Ngabe i-MS izoba kubi kakhulu? Ungabhekana Kanjani Nokuthi-Yini Uma Uthola Ukuxilongwa Kwakho

-Delile

• Ngabe i-MS izoba yimbi kakhulu?
• Ingabe ngizolahlekelwa ikhono lami lokuhamba?
• Ngabe kuzofanele ngiyeke ukusebenza?
• Ngisazokwazi yini ukwenza izinto engizijabulelayo?
• Ngisakwazi ukuya ocansini?
• Uyini umbono we-MS?
• Ukudla okudlela endlini

Ukubuka konke

I-Multiple sclerosis (MS) yisifo esingelapheki. Kulimaza i-myelin, into evikelayo enamafutha esonga amaseli ezinzwa. Lapho amangqamuzana akho ezinzwa, noma ama-axon, evezwa ekulimaleni, ungahle ube nezimpawu.

Izimpawu ezivame kakhulu ze-MS zifaka:

• ubunzima ngokulinganisela nokuxhumanisa
• ukungaboni kahle
• ukukhubazeka ekukhulumeni
• ukukhathala
• ubuhlungu nokushoshozela
• ukuqina kwemisipha

Njengomphumela womonakalo, imizwa kagesi yomzimba wakho ayikwazi ukuhamba kalula ngezinzwa eziveziwe njengoba ibingenza ngezinzwa ezivikelwe. Izimpawu zakho ze-MS zingaba zimbi ngokuhamba kwesikhathi njengoba umonakalo uba muncu.

Uma usanda kuthola ukuxilongwa kwe-MS, ungaba nemibuzo mayelana nokuthi ikusasa likuphatheleni wena nomndeni wakho. Uma ucabanga ngezimo zokuthi-uma impilo ye-MS ingakusiza yini ukuthi ulungiselele okungaphambili futhi uhlele ushintsho olungaba khona.

Ngabe i-MS izoba yimbi kakhulu?

I-MS ngokuvamile iyisifo esiqhubekayo. Uhlobo oluvame kakhulu lwe-MS ukubuyisela kabusha i-MS. Ngalolu hlobo, ungahlangabezana nezikhathi zezimpawu ezikhuphukile, ezaziwa njengokuphinda ubuye. Ngemuva kwalokho, uzoba nezikhathi zokululama ezibizwa nge-remission.

I-MS ayibikezeli, noma kunjalo. Izinga lapho i-MS iqhubeka khona noma iba nzima lihlukile kuwo wonke umuntu. Zama ukungaziqhathanisi wena nesipiliyoni sakho nakwabanye abantu. Uhlu lwezimpawu ze-MS kungenzeka lude, kodwa akunakwenzeka ukuthi uzohlangabezana nazo zonke.

Indlela yokuphila enempilo, kufaka phakathi ukudla okuhle, ukuzivocavoca umzimba njalo, nokuphumula okwanele, kungasiza ukubambezela ukuqhubeka kwe-MS. Ukunakekela umzimba wakho kungasiza ukunweba izikhathi zokuxolelwa futhi kwenze izikhathi zokubuyela emuva kube lula ukuzibamba.

Ingabe ngizolahlekelwa ikhono lami lokuhamba?

Akuwona wonke umuntu one-MS ozolahlekelwa amandla akhe okuhamba. Eqinisweni, izingxenye ezimbili kwezintathu zabantu abane-MS zisakwazi ukuhamba. Kodwa ungahle udinge umoba, izinduku, noma i-walker ukukusiza ugcine ibhalansi lapho unyakaza noma unikeza ukuphumula uma ukhathele.

Ngesinye isikhathi, izimpawu ze-MS zingase ziholele wena neqembu lakho labahlinzeki bezokunakekelwa kwezempilo ukuthi nicabangele isihlalo sabakhubazekile noma enye insiza yosizo. Lezi zinsiza zingakusiza ukuthi uhambe ngokuphepha ngaphandle kokukhathazeka ngokuwa noma ukuzilimaza.

Ngabe kuzofanele ngiyeke ukusebenza?

Ungahle ubhekane nezinselelo ezintsha emsebenzini ngenxa ye-MS nomphumela ongaba nawo emzimbeni wakho. Lezi zinselelo zingaba zesikhashana, njengesikhathi sokubuyela emuva. Zingabuye zihlale unomphela njengoba isifo siqhubeka futhi uma izimpawu zakho zingapheli.

Ukuthi uzokwazi yini ukuqhubeka usebenza ngemuva kokuxilongwa kuya ngezici ezimbalwa. Lokhu kufaka impilo yakho yonke, ubunzima bezimpawu zakho, nokuthi hlobo luni lomsebenzi owenzayo. Kepha abantu abaningi abane-MS bayakwazi ukuqhubeka nokusebenza ngaphandle kokushintsha indlela abasebenza ngayo noma imisebenzi eguqukayo.

Ungahle uthande ukucabanga ukusebenza nomelaphi osebenzayo njengoba ubuyela emsebenzini. Lezi zingcweti zingakusiza ukuthi ufunde amasu okubhekana nezimpawu noma izinkinga ngenxa yomsebenzi wakho. Bangaqinisekisa futhi ukuthi usakwazi ukwenza imisebenzi yomsebenzi wakho.

Ngisazokwazi yini ukwenza izinto engizijabulelayo?

Ukuxilongwa kwe-MS akusho ukuthi udinga ukuphila impilo yokuhlala phansi. Odokotela abaningi bakhuthaza iziguli zabo ukuthi zihlale zikhuthele. Futhi, ezinye izifundo zikhombisile ukuthi abantu abane-MS abalandela uhlelo lokuzivocavoca bangathuthukisa izinga labo lempilo kanye namandla okusebenza.

Noma kunjalo, kungadingeka ukuthi wenze izinguquko emisebenzini yakho. Lokhu kuyiqiniso ikakhulukazi ngezikhathi zokubuyela emuva.Idivayisi yosizo, efana nenduku noma izinduku, ingahle idingeke ukukusiza ugcine ibhalansi yakho.

Ungapheli amandla ngezinto zakho ozithandayo. Ukuhlala usebenza kungakusiza ukuthi uhlale unombono oqondile futhi ugweme ukucindezelwa okweqile, ukukhathazeka noma ukucindezeleka.

Ngisakwazi ukuya ocansini?

Ukusondelana ngokocansi kungaba kude nasemqondweni wakho kulandela ukuxilongwa kwe-MS. Kepha ngesikhathi esithile, ungazibuza ukuthi lesi sifo sithinta kanjani amandla akho okusondelana nomlingani wakho.

I-MS ingathinta impendulo yakho yezocansi nokushayela ucansi ngezindlela eziningana. Ungathola i-libido ephansi. Abesifazane kungenzeka ukuthi banciphise ukuthambisa kocansi futhi bangakwazi ukufinyelela kwi-orgasm. Amadoda nawo angazabalaza ukufeza ukwakhiwa noma angathola ukuthi ukujula kunzima noma kungenzeki. Ezinye izimpawu ze-MS, kufaka phakathi ushintsho lwezinzwa, zingenza ucansi lungakhululeki noma lungathandeki.

Kodwa-ke, usengakwazi ukuxhumana nomuntu omthandayo ngezindlela ezizwakalayo - kungaba ngokuxhumana ngokomzimba noma ngokomzwelo.

Uyini umbono we-MS?

Imiphumela ye-MS iyahluka kakhulu kuye ngomuntu nomuntu. Okuhlangenwe nakho kwakho kungahluka kulokho omunye umuntu abhekana nakho, ngakho-ke ikusasa lakho nge-MS akunakwenzeka ukubikezela.

Ngokuhamba kwesikhathi, kungenzeka ukuthi ukuxilongwa kwakho okuqondile kwe-MS kungaholela ekwehleni kancane kancane kokusebenza. Kepha ayikho indlela ecacile yokuthi uzofika lapho noma nini.

Ngenkathi lungekho ikhambi le-MS, udokotela wakho kungenzeka akunikeze umuthi wokunciphisa izimpawu zakho nokubambezela ukuqhubeka. Kube nokwelashwa okusha okusha eminyakeni yamuva okuveza imiphumela ethembisayo. Ukuqala ukwelashwa kusenesikhathi kungasiza ekuvikeleni ukulimala kwezinzwa, okunganciphisa ukukhula kwezimpawu ezintsha.

Ungasiza futhi ukwehlisa izinga lokukhubazeka ngokugcina indlela yokuphila enempilo. Vivinya umzimba njalo udle ukudla okunempilo ukuze unakekele umzimba wakho. Futhi, gwema ukubhema nokuphuza utshwala. Ukunakekela umzimba wakho ngokusemandleni akho kungakusiza ukuthi uhlale usebenza futhi unciphise izimpawu zakho isikhathi eside ngangokunokwenzeka.

Ukudla okudlela endlini

Ukulandela ukuxilongwa kwe-MS, ungaba nemibuzo eminingi ngokuthi ikusasa lakho lizobukeka kanjani. Ngenkathi inkambo ye-MS ingaba nzima ukubikezela, ungathatha izinyathelo manje ukunciphisa izimpawu zakho nokuqhubeka kancane kwesifo. Ukufunda okuningi ngangokunokwenzeka mayelana nokuxilongwa kwakho, ukuthola ukwelashwa khona manjalo, nokwenza ushintsho endleleni yokuphila kungakusiza ukuphatha ngempumelelo i-MS yakho.