UVictoria Arlen Wenza Kanjani Ukuthi Akhubazeke Abe Ngumuntu Okhubazekile

-Delile

• Ukugula Okuguquka Ngokushesha, Okungaqondakali
• Ukuphikisa Odds Nodokotela Bakhe
• Ukuthola Amandla Akhe Kabusha
• Ukuphusha Imingcele
• Ilungele Ukugijima
• Sibheke Ikusasa
• Buyekeza kwe-

Iminyaka emine emide, uVictoria Arlen wayengakwazi ukuhamba, ukukhuluma, noma ukuhambisa imisipha emzimbeni wakhe. Kodwa, ngokungazi kwabaseduze kwakhe, wayezwa futhi acabange - futhi ngalokho, wayenethemba. Ukuqinisa lelo themba yikhona okwamfaka ezinkingeni ezazibonakala zingenakunqotshwa futhi waphinde wathola impilo nempilo yakhe.

Ukugula Okuguquka Ngokushesha, Okungaqondakali

Ngo-2006, eneminyaka engu-11 ubudala, u-Arlen wathola inhlanganisela eyivelakancane ye-myelitis eguquguqukayo, isifo esibangela ukuvuvukala kwentambo yomgogodla, kanye ne-acute disseminated encephalomyelitis (ADEM), ukuhlasela okuvuthayo ebuchosheni nomgogodla - inhlanganisela yalokhu. izimo ezimbili zingabulala uma zishiywe zingavunyelwe.

Ngeshwa, kwaze kwaba ngemva kweminyaka eqale ukugula lapho u-Arlen agcina ethole khona lokhu kuxilongwa. Ukubambezeleka kwakuzoshintsha inkambo yempilo yakhe unomphela. (Okuhlobene: Odokotela Baziziba Izimpawu Zami Iminyaka Emithathu Ngaphambi kokuthi Ngitholwe NgeSigaba 4 Lymphoma)

Okwaqala njengokuqaqamba ngasemhlane naseceleni kwakhula kwaba yizinhlungu zesisu ezibuhlungu, ekugcineni kwaholela ekuguleni umabhebhana. Kodwa ngemuva kwalokhu kuhlinzwa, isimo sakhe saqhubeka nokuba sibi. Okulandelayo, u-Arlen uthi olunye lwezinyawo zakhe lwaqala ukuxhuga nokuhudula, wabe eselahlekelwa umuzwa nokusebenza kuyo yomibili imilenze. Ngokushesha, wayesembhedeni esibhedlela. Kancane waphelelwa ngumsebenzi ezandleni nasezandleni zakhe, kanye nekhono lokugwinya kahle. Wayezabalaza ukuthola amagama lapho efuna ukukhuluma. Futhi kwaba ngaleso sikhathi, izinyanga ezintathu nje kuphela selokhu kuqale izimpawu zakhe, lapho athi "konke kwaba mnyama."

U-Arlen uchithe iminyaka emine elandelayo ekhubazekile futhi kulokho yena nodokotela bakhe abakubiza ngokuthi "isimo semifino" - engakwazi ukudla, ukukhuluma, noma nokunyakazisa imisipha ebusweni bakhe. Ubebhajwe ngaphakathi emzimbeni angakwazi ukuwunyakazisa, ngezwi angakwazi ukulisebenzisa. (Kubalulekile ukuthi uqaphele ukuthi umphakathi wezokwelapha usushiyile igama elithi vegetative state ngenxa yalokho abanye abangathi yigama lokwehla, bakhetha isifo sokuvuka esingaphenduli.)

Udokotela ngamunye abazali baka-Arlen ababonisene naye banikeza ithemba elincane ngomndeni. “Ngaqala ukuzwa izingxoxo engangingeke ngizenze noma ukuthi ngizoba kanje impilo yami yonke,” kusho u-Arlen. (Okuhlobene: Ngatholwa Nginesifo Sokuwa Ngaphandle Kokuthi Ngazi Ukuthi Ngangiquleka)

Yize kwakungekho owaziyo, u-Arlen kungenzeka ukuzwa konke - wayesekhona, wahluleka nje ukukhuluma noma ukunyakaza. "Ngizamile ukukhala ngicela usizo futhi ngikhulume nabantu nginyakaze ngivuke embhedeni, futhi akekho owayengiphendula," usho njalo. U-Arlen uchaza isipiliyoni ngokuthi "sikhiyelwe ngaphakathi" ebuchosheni nasemzimbeni wakhe; wayazi ukuthi kukhona okungahambi kahle, kodwa akukho angakwenza ngakho.

Ukuphikisa Odds Nodokotela Bakhe

Kepha ngokumelene nobunzima nakho konke ukubikezela okungenathemba kochwepheshe, u-Arlen waxhumana emehlweni nonina ngoDisemba 2009 - okuyinhlangano eyayizokhombisa uhambo lwakhe olumangalisayo lokululama. (Phambilini, lapho evula amehlo babezoba nohlobo lokugqolozela okungenalutho.)

Lokhu kubuya kwakungeyona into emangalisa isimangaliso sezokwelapha: Ngokwako, ukululama okuphelele kusuka ku-transverse myelitis akunakwenzeka uma inqubekelaphambili enhle ingenziwa ezinyangeni ezintathu kuya kweziyisithupha zokuqala, futhi ukuqala ngokushesha kwezimpawu (njengoba u-Arlen azibonela) kunciphisa lokho kuphela I-prognosis, ngokusho kweNational Institutes of Health (NIH). Ngaphezu kwalokho, wayesalwa ne-AEDM futhi, enekhono lokubangela "ukukhubazeka okuncane kuya kokulinganisela impilo yonke" ezimweni ezinzima ezifana ne-Arlen's.

"Ochwepheshe bami [bamanje] bathe, 'Uphila kanjani? Abantu abaphumi kulokhu!'" Esho.

Noma eqala ukubuyisa ukunyakaza - ehlezi, ezidla yedwa - ubesadinga isihlalo sabakhubazekile impilo yansuku zonke kanti nodokotela bebengabaza ukuthi uzophinde akwazi ukuhamba futhi.

Ngesikhathi u-Arlen esaphila futhi ephapheme, usizi lwashiya umzimba nengqondo yakhe kunemiphumela ehlala njalo. Ukulimala okungathi sína ebuchosheni bakhe nasemgogodleni kwasho ukuthi u-Arlen wayengasakhubazeki kodwa wayengasakwazi ukuzwa noma yiluphi uhlobo lomnyakazo emilenzeni yakhe, okwenza kube nzima ukuthumela amasignali ukusuka ebuchosheni bakhe kuya ezithweni zakhe ukuze aqale isenzo. (Okuhlobene: Ukuba Nesifo Esikhubazayo Kungifundise Ukubonga Umzimba Wami)

Ukuthola Amandla Akhe Kabusha

Ukukhula nabafowabo abathathu nomndeni wezemidlalo, u-Arlen wayeyithanda imidlalo - ikakhulukazi ukubhukuda, okwakuyisikhathi sakhe "esikhethekile" nomama wakhe (owayebhukuda ngokuzimisela). Eminyakeni emihlanu ubudala, watshela ngisho nomama wakhe ukuthi wayezowina indondo yegolide ngelinye ilanga. Ngakho-ke naphezu kokulinganiselwa kwakhe, u-Arlen uthi wayegxile kulokho yena kungenzeka enza ngomzimba wakhe, nangokukhuthazwa ngumndeni wakhe, waqala ukubhukuda futhi ngo-2010.

Okuqale kwaqala njengendlela yokwelashwa ngokomzimba, kwavuselela uthando lwakhe lomdlalo. Wayengahambi kodwa wayekwazi ukubhukuda - futhi kahle. Ngakho u-Arlen waqala ukuzimisela ngokubhukuda kwakhe ngonyaka olandelayo. Ngokushesha ngemva kwalokho, ngenxa yalokho kuqeqeshwa okuzinikele, wafanelekela Imidlalo Yabantu Abakhubazekile YaseLondon ka-2012.

Ubone konke lokho kuzimisela nokusebenza kanzima njengoba ebhukuda elwela iThimba laseMelika futhi ewina izindondo zesiliva ezintathu - ngaphezu kokuthatha igolide ku-freestyle yamamitha ayi-100.

Ukuphusha Imingcele

Ngemuva kwalokho, u-Arlen wayengenazo izinhlelo zokuvele alengise izindondo zakhe aphumule. Uke wasebenza ne-Project Walk, isikhungo sokululama sokukhubazeka esizinze e-Carlsbad, CA, ngesikhathi elulama, futhi uthi uzizwe enenhlanhla kakhulu ukuthola ukwesekwa kwabo kochwepheshe. Wayefuna ukubuyisela ngandlela thile futhi athole injongo ebuhlungwini bakhe. Ngakho-ke, ngo-2014, yena nomndeni wakhe bavula indawo yeProject Walk eBoston lapho angaqhubeka nokuziqeqesha futhi anikeze nesikhala sokuvuselelwa kokuhamba kwabanye abakudingayo.

Khona-ke, phakathi neseshini yokuqeqeshwa ngonyaka olandelayo, kwenzeka okungalindelekile: U-Arlen wezwa okuthile emilenzeni yakhe. Kwakungumsipha, futhi wayewuzwa “uvuleka,” uyachaza—into ayengakaze ayizwe kusukela ngaphambi kokukhubazeka kwakhe. Ngenxa yokuzinikela kwakhe okuqhubekayo ekwelashweni ngokomzimba, lokho kunyakaza kwemisipha eyodwa kwaba yisisusa, kwathi ngoFebhuwari 2016, u-Arlen wenza lokho odokotela bakhe ababengakaze bacabange ukuthi angakwenza: Wathatha isinyathelo. Ezinyangeni ezimbalwa kamuva, wayehamba ngezinsimbi zomlenze engenazinduku, futhi eza ngo-2017, u-Arlen wayegadla impungushe njengomncintiswano Ukudansa nezinkanyezi.

Ilungele Ukugijima

Noma konke lokho kunqobile ngaphansi kwebhande lakhe, wengeze okunye ukuwina encwadini yakhe yokuqopha: U-Arlen wagijima iWalt Disney World 5K ngoJanuwari 2020 - into ezwakala njengephupho lepayipi ngenkathi elele enganyakazi embhedeni wesibhedlela ngaphezulu nje kwe-10 eminyakeni edlule. (Okuhlobene: Ekugcineni Ngazibophezela Kanjani KuHalf Marathon - Futhi Ngaxhuma Nami Ngokwami ​​Enqubweni)

"Lapho uhlezi esihlalweni sabakhubazekile iminyaka eyishumi, ufunda ukuthanda ngempela ukugijima!" uthi. Imisipha eyengeziwe emzimbeni wakhe ongezansi isiyasebenza (ngokwezwi nezwi) ngenxa yokuqeqeshwa kweminyaka eminingi ne-Project Walk, kodwa kusenenqubekelaphambili okufanele yenziwe ngeminye yemisipha emincane, eqinisekayo emaqakaleni nasezinyaweni zakhe, uyachaza.

Sibheke Ikusasa

Namuhla, u-Arlen ungumphathi we- I-American Ninja Warrior Junior kanye nentatheli evamile ye-ESPN. Ungumbhali oshicilelwe - funda incwadi yakhe Ukhiyelwe ngaphakathi: Intando Yokusinda kanye Nokunquma Ukuphila (Buy It, $ 16, bookshop.org) - kanye nomsunguli weVictoria's Victory, okuyisisekelo esihlose ukusiza abanye "ngezinselelo zokuhamba ngenxa yokulimala noma ukuxilongwa okuguqula impilo," ngokunikela ngemifundaze yezidingo zokubuyisa, ngokusho kwewebhusayithi yesisekelo.

“Ukubonga yikhona okwangigcina ngiqhubeka iminyaka eminingi lapho izinto zazingangivuni,” kusho u-Arlen. "Iqiniso lokuthi ngiyakwazi ukunwaya ikhala liyisimangaliso. Lapho ngivalelwe [emzimbeni wami], ngikhumbula ngicabanga ukuthi 'Uma ngingavele nginwaye ikhala ngolunye usuku lokho kungaba into enkulu kunazo zonke emhlabeni!'" Manje, utshela abantu ababhekene nesikhathi esinzima, ukuthi "bame baklwebhe ikhala lakho" njengendlela yokubonisa ukuthi ukunyakaza okulula kangako kungathathwa kalula kanjani.

Uthi futhi ukweleta kakhulu emndenini wakhe. Uthi: “Abazange bangilahle. Ngisho nalapho odokotela bemtshela ukuthi ulahlekile, umndeni wakhe awuzange ulahlekelwe ithemba. "Bangiphushile. Bakholelwa kimina."

Naphezu kwakho konke abhekane nakho, u-Arlen uthi ngeke ashintshe lutho lwayo. Uthi: “Konke kwenzeka ngesizathu. "Ngikwazile ukuguqula le nhlekelele ibe yinto yokunqoba futhi ngisize abanye endleleni."

Buyekeza kwe-