Ungakhuluma Kanjani Nabanye Ngokuxilongwa Kwakho kwe-MS

-Delile

• Izinzuzo nezingozi zokutshela abantu nge-MS
• Buhle
• Nebubi
• Ukutshela umndeni
• Ukutshela izingane zakho
• Ukutshela abangane
• Ukutshela abaqashi nozakwabo
• Ukutshela usuku lwakho
• Ukudla okudlela endlini

Ukubuka konke

Kukuwe ngokuphelele uma ufuna ukutshela abanye mayelana nokuxilongwa kwakho nge-multiple sclerosis (MS).

Khumbula ukuthi wonke umuntu angasabela ngendlela ehlukile ezindabeni, ngakho-ke zinike isikhathi sokucabanga ngokuthi ungaxhumana kanjani namalungu omndeni wakho, abangane, izingane kanye nabantu osebenza nabo.

Lo mhlahlandlela uzokusiza uqonde ukuthi ngubani okufanele umtshele, ukuthi ungamtshela kanjani, nokuthi yini ongayilindela kule nqubo.

Izinzuzo nezingozi zokutshela abantu nge-MS

Kufanele ulungiselele ukusabela okuhlukahlukene lapho utshela abantu ngokuxilongwa okusha. Cabanga ngobuhle nobubi bokutshela umuntu ngamunye kusengaphambili.

Lapho usukulungele ukubatshela, zama ukugwema ukusheshisa ingxoxo. Bangaba nemibuzo eminingi, futhi kubalulekile ukuthi basuke engxoxweni benolwazi oluthe xaxa nge-MS nokuthi kusho ukuthini kuwe.

Buhle

• Ungazizwa sengathi isisindo esikhulu sisusiwe, futhi cishe uzozizwa ulawula kakhulu.
• Ungacela abangane bakho nomndeni wakho usizo manje njengoba sebazi ukuthi kwenzekani.
• Uzoba nethuba lokufundisa abantu nge-MS.
• Umndeni nabangane bangadonswa ngokusondelana kakhulu lapho befunda ngokuxilongwa kwe-MS.
• Ukutshela abantu osebenza nabo kuzobasiza baqonde ukuthi kungani ungakhathala noma ungakwazi ukusebenza.
• Abantu abangaba nomqondo wokuthi kukhona okungahambi kahle ngeke badinge ukuqagela. Ukubatshela kugwema ukuba nabo benze ukucabanga okungalungile.

Nebubi

• Abanye abantu kungenzeka bangakukholwa noma bacabange ukuthi ufuna ukunakwa.
• Abanye abantu bangakugwema ngoba abazi ukuthi bazothini.
• Abanye abantu bazokuthatha njengethuba lokunikeza izeluleko ezingacelwanga noma ukucindezela ukwelashwa okungavunyelwe noma okunye.
• Abantu manje sebengakubona ubuthakathaka noma ubuthakathaka bese beyeka ukukumemela ezintweni.

Ukutshela umndeni

Amalungu omndeni asondele, kufaka phakathi abazali bakho, oshade naye, nezingane zakini, kungenzeka ukuthi asevele ecabanga ukuthi kukhona okungahambi kahle. Kungcono ukubatshela ngokushesha kunokuba kamuva.

Khumbula ukuthi bangashaqeka futhi bakwesabe ekuqaleni. Kungathatha isikhathi ukuthi bacubungule imininingwane emisha. Ungathathi ukuthula njengongakhathaleli. Lapho sebenqobile ukwethuka kokuqala, umndeni wakho uzobe ukhona ukuzokuxhasa ngokuxilongwa okusha.

Ukutshela izingane zakho

Uma unezingane, kungaba nzima ukuqagela ukuthi bazosabela kanjani ekuxilongweni kwakho. Ngalesi sizathu, abanye abazali bakhetha ukulinda kuze kube yilapho izingane zabo sezikhulile futhi zivuthiwe ukuze baxoxe ngalesi simo.

Ngenkathi isinqumo kukuwe, kubalulekile ukuthi wazi ukuthi ucwaningo luphakamisa ukuthi izingane ezinolwazi oluncane mayelana nokuxilongwa kwe-MS zabazali bazo zinenhlalakahle ephansi ngokomzwelo kunalezo ezinolwazi oluningi.

Ocwaningweni lwakamuva, abacwaningi baphetha ngokuthi ukuvumela odokotela ukuba baxoxe nge-MS ngqo nezingane zesiguli kusiza ekwakheni isisekelo somndeni wonke sokubhekana nalesi simo.

Futhi, lapho abazali benolwazi olunzulu nge-MS, ingahlakulela isimo lapho izingane zingesabi ukubuza imibuzo.

Ngemuva kokutshela izingane zakho nge-MS yakho, ababhali besifundo bancoma ukuthi izingane zakho ziqhubeke nokuthola imininingwane ejwayelekile evela kumhlinzeki wezokunakekelwa kwempilo mayelana nokuxilongwa kwakho.

Abazali nabo bayakhuthazwa ukuba baxoxe nge-MS nezingane zabo futhi bazilethe lapho kubekwa khona odokotela.

Gcina uS’myelin, umagazini onobungane ovela ku-National MS Society, ungomunye umthombo omuhle. Kubandakanya imidlalo yokusebenzisana, izindaba, izingxoxo, kanye nemisebenzi ngezihloko ezahlukahlukene ezihlobene ne-MS.

Ukutshela abangane

Asikho isidingo sokutshela bonke obajwayele ngombhalo omkhulu. Cabanga ukuqala ngabangane bakho osondelene nabo - labo obethemba kakhulu.

Zilungiselele ukusabela okuhlukahlukene.

Abangane abaningi bazosekela ngokumangalisayo futhi banikeze usizo ngokushesha. Abanye bangahle bafulathele futhi badinge isikhathi esithile ukucubungula ulwazi olusha. Zama ukungakuthathi lokhu uqobo. Gcizelela kubo ukuthi usengumuntu owayefana naye ngaphambi kokuxilongwa.

Ungase futhi ufune ukuqondisa abantu kumawebhusayithi ezemfundo ukuze bafunde kabanzi ngokuthi i-MS ingakuthinta kanjani ngokuhamba kwesikhathi.

Ukutshela abaqashi nozakwabo

Ukudalula ukuxilongwa kwe-MS endaweni yakho yomsebenzi akufanele kube yisinqumo sokuxhamazela. Kubalulekile ukukala ubuhle nobubi bokutshela umqashi wakho ngaphambi kokuthi uthathe noma yisiphi isenzo.

Abantu abaningi abane-MS bayaqhubeka nokusebenza isikhathi eside yize betholakele, kanti abanye bakhetha ukushiya umsebenzi zisuka nje.

Lokhu kuncike ezintweni eziningi, kufaka phakathi iminyaka yakho, umsebenzi wakho, kanye nezibopho zakho zomsebenzi. Isibonelo, abantu abashayela izimoto zabagibeli noma ezokuthutha kungadingeka ukuthi batshele umqashi wabo ngokushesha, ikakhulukazi uma izimpawu zabo zizothinta ukuphepha kwabo nokusebenza komsebenzi.

Ngaphambi kokuba utshele umqashi wakho ngokuxilongwa kwakho, cwaninga ngamalungelo akho ngaphansi koMthetho waseMelika okhubazekile. Kunokuvikelwa kokuqashwa okusemthethweni okukuvikela ekudedelweni noma ekubandlululweni ngenxa yokukhubazeka.

Ezinye izinyathelo okufanele zithathwe zifaka:

• ngishayela ulayini wolwazi we-ADA, oqhutshwa nguMnyango Wezobulungiswa, onikezela ngolwazi ngezidingo ze-ADA
• ukufunda ngezinzuzo zokukhubazeka kwi-Social Security Administration (SSA)
• ukuqonda amalungelo akho nge-US Equal Employment Opportunity Commission (EEOC)

Lapho usuwaqonda amalungelo akho, kungenzeka ungadingi ukutshela umqashi wakho ngokushesha ngaphandle uma ufuna. Uma okwamanje uhlangabezana nokubuyela emuva, ungakhetha ukusebenzisa kuqala izinsuku zakho zokugula noma izinsuku zeholide.

Ukudalula imininingwane yakho yezokwelapha kumqashi wakho kuyadingeka ezimweni ezithile. Isibonelo, udinga ukwazisa umqashi wakho ukuze usebenzise ngokunenzuzo ikhefu lezokwelapha noma indawo yokuhlala ngaphansi komthetho iFamily and Medical Leave Act (FMLA) kanye nezinhlinzeko ze-American with Disability Act (ADA).

Kumele utshele umqashi wakho kuphela ukuthi unesimo sempilo futhi unikeze incwadi kadokotela esho kanjalo. Awudingi ukubatshela ngokuqondile ukuthi une-MS.

Noma kunjalo, ukudalulwa okugcwele kungaba yithuba lokufundisa umqashi wakho nge-MS futhi kungakuthola ukwesekwa nosizo oludingayo.

Ukutshela usuku lwakho

Ukuxilongwa kwe-MS akudingeki ukuthi kube yisihloko sengxoxo ngosuku lokuqala noma lwesibili. Kodwa-ke, ukugcina izimfihlo akusizi uma kukhulunywa ngokukhuthaza ubudlelwano obuqinile.

Lapho izinto ziqala ukuba zimbi, kubalulekile ukuthi wazise umlingani wakho omusha ngokutholakala kwakho. Ungathola ukuthi kuyanisondeza ndawonye.

Ukudla okudlela endlini

Ukutshela abantu abasempilweni yakho mayelana nokuxilongwa kwakho kwe-MS kungaba nzima. Ungakhathazeka ngokuthi abangane bakho bazosabela kanjani noma wethuke ukudalula ukuxilongwa kwakho kulabo osebenza nabo. Lokho okushoyo nalapho utshela khona abantu kukuwe.

Kepha ekugcineni, ukudalula ukuxilongwa kwakho kungakusiza wazise abanye nge-MS futhi kuholele ebudlelwaneni obuqinile, obusekelayo nabathandekayo bakho.