Buza Isazi: Izeluleko Zabantu Abaphila Ne-RRMS

-Delile

• Iyiphi indlela engcono yokuphatha i-RRMS? Ngingakwazi ukubambezela ukuqhubeka kwayo?
• Yini okufanele ngiyenze lapho ngihlaselwa yi-MS?
• Ingabe ikhona indlela enginganciphisa ngayo inani lokuhlaselwa kwe-MS engikutholayo?
• Ingabe kukhona uhlobo oluthile lokudla noma ukudla okuphakamisa i-RRMS?
• Ingabe kulungile ukuphuza utshwala ngezikhathi ezithile?
• Ukuzivocavoca kusiza kanjani nge-RRMS? Yikuphi ukuzivocavoca okuphakamisayo, futhi ngingahlala kanjani ngikhuthazekile lapho sengikhathele?
• Ngabe imisebenzi evusa ingqondo ingathuthukisa umsebenzi wami wokuqonda? Yini okusebenza kahle kakhulu?
• Yini okufanele ngiyenze uma imithi yami ye-MS ibangela imiphumela emibi?
• Ngingakuthola kanjani ukwesekwa ngokomzwelo kwe-MS?
• Yisiphi iseluleko sakho sokuqala kubantu abasanda kutholakala ukuthi bane-RRMS?

Iyiphi indlela engcono yokuphatha i-RRMS? Ngingakwazi ukubambezela ukuqhubeka kwayo?

Indlela engcono kakhulu yokuphatha i-relapsing-remitting multiple sclerosis (RRMS) nge-agent yokuguqula izifo.

Imithi emisha iyasebenza ngamanani anciphayo ezilonda ezintsha, anciphisa ukubuyela emuva, futhi anciphise ukuqhubeka kokukhubazeka. Ihambisana nempilo enempilo, i-MS iyalawuleka kakhulu kunanini ngaphambili.

Yini okufanele ngiyenze lapho ngihlaselwa yi-MS?

Uma uhlangabezana nezimpawu ezintsha ezihlala amahora angama-24 noma ngaphezulu, xhumana nodokotela wakho wezinzwa, noma uye egumbini lezimo eziphuthumayo. Ukwelashwa kusenesikhathi ngama-steroids kunganciphisa ubude besikhathi sezimpawu.

Ingabe ikhona indlela enginganciphisa ngayo inani lokuhlaselwa kwe-MS engikutholayo?

Ukuqhubeka nokwelashwa okuguqula izifo (i-DMT) okusebenzayo kusiza ukwehlisa izinga lokuhlaselwa yi-MS kanye nokuqhubekela phambili kwezifo okuhamba kancane. Inani lama-DMTs emakethe lenyuke ngokushesha eminyakeni yamuva.

I-DMT ngayinye inomphumela ohlukile ekunciphiseni ukubuyela emuva. Amanye ama-DMTs asebenza kangcono kunamanye. Khuluma nodokotela wakho ngezingozi zemithi yakho nokusebenza kwayo ekumiseni izilonda ezintsha bese ubuyela emuva.

Ingabe kukhona uhlobo oluthile lokudla noma ukudla okuphakamisa i-RRMS?

Akukho kudla okukodwa okufakazelwe ukuthi kwelapha noma kwelapha i-MS. Kepha ukuthi udla kanjani kungathinta amazinga akho wamandla nempilo yonke.

ziphakamisa ukuthi ukudla ukudla okuningi okusetshenzisiwe kanye ne-sodium kungaba nomthelela ekuqhubekeni kwezifo ngokwandisa ukuvuvukala emathunjini.

Ukubheja kwakho okuhle kakhulu ukuthi udle ukudla okune-fiber eningi futhi okune-sodium eningi, ushukela, kanye nokudla okusetshenzisiwe. Ukudla kweMedithera noma kwe-DASH kuyizibonelo ezinhle zalolu hlobo lwephethini yokudla enempilo.

Ngincoma ukudla okunothe ngokudla kwemvelo. Faka imifino eningi enamaqabunga aluhlaza namaprotheni anciphile. Inhlanzi iphezulu kuma-omega-3 fatty acids, angasiza abanye abantu abane-MS.

Yidla inyama ebomvu kancane. Gwema ukudla okusheshayo, njengama-hamburger, izinja ezishisayo, nokudla okuthosiwe.

Odokotela abaningi batusa ukuthatha isithasiselo sevithamini D-3. Khuluma nodokotela wakho wezinzwa mayelana nokuthi kufanele uthathe i-vitamin D-3 engakanani. Inani ngokuvamile lincike ezingeni lakho lamanje legazi D-3.

Ingabe kulungile ukuphuza utshwala ngezikhathi ezithile?

Yebo, kodwa kubalulekile njalo ukuphuza ngokuzibophezela. Abanye abantu bangabhekana ne-flare-up (noma ukuwohloka kwezimpawu zabo ze-MS) ngemuva kweziphuzo ezimbalwa.

Ukuzivocavoca kusiza kanjani nge-RRMS? Yikuphi ukuzivocavoca okuphakamisayo, futhi ngingahlala kanjani ngikhuthazekile lapho sengikhathele?

Ukuzivocavoca umzimba kusiza ukugcina umzimba nomqondo ophilile. Kokubili kubalulekile ekulweni ne-MS.

Ukuvivinya umzimba okuhlukahlukene kuyasiza kubantu abane-MS. Ngincoma ikakhulukazi ukuzivocavoca nge-aerobic, ukuzelula, nokulinganisela, kufaka phakathi i-yoga ne-Pilates.

Sonke silwa nogqozi. Ngithola ukunamathela esimisweni esibekiwe nokuzibekela imigomo ephathekayo kusiza ukuthuthukisa inqubo efinyelelekayo.

Ngabe imisebenzi evusa ingqondo ingathuthukisa umsebenzi wami wokuqonda? Yini okusebenza kahle kakhulu?

Ngikhuthaza iziguli zami ukuthi zihlale zikhuthele ngokomqondo nangokwengqondo ngokuziphonsela inselelo ngemidlalo yokuzibandakanya, enjenge-sudoku, i-Luminosity, nama-crossword puzzle.

Ukuxhumana nomphakathi kuyasiza kakhulu ekusebenzeni kwengqondo. Ukhiye ukukhetha umsebenzi ojabulisayo novuselelayo.

Yini okufanele ngiyenze uma imithi yami ye-MS ibangela imiphumela emibi?

Njalo xoxa nganoma yimiphi imiphumela emibi yemithi yakho nodokotela wakho wezinzwa. Imiphumela emibi eminingi ingeyesikhashana futhi ingancishiswa ngokuthatha imithi yakho ngokudla.

Imithi engaphezulu kwe-counter, njengeBenadryl, i-aspirin, noma amanye ama-NSAID, angasiza.

Thembeka kudokotela wakho wezinzwa uma imiphumela emibi ingathuthuki. Imithi kungenzeka ingakulungeli. Kunezindlela eziningi zokwelapha ezahlukahlukene udokotela wakho angancoma ukuthi uzame.

Ngingakuthola kanjani ukwesekwa ngokomzwelo kwe-MS?

Izinsiza eziningi ziyatholakala kubantu abane-MS kulezi zinsuku. Okunye okusiza kakhulu isahluko sakho sendawo seNational MS Society.

Banikela ngezinsizakalo nokusekelwa, okufana namaqembu, izingxoxo, izinkulumo, ukusebenzisana okuzisiza, izinhlelo zomlingani womphakathi, nokunye okuningi.

Yisiphi iseluleko sakho sokuqala kubantu abasanda kutholakala ukuthi bane-RRMS?

Manje sinezindlela eziningi zokwelapha eziphumelelayo neziphephile zokwelapha abantu abaku-spectrum ye-MS. Kubalulekile ukusebenza nochwepheshe we-MS ukusiza ukuzulazula nokunakekela kwakho.

Ukuqonda kwethu i-MS kuthuthuke kakhulu emashumini amabili edlule. Sithemba ukuqhubeka nenqubekela phambili ngenhloso yokuthola ikhambi ekugcineni.

UDkt Sharon Stoll uyi-neurologist eqinisekisiwe yebhodi eYale Medicine. Unguchwepheshe we-MS kanye noprofesa osizayo emnyangweni wezinzwa eYale School of Medicine. Uqedile ukuqeqeshwa kwakhe ukuba ngumfundi we-neurology eThomas Jefferson University Hospital ePhiladelphia, kanye nobudlelwano bakhe neuroimmunology esibhedlela iYale New Haven Hospital. UDkt Stoll uyaqhubeka nokudlala indima ebonakalayo ekuthuthukiseni izifundo nasekuqhubekeni nemfundo yezokwelapha, futhi usebenza njengomqondisi wezifundo wohlelo lwonyaka lwe-Yale lweMS CME. Ungumphenyi ocwaningweni lomtholampilo lwamazwe amaningi, futhi njengamanje usebenza emabhodini amaningi okweluleka, kufaka phakathi i-BeCare MS Link, i-Forepont Capital Partners, i-One Touch Telehealth, ne-JOWMA. UDkt Stoll uthole imiklomelo eminingi, kufaka phakathi indondo yokufundisa kaRodney Bell, futhi ungumamukeli wesibonelelo semitholampilo yeNational MS Society. Usanda kukhonzwa emsamo wezemfundo wesisekelo sikaNancy Davis, iRace to Erase MS, futhi uyisikhulumi esidume umhlaba wonke.