Izinto Ezixakile Engangizicabanga Nge-Psoriasis Ngaphambi kokuthi Ngithole Amaqiniso

-Delile

• Bengicabanga ukuthi yinto nje yesikhumba
• Bengicabanga ukuthi kuzophela
• Bengicabanga ukuthi kunohlobo olulodwa kuphela lwe-psoriasis
• Ngicabange ukuthi kunomuthi owodwa wabo bonke
• Ukuthatha

Noma ugogo wami wayene-psoriasis, ngakhula nginokuqonda okulinganiselwe ukuthi iyini ngempela. Angikhumbuli ukuthi waba ne-flare ngenkathi ngisemncane. Eqinisweni, wake wathi ngemuva kohambo oluya e-Alaska eminyakeni yawo-50, i-psoriasis yakhe ayiphindanga yaqubuka.

Ukwazi engikwaziyo manje nge-psoriasis, kuyimfihlakalo engakholeki. Futhi ngolunye usuku ngithemba ukuvakashela i-Alaska ukuze ngizitholele yona!

Ukuxilongwa kwami ​​kwafika entwasahlobo ka-1998 lapho ngineminyaka eyishumi nanhlanu kuphela ubudala. Ngaleso sikhathi, i-inthanethi yayisho ukudayela ku-AOL nokuthumela imiyalezo ngokushesha nabangani bami ngokuthi “JBuBBLeS13.” Kwakungeyona indawo okwamanje yokuhlangana nabanye abantu abaphila ne-psoriasis. Futhi angizange ngivunyelwe ukuhlangana nabantu engingabazi kwi-intanethi.

Futhi bengingasebenzisi i-intanethi ukwenza ucwaningo oluzimele futhi ngifunde ngesimo sami. Ulwazi lwami nge-psoriasis lwalukhawulelwe ekuvakasheni odokotela abafushane kanye namapheshana emagumbini okulinda. Ukuntula kwami ​​ulwazi kwangishiya nemibono ethokozisayo mayelana ne-psoriasis nokuthi "isebenza kanjani."

Bengicabanga ukuthi yinto nje yesikhumba

Ekuqaleni, bengingacabangi ukuthi i-psoriasis iyinto edlula isikhumba esibomvu, esilumayo esinginike amabala emzimbeni wonke. Izinketho zemithi enganginikezwa zona zaziphatha kuphela ukubukeka kwangaphandle, ngakho-ke kwaba yiminyaka embalwa ngaphambi kokuba ngizwe ngisho negama elithi "isifo sokuzivikela komzimba" maqondana ne-psoriasis.

Ukuqonda ukuthi i-psoriasis yaqala ngaphakathi kwashintsha indlela engaya ngayo ekwelashweni kwami ​​futhi ngacabanga ngalesi sifo.

Manje senginentshisekelo yokwelapha i-psoriasis ngendlela ephelele ehlasela lesi simo kuzo zonke izinhlangothi: kusuka ngaphakathi nangaphandle, kanye nenzuzo eyengeziwe yokuxhaswa ngokomzwelo. Akuyona nje into yezimonyo. Kukhona okwenzekayo ngaphakathi komzimba wakho namachashazi abomvu kungesinye sezimpawu ze-psoriasis.

Bengicabanga ukuthi kuzophela

Mhlawumbe ngenxa yokubukeka kwayo, ngacabanga ukuthi i-psoriasis yayifana nesibungu. Ngingakhululeki amasonto ambalwa, ngigqoke amabhulukwe nemikhono emide, bese kuthi umuthi ungenele bese ngiqedile. Phakade.

Igama elithi flare belingasho lutho okwamanje, ngakho-ke kuthathe isikhashana ukwamukela ukuthi ukuqubuka kwe-psoriasis kunganamathela isikhathi eside nokuthi kuzoqhubeka kwenzeke iminyaka.

Noma ngigcina umkhondo wezinto zami ezivusa inkanuko futhi ngihlose ukuziqhelelanisa nazo, futhi ngenza konke okusemandleni ami ukugwema ingcindezi, kwesinye isikhathi ukuqhuma kusenzeka. Ukuqubuka kungadalwa yizinto engingazilawuli, njengokushintsha kwamahomoni ami ngemuva kokuzalwa kwamadodakazi ami. Ngingahle ngithole nokuqubuka uma ngigula ngomkhuhlane.

Bengicabanga ukuthi kunohlobo olulodwa kuphela lwe-psoriasis

Kwakuyiminyaka embalwa ngaphambi kokuthi ngifunde ukuthi kwakukhona izinhlobo ezingaphezu kweyodwa ze-psoriasis.

Ngithole ngenkathi ngiya emcimbini weNational Psoriasis Foundation futhi othile wangibuza ukuthi nginhloboni. Ekuqaleni, ngangixakekile ukuthi umuntu engingamazi wayefuna uhlobo lwegazi lami. Ukusabela kwami ​​kokuqala kumele kubonakale ebusweni bami ngoba uchaze kamnandi kakhulu ukuthi kunezinhlobo ezinhlanu ezahlukene ze-psoriasis nokuthi akufani kuwo wonke umuntu. Kuvele ukuthi ngine-plaque ne-guttate.

Ngicabange ukuthi kunomuthi owodwa wabo bonke

Ngaphambi kokutholakala kwami, ngangijwayele ukukhetha izindlela eziyisisekelo zokwelashwa - okuvame ukutholakala kufomu eliketshezi noma lephilisi. Kungase kubonakale kungenangqondo, kodwa nganginempilo enhle kuze kube yilelo phuzu. Ngaleso sikhathi, uhambo lwami olujwayelekile lokuya kudokotela lwalukhawulelwe ekuhloleni minyaka yonke kanye nokugula kwansuku zonke kobuntwana. Ukuthola isibhamu bekugcinelwe ukugoma.

Kusukela ngatholwa, ngilaphe i-psoriasis yami ngokhilimu, ama-gel, amagwebu, ama-lotion, izifutho, ukukhanya kwe-UV, kanye nama-biologic shots. Lokho yizinhlobo nje, kodwa ngiphinde ngazama izinhlobo eziningi ngaphakathi kohlobo ngalunye. Ngifundile ukuthi akuyona yonke into esebenzela wonke umuntu futhi lesi sifo sihlukile kithina sonke. Kungathatha izinyanga ngisho neminyaka ukuthola uhlelo lokwelashwa olusebenzelayo. Noma ikusebenzela, ingahle isebenze isikhashana bese uzodinga ukuthola enye indlela yokwelashwa.

Ukuthatha

Ukuzinika isikhathi sokucwaninga ngalesi simo nokuthola amaqiniso nge-psoriasis kwenze umehluko omkhulu kimi. Kususe ukucabanga kwami ​​kwasekuqaleni futhi kwangisiza ukuba ngiqonde ukuthi kwenzekani emzimbeni wami. Noma bengihlala ne-psoriasis iminyaka engaphezu kwengu-20, kuyamangalisa ukuthi ngifunde okungakanani futhi ngisafunda ngalesi sifo.

UJoni Kazantzis ungumsunguli ne-blogger ye-Justagirlwithspots.com, ibhulogi le-psoriasis eliwine imiklomelo elizinikele ekwakheni ukuqwashisa, ukufundisa ngalesi sifo, nokwabelana ngezindaba zomuntu siqu zohambo lwakhe lweminyaka engu-19 + ne-psoriasis. Inhloso yakhe ukudala umqondo womphakathi nokwabelana ngolwazi olungasiza abafundi bakhe ukubhekana nezinselelo zansuku zonke zokuphila ne-psoriasis. Ukholelwa ukuthi ngolwazi oluningi ngangokunokwenzeka, abantu abane-psoriasis banganikwa amandla okuphila impilo yabo engcono nokwenza izinqumo zokwelashwa ezilungile empilweni yabo.