Kungani Izinkulungwane Zabantu Zabelana Ngezikhwama Zabo Ze-Ostomy ku-Social Media

-Delile

• Ukuhlukunyezwa kwakukubi kangangokuba ebangeni lesibili, ngafakela imiphumela yami ye-scoliosis
• Lokhu kuyiqiniso izingane eziningi nentsha ekhubazekile ehlala nayo
• Ukuba yingxenye yomphakathi okuqondayo lokho obhekene nakho kungaba ukushintsha okunamandla ngokumangalisayo

Kungenxa yokuhlonipha amabhuloho ayisikhombisa, umfana omncane owafa ngokuzibulala.

"Uyaxaka!"

"Yini inkinga yakho?"

"Awujwayelekile."

Lezi yizinto zonke izingane ezikhubazekile ezingase zizizwe esikoleni nasenkundleni yokudlala. Ngokuya ngocwaningo, izingane ezikhubazekile zazinamathuba aphindwe kabili kuya kwamathathu okuxhashazwa kunontanga bazo abangakhubazeki.

Lapho ngisafunda amabanga aphansi, ngangixhashazwa nsuku zonke ngenxa yokukhubazeka ngokomzimba nokufunda. Nginobunzima bokwehla ngenyuka ezitebhisini, ngibamba izitsha noma amapensela, nezinkinga ezinzima ngokulinganisela nokuhlanganisa.

Ukuhlukunyezwa kwakukubi kangangokuba ebangeni lesibili, ngafakela imiphumela yami ye-scoliosis

Bengingafuni ukugqoka isibopho sangemuva futhi ngiphathwe kabi kakhulu yilabo ebengifunda nabo, ngakho-ke ngisukume ngiqonde kunendlela engime ngayo futhi angikaze ngitshele abazali bami ukuthi udokotela uncoma ukuthi sikubheke.

Njengami, amaSeven Bridges, umfana oneminyaka eyishumi waseKentucky, wayengomunye wezingane eziningi ezaphathwa kabi ngenxa yokukhubazeka kwakhe. Abayisikhombisa babenesifo esingalapheki samathumbu kanye ne-colostomy. Wahlukunyezwa ephindelela. Unina uthi ubedlaliswa ebhasini ngenxa yephunga elivela esimweni sakhe samathumbu.

NgoJanuwari 19, abayisikhombisa babulawa ngokuzibulala.

Ngokwaluphi ucwaningo olulinganiselwe olukhona esihlokweni, izinga lokuzibulala kwabantu abanezinhlobo ezithile zokukhubazeka liphakeme kakhulu kunabantu abangakhubazeki. Abantu abakhubazekile ababulawa ukuzibulala banamathuba amaningi okwenza lokho ngenxa yemiyalezo yomphakathi esiyithola emphakathini mayelana nokukhubazeka.

Kukhona ukuxhumana okuqinile phakathi kokuxhashazwa nokuzizwa uzibulala kanye nezinye izindaba zezempilo yengqondo.

Kungekudala ngemuva kokushona kukaSeven, umsebenzisi we-Instagram ogama lakhe linguStephanie (ohamba ngo @lapetitechronie) uqale i-hashtag #bagsoutforSeven. UStephanie unesifo sikaCrohn kanye ne-ileostomy ehlala njalo, abelane ngesithombe sakhe ku-Instagram.

I-ostomy ukuvuleka esiswini, okungaba unomphela noma okwesikhashana (futhi esimweni sikaSeven, bekungokwesikhashana). I-ostomy inamathele ku-stoma, ukuphela kwethumbu elithungelwe ku-ostomy ukuvumela imfucuza ishiye umzimba, nesikhwama esincamathele ukuqoqa imfucuza.

UStephanie wabelana ngezakhe ngoba wayekhumbula amahloni nokwesaba ayehlala nakho, ethole i-colostomy yakhe eneminyaka engu-14. Ngaleso sikhathi, wayengazi omunye umuntu ngeCrohn's noma i-ostomy. Wayenovalo lokuthi abanye abantu bazokuthola futhi bamhlukumeze noma bamkhiphe inyumbazane ngoba ehlukile.

Lokhu kuyiqiniso izingane eziningi nentsha ekhubazekile ehlala nayo

Sibonwa njengabantu bangaphandle bese sihlekwa usulu ngokungaphezi futhi sihlukaniswa ontanga yethu. NjengoStephanie, ngangingazi muntu ngaphandle komndeni wami okhubazekile ngaze ngaba sebangeni lesithathu, lapho ngibekwa ekilasini lezemfundo ekhethekile.

Ngaleso sikhathi, ngangingasebenzisi ngisho ne-mobility aid, futhi ngicabanga nje ukuthi ngangizizwa ngingedwa kakhulu uma ngangisebenzisa induku lapho ngisemncane, njengoba ngenza manje. Kwakungekho noyedwa owayesebenzisa insiza yokuhambisa isimo unomphela ezikoleni zamabanga aphansi, aphakathi, noma eziphakeme.

Kusukela uStephanie aqala i-hashtag, abanye abantu abane-ostomies bebelokhu babelana ngezithombe zabo. Futhi njengomuntu okhubazekile, ukubona abameli bevula futhi behola indlela yentsha kunginika ithemba lokuthi intsha eningi ekhubazekile ingazizwa isekelwa - nokuthi izingane ezinjengoSikhombisa akudingeki zilwe zodwa.

Ukuba yingxenye yomphakathi okuqondayo lokho obhekene nakho kungaba ukushintsha okunamandla ngokumangalisayo

Kubantu abakhubazekile nezifo ezingalapheki, wukusuka ehlazweni futhi uye ekuziqhenyeni kokukhubazeka.

Kimina, kwakungu- # DisabledAndCute kaKeah Brown eyasiza ekuvuseleleni ukucabanga kwami. Ngangivame ukufihla induku yami ezithombeni; manje, ngiyaziqhenya ngokuqinisekisa ukuthi iyabonakala.

Ngangiyingxenye yomphakathi okhubazekile ngaphambi kwe-hashtag, kodwa lapho ngifunde okuningi ngomphakathi okhubazekile, amasiko, nokuziqhenya - futhi ngafakaza kubantu abahlukahlukene abakhubazekile abavela kuzo zonke izizinda zokuphila babelana ngokuhlangenwe nakho kwabo ngenjabulo - Ngikwazile ukubona ubunikazi bami obukhubazekile njengobungafanele ukugujwa, njengobunikazi bami benkosi.

I-hashtag efana ne- #bagsoutforSeven inamandla okufinyelela ezinye izingane ezinjenge-Seven Bridges futhi izibonise ukuthi azingedwa, ukuthi izimpilo zazo zikufanele ukuphila, nokuthi ukukhubazeka akuyona into onamahloni ngayo.

Eqinisweni, kungaba ngumthombo wenjabulo, ukuziqhenya nokuxhumana.

U-Alaina Leary ungumhleli, umphathi wezokuxhumana nomlobi waseBoston, eMassachusetts. Njengamanje ungumsizi womhleli we-Equally Wed Magazine nomhleli wezokuxhumana wenhlangano engenzi nzuzo Sidinga Amabhuku Ahlukahlukene.