Ngaphandle Kokuqwashisa: Izindlela ezi-5 Zokusiza Ngempela Umphakathi Womdlavuza Webele

-Delile

• 1. Yenza umnikelo wezezimali ku ucwaningo
• 2. Sekela umuthi womdlavuza odinga usizo
• 3. Ezemfundo nokumela (ezendawo noma zikazwelonke)
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• Amathuba wokumela
• 4. Yabelana nesikhathi sakho nobungoti bakho nomphakathi womdlavuza
• 5. Volontiya!

Le Nyanga Yokuqwashisa Ngomdlavuza Webele, sibheka abesifazane abangemuva kweribhoni. Joyina ingxoxo ku-Breast Cancer Healthline - uhlelo lokusebenza lwamahhala kubantu abaphila nomdlavuza webele.

LANDA I-APP LAPHA

U-Okthoba uyinyanga enzima kimi. Isipiliyoni esiningi somdlavuza kanye neqiniso sekuhlanekezelwe futhi kwamelwa kabi yimikhankaso engapheli egxile ekwaziseni nasezintweni ezibomvana.

Ukuqwashisa njengemishini kwakukuhle eminyakeni engama-20 eyedlule, kodwa ukuqwashisa akukuvimbi ukuphindaphinda kweMetastatic Breast Cancer Network (MBCN) futhi akuhlinzeki ngezinsizakusebenza, izinqubomgomo, kanye nokwesekwa abantu abakudinga ukusebenza ngesikhathi nangemuva kokwelashwa.

Ngakho-ke, njengoba ugcwele upinki phakathi nenyanga ka-Okthoba, ngiyaninxusa ukuthi nime futhi nizifundise ngaphambi kokusebenzisa imali yenu ezintweni nasemikhankasweni egxile kakhulu ekwaziseni.

Ngalesi sikhathi, umhlaba uyazi ngomdlavuza webele nemiphumela yawo ebulalayo.

Abangakwaziyo ukuthi imikhankaso eminingi yePinktober ayixhasi empeleni ucwaningo lomdlavuza webele we-metastatic - okuwukuphela kohlobo lomdlavuza webele obulala.

Isikhathi sokungaphezu kokuqwashisa, yisikhathi sokwenza.

Njengomdlavuza osemusha webele 'thriver,' nginentshisekelo yokufundisa nokunikeza amandla ngamunye wenu ngolwazi namathuluzi eniwadingayo ukwenza umthelela ongaphezu kokuqwashisa ngalo Okthoba.

Qhubeka ufunde ngezindlela ezinhlanu ongenza ngazo umehluko emphakathini womdlavuza webele kule nyanga nakuwo wonke unyaka.

1. Yenza umnikelo wezezimali ku ucwaningo

Imikhankaso eminingi kakhulu phakathi neNyanga Yokuqwashisa Ngomdlavuza Webele ibonakala yenza umehluko - kepha empeleni, nikela kuphela ingxenye encane yokuthengisa kwabo.

Izikhathi eziningi, lezo zimali zisetshenziselwa "ukusabalalisa ukuqwashisa," okungasho cishe noma yini. Imali encane kakhulu empeleni ixhasa ucwaningo ngqo.

Ngakho-ke esikhundleni sokuchitha u- $ 20 esikhungweni esibomvana lapho kuzonikelwa kuphela u- $ 1, thatha leyo $ 20 uyinikele ngqo enhlanganweni eyenza umthelela oqondile.

ICharity Navigator iyithuluzi elihle lokusiza ukuhlola okungenzi-nzuzo. Ngiphinde ngabona idlanzana lezinhlangano ezingezansi ezinikela kakhulu ocwaningweni lomdlavuza webele futhi ezithinta ngqo izimpilo zabantu abanomdlavuza webele.

• METAvivor. Amaphesenti ayi-100 wezimali eziqoqiwe aya ngqo ocwaningweni lomdlavuza webele webele.
• Isisekelo Sokucwaninga Ngomdlavuza Webele (BCRF). I-BCRF ixhasa ucwaningo lomdlavuza webele elithembisayo futhi isekela imikhankaso yokukhuthaza unyaka wonke.
• Ukubumbana Komdlavuza Webele Kazwelonke. Lokhu kubumbene kwabameli, ososayensi, kanye nababambiqhaza bomphakathi abagxile ekupheliseni umdlavuza webele ngocwaningo, izifundo zomtholampilo, kanye nemizamo yokukhuthaza.
• I-Young Survival Coalition (YSC). I-YSC inikeza ukwesekwa, izinsiza, nomphakathi kwabesifazane abasebasha abatholakala benomdlavuza webele phakathi kweminyaka eyi-18 kuye kwengama-40.
• Ukuphila Ngaphandle Komdlavuza Webele. Le nhlangano igxile ngqo kwezemfundo, ekumeleleni nasempilweni yalabo abaphila nomdlavuza webele nangaphezulu kwawo.

2. Sekela umuthi womdlavuza odinga usizo

Ungenza umthelela oqondile kule nyanga ngokusiza umuntu ngamunye onomdlavuza webele ngokuxhaswa kwezezimali, ukudla, ukuthuthwa, noma izimpahla.

Ukwelashwa kungakhipha umzimba, ngokwengqondo nangokwezimali. Ungasiza ngokunikela ngokudla, ukunakekela izingane, ukuhlanza, ukuhambisa, noma izinto.

Kuyamangalisa ukuthi ukwelashwa komdlavuza nokubiza okungabiza okungabiza kangakanani - futhi izinto eziningi azimboziwe ngumshuwalense.

3. Ezemfundo nokumela (ezendawo noma zikazwelonke)

Kunezindlela eziningi kakhulu ongenza ngazo umthelela ngaphandle kokuchitha i-dime. Ukusebenzisa isikhathi sakho nezwi lakho ukukhuthaza ushintsho ekunakekelweni, ocwaningweni, kunqubomgomo nasekusekelweni kwenza umehluko omkhulu emphakathini womdlavuza webele.

Ungaqala endaweni ngokufundisa abantu kanye nochwepheshe bezokunakekelwa kwezempilo ngezidingo zomdlavuza webele njengokuzala, impilo yengqondo, nokuphila kahle.

Ufuna ukuthatha imfundo yakho nokukhuthaza kwakho uye ezingeni elilandelayo? Bhalela isenator noma umkhankaso wakho eCapitol Hill ukuqinisekisa ukuthi izwe lakho lisebenzisa izinqubomgomo ezintsha njengalezo ezidinga izinkampani zomshuwalense ukumboza ukulondolozwa kokuzala kwabantu abadala abatholakala benomdlavuza webele.

Ubuwazi ukuthi yizifunda ezimbalwa kuphela ezigunyaza lokhu kufakwa?

Nazi izinhlangano ezimbili ezingasiza:

• Umbimbi Wokulondolozwa Kwenzalo
• Umbumbano Wokuvikela Ubuzali Ngemuva Komdlavuza

Sidinga usizo lwakho ukushintsha ingxoxo ehlobene nabantu abayi-113 abazobulawa umdlavuza webele usuku ngalunye, ngokusho kweMETAvivor.

Iningi labantu baseMelika alazi ukuthi umdlavuza webele we-metastatic uwukuphela kohlobo lomdlavuza webele obulala, kepha nokho ngaphansi kwamaphesenti ama-5 oxhaso locwaningo lugxile ku-MBC.

Ngokufundisa nokunikeza amandla abantu ngalawa maqiniso, singashintsha ingxoxo futhi sibe nomthelela ezinqumweni ezenziwa ngocwaningo nokwelashwa ezweni lonke. Funda kabanzi futhi usize ukufundisa abanye.

1. Ufuna ukuhlanganisa ucwaningo lokukhuthaza nokuxhasa ngezimali? Bamba iqhaza kumkhankaso we-Novartis Kiss Lo 4 MBCN. Thumela isithombe ozishuthe sona noma seqembu, sebenzisa i-hashtag ethi # KissThis4MBC kanti u- @Novartis uzonikela ngama- $ 15 ocwaningweni lwe-Metastatic Breast Cancer Network nge-METAvivor. Kulula kakhulu kepha kwenza umthelela omkhulu!

Amathuba wokumela

• Isigaba IV Stampede
• Umkhankaso we-METAvivor Legislative Advocacy Campaign
• Amathuba Wokukhuthaza Ukubumbana Kwentsha
• Ukuphila Ngaphandle Kwesifo Somdlavuza Webele Uhlelo Lommeli Omncane
• Umkhankaso Wokukhuthaza Isikhathi Somnqamulajuqu Webele
• Ukugqugquzela unyaka wonke ne-BCRF

4. Yabelana nesikhathi sakho nobungoti bakho nomphakathi womdlavuza

Njengomholi weqembu lomdlavuza webele labesifazane abasebasha eRaleigh, eNorth Carolina, ngihlala ngifuna ochwepheshe abazimisele ukuhlanganyela isikhathi sabo nobungcweti babo nabaphuzi bethu bomdlavuza.

Izihloko ezicelwe kakhulu ezokudla, ukufaneleka, impilo ephelele, nobulili noma ukusondelana. Ukuzulazula impilo ngesikhathi nangaphezulu kokwelashwa kungaba ngumzabalazo lapho ungenazo izinsiza ozidingayo noma lezo zinsizakusebenza zingafinyeleleki ngokwezezimali.

Uma unekhono ongabelana ngalo, xhumana nomholi weqembu le-Young Survival Coalition noma ummeleli wombuso endaweni yangakini ukuze ufunde ukuthi ungasiza kanjani.

5. Volontiya!

Esinye sezipho ezinkulu ongasinikeza isikhathi sakho.

Ngaphandle kosizo lwakho, izinhlangano ezingenzi nzuzo ezisebenza ukuhlinzeka ngezinsizakusebenza, ukusekelwa, nomphakathi emphakathini womdlavuza webele bezingeke zibe khona.

Ngeke nje ube nomthelela oqondile emphakathini womdlavuza webele kepha uzothola umuzwa omuhle wokugcwaliseka nemfundo njengoba uzifundela mathupha ngokuhlangenwe nakho komdlavuza webele.

Noma iyiphi yalezi zinhlangano ezimangalisayo ingathanda ukuba nawe njengesisebenzi sokuzithandela futhi ungathola umsebenzi ohambelana namakhono akho nokutholakala kwakho:

• Amathuba Wokuzithandela Wentsha Yobumbano Lokusinda
• Ukuphila Ngale Kwamathuba Okuzithandela Womdlavuza Webele
• Amathuba Wokuzithandela weLacuna Loft
• Amathuba Wokuzithandela we-METAvivor

Ngangineminyaka engama-27 lapho kutholakala ukuthi nginomdlavuza webele futhi ngibonga kakhulu ngethuba engibe nalo lokusebenzisa ulwazi lwami nentshisekelo yami ukusiza abanye baphumelele phakathi - nangaphezulu - komdlavuza webele.

Yinto sonke esingaba nesandla kuyo, ngakho-ke kulo Okthoba (nonyaka wonke), cabanga ngale kwepinki bese uguqula ukwazi isenzo.

U-Anna ungumthandi wesitayela, i-blogger yokuphila, nomdlavuza webele. Wabelana ngendaba yakhe nomlayezo wokuzithanda nokuphila kahle ngebhulogi yakhe kanye nemithombo yezokuxhumana ekhuthaza abesifazane emhlabeni wonke ukuthi baphumelele lapho bebhekene nobunzima ngamandla, ukuzethemba, nesitayela.