Imibuzo eyi-10 yokubuza i-Pulmonologist yakho mayelana ne-Idiopathic Pulmonary Fibrosis

-Delile

• 1. Yini eyenza isimo sami sibe idiopathic?
• 2. Ivamile kangakanani i-IPF?
• 3. Kuzokwenzekani ekuphefumuleni kwami ​​ngokuhamba kwesikhathi?
• 4. Yini enye ezokwenzeka emzimbeni wami ngokuhamba kwesikhathi?
• 5. Ingabe zikhona ezinye izimo zamaphaphu engingahlangabezana nazo ne-IPF?
• 6. Ziyini izinhloso zokwelapha i-IPF?
• 7. Ngiyiphatha kanjani i-IPF?
• Imithi
• Ukuvuselelwa kwamaphaphu
• Ukwelashwa kwe-oxygen
• Ukufakelwa komlenze
• 8. Ngingasivikela kanjani isimo ukuba singabi sibi kakhulu?
• 9. Yikuphi ukulungisa impilo engingakwenza ukuthuthukisa izimpawu zami?
• 10. Ngingakutholaphi ukwesekelwa kwesimo sami?
• Ukudla okudlela endlini

Ukubuka konke

Uma utholwe une-idiopathic pulmonary fibrosis (IPF), ungahle ugcwale imibuzo mayelana nokuthi yini elandelayo.

Isazi se-pulmonologist singakusiza uthole uhlelo oluhle kakhulu lokwelashwa. Bangakweluleka nangoshintsho lwendlela yokuphila ongayenza ukunciphisa izimpawu zakho nokuthola ikhwalithi engcono yempilo.

Nayi imibuzo eyi-10 ongaletha ekuqokweni kwakho kwe-pulmonologist ukukusiza uqonde kangcono futhi uphathe impilo yakho nge-IPF.

1. Yini eyenza isimo sami sibe idiopathic?

Kungenzeka ujwayelene kakhulu negama elithi “pulmonary fibrosis.” Kusho ukusikeka kwamaphaphu. Igama elithi "idiopathic" lichaza uhlobo lwe-pulmonary fibrosis lapho odokotela bengakwazi ukukhomba imbangela.

I-IPF ifaka phakathi iphethini enesibazi ebizwa nge-pneumonia ejwayelekile yangaphakathi. Luhlobo lwesifo samaphaphu esiphakathi nendawo. Lezi zimo zibola izicubu zamaphaphu ezitholakala phakathi kwezindlela zakho zokuhamba nomoya negazi.

Noma singekho isizathu esiqondile se-IPF, kunezinto ezithile ezisolwayo eziyingozi zalesi simo. Enye yalezi zinto eziyingozi i-genetics. Abaphenyi bathole ukuthi ukwehluka kwe- I-MUC5B I-gene ikunikeza ingozi engamaphesenti angama-30 yokuthuthukisa lesi simo.

Ezinye izinto ezinobungozi ze-IPF zifaka:

• iminyaka yakho yobudala, ngoba i-IPF ivame ukwenzeka kubantu abadala kunama-50
• ubulili bakho, njengoba amadoda esethubeni elikhulu lokuthuthukisa i-IPF
• ukubhema
• izimo ezi-comorbid, njengezimo ezizimele
• izici zemvelo

2. Ivamile kangakanani i-IPF?

I-IPF ithinta abantu baseMelika abangaba ngu-100 000, ngakho-ke kubhekwa njengesifo esingandile. Unyaka nonyaka, odokotela bahlola abantu abayi-15,000 e-United States abanalesi sifo.

Emhlabeni jikelele, babalelwa ku-13 kuya ku-20 kubantu abangu-100 000 abanalesi sifo.

3. Kuzokwenzekani ekuphefumuleni kwami ​​ngokuhamba kwesikhathi?

Wonke umuntu othola ukuxilongwa kwe-IPF uzoba nezinga elihlukile lokuphefumula kanzima ekuqaleni. Ungase utholakale ezinyathelweni zokuqala ze-IPF lapho usuphefumula kanzima ekusebenzeni kwe-aerobic. Noma, kungenzeka ukuthi uveze ukuphefumula okuncane emisebenzini yansuku zonke njengokuhamba noma ukushawa.

Njengoba i-IPF iqhubeka, ungathola ubunzima bokuphefumula. Amaphaphu akho angakhula ngokuqhamuka ekuqhekekeni okukhulu. Lokhu kwenza kube nzima ukudala i-oxygen bese uyifaka egazini lakho. Njengoba isimo siba sibi kakhulu, uzobona ukuthi uphefumula kanzima ngisho nalapho uphumule.

Umbono we-IPF yakho uhlukile kuwe, kepha alikho ikhambi njengamanje. Abantu abaningi baphila ngemuva kokutholakala ukuthi bane-IPF. Abanye abantu baphila isikhathi eside noma esifushane, kuye ngokuthi isifo siqhubeka kanjani ngokushesha. Izimpawu ongazithola ngokuhamba kwesimo sakho ziyahlukahluka.

4. Yini enye ezokwenzeka emzimbeni wami ngokuhamba kwesikhathi?

Kunezinye izimpawu ze-IPF. Lokhu kufaka phakathi:

• ukukhwehlela okungakhiqizi
• ukukhathala
• ukuncipha komzimba
• ubuhlungu nokungahambi kahle esifubeni sakho, esiswini, nasemalungeni
• iminwe nezinzwane ezinamaqhuqhuva

Khuluma nodokotela wakho uma kuvela izimpawu ezintsha noma ziba zimbi kakhulu. Kungaba khona ukwelashwa okungasiza ukunciphisa izimpawu zakho.

5. Ingabe zikhona ezinye izimo zamaphaphu engingahlangabezana nazo ne-IPF?

Ungaba sengozini yokuba noma uthuthukise ezinye izimo zamaphaphu uma une-IPF. Lokhu kufaka phakathi:

• amahlule egazi
• kwawa amaphaphu
• isifo esingelapheki samaphaphu
• inyumoniya
• umfutho wegazi ophakeme wamaphaphu
• ukuvimbela ukuphefumula kokulala
• umdlavuza wamaphaphu

Ungaba sengozini yokuba noma uthuthukise ezinye izimo ezifana nesifo se-reflux se-gastroesophageal nesifo senhliziyo. Isifo se-reflux se-gastroesophageal sithinta i-IPF.

6. Ziyini izinhloso zokwelapha i-IPF?

I-IPF ayelapheki, ngakho-ke izinhloso zokwelashwa zizogxila ekugcineni izimpawu zakho zilawulwa. Odokotela bakho bazozama ukugcina izinga lakho le-oxygen lizinzile ukuze ukwazi ukuqedela imisebenzi yansuku zonke nokuzivocavoca umzimba.

7. Ngiyiphatha kanjani i-IPF?

Ukwelashwa kwe-IPF kuzogxila ekuphatheni izimpawu zakho. Ukwelashwa kwe-IPF kufaka:

Imithi

Ukuphathwa Kwezokudla Nezidakamizwa e-U.S. Kugunyaze imishanguzo emisha emibili ngo-2014: i-nintedanib (i-Ofev) ne-pirfenidone (i-Esbriet). Le mithi ayikwazi ukuguqula umonakalo emaphashini akho, kepha inganciphisa ukubola kwezicubu zamaphaphu nokuqhubeka kwe-IPF.

Ukuvuselelwa kwamaphaphu

Ukuvuselelwa kwamaphaphu kungakusiza ukuphatha ukuphefumula kwakho. Ochwepheshe abaningana bazokufundisa ukuthi ungayiphatha kanjani i-IPF.

Ukuvuselelwa kwamaphaphu kungakusiza:

• funda kabanzi ngesimo sakho
• ukuzivocavoca ngaphandle kokukhulisa ukuphefumula kwakho
• udle ukudla okunempilo nokulinganisela
• phefumula ngokukhululeka okukhulu
• konga amandla akho
• zula izici ezingokomzwelo zesimo sakho

Ukwelashwa kwe-oxygen

Ngokwelashwa kwe-oxygen, uzothola ukunikezwa okuqondile kwe-oksijini ngamakhala akho ngesifihla-buso noma ngamaphini asekhaleni. Lokhu kungasiza ukunciphisa ukuphefumula kwakho. Ngokuya ngobukhulu be-IPF yakho, udokotela wakho angakutusa ukuthi uyigqoke ngezikhathi ezithile noma ngaso sonke isikhathi.

Ukufakelwa komlenze

Kwezinye izimo ze-IPF, ungaba ngumuntu ozobhapathizwa ukuthola ukufakelwa kwamaphaphu ukwelula impilo yakho. Le nqubo ivame ukwenziwa kuphela kubantu abangaphansi kweminyaka engama-65 ngaphandle kwezinye izimo ezibucayi zezokwelapha.

Inqubo yokuthola ukufakelwa kwamaphaphu kungathatha izinyanga noma ngaphezulu. Uma uthola ukufakelwa, kuzofanele uthathe imishanguzo ukuvimbela umzimba wakho ekwenqabeni isitho esisha.

8. Ngingasivikela kanjani isimo ukuba singabi sibi kakhulu?

Ukuvimbela izimpawu zakho ukuthi zingabi zimbi, kufanele usebenzise imikhuba emihle yezempilo. Lokhu kufaka:

• ukuyeka ukubhema ngokushesha
• ukugeza izandla njalo
• ukugwema ukuxhumana nabantu abagulayo
• ukuthola imigomo yomkhuhlane nenyumoniya
• ukuthatha imithi yezinye izimo
• ukuhlala ngaphandle kwezindawo ezinomoya-mpilo omncane, njengezindiza nezindawo ezinokuphakama okuphezulu

9. Yikuphi ukulungisa impilo engingakwenza ukuthuthukisa izimpawu zami?

Ukulungiswa kwendlela yokuphila kunganciphisa izimpawu zakho futhi kuthuthukise ikhwalithi yakho yokuphila.

Thola izindlela zokuhlala usebenza ne-IPF. Ithimba lakho lokuvuselela amaphaphu lingancoma izivivinyo ezithile. Ungathola nokuthi ukuhamba noma ukusebenzisa imishini yokuvivinya umzimba ejimini kwehlisa ingcindezi futhi kukwenza uzizwe unamandla. Enye indlela ukuphuma njalo uyokwenza izinto zokuzilibazisa noma amaqembu omphakathi.

Ukudla ukudla okunempilo nakho kungakunika amandla amaningi okugcina umzimba wakho uqinile. Gwema ukudla okulungisiwe okunamafutha amaningi, usawoti, noshukela. Zama ukudla ukudla okunempilo njengezithelo, imifino, okusanhlamvu okuphelele, namaprotheni anciphile.

I-IPF ingathinta nenhlalakahle yakho engokomzwelo, futhi. Zama ukuzindla noma enye indlela yokuphumula ukuze wehlise umzimba wakho. Ukulala ngokwanele nokuphumula kungasiza nempilo yakho yengqondo. Uma uzizwa ucindezelekile noma ukhathazekile, khuluma nodokotela wakho noma umeluleki oqeqeshiwe.

10. Ngingakutholaphi ukwesekelwa kwesimo sami?

Ukuthola inethiwekhi yokusekela kubalulekile uma utholwe une-IPF. Ungacela odokotela bakho izincomo, noma ungakuthola ku-inthanethi. Xhumana nomndeni nabangane futhi ubazise ukuthi bangakusiza kanjani.

Amaqembu okusekela akwenza ukwazi ukuxhumana nomphakathi wabantu ababhekene nezinselelo ezifanayo nezakho. Ungabelana ngokuhlangenwe nakho kwakho ne-IPF futhi ufunde ngezindlela zokuyiphatha endaweni enozwela, nokuqonda.

Ukudla okudlela endlini

Ukuphila ne-IPF kungaba yinselele, ngokomzimba nangokwengqondo. Yingakho kubaluleke kakhulu ukubona i-pulmonologist yakho futhi ubabuze ngezindlela ezinhle zokuphatha isimo sakho.

Ngenkathi lungekho ikhambi, kunezinyathelo ezimbalwa ongazithatha ukwehlisa ukuqhubekela phambili kwe-IPF futhi uzuze ikhwalithi ephezulu yempilo.