yami yaba sengathi ibhajwe odakeni."

“Ngaphezu kokungawutholi umjaho we-endorphin ebengibheke phambili kuwo (futhi ngidinga ngokusobala), ngakhunjuzwa ukuthi angisoze ngagijimisa enye imarathon, ukuthi noma yini engaphezu kwamamayela amahlanu izoshiya izinyawo zami zizwakala sengathi zenziwe ngengilazi, nokuthi impilo yami yonke ngizoba yisiguli, ”kusho uGottlieb.

Yize ewubonga umuthi, usenezinsuku ezinzima.

“Abantu abakule lokusebenza bayakuqonda ukuthi singabonga ngalokho esinakho futhi namanje khala ngokulahleka kwempilo yethu. Iqinisekisa ngezindlela eziningi. I-RA yinto exakile. Impilo yami ishintshile, futhi nginenhlanhla ngoba izidakamizwa zingisebenzele. Lokho abantu abangakuboni kodwa kuyakhathaza, ”usho kanje.

URivard angalandisa. Ngoba abantu abaningi asondelene nabo abanayo i-RA, amandla okuxhumana ngokushesha nomuntu onolwazi lokuzibonela ngalokho abhekene nakho kumsiza ukuthi azizwe eyedwa.

"Futhi ukuthi angingedwa onaleyo nkinga noma ukukhathazeka," esho.

Funda phezulu ngezindaba zakamuva zeRA

Uma usesimweni sokufunda kunokuzibandakanya nabasebenzisi, isigaba se-Discover sohlelo lokusebenza sifaka ama-athikili ahlobene nendlela yokuphila nezindaba ze-RA, konke kubuyekezwa ngochwepheshe bezempilo be-Healthline.

Kuthebhu eliqokiwe, cinga izindatshana ezimayelana nokuxilongwa nezindlela zokwelashwa, kanye nemininingwane mayelana nokuhlolwa kwemitholampilo nocwaningo lwakamuva lweRA.

Izindaba zokuthi ungawondla kanjani umzimba wakho ngokuba nempilo enhle, ukuzinakekela nempilo yengqondo ziyatholakala. Futhi ungathola nezindaba zomuntu siqu kanye nobufakazi kulabo abahlala ne-RA.

"Isigaba se-Discover sinikeza iqoqo lezihloko ezikhethwe kahle ezivela ku-Healthline ezikhuluma kakhulu nge-RA kunokuxilongwa, izimpawu, nokwelashwa," kusho u-Emrich. "Njengamanje, kuneqoqo elithile lezindatshana ezikhuluma ngempilo yengqondo engikuthola kulusizo ngokukhethekile."

URivard uyakwazisa ukufinyelela kulwazi olucwaningwe kahle, oluhlolwe ezandleni zakhe.

“Ngingumhlengikazi, ngakho-ke ngiyaluthanda ulwazi oluhle, olusekelwe ebufakazini. Imininingwane esesigabeni iDiscover ithembekile futhi lokho kubaluleke kakhulu, ikakhulukazi manje, ”usho kanje.

Ukuqalisa kulula

Uhlelo lokusebenza lwe-RA Healthline luyatholakala ku-App Store naku-Google Play. Ukulanda uhlelo lokusebenza nokuqalisa kulula.

“Ukubhalisela uhlelo lweRA Healthline bekulula. Ungabelana ngolwazi oluningi noma oluncane mayelana necala lakho le-RA olifisayo, ”kusho u-Emrich.

“Ngiyalithokozela kakhulu ikhono lokufaka izithombe ezimbalwa kuphrofayela yakho ezikhuluma ngokuthi ungubani nokuthi zithakazelaphi izifiso zakho. Lesi sici esincane senza uhlelo lokusebenza luzizwe lungolomuntu siqu, ”kusho yena.

Umuzwa wokukhululeka ubaluleke kakhulu ezikhathini zanamuhla, uyanezela uGottlieb.

“Lesi yisikhathi esibaluleke kakhulu ukusebenzisa i-app. Ngenkathi ngisanda kutholakala, abasebenzisi bezinkundla zokuxhumana bangisiza ngakwazi ukusebenzisa indlela yami ejwayelekile. Lokho ngeke kwenzeke njengamanje, ngakho ukuthola indawo efana neRA Healthline kubaluleke kakhulu, ”usho kanje.

"Awudingi ukubamba iqhaza kwezepolitiki noma inkulumo ye-COVID noma ucasule abantu ngokungafuni ukuba nalezi zingxoxo," uyanezela. "Yebo, ziyasebenza, kepha uma umzimba wakho usebenza ngokumelene nawe, kubalulekile ukuhlanganisa umphakathi we-rheum ukuze wabelane ngolwazi, ugqozi, noma ngisho nezithombe ezimbalwa nje zomdlwane."

Landa uhlelo lokusebenza lapha.

UCathy Cassata ungumbhali ozimele ogxile ezindabeni eziphathelene nempilo, impilo yengqondo nokuziphatha kwabantu. Unekhono lokubhala ngomzwelo nokuxhumana nabafundi ngendlela enokuqonda nebandakanyayo. Funda kabanzi ngomsebenzi wakhe lapha.