Lokhu Kubukeka Kanjani MS

-Delile

• UKristen Pfiefer, 46
  Kutholwe ngo-2009
• UJackie Morris, 30
  Kutholakele: 2011
• U-Angela Reinhardt-Mullins, 40
  Kutholakele: 2001
• UMike Menon, 34
  Kutholakele: 1995
• USharon Alden, oneminyaka engama-53
  Kutholakele: 1996
• UJeanne Collins, oneminyaka engama-63
  Kutholakele: 1999
• UNicole Connelly, 36
  Kutholakele: 2010
• UKatie Meier, 35
  Kutholakele: 2015
• USabina Diestl, 41, nomyeni wakhe, uDanny McCauley, 53
  Kutholakele: 1988

Iza ngezindlela ezahlukene kanye nezigaba, ngazo zonke izinhlobo nobukhulu. Iyacwila kwabanye, kepha imigqomo ibheke kwabanye iqonde ngqo. I-multiple sclerosis (MS) - isifo esingalindelekile, esiqhubekayo esihlasela abantu abangaphezu kwezigidi ezi-2.3 emhlabeni jikelele.

Kubantu abangaphansi kwabangu-9, i-MS ayizichazi ukuthi zingobani, zenza kanjani, noma ukuthi umhlaba ubabona kanjani. Izimpilo zabo kungenzeka ukuthi sezishintshile selokhu kwatholakala ukuthi zinjani, kepha izindaba zabo zehlukile kubo nakubo kuphela. Lokhu kubukeka kanjani i-MS.

UKristen Pfiefer, 46
Kutholwe ngo-2009

"Angifuni ukuthi abantu bangibheke bese bethi, 'O, nguyena one-MS. Akufanele simnike lowo msebenzi ngoba angahle agule. ’Angifuni abantu abenza izahlulelo ngami. Ngiyazi ukuthi yini engingayenza nengingakwazi ukuyenza. Akudingeki ukuba ubuthakathaka. Futhi ngicabanga ukuthi yilokho abantu abaningi abatholwayo abakubona kunjalo. Futhi akudingeki kube njalo. … Ngikhetha ukuthi ingenze ngiqine. … Unamandla uma ukhetha ukukuthatha. Kufana nempi. Empini, ungakhetha ukufihla futhi uthandaze ukuthi kungafiki kuwe noma ungakhetha ukulwa. Ngikhetha ukulwa.Angikholwa ukuthi anginamandla kulesi simo. Angikholwa ukuthi isihlalo esinamasondo sikusasa lami. Ngikholwa ukuthi ngingalwa nayo futhi ngenza nsuku zonke. ”

UJackie Morris, 30
Kutholakele: 2011

“Ukuthi awubukeki ugula akusho ukuthi awuguli. Ngicabanga ukuthi ngithole okuhle kakhulu ngokungakhombisi ukuthi kukhona okungahambi kahle yize kungaphakathi ngaphakathi nsuku zonke, kunzima ukwenza izinto zansuku zonke. Ngicabanga ukuthi leyo yingxenye enzima kunazo zonke, ngaphandle uma unezimpawu zangaphandle njengokuthi abantu banomkhuhlane noma uma kukhona okuthile emzimbeni ongabona okungalungile ngabo. Uma bengakuboni abacabangi ukuthi empeleni unokuthile okungahambi kahle kuwe. … Ngikuvumela kube yinto ezongishukumisela ukuba ngenze izinguquko empilweni yami futhi ngibe nombono oqondile futhi ngenze izinto ebengingeke ngazenza ngaphambilini. Ngoba noma ngine-RRMS futhi ngithatha imishanguzo futhi kubonakala kulawulwa kahle, awazi neze. Angifuni ukuzisola ngokungazenzi izinto ngoba bengingakwazi ukuzenza ngenkathi ngikwazi. ”

U-Angela Reinhardt-Mullins, 40
Kutholakele: 2001

“Ngicabanga ukuthi isikhathi lapho ngathola khona ngaba ngumuntu ongu“ yebo ”. Ekugcineni ngiyaqala ukuthi ‘cha.’… Kumele ngibonise ukuthi akukho lutho olungahambi kahle kimi ngoba abantu bangiphatha ngokungathi akukho okungalungile ngami. … Kukhona okungahambi kahle kodwa awukwazi ukukubona futhi leyo yinto enzima kakhulu. ”

UMike Menon, 34
Kutholakele: 1995

“Kimi, kunomuntu laphaya ongemuhle kunami owenza okuningi kunami. Ngakho-ke angikwazi ukukhononda ngempela ngalokhu engikwenzayo manje ngoba ngiyazi ukuthi kukhona omunye umuntu laphaya ono-MS omubi kakhulu, kepha basenza izinto okufanele bazenze. Futhi leyo yindlela engcono kakhulu yokubheka kimi. Kungaba kubi kakhulu. Abantu bangibonile kabi kakhulu futhi abantu bangibonile ngiseduze kokusemandleni ami. Eminyakeni emibili eyedlule bengihamba ngesihlalo esinamasondo futhi bengingahambi futhi ngaba nesiqephu esibi impela. Futhi amaphilisi angama-20 kamuva, abantu bayangibona futhi bafana nokuthi, ‘Akukho lutho olungahambi kahle ngawe.’… Ngisezinhlungwini usuku lonke, nsuku zonke. Ngivele ngikujwayele. … Kunezinsuku lapho ngesinye isikhathi ngingafuni ukusukuma ngivele ngifuna ukubeka lapho, kodwa nginezinto okufanele ngizenze. Kufanele ukuthi uziphushe kancane, bese ushayela kancane. Uma ngihlala lapha, kuzoba kubi kakhulu futhi ngizoba kubi kakhulu. ”

USharon Alden, oneminyaka engama-53
Kutholakele: 1996

“I-MS ibukeka njengakho konke. Kubukeka njengami. Kubukeka njengomngani kadadewethu owaqala ukugijima ama-marathoni ngemuva kokuxilongwa. Futhi ngemuva kokuyeka ukusebenza ngenxa ye-MS yakhe, kamuva waqeqeshelwa umncintiswano. Futhi ngabantu abangakwazi ukuhamba baqonde noma abangakwazi ukuhamba. Nginabangani abahamba ngezihlalo ezinamasondo futhi bebeyilokho isikhashana, ngakho kubukeka sengathi konke. ”

UJeanne Collins, oneminyaka engama-63
Kutholakele: 1999

“Ngicabanga ukuthi i-MS ibukeka njengabo bonke abantu. Wonke umuntu ohlangana naye mhlawumbe kunokuthile okwenzekayo ezimpilweni zabo futhi awazi nje ngakho. Futhi ngicabanga ukuthi i-MS ikakhulu isifo esingabonakali uze ungene ezigabeni zakamuva. Yingakho angicabangi ukuthi i-MS ibukeka njengokuthile. Ungahle ubone umhlanga. Ungahle ubone isihlalo sabakhubazekile. Kepha ingxenye enkulu ubukeka njengabo bonke abanye abantu. Ungahle ube sezinhlungwini eziningi futhi akekho owazungezile owaziyo. … Kubalulekile ukuvumela abanye babone ukuthi akudingeki uyeke. Akudingeki uzigaqele uzwele futhi ungaphumi lapho futhi ungakujabuleli lokho okujabulela ukukwenza. ”

UNicole Connelly, 36
Kutholakele: 2010

“Kwesinye isikhathi kuba sengathi uyisiboshwa emzimbeni wakho. Ukungakwazi ukwenza izinto engingathanda ukuzenza futhi ngizwe sengathi kunezinto okungafanele ngizenze. Kufanele ngizikhumbuze ukuthi ngingazisunduzile kakhulu, hhayi ukuthi ngeqise ngoba bese ngikhokha inani. Ngiyazinyeza ngokucabanga ukuthi abantu bacabanga ukuthi ‘ngiyisilima’ noma abantu bacabanga ukuthi ‘ngidakiwe’ ngoba kunezikhathi ezithile lapho ngingenzi kahle njengabanye. Ngincamela ukuthi abantu bazi ukuthi konakelephi kodwa ngicabanga ukuthi into enzima kakhulu kimi ukuthi abantu abayiqondi. ”

UKatie Meier, 35
Kutholakele: 2015

“Abantu banemininingwane eminingi engeyona mayelana nokuthi i-MS iyini. Ngokushesha bacabanga ukuthi umiselwe ukuhlala esihlalweni sabakhubazekile nakho konke lokho, kodwa lokho akunjalo ngempela. [Kwesinye isikhathi] kungabonakala sengathi uphilile ngokuphelele futhi uphila impilo ejwayelekile, kepha ulwa nazo zonke izinhlobo zezimpawu. ”

USabina Diestl, 41, nomyeni wakhe, uDanny McCauley, 53
Kutholakele: 1988

“Angikwazi ukunyakaza nhlobo. Angithathelani. Akubulali. … Usengajabula nge-MS. ” - USabina

“Ngahlangana naye eneminyaka engu-23 futhi ngaleso sikhathi wayengahambi, kodwa sathandana noma kunjalo. Ekuqaleni ngangizama ukusebenza ngibe ngumnakekeli kodwa kwaba umsebenzi wesikhathi esigcwele. Ukusekela umuntu onesifo esiqhubekayo kuyashintsha impilo. ” - UDanny