Ungawucwaninga kanjani umdlavuza

Uma wena noma othandekayo unomdlavuza, uzofuna ukwazi konke ongakwenza mayelana nalesi sifo. Ungazibuza ukuthi uzoqala ngaphi. Yimiphi imithombo esesikhathini, ethembeke kakhulu yolwazi ngomdlavuza?

Imihlahlandlela engezansi ingakusiza ufunde konke ongakufunda ngomdlavuza.Ngaleyo ndlela, ungenza izinqumo ezinolwazi mayelana nokunakekelwa komdlavuza wakho.

Qala ngokukhuluma nethimba lakho lokunakekela umdlavuza. Umdlavuza ngamunye wehlukile futhi umuntu ngamunye wehlukile. Abahlinzeki bakho bezokunakekelwa kwempilo bayakwazi, ngakho-ke uhlobo lokunakekelwa olutholayo luzoncika kokulungele wena nesimo sakho. Izikhungo eziningi zomdlavuza zinabahlengikazi abafundisa.

Khuluma ngezinketho zakho nethimba lakho. Ungathola imininingwane kuwebhusayithi yesikhungo sakho somdlavuza noma isibhedlela. Amawebhusayithi amaningi ezibhedlela anezinsizakusebenza ezahlukahlukene:

• Imitapo yolwazi yezempilo
• Phrinta nezincwadi ze-inthanethi nomagazini
• Amabhulogi
• Amakilasi nezingqungquthela kugxilwe ezindabeni eziphathelene nokuba nomdlavuza
• Imininingwane mayelana nokuhlolwa komtholampilo okwenzeka esikhungweni sakho somdlavuza noma esibhedlela

Kufanele futhi ukhulume nabanye abahlinzeki bokunakekela umdlavuza. Kungumqondo omuhle ukuthola okuvela kumhlinzeki ongaphezu koyedwa lapho ubhekene nokugula okungathi sína. Khuluma nomhlinzeki wakho ngokuthola umbono wesibili ngaphambi kokwenza izinqumo ezinkulu zezempilo.

Ukuze uthole ukwaziswa okujulile, bheka imithombo kahulumeni kanye nezinhlangano zezokwelapha. Banikela ngolwazi olususelwa ocwaningweni, olusesikhathini mayelana nazo zonke izinhlobo zomdlavuza. Nazi ezimbalwa okufanele uqale ngazo:

Isikhungo Somdlavuza Kazwelonke - www.cancer.gov. INational Cancer Institute (NCI) iyingxenye yeNational Institutes of Health (NIH). I-NCI inemisebenzi eminingi:

• Usekela futhi uqhuba ucwaningo lomdlavuza
• Iqoqa, ihlaziye, futhi yabelane ngemiphumela yocwaningo lomdlavuza
• Inikeza ukuqeqeshwa ekutholeni umdlavuza nokwelashwa

Ungathola imininingwane yamanje, ejulile ku:

• Zonke izinhlobo zomdlavuza
• Izici zobungozi nokuvimbela
• Ukuxilongwa nokwelashwa
• Ukuhlolwa kwemitholampilo
• Ukusekelwa, ukubhekana nezinkinga nezinsizakusebenza

I-NCI idala ukufingqwa kolwazi lomdlavuza we-PDQ (trademark). Lokhu ukufingqa okuphelele, okususelwa ebufakazini ngezihloko ezibandakanya ukwelashwa komdlavuza, ukunakekelwa okusekelayo nokwelashwa okuncane, ukuhlolwa, ukuvimbela, ufuzo, kanye nemithi edidiyelwe.

• Ngemininingwane yomdlavuza efingqa ukwelashwa komdlavuza wabantu abadala - www.cancer.gov/publications/pdq/information-summaries/Adult-treatment
• Ngemininingwane yomdlavuza efingqiwe ngokwelashwa komdlavuza wezingane - www.cancer.gov/publications/pdq/information-summaries/pediatric-treatment

I-American Cancer Society - www.cancer.org. I-American Cancer Society (ACS) yinhlangano kazwelonke engenzi nzuzo ethi:

• Uhlanganisa imali futhi wenza ucwaningo ngomdlavuza
• Inikezela ngolwazi olusesikhathini kubantu abanomdlavuza nemindeni yabo
• Inikela ngezinhlelo zomphakathi nezinsizakalo, ezinjengeRides to Treatment, indawo yokuhlala, nokulahleka kwezinwele nemikhiqizo ye-mastectomy
• Inikeza ukusekelwa ngokomzwelo ngokusebenzisa izinkundla ze-inthanethi namakilasi
• Ixhuma iziguli zodwa nezisebenzi zokuzithandela nazo ezisinde kumdlavuza
• Isebenza nabomthetho ukushaya imithetho esiza abantu abanomdlavuza

I-American Society of Clinical Oncology - www.cancer.net. ICancer.com iqhutshwa yi-American Society of Clinical Oncology, inhlangano yobungcweti yama-oncologists emitholampilo (odokotela bomdlavuza). Isayithi linikeza imininingwane ku:

• Izinhlobo ezahlukene zomdlavuza
• Indlela yokuphatha ukunakekelwa komdlavuza
• Ukubhekana nokusekelwa
• Ucwaningo ngomdlavuza kanye nokumela

Izilingo Zemitholampilo.gov. I-NIH iqhuba le sevisi. Isiza sihlinzeka ngemininingwane ngokuhlolwa kwemitholampilo kulo lonke elase-United States. Ungathola:

• Luyini uvivinyo lomtholampilo
• Ungakuthola kanjani ukuhlolwa kwemitholampilo endaweni yakho, okubalwe ngesihloko noma ngemephu
• Ungazifuna kanjani izifundo futhi usebenzise imiphumela yosesho
• Ungayithola kanjani imiphumela yokufunda

Imithombo Yesineke Yesizwe Ebanzi Yesifo Somdlavuza - www.nccn.org/patientresources/patient-resource. I-NCCN inikeza iziguli nabanakekeli bazo:

• Imininingwane okulula ukuyiqonda mayelana nomdlavuza nokwelashwa komdlavuza
• Imininingwane okulula ukuyiqonda mayelana nemihlahlandlela yemitholampilo yokunakekelwa komdlavuza
• Imininingwane ngosizo lokukhokha
• Imininingwane ekuhlolweni kwemitholampilo

Ukuze ubuyekeze imihlahlandlela eningiliziwe eyenzelwe odokotela abelapha umdlavuza, ungabuyekeza izinkombandlela ze-NCCN ku-www.nccn.org/professionals/physician_gls/default.aspx.

Ungabona inguqulo yesineke yale mihlahlandlela ku-www.nccn.org/patients/default.aspx.

Kubalulekile ukwazi ukuthi ungayithola kanjani imininingwane yezempilo ongayethemba. Kufanele usebenzise ezinye izinsiza ngokunakekela.

Amaforamu aku-inthanethi, amagumbi okuxoxa, namaqembu okusekela. Le mithombo ingakusiza uthole izindlela zokubhekana, wabelana ngezindaba zakho, futhi uthole nokusekelwa. Kepha khumbula ukuthi abekho abantu ababili abafanayo uma kukhulunywa ngomdlavuza. Qaphela ukuthi ungafinyeleli eziphethweni ngomdlavuza wakho nokuthi uzothuthuka kanjani ngokususelwa kulokho okwehlele omunye umuntu. Akufanele futhi uthole izeluleko zezokwelapha emithonjeni eku-inthanethi.

Izifundo zomdlavuza. Kungaba mnandi ukufunda ucwaningo lwakamuva mayelana nomuthi omusha noma ukwelashwa komdlavuza. Vele ungafundi kakhulu esifundweni esisodwa. Izindlela ezintsha zokuxilonga, ukwelapha nokuvimbela umdlavuza zamukelwa kuphela ngemuva kweminyaka eminingi yocwaningo.

Umuthi ohlanganisayo (IM). Abantu abaningi abanomdlavuza bafuna ezinye izindlela zokwelashwa. Sebenzisa ukunakekela lapho ufunda ngalezi zindlela zokwelapha. Gwema amasayithi athembisa ukwelashwa okuyisimangaliso. Ungathola imininingwane ethembekile kwa-National Center for Complementary and Integrative Health (NCCIH). Lesi sikhungo siphethwe yi-NIH. Inikeza imininingwane esekwe ocwaningweni ku-nccih.nih.gov.

Iwebhusayithi yeAmerican Cancer Society. www.cancer.org. Kufinyelelwe ngoMeyi 6, 2020.

I-American Society of Clinical Oncology. ICancer.net iwebhusayithi. Ukuqonda ukwakheka kocwaningo lomdlavuza nokuthi ungayihlola kanjani imiphumela. www.cancer.net/research-and-advocacy/introduction-cancer-research/understanding-cancer-research-study-design-and-how-evaluate-imiphumela. Kubuyekezwe u-Ephreli 2018. Kufinyelelwe kuMeyi 11, 2020.

I-American Society of Clinical Oncology. ICancer.net iwebhusayithi. Ukuqonda ukushicilelwa nefomethi yezifundo zocwaningo ngomdlavuza. www.cancer.net/research-and-advocacy/introduction-cancer-research/understanding-publication-and-format-cancer-research-studies. Kubuyekezwe u-Ephreli 2018. Kufinyelelwe kuMeyi 11, 2020.

Clinical Trials.gov iwebhusayithi. www.clinicaltrials.gov. Kufinyelelwe ngoMeyi 6, 2020.

Iwebhusayithi yeNational Cancer Institute. www.cancer.gov. Kufinyelelwe ngoMeyi 6, 2020.

Iwebhusayithi ye-National Comprehensive Cancer Network. Izinsiza zokubekezelela nokunakekela. www.nccn.org/patients/default.aspx. Kufinyelelwe ngoMeyi 6, 2020.

• Umdlavuza