Qonda ukuthi kuyini nokuthi ungayelapha kanjani i-Ondine syndrome

-Delile

• Ungasibona kanjani lesi sifo
• Indlela yokwenza ukuxilongwa
• Yelashwa kanjani

I-Ondine's syndrome, eyaziwa nangokuthi i-congenital central hypoventilation syndrome, iyisifo esingajwayelekile sofuzo esithinta uhlelo lokuphefumula. Abantu abanalesi sifo baphefumula kancane, ikakhulukazi ngesikhathi sokulala, okubangela ukwehla okungazelelwe kwenani lomoya-mpilo nokwenyuka kwenani lesikhutha egazini.

Ezimweni ezijwayelekile, isistimu yezinzwa emaphakathi ingadala ukuphendulwa okuzenzakalelayo emzimbeni okungaphoqa umuntu ukuthi aphefumule kakhulu noma avuke, kepha-ke, onalesi sifo unoshintsho ohlelweni lwezinzwa oluvimbela le mpendulo ezenzakalelayo. Ngakho-ke, ukuntuleka komoya-mpilo kuyanda, kubeka impilo engcupheni.

Ngakho-ke, ukugwema imiphumela ebucayi, noma ngubani onalesi sifo kufanele alale nedivayisi, ebizwa nge-CPAP, esiza ukuphefumula nokuvimbela ukungabikho komoya-mpilo. Ezimweni ezinzima kakhulu, le divayisi kungenzeka isetshenziswe usuku lonke.

Ungasibona kanjani lesi sifo

Ezimweni eziningi, izimpawu zokuqala zalesi sifo zivela ngemuva nje kokuzalwa futhi zifaka:

• Ukuphefumula kalula futhi kubuthakathaka ngemuva kokulala;
• Isikhumba nezindebe eziluhlaza okwesibhakabhaka;
• Ukuqunjelwa njalo;
• Izinguquko ezingazelelwe ekushayeni kwenhliziyo nomfutho wegazi

Ngaphezu kwalokho, lapho kungenakwenzeka ukulawula amazinga e-oksijeni kahle, kungavela ezinye izinkinga, njengokushintshwa kwamehlo, ukubambezeleka kokukhula kwengqondo, ukunciphisa ukuzwela ebuhlungwini noma ukunciphisa izinga lokushisa komzimba ngenxa yamazinga aphansi e-oxygen.

Indlela yokwenza ukuxilongwa

Imvamisa ukuxilongwa kwalesi sifo kwenziwa ngemilando yezimpawu nezimpawu zomuntu othintekile.Kulezi zimo, udokotela uqinisekisa ukuthi azikho ezinye izinkinga zenhliziyo noma zamaphaphu ezingadala izimpawu futhi, uma lokhu kungenzeki, kwenza ukuxilongwa kwe-Ondine's syndrome.

Kodwa-ke, uma udokotela engabaza ukuxilongwa, usengayalela ukuhlolwa kofuzo ukukhomba ukuguquka kwezakhi zofuzo okukhona kuzo zonke izimo zalesi sifo.

Yelashwa kanjani

Ukwelashwa kwe-Ondine's syndrome kuvame ukwenziwa kusetshenziswa idivaysi, eyaziwa njenge-CPAP, esiza ukuphefumula futhi ivimbele ingcindezi ekuphefumuleni, iqinisekise amazinga e-oxygen anele. Thola okuningi mayelana nokuthi yiluphi lolu hlobo lwedivayisi nokuthi lusebenza kanjani.

Ezimweni ezinzima kakhulu, lapho kudingeka khona ukugcina umoya omncane ngedivayisi usuku lonke, udokotela angaphakamisa ukuhlinzwa ukwenza ukusika okuncane emqaleni, okwaziwa njenge-tracheostomy, okukuvumela ukuthi ube nedivayisi exhunywe njalo ngokunethezeka, ngaphandle kokugqoka imaski, isibonelo.